Category Archives: Health

Health, Politics

Play to win

Leave a comment

The Off to College Moon

Thursday gratefuls: Reconstructing Judaism. Steve. Jamie. Rabbi Jamie. Zoom. Good workout. Cool night. Good sleeping. Kamala and Tim. Top of the fold stories not about the orange ifrit. Global political shifts. Asia. The Middle East. The Ukraine. The U.S. Living till I die. Shaynah. Good teeth. Pain control. Celebrex. Ginny. The Grateful Dead.

Sparks of joy and awe: Realizing I need some help

Kavanah: Joy Simcha

One brief shining: Bought this Ninja blender a couple of years ago with the intent of creating veggie smoothies and fruit smoothies, pushed it to the back of my white marble kitchen counter and there it sat until this last week when I cut up an Apple and an Orange, tossed in a Tangerine, some frozen mixed Berries, and a scoop of french Vanilla protein powder, hit smoothie and listened to it whir, pause, whir faster, then removed the blender jar. Ah.

 

Sometimes, at least in my life, it can take even a good idea time to take hold, to move from idea to practice. The blender is not the only instance. Take the Rice cooker and all those bags of Beans. I’ve had brief runs with both the Rice cooker and the Beans, but they faded. Need to find a rhythm where I use all of these simple tools to create more home made food. Of late I’ve fallen into a habit of food purchased out. Not exclusively, but for evening meals almost. Changing this habit is not about saving money, but about good nutrition. Not getting enough vegetables. Maybe not enough protein some days.

I realize now this has been in part a response to pain. Took too much out of me to prep and cook a meal. Hoping the Celebrex will help with that. Though I seem to have entered that twilight medical zone where cures create their own problems. Will have to pay close attention. Being able to handle the daily chores without having to stop due to pain would be a big gain for my day to day.

 

Just a moment: Sure, policy is important. All important to governing toward a desired outcome. Yet this one election, I’m less concerned with policy than with politics itself. To have policy differences matter in an election a democracy has to exist. I continue to see the evident danger of a loss of our democratic norms and practices if Trump should win. Vote this fall and you won’t ever have to vote again. We’ll have fixed it so good. Yikes!

No, I don’t like Kamala’s changes on fracking, on immigration, on health care. Especially that last one on which I’ve been become a mini-expert like many older Americans. Yet I know her changes representing tacking the sail, finding a way to make way in this most crucial of all elections. So I say, sure, tack away.

This election is still fraught, still dangerous. Like holding a suitcase nuke with the time set to November 4th. Play to win.

 

Feelings, Fourth Phase, Health, Politics, US History

Important to us…

Leave a comment

The Off to College Moon

Wednesday gratefuls: Shirley Waste. Great Sol. Blue Sky. Shades of green. Mark in Bangkok. Ruth and Gabe. Jen. Workout this morning. Reconstructionism tonight. Steve Bernstein. Prostate cancer. Sue. Kristie. Black Mountain. This oh so strange election year. Kamala. Tim. He who must be defeated. Celebrex. Pain relief. Medicine. Hippocrates.

Sparks of Joy and Awe: Pain Relief

Kavanah: STRENGTH  Gevura     for a workout today, this August 14th, 2024 life

One brief shining: Rolling, rolling, rolling the thunder sound of green and yellow garbage bins under a brisk Mountain early morning, my driveway, the neighbor’s driveway, then another neighbor’s, a form of sympathetic magic involved, recycling as a solution to global warming, climate change, all of us doing our part. Sort of.

 

Yesterday. Seems so far away. May I, for a moment, speak a word against telephone call centers. An example might be United Health Care. After a good medical day Monday when I felt heard and seen and cared for I followed it up doing what the front desk requested. Changing the name of my PCP from Kristin to Sue Bradshaw. Simple enough, right?

First, the chipper A.I. confident in its ability to take care of whatever I needed. After having said advocate, advocate, advocate, this simple spell did result in a human voice. Ah. Yes, I can help you change the name of your primary care provider. Can you spell her name? B-R-A-D-S-H-A-W. Please hold while I work on changing the name of your primary care provider. Some ditzy tune that would have been a good warmup at a rollerskating rink oh those many years ago. For far too long.

