People of Elk Run

My neighbor, John, has a long history of custodial jobs, interspersed with occasional gardening work. Along the way he’s learned a lot. History of upstate New York where he lived in Rome on the Erie Canal. Horticultural knowledge like the care and pruning of roses. Environmental issues through his brother’s work as Sierra Club staff in Missoula, Montana.

John does volunteer work here on the grounds of Elk Run.

Marsha, an elementary school teacher has lived in Evergreen for sixty-four years.  She eats at a familiar table with Mike who lived in her neighborhood as did Ruth who sits at the table across the way. They didn’t know each other.

Jim’s from Kansas City. Another Mike from Texas. One woman, who never gave me her name says she gets moved a lot. She likes Elk Run. One of the best according to her. I’ve met others. Paul. Gayle, originally from New Hampshire. Melanie who has dragons on her door. She volunteered that she leaves her door open and “blasts country music.”

Slowly meeting people.

Lunch Out

Yesterday. No resolution yet on Shadow and the night. Crystal, unlike Nashay, has no problem taking her out after dark.

Most staff here work 4 twelve-hour shifts. That means the rhythm of their appearance changes often. I get the reason for a day shift and a night shift. It gives us residents continuity of care throughout the time we’re awake. Even so it would be nice to have caregivers on a more predictable schedule. Maybe I’ll get used to it.

Petscan results delayed. Appointment now on Monday.

Lunch out yesterday. Ginny and Janice. Ashley, Janice’s three year old niece. Patrick and Allen? Two men with great white beards. Felt at home.

We went to the Hummingbird, the Creole restaurant opened by Josh and Sarah, two CBE members with New Orleans roots. I had beignets (of course) and blackened mahi mahi po-boy.

We laughed and talked for an hour plus. By that time I’d grown weary, but happy. I can go out for lunch. Breakfast. Not too often. It did wear me out, but a big advance for my life.

 

The Dark

A bit of a kerfuffle right now over Shadow. Nashay, the caregiver who described the dangers of the dark-bears, racoons, rabid foxes-with such quavery passion refused to take Shadow out. l protested. She said nobody would take her out. Devolved into her “calling her supervisor.” Who has not showed up. Gonna be a bigger issue as we move toward Samain, then the Winter Solstice.

Telehealth call has me a little anxious. How far has my cancer advanced? Could be minimal; could be a lot. Affects my longevity.

Lunch with Ginny and Janice and two of their friends from Milwaukee. One of them, Janice’s former student at the University of Illinois at Champagne-Urbana, has become a well-known costume designer. Looking forward to it.

Feeling a little down today. Nashay, whom I dislike. The only staff person here I don’t like. Since she’s my assigned caregiver on certain nights… Then, come to Jesus time about cancer. As well as selling my house and still in the midst of unpacking, settling in.  A lot. Glad I’m talking to Tom today and having lunch out.

 

Cancer

Got up late yesterday.

Had a visit from my palliative care nurse sub, Claire. She brought along a nurse practitioner transitioning to palliative  care from the ICU.

Bless their pea-picking bureaucratic hearts the folks at Optum believe I’m doing so well I don’t need palliative care. Peculiar since I still have stage 4 metastatic prostate cancer. It’s not going away. Complimenting me while denying me benefits. Bad insurance company. Take a time out.

The nurse practitioner gave me a new formula for recovery from a hospitalization: a week for each day. Even discounting rehab a bit because I did get out of bed some, that formula suggest months of recovery. In addition she and Claire corroborated that recovery from the pneumonia itself takes months.

These comments were meant to reassure me that I was still on the upward arc of recovery. I appreciated them. I tend to focus on what’s still troublesome-weak legs, wonky balance-and forget where this journey started.

Had my petscan. It will tell the tale about my cancer status. Telehealth visit with Christina tomorrow  for the results.

Hannah

Hannah. A slender, tall African woman. Always friendly, helpful. Came into my apartment yesterday and began enthusing about my books. Bemoaning the books she’d left behind. Said she spent her paycheck on books. “I never thought I’d see someone that loved books as much as I do.”

When she told me she spoke French, I asked what country she was from. Nigeria. She came here for college, her father paying. He died just after she finished her second year. Put stop to college. Her marriage then was young. She stayed here. Fifteen years ago.

She looked at my books, pulling out favorites like Chaucer. “Oh, this one is funny. I think Shakespeare got some ideas from him.” A shame a woman of her intellect had to settle.

Then, “Oh, you have the Torah.”

“Well. I’m a Jew.”

She stopped for a second, “So am I.” Hannah keeps a kosher house and has raised her children as Jews. Her parents converted before she was born.

We were both amazed. Book lovers and Jews. That’s a strong connection. We agreed to do something around Hannukah.

In the odd way of senior care, later that evening she helped me get dressed for bed. Which involved me getting briefly naked. No problem: caregivers role.

Thus endeth Monday.

Elk Run: Week 2

Shadow got to play with Annie yesterday morning. Ginny came to pick her up. When she got home around 1 pm, she laid down and went to sleep.

