Category Archives: Shadow Mountain

Then the heparin lock

Imbolc                                                                         Valentine Moon

tpnTwo saline flushes, then the heparin lock. Clamp the picc line. Half of the thiamine bottle, one each of the white cap and blue cap bottles, all injected into the tpn bag of milky, 950 calorie nutrition. The thiamine is yellow and floods into the bag creating a branched, river like stream. Shake the bag so that the vitamins and other additives mix up. Spike the bag with the plastic spike that connects to the tubing. Clamp the tubing. Connect the cassette that holds the tubing to the pump. It slides in and locks. New battery for the pump. Turn pump on. Wait, go through the pump’s programming. Unclamp the tubing. (lots of alcohol wipes in here. sterile technique required since the picc line ends just above the heart.) The tpn nutrients gradually, a milliliter at a time, snake up to the connector. Saline flush. Wipe. Connect tubing to picc lock. And, voila, breakfast, lunch and dinner.

I do this by myself this morning, with Kate’s assistance of course. The tpn pump, in Kate’s case, runs almost 24 hours, delivering approximately 41 milliliters of nutrition an hour, every hour. The objective here is not so much weight gain as getting her tuned up nutritionally for surgery. The feeding tube placement procedure is not major surgery, but it is surgery and she is frail. Most of the time people learn how to do this for a much longer duration. In our case 10 days. Learning new things everyday.

Still slowly emerging out of the cocoon in which illness places us all. Perhaps I’ll have imaginal cells (a real thing, see butterflies) which will alter my being, transform me into someone new after the last three weeks. I’m ready for some new, even if it’s taking up again the things I was doing before with changed purpose.

It’s 10 degrees here on Shadow Mountain, but, in Colorado fashion, a warmup is on the way. 47 on Tuesday.

And, btw, yes, it has occurred to us that 8,800 feet is not the best position for us with our ailments. Not likely to change soon however with the dogs and my almost pathological aversion to the idea of moving. The move that got us here felt like a last time for that sort of thing. Difficult.

This ancientrail. Right now. Hard.

Imbolc                                                                         Waxing Moon Wanes

illnessChronic illnesses must have some similarity in their psychological impact. Maybe related to grieving. In the first days of a diagnosis there is confusion, distress, yet also relief that this thing has a name. Searching for a cure becomes a family enterprise, the internet glows red hot with old medical journal articles, new experimental this or that, group therapy by fellow sufferers. This serves to educate everyone, yet it also embeds the illness more and more firmly in daily life. There are no days or nights when the illness isn’t there. It hovers, even on good days or weeks, a known guest, but not a welcome one.

Small victories: a good day, a promising new drug, another imaging study, a procedure, surgery. Yet the illness remains. Perhaps attenuated for a bit. Perhaps not. Often there are cycles to the disease in which it extracts maximum discomfort only to relent and calm down for a bit.

An unspoken conclusion may arise. This is forever. He’s never going to get better. Will this uninvited guest kill him? Stratagems come and go. Certain foods. Nap schedules. Walks. Getting out. Staying in. The internet goes cold, having coughed up what it could and added little, showing the vast abyss between knowledge and useful information.

Perhaps a detente occurs. Everybody does their part. No big improvements, but no big backward steps either. The illness sits down to breakfast with everybody, goes to the grocery store, snores at night.

illnessThis is not the end. The armistice finally crumbles under a sudden resurgence of symptoms. Or, new ones. Or, the failure of a remedy. Despair. Perhaps depression. Maybe it is forever. I just thought that in a moment of exhaustion, but what if it’s true?

Each iteration of this cycle increases the psychological pressure on the afflicted and their caregivers, their loved ones.

You see, we expect problems to have solutions. Sure, there can be some unpleasantness, we know that. For sure. But somewhere in the world of helpers is the one who can fix this. Make it go away. Let us go back to life as it was before. If we can recall what that was like.