Hello, sir. I was not able to replace nurse practitioner Bradshaw-did I detect a slight tone of how could I anyway?-as your primary care provider. Her credentials do not meet our contractual requirements. I will call Conifer Medical Center and see if I can solve this problem. I’ll put you on hold again.

Images of rollerskates, organ music, girls in short skirts twirling while boys in jeans struggled to stay upright. Boredom. A period where I got all my bills scheduled for payment. A turn at reading the New York Times, first article, second article. Playing Spelling Bee. We’re now 20 minutes or so into this pause while other wheels turned out of my aural range.

Then the climax. A dial tone. Yup, the call dropped off. As you know, if you call back, you don’t reach the person you talked to last time.

Found my spirit doused, my energy cooled for solving minor life bureaucratic annoyances. In spite of pleasantness as my kavanah for the day, I had unpleasant thoughts, not for the first time, about my health insurance.

Just a moment: There will be blood. But for now it’s Harris/Walz placards. A presidential candidate under 60 and a 60 year old vice presidential candidate. A youth movement. Not sure how long this momentum can last, but go, Kamala, go. We have a fighting chance to win now. May her name be ever known as blessed.

 

 

Feelings, Fourth Phase, Health, Politics

Palliation

Leave a comment

The Off to College Moon

Tuesday gratefuls: Sue Bradshaw. Palliative Care. Good sleep. Smoke in the air. Open front door this morning. Geez. Kamala and Tim. A moment for Minnesota. May he who will not be named stay hidden. CBE. Alan. A Manny for Us. Getting medical stuff done. Ruby, battered but dependable. This Shadow Mountain Home. The Fourth Phase.

Sparks of Joy and Awe: Sue Bradshaw

Kavanah: PLEASANTNESS   Noam   Pleasantness, sweetness, niceness  (Chen – Graciousness, charm, charisma) ( Sever Panim: Warmth, affability, geniality; literally “a bright face”)

[Mrirut; : Grumpiness, sourness, literally “bitterness”]

One brief shining: Told Sue about my last week, she leaned in, took my hands, looked at me; here, I realized was a medical professional who cared for me as me, and a knot I didn’t know I had untied, released; I was not alone on this path toward death, be it late or soon.

 

Which is not to say that I don’t know each one of you who are walking me home and whom I’m walking home. Sue is the one inside the medical world. Kristie, too, though she’s more clinical. As this maelstrom spins, I’m not sucked under and it’s because I have friends and family who care for me. This may seem to suggest things are more dire right now. Not at all. My new PSA/testosterone numbers will clarify what is right now murky. And there are treatments left. Not sure whether or if I need them.

Sue is treating my back pain. Possibly with a long lasting NSAID. Trying tramadol right now. She also suggested I see a palliative care team*. In case you’re not familiar with this form of care, I’ve added an explainer below. It’s not hospice. It does not mean death is imminent. It does recognize in my case that the treatments I’ve been getting, combined with my back pain, are diminishing my quality of life. I feel good about this idea. A consult will happen as soon as Sue can set it up.

This part of my fourth phase began in Korea, a year ago September. That day at the main palace for the Joseon Dynasty, I watched the changing of the guard and walked back toward the center of the palace. And began hobbling. By the time we’d toured a bit more, I was done in. That occasioned my visit to the Korean orthopedist and Mr. Lee, the massage therapist. Later, here, Mary, the physical therapist.

It also occasioned my trip to San Francisco. Which was wonderful. But underlined the limitation my back has left me with. A week ago Sunday I walked from Union Station to Alan’s condo with Ruth. OMG. Lot of pain. I need more intervention. With the back pain. With the trajectory of my cancer. I feel fine with where I am now. Headed toward just that.

 

Just a moment: Just like that. Hope. Not a big fan of hope, but definitely not a fan of despair. Kamala and Tim. The happy warriors. Could we reset our politics that easily? Of course not. Yet…

 

*Palliative care is specialized medical care that focuses on providing relief from pain and other symptoms of a serious illness. It also can help you cope with side effects from medical treatments. The availability of palliative care does not depend on whether your condition can be cured.

Palliative care teams aim to provide comfort and improve quality of life for people and their families. This form of care is offered alongside other treatments a person may be receiving.

Palliative care is provided by a team of health care providers, including doctors, nurses, social workers, chaplains and other trained specialists. The team works with you, your family and your other providers to add an extra layer of support and relief that complements your ongoing care.

