Category Archives: Family

New (to us)

Beltane and the Recovery Moon

4. Altitude. The height into the atmosphere, away from sea level (0 m) Temperature decreases 3F every 1000 ft (333 m) in elevation.

Air conditioning is important in our house. Kate and I both prefer cool weather to warm, cold weather a lot more than hot weather. Explains our maybe incomprehensible to some commitment to living on top of Shadow Mountain. 8,800 provides natural air conditioning.

When the a/c in the 2011 Rav4 began to sputter three years ago, I began a series of missions to get it fixed. Cost me basically zero. I’d take it in, they’d put die (oops. dye. what’s on my mind?) in it, charge it up and not give me a bill. They never found a leak. This year I decided, time to solve this. But. As I wrote below, we’d end up with a $3,200 or so bill and no assurance that it was fixed.

I’m more tolerant of heat than Kate though not by a lot. It was time to do something. Buying a car (like buying a house) gives me the heeby-jeebies, I don’t like the sense of manipulation. I don’t want to get a bad deal. Yet, we need transportation and shelter.

Kate came out to Colorado, worked with a real estate agent and found our home here on Black Mountain Drive. I would have dithered. I asked Kate to head up the car situation. She did. We have a new car.

2018 Rav4

Kate, “Medical school trained the dithers out of me.” How? “Code red.” Oh. A philosophy major and a theology degree trained me in the fine art of dithering, the paralysis of analysis. Good thing I’m married to Kate. In so many ways.

Part of the urgency was anticipation of 70 hour long trips to and from Lone Tree for visits to the Cyber Knife. All in late June, July, and early August. Heat. Don’t need exasperation from an a/c-less car to go with radiation and Lupron. Bad combo.

Not an easy decision in a financial sense since it draws down the corpus of our IRA, but the now to be known as the white car was no longer adequate. Also, Kate and I have been musing over these last medical months that we don’t need to have our money last into our 90’s since we probably won’t.

J-Tube at Work

Beltane and the Recovery Moon

Kate’s still sleeping, taking in nutrients. The j-tube has some similarities to the tpn. It has a pump and a set of tubing to connect the pump to the j-tube port. No more bags though. No more syringes. No more batteries. No more heparin or saline flushes. No more pic line. The nutrient solution is called Jevity. I couldn’t figure it out, but Kate said, “Longevity.” Oh. I see.

The really big difference though is that the j-tube puts the nutrients into the digestive tract. This is safer, no more direct line to Kate’s heart for possible wee beasties, and also more sustainable over the long haul. With Sjogren’s dry mouth the j-tube might be permanent. Thanks, Dr. Ed.

April, 2018. Happy Camper

In other local technology news the Rav4 has reached an inflection point in our lives. The AC either has a leak under the dashboard or a faulty evaporator. $900 to remove the dashboard and diagnosis it. If, as they suspect, it’s the evaporator, another $1,900 for the part. With labor somewhere in the three thousand dollar range. It’s a 2011, eight years old next month. As a rough trade-in it’s worth about $5,800. Too much to spend.

So. A new, or newer, car. We’ll keep the Rav4 since it’s in good mechanical shape. With the exception of the AC obvi. Worth more to us than it is as a trade-in. I didn’t get the y-chromosome negotiating gene. I hate it. Buying a new/er car is, grrrr.

Meeting with a friend’s husband this morning in Evergreen at the Muddy Buck. He has prostate cancer, too. A mini-support group, I guess. Then, at 1 pm I’ll get diagnosis, prognosis, and treatment plan. All prostate cancer, all day.

Gone the TPN

Beltane and the Recovery Moon

2014

The tpn is over. Kate’s pic line got pulled out yesterday afternoon before she left Adventist. Don’t know what we’ll do with the saline flushes, heparin blocks, batteries, gloves, kits for attaching the bag to the pump, the remaining bags.

The j-tube nutrients, called Jevity (I know, like continuation and continuators), arrived in a small box last night. Enough for a month. The tpn required three boxes each week, with three styrofoam boxes plus cooling gel packs. The j-tube is on Kate’s abdomen so she can handle the flushes and the feedings. I’m out of a job. And, I’m glad.

When I got to Adventist yesterday, Kate was not yet ready to go home. I spent 5 hours there. I’ve reached a saturation point with driving to hospitals, hanging out. I’m tired of it. The constant back and forth, the long drives. We’re in the 9th month now since Kate’s bleed. It’s been a lot and I’m showing the strain.

Not pretty, but true nonetheless. This will pass and I’ll get back in the groove. Yesterday though…

St. Elsewhere

Beltane and the Recovery Moon

Kate’s going to be in the hospital one more day. They want to be sure the j-tube is working, no leaks. A gastric function test today with contrast. Like making sure all the plumbing is in order after sealing the wall. Not sure what they’ll do if they find a leak.