Hollywood happy endings may have been imprinted on our neurons, at least here in the U.S., but life knows better. Sure, there is my friend with ovarian cancer, stage 4b, who responded so well to chemo and successful surgery that her doctor is now talking cure. Yes, these instances do occur. When we hear about them, they raise our hope. Maybe. Just maybe.

bitter or betterBetter to suspend hope for results. Better to stay with the day-to-day. Better to focus on spirituality, on matters of the soul. Why this latter in the time of Christopher Hitchens and Richard Dawkins, flat earth atheists? Because the one thing illness does not touch is our soul, that part of us that links us to the eternal, to the cosmos, to the ongoingness of things.

In our inner world we are not ill, the illness rages in the blood stream, the brain, the heart, the gut, the muscles, but we have our sanctuary where our soul lives on. If we allow the illness to corrupt our soul, to plummet us into despair, then we will be finished. If the illness itself is intractable, and even if it’s not, the souls journey goes on, traveling the ancientrail you have been on since birth. The illness is part of the journey. But only part of the journey.

We are the end of a cycle on Shadow Mountain. Some symptoms have been vanquished, others not. Kate’s continuing misery has taken a brutal toll on her and has been tough for me, too. As I’ve written numerous times over the last couple of weeks, I don’t know where we are. I don’t know what’s next.

I’m finding practices designed to undergird my gratefulness, my joy, my equanimity have their limits. When I’m sick, as I have been since last Wednesday, they seem to slip away, leaving with me only the emotional fragments of my life, many of them painful. I refuse to stay in this place. What I do now is my choice. What do I need to choose?

Virions. Damn them.

Imbolc                                                                                   Waxing Moon

healthThis morning the waning crescent moon had its horns turned up toward Venus and Jupiter, Saturn hovered beneath it. Antares and Scorpio glittered beside them. We have much less light pollution than the Denver metro.

My no good, very bad, terrible horrible day on Wednesday gave way to a morning spent in bed with a substantial fever, chills, generally icky feelings. I was sick on Wednesday. No wonder the end of the day felt like I was swimming through jello. Today, not so bad, but I’m going to rest today, too. Illness didn’t occur to me on Wednesday because it’s been such a long time since my last one, maybe a year and a half, maybe more. That streak’s over.

HIV virion, spoonflower
HIV virion, spoonflower

At this age I felt relieved when the sickness declared itself. There are other possibilities. Blocked arteries around the heart, in particular. One passing the threshold into active blockage could reduce blood flow to the heart, make me tired.

Instead, a virus. The zombies of the pathology world. Bits of DNA or RNA floating around as virions, ready to pierce host cells and use their internal machinery to create more virus. Wish they’d skipped evolving, been an evolutionary dead end. But, no. As a current host, I can say that these are not organisms you want to invite to the party. They’re gate crashers and they leave a mess behind.

What would have been an inconvenience in my 30’s or 40’s raises issues of mortality in my 70’s. What if I get pneumonia? What if I can’t shake it? Is it really an illness or are the symptoms coming from something more systemic? Am I gonna die? A good run while it lasted. Goodbye.

Or not. I feel better, though not well, this morning. I’m glad because the degree of fatigue I felt on Wednesday could have been the harbinger for a much more serious issue. When the fever came yesterday, I felt the relief I described above, but I also felt a mild level of fear. Will this escalate? I’m not frail, in fact I’m in excellent health for a man of my age; so, I should still be able to ride out even a moderate to serious illness, but I’d sure rather not.

What a pair, we said to each other more than once yesterday.

Worn Out

Winter (last day)                                                                    Waxing Moon

Me driving home
Me driving home

OK. You guys win. Extreme Minnesota macho points earned these last few days. And, I saw that Paul Douglas predicts a 100 degree temperature swing! 100 degrees. You wouldn’t want to hear that if it was 52 outside and the direction was up, but in this situation, hallelujah brothers and sisters! Thank you, Jesus. And, Mohamed. And, Moses. Meanwhile up here in the tropical Rocky Mountains we’ve had mid-40’s for highs.

Yesterday. OMG. I pushed myself past some inner limit, way past. When I got up, it wasn’t a hop of bed, ready to greet the day moment. It was a let’s pull the blanket back over my head, switch the electric blanket back on and quit the world at least for the morning moment. Not a good time.