Art and Culture, Feelings, Fourth Phase, Friends, Health, Mussar, Politics

Izun

Leave a comment

The Off to College Moon

Monday gratefuls: A Manny for Us. Alan. Local theater. Local playwrights. Better energy, mood. This August 12th, 2024 life with Great Sol beaming. And my lev quivering with a charge of joy and strength. Sue Bradshaw. Hitting 150. Finally using my Ninja blender. Fruits and Veggies. The Ancient Brothers, chewing the fat. Lobster pottin’. Still above ground and taking nourishment.

Sparks of Joy and Awe: from melancholy to joy

One brief shining: Driving on 38th Street in Wheat Ridge, a Denver burb, oh, there’s the Fridge’s Experimental research farm, there a huge care center for Christian Scientists, there a bar/restaurant in a faux Swiss building, the Chalet of course, a huge Lutheran hospital complex wrapped around a cathedral style church, odd design choice for the ecclesiastical heirs to the 95 theses, a left turn into a strip mall with a pizza place, a martial arts spot picturing a bald white guy holding a metal sword and looking strange to me, and a plain door for the Wheat Ridge Theater Company where I spent an afternoon surprised by the depth of a local playwright.

Kavanah for this August 12th life: BALANCE   Izun (ee-ZOON)   Balance, poise, moderation

(Derech Ha’Emtzait, DARE-ech ha-em-tsah-EET: the middle path/way/course)   [Kitzoniut, keets-own-ee-OOT: Extremism, going to either end of a spectrum]

NB: Mussar does not say that the poles of a character trait are bad. There are times when they are the appropriate expression of the middot. Imbalance on ones political or religious views can be harmful, destructive, yet there also times when the extremes serve a larger, necessary purpose. Or, say, times when being either very active or passive might be the better way.

 

 

The word for balance in Hebrew is איזון, izun. Interestingly, the word for ear in Hebrew is אֹזֶן, ozen. Using my inner ear to try to catch the middle way between last week’s struggle and this week’s grace. What sound comes between? Is it middle-C? Good way to imagine it actually. I have a hard time these days hearing the high notes, children’s and women’s voices. Bass notes. Oh, they still come through pretty well.

I would say I usually live life in the upper ranges of joy and happiness. I don’t understand musical composition well enough to use it accurately here, but I do plunge down to the bass notes once in a while. A mild manic/depressive oscillation I’ve always thought. I like this analogy though because bass notes, lower keys, are, at least I think they are, musically necessary for harmony, for a musically balanced composition. Life is like that. Taking the high notes and the low notes and arranging them along the staff lines of your movement through the day so that something beautiful takes shape.

What kind of music are you making with this one Mayfly life you’ve been granted by awakening on August 12th, 2024?

 

Just a moment: Gosh. Gee whiz. Where are the I can’t believe I’m reading this headlines? Where is he who should no longer appear in bold type? In hiding? Afraid of getting his behind whooped by a woman?

 

Feelings, Fourth Phase, Friends, Health, Mussar

Again, gevurah

Leave a comment

The Off to College Moon

Shabbat gratefuls: Parsha Devarim. A milky blue and white Sky with gray Clouds stacked in rows in the northeast. Overnight Rain. 48 degrees. A cool Mountain Morning. Veronica. GOES-19. Most recent project on which she worked. Her description of the Falcon Heavy rockets landing. Her joy in seeing the launch. Gevurah. Cancer. Friendship.

Sparks of Joy and Awe: Love

One brief shining: Not sure what to do with myself as my confidence in my body erodes, breathing hard while coring an apple, walking a short distance, from the garage to the house say, and needing a rest, wondering what’s making me so weak, what’s making it so hard to breath, not inspirational, why I need to find gevurah yet again today.

Kavanah: Gevurah   Strength, ability, willpower

 

Have to figure out a practice for gevurah. In mussar a practice is a way of strengthening a middot, a character trait. For example, if your middot is chesed, loving-kindness, you would look for opportunities throughout the day to make another’s burden lighter or at least a way to share it with them. Or, carry some groceries into a house. Run an errand. Send a kind note. Express your love or admiration for someone.

This does two things. First, it helps you recognize those moments in life when an opportunity to express loving-kindness arises. Second, it helps you actually express loving-kindness when those moments arise. Mussar believes in building from the outside in. That is, the more you see chances to exercise a middot and act on them, the more habitual they will become. Changing your character not through psyche wrangling like in therapy, but more in the way an athlete builds skill in there sport. Practice. Practice. Practice.

