Spring New Shoulder Moon
Busy Friday the 13th. Jon took Gabe for a follow-up after his bout with septicemia on Thursday. At 12:30 am they called with the result. Infection still present. Immediate hospitalization. The culprit? His port through which he had been given his infusions of factor, a drug that supports his clotting cascade (Gabe’s a hemophiliac.). So. Surgery yesterday at 6 pm to remove the port. No new one will be placed. Instead he will become one of five people receiving subcutaneous injections of a new drug that maintains his clotting ability without the factor. This is his second hospitalization in the last three weeks.
The national Sjogren’s Foundation annual conference is, ironically, at a Hyatt-Regency in Aurora, directly across Colfax Avenue from Children’s Hospital. Gabe’s in room 716 at Children’s; Kate’s in room 828 at the Hyatt. I’m on Shadow Mountain taking care of the dogs. That means Kate spent yesterday afternoon and night one-handed on her own at the conference. Gives you an idea of how much this conference means to her.
Her spirits are good. She’s gained a bit of weight, following advice from the nutritionist consult. Make every bite count. She’s also managing Sjogren’s, hence the conference and starts physical therapy on Monday. That’s plenty.
I went to visit Gabe yesterday after dropping Kate off at the Hyatt. Easy drive. He was in good spirits, too, tethered to an IV pole pumping antibiotics in through his port, but otherwise engaged with magnets and youtube. Apparently he was watching videos of pic line insertions, a procedure similar to installing a port. Anything that penetrates the skin, especially something that remains in place over time like Gabe’s port, a feeding tube, long term IV compromises the body’s capacity to keep critters on the outside. In this case Gabe’s port has been infected with a bacteria that normal lives on corals. Yes, corals.
A whole team of yellow robed, mask wearing infectious disease docs came into his room while I was there. There are three other patients in the hospital right now with the same infection. They can’t find it at the hospital and can’t figure out any commonalities among the patients. It’s troubling because septicemia can be deadly.
As I left Children’s to go home and let the dogs out, I got an e-mail from Paul Strickland. At first I didn’t understand it because the sender was someone I know only very peripherally. About halfway through the lobby, yes impaired walking, I understood it. Mark Odegard’s step-son, Chris, from his marriage to Margaret, shot himself outside his mother’s home. The wound was “not survivable,” though last I heard his body was still alive.
Mark made time for Chris, not only during his marriage to Margaret, but after, too. He wrote yesterday that Chris had become despondent in recent months, hearing voices. I can find no words. Only, so sorry. What a sadness.