I had to make chicken soup with matzo balls (made by Kate). I had to take the soup to Golden with Kate. I had to go to CBE and teach the first hour of religious school, then head out for Aurora and Jon’s show. While down there, I had to go to Maria’s Empanada’s and get a dozen for Kate. I could head back up the mountain.

exhaustionAny of these things separately, happy, joyful tasks. All of them on the same day, a day that started with fatigue on waking? The happiness and joy would have to be in retrospect. I make chicken soup from scratch, with a whole chicken, cut up celery, onions, carrots, and garlic sauteed first. Wine to deglaze. Add water, lot of water. The chicken in its wire mesh cage. Wait for it to boil. Up here, longer than normal. An hour or so of simmering, then a package of frozen peas and one of frozen corn. Another ten minute. Retrieve the chicken, set it out to cool. Later, pick the meat from the bones. Put it in the soup. A lot of standing.

Got a lie down while the soup boiled, but it didn’t prove very restful. Back at the stove I finished the soup. At that point, time to go to Golden. About a 40 minute drive there, 40 minutes back. Dropped off the soup, 18 cups of it plus matzo balls. Back home to let Kate out. On the road right away to CBE. Spent a couple of hours there, getting food ready, talking to the kids as they came in. This was a first semester review. That went ok.

When Irene came to lead the dreams workshop, I left to go Aurora. This was at 5:00 pm. After a brutal hour and twenty minutes, I was in the gallery, talking to Jon about his new work. When I hit the big traffic on 6th street, congestion that lasted all the way across the city, my body began to resist what I was doing. I got sleepy, inattentive, restless. Just wanted to go home. Felt miserable. Wasn’t even close to my destination. Denver does not have a way to travel from east to west, west to east without encountering either dense urban traffic, or dense, worse freeway traffic on I-70. At 5 pm, that missing artery makes the lives of any one going either way awful.

exhaustedI’m not describing this well. I was a runner in a marathon. My resources had tapped out around 5 pm. As I got onto 6th street going east past Santa Fe, I hit the wall. Still had to cross Denver, get into Aurora, see Jon, then Maria’s. By the time I pulled out of the Stanley Marketplace parking lot, empanadas steaming in their cardboard box, I had half the marathon to finish. But I was already finished. My bed, however, was over an hour away, 45 miles, the first 20 miles back across the Denver metro. No choice.

Leaving Highway 6 going west, merging onto I-70, then 470, I began to wonder if I was going to make it home. My attention was split between fatigue and the road. At 72 there are many parts of driving that are essentially automated. They took over. I tried to remind myself to watch that car ahead, find the Fairplay exit, slow down in Morrison. It felt like I was carrying the car up the hill toward Shadow Mountain.

Kate, bless her heart, cleaned up most of the kitchen, something that was weighing on me. Get home, beyond exhausted, and clean up? OMG. Usually I clean up right away but the time frame of the day made that impossible. She’s doing better, not gaining weight yet, but she’s willing to pitch in now and again. This time it really mattered.

This morning I’m still bushwhacked, wrung out, sleepy, but I finished the marathon and slept in my own bed. A good start. Read a Harvard Business Review article, Resilience is not about enduring; it’s about recharging. That’s my job today, maybe tomorrow. Recharge.

What next?

Winter                                                                          Waxing Moon

Wednesdays have a tendency to get busy. Today, for example. Make soup, eat some, deliver the rest. Drive Kate back home and myself over to CBE for religious school. At 5 pm Irene will do a class on dreams. I’d love to stay for it; but, when she comes, I’m leaving and heading over to Aurora for Jon’s opening. Looking forward to seeing his new prints. As I’ve mentioned before, Aurora (the sun rises first on the Denver metro in Aurora) is almost as far away as the airport. Drive home, then. This is retired busy, of course, with much more choice involved than obligation.

Monday was 4 months since Kate’s bleed and subsequent hospitalization. Weight gain still eludes her, possibly because shortness of breath, waking up nauseated (some days), lack of stamina, and her dry mouth from Sjogren’s Syndrome make eating a chore, a have-to, not a want-to. Whatever it is, we both feel stuck, wheels spinning on the icy surface of recovery. Not sure where we go from here; but, it’s life; so, moving forward even without clear direction.