So. What might be a good practice for me to learn how to experience my gevurah in this August 10th, 2024 life? First, I might search for moments when I express strength but might otherwise gloss over or ignore it. Like writing. A strength I have here on Ancientrails is persistence, honesty, typing skills. Or, a more simple example. I make a good bagels and lox sandwich. Have several different ways to cook eggs. Another, I said the blessing and lit the candles for Shabbat last night. A ritual reminder of my Jewishness, of the light that comes in and through me through the divine nature of my brain and body, to take a day for rest and replenishment of my spirit. When I find these moments, celebrate them, large or small.

Second, search for opportunities to express my gevurah. Take on tasks in bite size chunks. And complete them. Think, consider, weigh, analyze. Write. Write some poetry. Write about what I’m learning on Herme’s journey. Through the Tarot cards I pull each morning.

Just a moment: Considering the number of men with prostate cancer. That I know: Steve, Dave, Mike. Me. Charlie H. Dick R. Wondering about organizing them. But to do what? Support each other? Sure. But. Maybe to consider how being a man has affected our approach to cancer? That sounds more interesting.

Feelings, Fourth Phase, Health, Kabbalah, Mussar

Gevurah

Leave a comment

The Off to College Moon

Friday gratefuls: Jamie. Mussar. His translation and commentary. A smoky, wet Sky. The Olympics. Cardboard beds. Laurie and her Chi-town food truck. Chili cheese dogs. Evergreen. Evergreen Chamber Orchestra at Cactus Jack’s. Clean Ruby. Veronica. Dandelion. Ginny and Janice breakfast tomorrow. Ron’s mussar session on Gratitude. Yirah.

Sparks of Joy and Awe: Ruth off to college

One brief shining: The lev shaped table for mussar had only Jamie and Ellen around it when I came in, kippah in place, I remembered, with my too big phone and mussar notebook which I put on the table along with my ART hat from a long ago show at the Minneapolis Institute of Arts, Jamie smiled, so did Ellen.

 

Kavanah: STRENGTH   Gevura (g-voo-RAH) Strength, ability, willpower      Fifth Sefirah = restriction & boundaries; severity & justice; left hand pushing away (opposite Chesed/Kindness)  (חוּמרָה Chumra, CHOOM-rah: Strictness, stringency, rigour; from חמר to matter/have weight)  (חַיִל Chayil, CHAI-ul: Capability, valour, heroism)

[חוּלשָׁה Chulsha, chool-SHAH: Weakness, frailty, disability]

 

Picking intentions for the day that run counter to any negative feelings I’m having. In this case all the words in straight brackets: weakness, frailty, disability. Not been a great week. Too many of my lives have had an off feeling, physically. Shortness of breath. Though. I do live at 8,800 feet, have a paralyzed left diaphragm, allergies, and there’s been smoke in the air. The back issues seem more pronounced. And of course, the decadal favorite: cancer. Mostly I’m up, living my life and loving it. This week. The Monday, Tuesday, Wednesday, Thursday lives and this August 9th life from what I can tell not so much.

I feel passive. The low T fatigue, I suppose. Have to accomplish tasks in bits and pieces. Only one at a time. Laundry. Make a meal. Straighten up. By the afternoon my go meter has pegged. Drained out. Sure. I can and do read. Write. Could paint but I haven’t. Default mode is either read fiction or watch TV.

I don’t know if this is whining. I don’t think it is. It’s not meant to be. Descriptive of a lassitude born not so much of ennui but of physical depletion occasioned by various ills my body has become heir to. May be some melancholy as a psychic sauce to ladle over it all. Don’t think I’m depressed. Not sure.

All in all. Neither satisfied nor happy. Nor dissatisfied or unhappy. A sort of blah tending toward brown or gray.

I see Sue Bradshaw on Monday, a six month checkup, and I plan to raise the shortness of breath and back with her. Another blood draw on the 19th. That will give some definition to my current cancer status. Not sure there’s a lot medicine can do for me on the first two. Hopeful about the cancer.

