68 bar steady 29.78 0mpn SSW dewpoint 22 Beltane
New Moon (Hare Moon)
The day has passed as we both tried to get our arms around this notion of Gabe as hemophiliac. As a dedicated user of the internet, I have looked up and printed out several different articles, brochures, information handouts. Canada Health Services had some good stuff; so did the CDC; and, the World Hemophiliac Federation. The amount of data, good data, available quickly astounds me every time I reach out for it. I have not had a disappointing search, ever.
The emotional problem is this: lifelong. This tiny guy, still in the hospital from birth at 35 weeks, now has a mountain to climb every day, every hour for the rest of his life. This is a Sisyphean task because every time he rolls the ball up the mountain, it will come right back down. There is no cure. There is only amelioration. After looking at the various treatments, I became even more convinced Gabe has the right Dad. It will require fortitude to climb this mountain, go to sleep, get up and climb it again.
So, life will proceed. We will all come to some terms with this and develop ways we can support Jon and Jen, Ruth and Gabe. We all need to learn a lot more right now.
Daffodils have begun to pop open everywhere, so yellow and white is a dominant accent to green here now. Tulips should come into bloom any day now and the magnolia is out in all its snowy fineness. Working in the garden, even for a bit, literally grounds me, draws anxiety out and replaces it with the strength of life’s eternal cycle.
