That Damned Tunnel

Summer and the Radiation Moon

Thought more about the tunnel I mentioned in the post below. For a long while, especially from February through mid-May or so, I thought the light at the end of the tunnel was the ironic oncoming train. Seemed like the tunnel had shrunken and passing through it was a unit train headed in our direction.

Once Kate began to gain weight, smile, the tunnel expanded a bit. A small path opened up that we could jump onto and wait out the train. When the cancer diagnosis went from psa to imaging studies, and the imaging studies showed no mets, the small path widened up enough for both of us to stand next to each other.

The exit from the tunnel is still far off. I’m estimating September, late September, as the time when we see if the track outside the tunnel runs through a pleasant valley or back into another mountainside.

When I did the Progoff workshop in May I thought mostly about the time since Kate’s bleed. On the way to radiation today I turned this over again and decided that the move to Colorado was the key moment. Since then four aspects of our new life came to dominate.

supervised trip, A-Basin, 2016

Family. Since we moved here on the Winter Solstice of 2014, Jon has gone through a bitter divorce, lived with us for a year and purchased his own home. The grandkids have gone from traumatized to tween and teenager. In 2016 we went to Korea for Joe and SeoAh’s wedding. Since then, SeoAh has become an important part of our family, too.

Colorado. We live in this remarkable state, close to many things people spend thousands of dollars to visit. We’ve seen few of them. The tunnel has contained us. Perhaps as we emerge from the tunnel, we’ll be able to plan trips. 5280, a magazine, has an insert this month, 10 classic Colorado road trips. A good place to start.

We live in the mountains among the lodgepole pines, aspens, craggy cliffs and fast flowing streams. Mule deer, elk, fox, bears, and mountain lions are our neighbors. Making our life here on Shadow Mountain has given us great joy, the beauty and the changing seasons

Kate at the CBE board’s oneg, Rosh Hashanah, 2018

Judaism. Congregation Beth Evergreen has been a refuge, a joy. The folks there have shown us what community means, what mitzvah means, that life together is better than life apart. Friends, intellectual sustenance, spiritual growth.

October 8, 2018

Healthspan. It was the diagnosis in 2015 that started it. Oh. Cancer? Really? Let’s get it out and move on. Tried to do that. Next up. Arthritic knee. Get a new, titanium one. Yes. Good choice. Kate needed a new right shoulder. Also a good choice. Sjogren’s began to eat into Kate’s well-being, dragging her weight down, causing fatigue, nausea. The bleed made it all more problematic for her. Second bleed. Pneumothorax. Each meant time in the hospital, starting in the E.R. at Swedish. Flu. Pneumonia. Me. Rising psa. Oh? Really? Later here we are in week 3 of the radiation. Hopeful for the near term future. How our lifespan has been affected? Probably shortened.

First day of radiation

It is my feeling that emergence from the tunnel will call on us to interact more fully with all of these four. I’m excited and ready.

Round 3

Summer and the Radiation Moon

Yesterday

Under the warmth of nuclear fusion’s endless possibilities my body takes in fractions of photon radiation, breaking the DNA of cancer cells and friendlies alike. Outside it was 83 degrees, the sun hitting us with more direct beams. Inside it was all Cyber Knife and its accelerator hitting me. Different nuclear generative processes, but both powerful in their own way.

This is a three day radiation week. The long July 4th weekend is time off, then back at it five days a week until done on August 6th. Yesterday I listened to Bach’s well-tempered clavier. Today, Berlioz. Night on Bald Mountain.

After I said I still had no side effects, Dr. Gilroy, in our weekly management meeting yesterday, said, “Well, you might slide through the whole time. In the last week there’s often an increase in urinary frequency.” Of course that’s just the radiation. The Lupron’s an agent all of its own. Still no side effects from it either.

Kate on the porch on Pontiac Street, 2015

Trying to feel my way toward the life after radiation. Kate’s feeling better, not all the way back, but much, much better. At first I was thinking about 7 weeks in the Cyber Knife tunnel. What it will be like when all the fractions have been given?

I realized though that we entered the true tunnel when Kate’s Sjogren’s began to effect her eating. A couple of years ago. The tunnel narrowed on September 28th, 2018, now nine months past. The bleed and its subsequent hospitalizations, imaging studies, doctor’s visits, and surgeries took more and more of both our energies.

Fortunately, Kate’s long ordeal began to have positive notes as cancer returned for me. If we’re lucky, and I think we will be, we’ll reach a point in September, after the second Lupron shot and a surveillance psa, when we can catch our breath, assess where we’ve been and where we’re going.

One of the tricks of living is to stay in the moment as much as possible without losing sight of life’s context. Not easy. The context includes the past and the future, yet we never inhabit either one. Only the present. Right now I’m living life fraction by fraction. One trip to Lone Tree at a time. One meal at a time. One workout at a time.

In September are the High Holidays, Sukkoth, Simchat Torah. The month of Elul precedes Tishrei, the month of the High Holidays, and as such is considered a time of repentance and preparation. Perfect for us this year. Too, on September 29th is Michaelmas, the springtime of the soul. In this instance Michaelmas falls on erev Rosh Hashanah.

And, in my own inner calendar, daylight’s change from 14 hours and 54 minutes on June 21, the summer solstice, to 11 hours and 53 minutes on Michaelmas, means that I’ll be moving further into the deep parts of my soul.

Looking gently forward to Elul, to Michaelmas, to Rosh Hashanah and Yom Kippur. This year Rosh Hashanah could be a true new year for us, the start of a healthier time. May it be so.