Gertie’s healing up from her latest experience as a pin-cushion for Kep’s canines. She’s still a little down, a little sore, but she’s up and moving around. Dogs typically don’t linger over insults. Look at all the tripods. Kep has no remorse, that’s part of not lingering over results. Rigel, our healthiest big dog ever, has developed a strange habit. She eats some out of her bowl, walks away from her food to the glass in the outside door, looks outside, then returns to eating. This may happen a couple of times in a feeding.

After a mussar friend did a short riff on responsibility, I began to wonder about my role here. Her husband died of a lingering illness, took months. She says, “I look back and am certain my husband and I would have fared better had I interpreted my responsibility as being his wife rather than his nurse (just commenting in broad strokes).” She went on about a party. “I recently hosted a large party and, in contrast to my usual MO, relinquished some of the logistics in favor of engaging and having fun with my guests; to a person, each told me it was the best ever.”  And she finished, “It makes me reconsider the languages of love:  gifts, acts of service, quality time, words of affirmation, and physical touch.”

Am I really doing what I need to be doing? I’ve emphasized cooking, laundry, some cleaning up, grocery shopping, being present with Kate at the hospital, rehab center, doctor’s appointments, taking care of the dogs, other home related chores. Am I replacing doing with graceful being? Not an either or. The domestic chores have to get done, but am I not husbanding enough? This is not an abstract question. It’s present to me right now. Do I need to learn new languages as my friend suggest?

These are difficult questions that every couple has to answer throughout their marriage. Illness can make them fraught.

 

 

 

 

So Beautiful

Winter                                                                             Waxing Moon

Our snowpack. Needed for the trees and our well
Our snowpack beside the front door. Needed for the trees and our well

Another 6 or 8 inches of snow yesterday. Snowiest January since 1993. The northern half and eastern quadrant of Colorado watersheds have above average snowpack. Critically, the Colorado Headwaters area is at 116%. The south western quadrant of the state though is below average in two spots, including the Durango area where the big fires burned last summer.

So beautiful. The lodgepoles carry snowy covers on their branches. The deer, rabbits, fox that come through our yard leave their tracks.The rising sun colors the snow on Black Mountain, right now a light flush pink. Bright blue sky behind the mountain.

Not so good for those of us animals who need carapaces and wheels. This is the google traffic map from yesterday. Rush hour. Add in altitude and you get a real mess. This is when commuting to Denver from Conifer separates the brave from the foolish.

 

metro roads 1 28

Kate’s initiated a get-out of the house plan. She said last week that she felt isolated and alone, so we’re going to go somewhere each day. Yesterday we went to the post office. Today, the King Sooper Starbucks for Kate while I pick up some groceries. Tomorrow? Who knows?

creation of the waters
creation of the waters

Last week I painted the creation of the universe, the shattering of the ohr. Followed it with the creation of the waters. Next up: land. I tried to show an island in my first attempt. Not so good. I like the first two, I’m starting over today on land. I’m going to get somehow to Eden and humans and that tree. Will take awhile. Hard to say in the abstract paint language I’m using. But, that’s part of the fun.

Astrological learning has been on hold. Painting, exercise, and Kate have gotten my focus along with CBE. Gonna get back to it, though. Probably a reading with Elisa’s astrologer, John, to kick off the next phase of my learning.

Just entered the Chicken soup cookoff at CBE. Gonna get some practice today, picking up soup supplies during the grocery shopping at King Sooper. Taking some to a friend, leaving some behind for Kate and me. Kate loves my chicken soup. My heirloom recipe came off the Golden Plump packages when I bought chickens in Minnesota. Here, I do it from memory.

Puzzled

Winter                                                                         Waxing Moon

20190127_163835Snowing here. About an inch already. Then comes the cold. But not like the cold my friends in Minnesota are going to feel. For example, Tue -7 for a high, -27 for a low. Wed -15 for a high, -30 for a low. Also, winds in the 10 to 19 mph range. Wind chill will be brutal. Enduring the last of  any January will qualify you for Minnesota macho. Plan a trip there now to claim it for yourself.