So you can see. The middot, the character trait of strength, Gevurah. What I need to find as often as I can in this August 9th life. In as many spots as I can. Experiencing some here. Writing is a strength. Putting the real out of my head and onto the screen. Naming and owning where and who I am.

Lunch with Veronica. A strength. Shabbat and Havdalah. New strengths.

 

Family, Feelings, Fourth Phase, Friends, Health, Judaism, Memories

Witness

Leave a comment

The Off to College Moon

Thursday gratefuls: MVP. Ruth. Diane. Tom. The up over and the down under. Bangkok. Songtan. Melbourne. Orca Island. San Francisco. Robbitson. Shorewood. Minneapolis/St. Paul metro. Evergreen. Conifer. Genesee. Denver. Lakewood. Luke and Leo. Shadow Mountain. Black Mountain. Conifer Mountain. Rain, Rain. Come again. And again.

Sparks of Joy and Awe: Harris/Walz

One brief shining: Sitting cross legged beneath the big painting by Jerry, the Blue Ridge Mountains landscape, Ruth explained how she and her roommates needed to solve a mistake, housing at UC Boulder had put two young women and one young man in the same room, but the conversation swiftly turned to classes: American history to 1865, Political Science 101 in the election year of all election years, studio arts, ways of knowing and finally whether to get a parking spot-no-and a possible library job-yes.

 

Kavanah: PEACE  Shalom (shuh-LOME) שָׁלוֹם   Peace, quietness, wholeness

 (קוֹר רוּחַ Kor Ruach, core ROO-ach: Calm, composure, literally a “cool spirit”) [בֶּהָלָה Behala, beh-ha-LAH: Fear, alarm, panic]

 

Smoky Sky, cool Air, decent Rain yesterday. A feeling of Fall, premature, yes, but welcome, very welcome anyhow. Four seasons. The Great Wheel turning once again. Nights lengthening. My favorite half of the year not far away.

This August 8th life incorporates these changes, makes the late night from MVP feel integrated with this resurrection moment, this reincarnation of my neshamah. The milky gray of the Sky has combined with my Vaad of last night, reflected in the heavens. The MVP group was the last round of folks I brought into my most recent cancer news since Ruth and I discussed it yesterday.

The August 7th life filled my cup while accentuating my sorrow. Yes, sorrow. That dark sadness from the last few days (lives) remains. Its tendrils gathering, pooling. A sense of foreboding. And. Ruth came up. We worked on transferring the MinnesotaSaves college fund money to my name. Ruth filling out the forms with her neat handwriting, discussing with the MinnesotaSaves folks what we needed to do. When we finished with that, I took a nap while she filled out a job application for work/study at the UC Boulder main library.

When I got up, I made lox, cream cheese, and bagels with onions and capers. I know. A little on the nose, but, hey! We both enjoyed them

Her excitement about her classes triggered those oh so sweet  memories of the first days of a new semester, a new quarter when a new field of study lay before me. Or, a deepening of a favorite area. And dealing with a roommate issue, so first days of college.

Having her here felt warm, loving. Though I did end up tired.

And that before I drove to Evergreen for MVP. Which went until 9:45 pm. Discussing responsibility and gratitude. Family. My vaad. Rich, Susan, Joanne, and Ron as witnesses. Not fixers. Not even empathizers, but listeners and seers. Though I have to face this alone internally, I am not alone. I’m in the company of those walking me home. As I walk them.

Dogs, Family, Feelings, Fourth Phase, Friends, Health

The Gothic Parade

Leave a comment

The Off to College Moon

Tuesday gratefuls: Soaking rain yesterday. A Red Squirrel in the Lodgepoles. A Mule Deer Doe eating lunch and taking a siesta in my backyard. Elizabeth’s Dog. Dying. Exploring Reconstructionism. Flagging off the Book Club for Elizabeth. Tim Walz, eh? May he live long and prosper the Democratic ticket this fall. 45% containment on the Quarry Fire. Hot flashes return.

Sparks of Joy and Awe: Concern for a dying Dog and her human companion

One brief shining: Elizabeth looked upset when she opened the Zoom call for the CBE bookclub, her eyes red and concern lightly etched in her face, Ellen said she was sorry about Elizabeth’s Puppy, yes, Elizabeth said to me, my vet told me today my Dog has only two weeks to live, my heart sank, I’m so sorry, another two folks came on the call, one who said, maybe we shouldn’t do this tonight, another saying we’ve all been through this and it’s so hard, yes, and with that we set aside the book club in favor of loving-kindness.