Today it feels like I woke up in a Truman Show simulacrum, one focused on medicine, a Grey’s Anatomy in which Kate and I are a plot thread about medical issues affecting the geriatric demographic. Maybe I’ll drive out to Littleton Adventist this morning and someone there will tear a hole in the screen separating us from the cameras and crew.

Having Kate back in the hospital has flashed forward the bleed and its long aftermath, the second bleed, the pneumothorax. On the first day she’s gone my reaction is to be self-indulgent. Eat poorly and watch a lot of TV. Yesterday was hot dogs, ice cream and several sessions of Big Mouth, a Netflix cartoon about hormonal middle-schoolers. It’s surprisingly good, recommended by Ruth. Not sure why I have this reaction, marking her absence surely, but why self-indulgence?

Tom Crane’s guy.

I suppose those are denial strategies. Eat and forget. Watch and forget. Suppress. Repress. Good thing I have this bandage stripping habit. Wouldn’t want to get stuck. My inclination these days, these third phase days, is to be more forgiving of myself. As somebody said, if your compassion does not include yourself, you are not yet (something): fully compassionate, enlightened, realistic? Ah. Looked it up. It is incomplete.

Family

Beltane and the Cancer Moon

Kate’s Crowns

The Cancer Moon is a sliver, headed toward a new moon. June 3rd will be the new moon, Kate’s surgery date. On June 7th I see Dr. Gilroy to discuss radiation therapy, probably get scheduled to start. By that time yet another Recovery Moon will be shining over Shadow Mountain. We had a healing moon last October after Kate’s bleed and a Recovery Moon in March following my flu/pneumonia.

A third recovery/healing moon makes sense to me. That lunar month will encompass Kate’s recovery from the j-tube placement and our getting used to this new method of getting nutrition for her. It will include much of my radiation. By the end of it we should both be in better places.

Rigel’s nose

Ruth came up yesterday. She pruned the Russian sage, flattened all the boxes for the trash (Chewy, Amazon, Option Care), and got Kate back into her sewing room. This morning she’s going to make pancakes, a cherry pie, and help me make chicken and leek pot pies.

We went to Sushi Win yesterday for lunch to celebrate my CT scan findings. Ruth had a Sushi platter. She ate it all. Dad says I have a teenage appetite. She does.

She’s a scholar, loving Mandarin and math. She’s an artist working in oils, photography, prints. She’s a cook and a good one. She loves animals, brushing Rigel and Kep each time she comes. Ruth has become a sweet, loving young woman. May it continue.

Peaceful

Beltane—————————————————————Cancer Moon

Peaceful this a.m. The imaging work is done. At least for now. Three days now with no medical interventions or doctor appointments. And sunny blue skies.

On Monday at we leave Shadow Mountain around 5:30 am to get Kate over to Littleton Adventist for her j-tube placement. She’ll be there over night. Since she’s stronger now, we’re not anticipating any major issues. This is laparoscopic surgery so the recovery should be minimal.

We got the first j-tube feeding accessories in the delivery yesterday from Option Care. Jumbo size plastic syringes for flushing. The j-tube will be a major change from the tpn. No more aspectic procedures. No more bag to carry. Not nearly as much risk of infection. And a consistent source of nutrition.

Imagining Imaging.

Beltane…………………………………………………………..Cancer Moon

Some heaviness in my walk. Taking out the trash for its delayed pickup. Memorial Day. Getting the Denver Post in its orange plastic wrapper. Putting it at Kate’s place.

The sun rise has begun to melt the frosty crown on Black Mountain. All conditions are impermanent, disappearing in the sun, blowing away in a Chinook.

Gabe called last night and wanted to know if I was coming to his continuation. Fifth grade to McCauliffe. I’m not sure, buddy. I have this procedure tomorrow. In his world fifth grade matters as much. I had already taken my thc for bedtime, tired.

It overwhelmed me. His need. Ruth’s. Who wants to go, but had planned to be up here today, to help us, the conflict hidden until it wasn’t. Jon’s navigating their worlds and ours.

My view on the ct today. The cancer is already there. This is just a pair of special binoculars that can peek inside the black box, see where it is. Once this gets read, a treatment plan will fall into place. Unless it’s equivocal, a finding I don’t want. I could know by tomorrow what’s next.

Ikigai

Beltane Cancer Moon

This Morning

It’s been this kind of May. And it looks as if June will be cooler and wet, too, according to Weather5280. Good news for us, not so much for those lower down when the huge snowpack starts to melt.

Got further along on print Ancientrails. Am now in late 2017, quite a ways in. Then, print spool error. Again. Well. Gotta go back to whatever I did that solved it once. Tried so many things I’m not sure which one worked. Something did. For a while. Soon though. Then, I’ll take everything for three hole punching and decide what kind of binders I’m going to buy. Each folder with month tabs.

Also figured a way to unzip Superior Wolf and focus on Lycaon’s story. Don’t know whether I’ll follow up later on Christopher and Diana. The hunt for immortality is almost a cliche these days. And the central conceit of their story, a hedgefund group that funds Diana’s research, is not fiction anymore. Geez.