We got started on the 1,000 piece jigsaw. Kate may have underestimated how long it will take to do all five. She said ten years. After yesterday? Maybe into our 90’s. New to me. Surprised how satisfied I was when a couple of pieces fit together. Kate’s pretty good at this. As you might expect.

Wondered yesterday about the origin of jigsaw puzzles. Kate thinks it was somebody who wanted something for the kids to do. So, I let wikipedia teach me.* Coulda been the Spilsbury kids, I guess.

20190127_174935The bulgogi was good. So was the dumpling soup. The porkbelly last night? Not so much. Got a little rushed since I fried the smelt at the same time. Shouldn’t have done both. The smelt, which I realize now were considerably smaller than the Lake Superior smelt, fried up fine, but I bunched them together too much. And, fried things don’t work so well as left overs. In the trash after my meal. SeoAh sent me her sauce for the porkbelly, which I used. It couldn’t rescue a too fatty, not enough taste dish. Not sure I’ll try that one again. Didn’t seem worth learning how to do well. Tonight straight up American fare. Macaroni and cheese? Hamburgers? Steak and potatoes? Something more in my wheelhouse.

no f-ng way
no f-ng way

The snow falls straight down, looks like a gentle, white rain. A flour sifter somewhere above us, gently shaken by the deity we know isn’t there.

I’ve started on a cleanup, straighten, reorganize project for the whole house, loft and garage. Working on one room a day, or more if needed. I’m no Marie Kondo. Just want to get things spruced up a bit. Read an NYT article on stocking the modern pantry. When I get to the kitchen, I’m going to follow its suggestions. Suppose this is a cabin fever moment.

*”Jigsaw puzzles were originally created by painting a picture on a flat, rectangular piece of wood, and then cutting that picture into small pieces with a jigsaw, hence the name. John Spilsbury, a London cartographer and engraver, is credited with commercializing jigsaw puzzles around 1760.[1] Jigsaw puzzles have since come to be made primarily of cardboard.” wiki

I see Christmas

Winter                                                                        Waxing Moon

20190122_0721198-10 inches of new, fluffy snow Monday night and yesterday. Looking out our bedroom window at night I see Christmas. Flocked trees. The full moon shining on fresh powder. A significant chill in the air. 7 degrees.

With SeoAh and Murdoch gone I’m back to cooking, cleaning. Spaghetti with meatballs on Monday, cod last night. Hmmm. Out of practice. Need to find my groove again. I will.

The house has lost some positive young energy with still mostly puppy Murdoch back in Georgia. Also with SeoAh. Her bright smile and upbeat nature was therapeutic. She came three times in this last year. After Kate’s shoulder surgery. After the long hospitalization. And, most recently on Christmas eve. Teaching us about family. Korean cooking, too. Gonna make my first solo visit to H-Mart this week. Tomorrow.

jigsaw puzzle
Sic Transit Mundi

Ordered three jigsaw puzzles: the Sistine Chapel ceiling (5,000 pieces), a world map (4,000 pieces), and a send-up of Italian painting, Sic Transit Mundi, (3,000 pieces). We need some alternative things to do. Kate doesn’t feel up to sewing, but doing jigsaw puzzles? Yeah. I’ve not done them much. In fact I can’t recall the last time I put a puzzle together. Looking forward to these.

Visit today to Dr. Rhee, the g.i. doc who finally diagnosed Kate’s cramping and nausea. We’re taking him kimchi from H-Mart, selected by SeoAh. The diagnosis was a major victory and he deserves our thanks.

Later in the day religious school at CBE. Today we celebrate Tu BiShvat, the birthday of the trees. Rabbi Jamie returns from his shabbaton, sabbatical, to lead a Tu BiShvat seder. This involves food from trees: nuts, fruits. Seder means order so the Passover seder is the order of service for Passover. Same with the Tu BiShvat seder.*

 

Tu B'Shevat Seder*”Tu B’Shvat is the New Year for the Trees. As in all other points in the Jewish calendar, Tu B’Shvat offers a unique opportunity for insight into living and personal growth. Throughout the centuries, Kabbalists have used the tree as a metaphor to understand God’s relationship to the spiritual and physical worlds. Moshe Chaim Luzzatto, in his 18th century classic The Way of God, teaches that the higher spiritual realms are roots that ultimately manifest their influence through branches and leaves in the lower realms.