Kavanah: CLARITY  Tohar (TOE-har)  טֹהַר

 

Made me think of Gertie licking my face for thirty minutes days before she died. Vega looking up at me when she got the bloat. Finding Tor in the tall Grass. So many. Each one a wrenched and torn lev. Kate signing I love you. Mom saying, Son. Death is hard.

Sure, I can face my own. That’s easy because it belongs to me and I won’t be around to experience the aftermath. I remember Kate saying, I know my death will make people sad. Yes, sweetheart. So sad.

I’m having a difficult time right now. Not depression, but maybe melancholy. Shortness of breath seems worse. My back. Well. Not being able to walk easily. Thinking about wheelchairs and riding the carts in airports. Of course, the cancer that I seem to now be fighting with much less effective treatments. Probably growing. An occasional whisper in my inner world, “I’m dying.” My reserve tank remains full. I’m not desperate. Still. The life of August 6th, 2024 has the God of decay in its timeworn husk.

I imagine all of us face this at some point. That life, that God which collects all of the difficulties and struggles we have, real and imagined, and sets them out on our psychic Main Street in a Gothic parade. Black streamers, black confetti, those glass-sided Victorian hearses and a marching band playing dirges. Presents them to us in a slow moving black and white movie reel. We stand there with a black ribbon waving and tears falling. The reaper gives slow waves from the back of a dark PierceArrow.

The temptation of course is to turn the dial toward a colorful, cheerful homecoming parade, or that ticker tape day for the Apollo 11 crew. I urge you to resist. The dismal parade has its purpose. We grow not by denial but by acceptance, not by repression but by acknowledgement. We know our humanity best when we let our feelings, our fears and anxieties out. When we can celebrate them all as real and true.

Each of the issues that are mine: shortness of breath, diminished mobility and pain, cancer are real. Pushing them away will not energize the efforts I need to make.  Amelioration does not come through ignorance. So I have to keep them all present, close. Those prickly feelings that make me turn away, want to flee, or shut down? Though the path they push me toward is not the one I’ll choose, their presence forces me to see. To feel. To act.

O.K. Maybe we could insert a couple of clown cars and a Cirque du Soliel act or two in the dismal parade. For color.

 

Just a moment: Tim Walz. How bout that?

 

Health

On the other hand

Leave a comment

The Mountain Summer Moon

Shabbat gratefuls: Ginny and Janice. Trees. Those old Ponderosas off Hwy. 73. The things they have seen. Tara. Kristie. Lab Corps. Jessica Roux. The Beaver and Aspen print. Woodland guardians. Herme’s journey. Life. Aging. Mussar. Kabbalah. Neuroscience. Sensory data. Intelligent receipt of that data. The inner world of mind. Charging the heart.

Sparks of Joy and Awe: The Lev

One brief shining: Oh, yes, coffee please, I said, as I sank into the booth, lower than I expected with the table further away than seemed convenient, while I waited on Ginny and Janice, the two look alike sisters brought a thick porcelain cup of coffee, utensils wrapped in a napkin, and laminated menus, restoration and reconstruction as always with close friends. About to happen.

 

Saw Kristie yesterday afternoon. She feels I’m in castration sensitive territory, not castration resistant. “I don’t diagnose that until you’ve been on both Orgovyx and Erleada and your PSA starts to rise.”

Back on Erleada now as of this morning. This is the gold standard androgen deprivation therapy. Yet another blood draw later in August. That might tell the difference between castration sensitive and castration resistant. Castration sensitive means a less dramatic prognosis than Dr. Leonard’s assessment of castration resistant.

Even so. She and Dr. Leonard present my case to the tumor board* on August 9th. This is not the first time my treatment options have gone before a tumor board. My numbers and imaging don’t fit in neat categories. Things could get complicated after this.

Let me explain. Kristie is a urological oncologist. Dr. Leonard is a radiation oncologist. I’ve seen Kristie for three years. Though I’ve seen Dr. Leonard only once, I have seen other radiation oncologists before him. Depending on the outcome of the tumor board, Kristie may refer to me yet a third oncologist, a medical oncologist. Kristie, Dr. Leonard, and the medical oncologist I would see are all on the tumor board.

