Living With Hard Knowledge

Spring and the Moon of Liberation

Friday gratefuls: The Trans Lunar Injection Burn. Artemis II moving toward the moon. Clinical trial. Samantha. Arjan, Vincent, Tara, Eleanor

Rene Good. Alex Pretti. Say their names.

Sparks of Joy and Awe:  Artemis II

In this photo provided by NASA, a view of the Earth from NASA’s Orion spacecraft as it orbits above the planet during the Artemis II test flight, on Thursday, April 2, 2026. (NASA via AP)

Kavannah: Wonder. Malchut.  Shadow

Tarot: paused

One brief shining: When my latest PET scan showed a jump in metastases. After my PSA shot up to 92. Not panic. Regret. Sadness. Resignation. A downward trough.

 

My oncologist, Dr. Buphati, and his team wanted me in a particular arm of the study. After randomization, I am.

I’ve had a year of gliding into scanners and back out. Having bloodwork often. I’m ready to lean into a treatment plan. Act rather than diagnose.

Samantha’s e-mail: “Good news on the study. You were selected for the group receiving Actinium + ARPI. That is the most desirable group to be in btw.”

The universe has thrown me a bone.  The combination of a radioactive attack on my tumors–Actinium–and an androgen pathway receptor inhibitor–ARPI– gives me the best chance of shrinking tumors and getting.some energy back.

Good news and bad news. My clinical trial position could not be better. A high point. A place to start treatment. No matter what the trial does for my cancer, I’ll know I’ve given myself the best chance available.

When I got the PET scan and PSA results. Banged me up pretty good. My cancer was on the move. These results came in the midst of yet more trips for imaging, blood work, consultations. I was tired. Exhausted.

Not the best circumstances to absorb and frame tough information. Didn’t realize until yesterday that melancholy had been dominant. In spite of my efforts. Or, I could say, I took in difficult news and managed it well enough to avoid depression.

Cancer gives me many opportunities to practice resilience. I’m no Zen master. I don’t sit and calm myself. I do assess the context. Will my fatigue make me less able to maintain equilibrium. Yes. Less able to handle things day-to day. Yes. I watch for crankiness, low energy.

Even so. Melancholy fits like a heavy, dark cape. I become more quiet in conversation. I might jump from a 92 PSA to the cemetery. I slow down, thinking is harder. Will the trial help? I shrug.

Living with a chronic, terminal disease means making appointments, traveling from home a lot, making choices about drugs and treatments.

We know neither the day nor the hour. Not for Jesus’s return, but for our own death. I find comfort in not knowing.

 

Starting the trial.

Actinium drips.

I hope.

Pause. Say Good-bye

Spring and the Moon of Liberation

Artemis:  On the way home

Tuesday gratefuls: Miralax. Senna. Michigan. Basketball. Baseball. Another tough night. Artemis II. Space. Hubble. Webb.

Rene Good. Alex Pretti. Say their names.

Sparks of Joy and Awe: Master Travelers

 

Kavannah: Hakarat Hatov.  Gratitude.  “Who is rich? Those who rejoice in their own portion.” Pirkei Avot (4:1)

Tarot: paused

One brief shining: I have been retreating from the world. Lunches and breakfasts are painful due to the head drop. Driving still wears me out though the brace helps. I have new aches and pains. From the cancer? I don’t think so…but.

 

Since last week I have been constipated. Could be a side effect of the Tramadol. Painful. Unresolved. Some progress. Miralax to 2x a day. Add senna.

Went to bed. Early. 6 pm. Exhausted by the demands of the day. Slept well until 1 am. After that. Left side. Right side. Stomach. Back. Repeated and repeated and repeated. Could not find the sleep switch. Up at 3:30 am. Rested. Sorta. Residual aches. Sore back.

A learning about death. You stop. Everything else goes on.  Cars queue up behind a red turn signal. A group of preschoolers, all holding on to the same rope. Going to the park. Shadow circles her food bowl, waiting on you to come home. As you always have. Not this time.

The damnable ordinariness. Years of loving, talking, reading, all made moot. When Kate died her brilliant mind went silent. All her experience as a doctor. A lover. A quilter. Gone.

Yet. Artemis II took three Americans and one Canadian further from Earth than any human has gone before. Michigan beat UConn to reclaim the Men’s NCAA tournament.

I had my aspirations as a young man. Stop the war.  Raise a son. As I worked, people died every day. Good people. Kind people. Their ends did not register in my life. Their momentous parting, everything for them, was nothing to me.

In life I can fight, love. In death I cannot.

Yet I no longer privilege one over the other. When the reaper comes, the fruits of a long and interesting life will gather into my body, then disperse. To create new molecules, new lung tissue, new fingernails.

On these bad days–pain, constipation–I wonder: Is this how the final exit goes. Pain and discomfort. Then, surcease. I hope not. I would prefer to die quietly, surrounded by friends and family, Shadow by my side.

I do not mind dying. Not sooner than necessary. But when it is time. Yes. I take that long last ride.

When it happens, a fisherman catches a bass. A couple will make love and create a new human. I will have gone on ahead.

Stop a moment.
Pause.
Say good-bye.