In the 16th century, the Kabbalists of Tzfat compiled a Tu B’Shvat seder, somewhat similar to the seder for Passover. It involves enjoying the fruits of the tree, particularly those native to the Land of Israel, and discusses philosophical and Kabbalistic concepts associated with the day. Among other things, the seder is a great way to appreciate the bounty that we so often take for granted, and to develop a good and generous eye for the world around us.”  aish.com

shhh

Winter                                                                   Waxing Moon

20190120_104200Shhh. Don’t tell anybody or you might jinx it, but I think Kate’s starting to gain weight. She’s at 84, past the 82 pound barrier that seemed so intractable. yay. shhh.

SeoAh and Murdoch are on their way today. Back to the warmer climes of Peach and Pecan country. Gonna miss her though she needs to get back and we need to settle in again to our own rhythms. SeoAh loves pho so I took her to the pho place near Evergreen’s King Sooper yesterday. A going away present. We had a long talk about her life in Seoul. She sold clothing and cosmetics door-to-door for a good while. What a tough way to make a living.

In that conversation she made an interesting point about American culture, one that wouldn’t have occurred to me. In Korea women expect each other to dress well, to the point of putting on make-up even when going to the store for groceries. And, they’re unforgiving of those who don’t. “Most Asian women are like this,” she said. “But, I love American culture.” We don’t have the same blanket expectation for women. (not saying it doesn’t exist here, but it’s not everywhere.) That makes a big difference to SeoAh.

20190101_103345Went out to DIA late last night and picked up SeoAh’s husband. Got back here about 11:00 pm, well past my sell by date in terms of sleep. The dogs didn’t get fed until 7:30 am. Gabe’s here, too. Jon brought him up last night. Jon and Ruth will go skiing today at A-Basin, then pick Gabe up on their way home. It’s been a very family oriented Christmas and New Years and January. Friends, too.

We’re expecting snow again tomorrow evening. Hopefully the pace will pick up.

Got some gold leaf yesterday for a painting I’m working on portraying the ohr penetrating the ein sof. Considering a series on Genesis with this being the first of them.

 

 

 

Thursday

Winter                                                                             Waxing Moon

The Cutthroat
The Cutthroat

The support team arrived. We went to three Baily landmarks. The Rustic didn’t open until 11:00, so we wandered back across 285 to the Cutthroat Trout Cafe. Which Mark observed, “Doesn’t serve any fish.”

The food was good, straight breakfast, no fancy names or ingredients. Eggs, pancakes, hash browns, coffee, toast, jelly. Our waitress had been there since 5 am. “Yes, mostly coffee drinkers before six, but there are two gentlemen who come in and eat pretty regularly.” She had on an I love Goonies t-shirt.

Since the Sasquatch Outpost was right next door, we walked in there. I bought Kate a Sasquatch doesn’t believe in you either t-shirt from among the many, many Sasquatch themed items on offer: a bar of soap shaped like a Bigfoot foot, a Bigfoot riding a motorcycle, signs: Caution Big Foot Breeding Area, avoid eye contact, Warning Big Foot Area Stay on Marked Trails, hats, sweatshirts, books, scarves.

Shoppin' for weed
Shoppin’ for weed

Next stop. The Happy Camper. These old enough to remember dial phones and black and white tv guys stepped into the brave new world of cannabis with a cash register to take your money. Mark had a bit of culture shock. So many options, so little hassle. He chose some thc capsules. That night both he and Tom enjoyed a better sleep. A big deal for both of them.

After Bailey we came back to the loft and hung out. Talking. Then it was nap time so we rolled out our mats, oops, no, kindergarten. Tom and Mark went back to the unusually decorated B&B, Arrowhead Manor, and I went downstairs.

We reconvened at 5 pm for a trip to Sushi Win. Sushi Wins’ owner no longer accepts credit cards or checks, just cash. Mark had an unusual roll that came in a seaweed cone wrapped in black and white checkerboard paper and presented in an ice cream cone stand. Very mod. Tom and I had the sashimi bowl. As usual Sushi Win had few customers, quiet.