Summer Moon of the First Harvest
Our youngest grandchild, Gabe, has hemophilia. Hemophilia puts a lot of demands on his parents and on his older sister Ruth, but they all handle it with the same kind of grace that Gabe displays. The goal of course is for Gabe to have a normal childhood, as normal as possible, and to that end Jen and Jon inject him with factor three times a week to prevent bleeds. He takes this with a kind of stoicism not normally found in five year olds.
There is a regional branch of a national hemophilia center in Denver not far from Jon and Jen’s home and they do a lot of education and outreach in addition to clinical management. Each year the center and their volunteer support group has a camp in the Rockies for kids with hemophilia and their siblings. Ruth went for the first time this year. Gabe’s not old enough yet.