Took two naps yesterday. A sleepy Sunday. Tried to watch a football game, but the buffering stopped that. When I went in for my second nap.

Got started on documents necessary to list my house. Colorado likes forms, lots of them. I’ll be on that today as well. The house sits empty, deep clean today, painting tomorrow. Staging follows. Showings. Then a contract. May it be soon.

With the house ready to go on the market and my Long Term Care claim underway, I’m moving closer to eliminating the two most complex issues I have right now. Well, cancer, too.

Pet scan this week, Wednesday, telehealth with Christina about  it on Friday. See where things are now. Decide on next steps.

A lot of change since July 1st. Here’s yet another shout out to Mary, Joseph, Melissa, Tom, Ginny and Janice and everyone else who has supported me. I’ve needed every bit of support.

Now

All the book boxes have been unloaded and their content shelved. Thanks Ginny and Janice. This means my living room has begun to take shape. The chairs have been moved back so there’s more room in front of them, yet enough space to access my books.

Ginny will pick up Shadow sometime after nine for doggy time with Annie and Luna. Shadow has a chance to run, visit friends. I’m grateful for that.

Still very weak, but as Janice pointed out, “Yes, but consider where you were two months ago.” Two months today I had just gotten out of rehab, tripped coming into the house, and felt like I should have stayed in rehab. So, fair enough.

I can navigate with the cane. As I said, stamina and leg strength are priorities. In rehab the standard line for recovery had a formula: 3 days recovery for every day in a hospital bed. Roughly 3 months for me. This is the end of month two. As Janice rightly pointed out, I’m much further along now than then.

Hearing

Settling in at Elk Run. Until the place gets put together, a while yet, that process will continue.

It will take longer to settle in with the people. In part due to a fundamental problem–poor hearing. In the dining room the clank of glasses, rising and falling chatter, the ping of silverware on plates, makes hearing a challenge. It also interferes with thought. Hard to think with all the noise. As Mike said, waving his hands over his ears, distressed, “I can’t think with all this.”  Bothered me, too.  As a result, we often trail off mid-sentence, giving over our conversations to the chaos.

Shadow seems happy. She likes her walks, her times with Annie, and playing with me.

Alan and Joanne came by yesterday. We spoke of many things. The marginalization of creativity; whether an AI doomsday await us all, my doggie. It was a delight to have them here.

Stamina sucks. Need to workout in long hallway. Thighs are weak. Strengthening my legs and increasing stamina: priorities.

LTC policy

Big event of the day. I filed my claim with Allianz. Long Term Care policy. The initial intake took about 45 minutes. Chronic illness? Prostate cancer. Trouble with activities of daily living, aka ADLs? Showering. Dressing. Other questions. These were the important ones.

Allianz now sends queries to Elk Run, Visiting Angels, Sue Bradshaw, Dr. Bupathi. At some point a decision gets made. Often a first denial, sometimes a second, then my financial people will step in. Help me.

Once approved there’s a 90-day waiting period before payment begins. That means I have to pay for Elk Run on my own for at least three months.  I will get a check covering all of Visiting Angel’s invoice. The LTC policy will also cover my bill at Elk Run. Can’t wait.

Carol, my physical therapist, came by for our last visit. As I mentioned before, her entire department, Mt. Evans Home Health Care, got axed. Announced only three weeks ago. September 30th is her last day. I snuck in as a last patient to be fully discharged.

Exercise has been hard to keep up as I learn a new routine, have visitors, and remain fatigued. I need it though or I will never dig myself even part way out of the deep hole left over from my medical July. Note to self: do it.

The cardboard wall of book boxes behind me has vanished like the Berlin Wall. Ginny and Janice. Many boxes remain; many have left the building empty. Closer and closer to moved in.

 

Ginny and Janice. Rabbi Jamie.

Yesterday. A flurry. Ginny and Janice came. Their usual work ethic. Opened about half the boxes in my living room. Books on shelves horizontally. I look forward to organizing them. Lot of action.

Rabbi Jamie came by. We talked about his Alaska trip. The final days of his sabbatical. The Top of the World highway. Rough enough it shattered his rear window. Hearing and seeing a Golden Eagle launch itself into the air. Visiting Wrangli-St. Elias National Park which some compare to Switzerland. Except the park is bigger than Switzerland!

Also talked about the why of my move to Elk Run. Safety. The shock of pneumonia, then rehab. How weak I remain.

Asked him about his talk I missed, Judaism After Gaza. His main point: American diaspora Judaism shaped its post-holocaust self through Zionism focused on a safe place for Jews. Israel. And expected it to be a liberal democracy.

It was. For awhile. Of late its right wing factions have turned it into a dominant military power willing to exert itself through hostile, brutal acts in Gaza, the West Bank, Lebanon, and Iran.

Its actions have divided American Jews. That division and how it plays out over the next few years is Judaism After Gaza. At least in the U.S. Not clear what it will be like.

Later, beef stir fry over rice. A quiet evening.