That means I’ve got months of work ahead, maybe years. My ikigai. A Japanese word that means reason to live. This article talks about ikigai in more depth as an explanation for Japanese longevity. Squares with my own intuition. Purpose keeps you alive and flourishing.

The Japanese have a lot about life figured out. Ichi-go, ichi-e is another favorite of mine. It comes from the Japanese tea ceremony and means each moment is once in a lifetime. No such thing as an insignificant experience with another person.

Sekkyakushi, 15th century, Muromachi period, Metropolitan Museum of art

Reading a book right now by the wonderful travel writer, Pico Iyer: Autumn Light, Season of Fire and Farewells. It’s a follow-up to his The Lady and the Monk, which I have not read, in which he recounts meeting Hiroko, the Japanese woman who would become his wife. He had moved to Kyoto to immerse himself in Japanese culture, sensing, as I do, that their approach to life is worth learning, perhaps adopting. Twenty-three years later he lives in Japan with Hiroko six months out of the year and six months in the U.S., caring for his mother and working for the New York Times. Recommended.

Each time I dip into some aspect of Japanese culture I find I want to know more. The MIA’s Japanese collection gave me a chance to interact with tea bowls, tatami mats, sumi-e, Buddhist and Shinto sculpture, put me deeper into my own Asian pivot.

Zen itself has not intrigued me, but I did follow Zen back to its roots in Chinese Chan Buddhism, a melding of Taoism and Buddhism. The Taoist aspect of Zen, and Chan. Yes.

Tomorrow. The CT scan. Probably the last of the imaging work. It will either show metastatic disease or a localized recurrence in the prostate fossa. If the former, one kind of treatment. And, prognosis. If the latter, 35 days of radiation and a possible cure. Hopeful, of course, that it will be localized, but aware that it might not be. In either case I’ll know. That’s been the hardest part of this time (well, no, that’s not right. The hardest part has been dealing with insurance and the hospital’s “benefits” office.), knowing the cancer has reasserted itself, but not knowing what that means for my life.

Will be glad to have this work done so I can move onto what’s next.

The Right Thing for Us

Beltane Cancer Moon

Things I think about while falling asleep. Life. A stream rushing down the mountain of time, a branch into a tributary, tributary to river, river to the gulf of eternity, a small part of the sea of infinity.

Project print ancientrails update. Got into May of 2015. Then, printer spooling error. Spent an hour on it yesterday, got tired. Learned long ago to quit at a point when I’m doing the same thing over and over. Come back the next day with fresh eyes. Later this morning I’ll be back at it.

Looked out the bedroom window this morning. Frost. Rained over night and the temperature is just below freezing. A nubbly ice covered the deck and the stall mats, but the driveway was only wet. Saw a mule deer crossing Eduardo and Holly’s yard.

The sun is now well up at 5:30. The victory of the light will peak in three weeks. I look forward to the Summer Solstice as the moment when night begins to claw its way back into prominence.

Jon and Ruth left Gabe here yesterday while they went skiing. A-Basin. It still has peak snow cover, may be open until July 4th. Unusual. When they got back, Ruth and I made spaghetti and meatballs. She’s turning into a sweet, loving person. A real pleasure to see.

While walking back to the house after getting the paper this morning, I thought about her and Gabe. We moved here to have these kind of interactions with them, casual and frequent. It was the right thing for us to do.

50th High School Reunion, Alexandria, Indiana

When I was in school in Alexandria, Memorial Day marked the end of the school year. Summer begins! Days of freedom wandering alleys collecting pop bottles for small change. Going to the field with Rick Meyers and the Kildow boys to play army. Playing blackjack every weekday afternoon in the paper boys shack of the Times-Tribune. The occasional pickup softball game. Riding bikes around town. Outside until well after dark. No thoughts of pedophiles, school shooters, terrorists. No climate change worries. No computers. No cell phones.

Here in Colorado school typically ends in June though Ruth, because of McCauliffe’s schedule, got out a couple of weeks ago. This is Gabe’s last week. They will both start school again in the second week of August, both at McCauliffe for this one year, Ruth in the 8th grade and Gabe in the 6th.

Ruth, as do most of her friends, has a season pass to Elitch Gardens, an amusement park that serves as summer day care for many Denver teens. They have rides named Brain Drain, Mind Erase. You can see the attraction after school’s over.

Resting

Beltane Cancer Moon

Both Kate and I have a weariness this Memorial Day weekend, one occasioned by the intensity of the last week. Kate got a schedule for her feeding-tube placement which ended three months or more of maneuvering within the practices of Lisa Gidday, Westermann, Gupta, and Smith. I spent Wednesday pleading with various parties to authorize tests that would let me get on with treating my cancer. On Thursday the bone scan and good Nick. On Friday the drive to Lone Tree and Gilroy’s wonderful, “The bone scan was clean as a whistle.” That’s enough for one week.