A medical oncologist has a much larger toolbox/armamentarium than Kristie does. 4 times as large she told me. They are, I imagine, what we usually think of when we say oncologist. I’ve gone a different route due to the prevalence of prostate cancer and its resulting first treatments by urologists. Seeing a medical oncologist opens up other drugs, especially chemotherapy, to my care.

I know. Who knew? Tumor boards? Different kinds of oncologists? Salvage therapy? Which means any treatment after the best and generally successful treatments like a prostatectomy and radiation don’t affect a cure. Castration sensitive and castration resistant forms of cancer? A throwback to the days before androgen deprivation therapy drugs when an orchiectomy was the only way to lower testosterone; castration achieved levels of low testosterone are the metric against which ADT success is measured.

In summary. I may be in a less dire category but we don’t/won’t know right now. Maybe in a month. Maybe later. I’m back on the drugs I was on before my drug holiday, but may need supplemental treatment by a medical oncologist and a radiation oncologist.

The roller coaster of the last three weeks has drained me. I’m tired out. Partly thanks to being on the drugs again. Partly due to uncertainty, partly due to the need to level myself emotionally. Friends and family have helped a lot in that regard. You know who you are. Thanks.

 

*”A tumor board is a group of physicians and scientists who meet to discuss treatment options for individual cancer patients. Typically, those involved come from different backgrounds, specialties, and expertise, and may include surgeons, radiation oncologists, pathologists, and medical oncologists, so that fresh and differing perspectives can be discussed and knowledge can be shared.”  cancercommons

Art and Culture, Asia, Dreams, Feelings, Fourth Phase, Health

Travelers Among Mountains and Streams

Leave a comment

The Mountain Summer Moon

Travelers Among Mountains and Streams  Fan Kuan. C. 1000 ACE

Friday gratefuls: Lab Corps. New test results. Uh, oh. Kristie, later today. Mussar. The wonder of neuroscience and even more the functioning of our minds. Hello, in there, hello. The haze in our days. Not ours. Alan. Vincent, cooking at the Parkside. A dream. Art. Caravaggio. Giotto. Michelangelo. Botticelli. DaVinci. Rembrandt. Hokusai. Fan Kuan. Warhol.

Sparks of Joy and Awe: Fan Kuan

One brief shining: Each time I see Fan Kuan’s painting, my relationship to Mother Earth pops back into the foreground; in the bottom right, difficult to see in most reproductions, a group of travelers cross toward the left on their journey as the enormous face of the Mountain with its signature Waterfall and  hairy prominences rises above them; mist floats up where the Waterfall disappears toward the Mountain’s base, and hidden among the Trees, homes and monasteries, humans in a natural world so vast we understand at once who and where we are within it. Taoism.

 

The consolation of Fan Kuan’s painting. We come into this world as a birthed animal, fitted out to see, to hear, to touch, to taste, to smell. To take into ourselves data from the world. And, fitted out to conjure our own data in the confines of our singular minds. Here Fan Kuan has shared with us a novel way he put together his experience of Song Dynasty China, its Mountainscapes, its mystery, its beauty. One of the wonders of art is its ability to allow us a glimpse inside the mind and heart, the lev, of another person.

After my diagnosis with cancer in 2015 I drove along the Deer Creek Canyon road and began to understand what Fan Kuan expresses. We travel along a short short road, we humans and our Mayfly lives. We wander along that road within eyesight of the apparently unchanging Mountains, the mist of a future clouded by our unknowing. Yet on that journey we have the chance, if we take it, to know ourselves not as apart from the Mountains and Streams, but as part of them. For me that makes the journey home, our mutual journey, both exhilarating and inevitable.

I had a dream last night. A busload of people with cancer were on their way to a university. I am on the bus. We discuss our cancers, our journeys. We stop near the campus at a large house and everybody gets out. As we enter the house, the home of some well known professor, and sit down, a man comes in, maybe the professor. He puts his hand on the shoulder of the man next to me. “Dead,” he says. He moves to me, puts his hand on my shoulder, “Dead,” he says. In my heart I already knew it. He just confirmed it. This dream is the same as Fan Kuan’s painting.

Triggered I’m sure by my recent visit to Dr. Leonard, the radiation oncologist, and lab results which show my PSA continuing to rise in spite of the Orgovyx. I see Kristie this afternoon. Together we’ll decide what happens next.