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  • Uh-oh

    Summer                                        New (Grandchildren) Moon

    It’s 10 am.  Do you know where your grandkids are?  I do, they’re upstairs.

    Ruth has brought her sombre et sol disposition with her.  When sol, her blond hair dances and her smile, often mischievous, lights up the room.  When sombre, she turns her face away or covers it up with her ever present bunny and pretends no one else is there.  When she first wakes up, like her grandpop, it’s all sombre.  Later, the sun breaks out and she starts to play.

    Gabe opens cabinets and investigates those things stored just for him, that is, at his level.  One minute he’s playing sword-handler by juggling food processor blades–yikes–the next he’s taking the microwave popcorn out one bag at a time.  One bag at a time, that is, until he tumbles to the fact that he can get them all out by turning it upside down.  As he often says, Uh-oh.

    Gabe, as you may know, has hemophilia.  That means, among many other things, that Jon and Jen have to give him infusions of clotting factor three times a week through a port in his upper left chest.  It’s an elaborate protocol.  First the one who  will do the infusing has to sterilize their hands, then put on sterile gloves and prepare the infusions.  They come pre-measured but they still have to be drawn into a hypodermic plunger.

    After that’s done one of them, in this case Jen, holds him and the other, Jon, takes a small needle with a butterfly attachment and inserts it into the port.  Hopefully.  Jen said she went several weeks without missing the port, then a long stretch missing it the first time.  Gabe anticipates the poke and is unhappy, fidgety, but not out of control.

    Once the stick is in Jon first flushed the port with saline, the switched to the factor (clotting factor), pushed that out with another saline injection and follows, ironically with a fourth and last infusion of heparin, a blood thinner.  Counter intuitive, at least to me.  But, not if you understand.

    You’ve just put clotting factor in the port.  It will clot any blood in or around the port, creating a possible source of a clot breaking off and entering the bloodstream.  Not good.  So, the heparin resolves that problem.

    As I said at the beginning of this journey, Gabe couldn’t have gotten a better set of parents.  It’s not a drama, it’s not a why me, it’s a we need to do this so let’s get on with it.  That attitude will transfer to Gabe who will have to manage all this in the future.