I’m just gonna say this. May be a little whiny, but it’s on my mind. Hey, universe! Would you get your foot off our necks? Or, at least let up long enough for us to catch our breath. Geez. OK. There.
Kate’s collapsed lung resolved with concentrated oxygen therapy. Thankfully. The picc line went in yesterday and she’s getting her first infusion of nutrition through it as I write this. She’s very happy that, as she said, “Something’s happening.” She’s dealt with the weight loss, the fatigue, Sjogren’s, food aversion for so long. As one just coming out of a still debilitating illness, I can only imagine what it would be to feel the way I feel now everyday. With no change maker on the horizon. This picc line may be the beginning of a turn around. I sure hope so.
Meanwhile I’m weak, still. Feel like the diseases of the past two weeks plus have left the field of battle, but the wreckage is still under repair. I’m 10 pounds behind now, limited stamina, and less energy. I’ll improve over the next few days, I’m sure. I look forward to getting back to things.
Lot of learnings, most not consolidated yet. They will be over the coming weeks.
Here’s something uplifting, at least I think so. Black Mountain white.
Feeling much better. All except my bowels which took a beating. I’ve eaten very little over the last two plus weeks, down 10 pounds. Not as hydrated as I normally am. Result: intractable constipation. Since Saturday afternoon, my recovery has been interrupted by this. Beginning to resolve this morning, I think. Sure hope so, misery after misery.
I’ve lost about two weeks. By that I mean, I don’t recall events during the time when illness dominated my body. It’s an odd feeling, but I’m grateful for it. I remember blurs of discomfort, but little else.
Kate went back to Swedish E.R. yesterday. Jon had to take her due to my severe cramping and general dis-ease. They admitted her, though I don’t know exactly what for. She has an appointment with a home health company today to insert the line for her tpn feeding, don’t know what’s going to happen to that.
This was not the most festive birthday week I can recall. Maybe the least? Either way the earth keeps spinning and racing along its orbit.
So here’s my summary of the last 17 days. I got ill. My doc thought it was influenza A. That lasted 10 days, then I got really sick. The pneumonia is clearing. I have more energy each day, though I’m still weak. Eating and sleeping. Still the main activities.
All these mortality signals keep whizzing by. The third phase is an existentialist phase no matter your theological orientation. Somewhere in the no longer so distant future is a personal and permanent extinction event. Made me read the news of Opportunity with a pang I might not have otherwise felt.
The struggle we have over these deep questions in our own day to day has gotten interlaced with our creations. It seems like taffy or a Chinese finger puzzle. The more we try to answer them the tighter the puzzle grips our finger. And when a plucky, brave, dogged machine just keeps on ticking, year after year, moving and sensing and communicating, all on a planet not our own, we see its slow, but confident progress, its unwillingness to stop until the last trickle of current ran from its batteries, as life itself. Until we say it out loud. Do we put quotations marks around death? What do we do with the emotions we feel for something made of silicon and metal?
“Our beloved Opportunity remained silent,” Thomas Zurbuchen, associate administrator for NASA’s Science Mission Directorate, said Wednesday… Her power dropped to a trickle, and she was last heard from on June 10…Keri Bean was among those who helped send that last radio signal. Losing Opportunity, she says, is like a death in the family…But at least it was Mars that killed her — it wasn’t the rover failing or something else. It was Mars. And I feel like that’s really the only appropriate death for her at this point.” NPR
It’s possible that we’ve been making a category mistake all along about death. We assume that we are individuals, clothed in an impenetrable skin with a mind mysterious and often hidden even from its self. What if that is too narrow? Way too narrow. What if we are also those things in which we invest our life? That is, I am not only the meat sack that turned 72 yesterday, but I am also Kate, our house, the dogs, even our Rav4. I’m not making a weird boundary issues statement here. I’m trying to point to what Buber calls the I-thou*. Buber saw the I-thou as a relationship with another that is permeable. I love this idea, but want to say that we can extend it, in some instances, even into the realm of what Buber calls I-it relationships.
Andover
Those instances are not as few as we might think. Yes, family. Yes, friends. Yes, members of a community important to us. Yes. But also the dog who sleeps in your bed. The tree you care for each spring and fall. The flowers that you plant. And, yes, the machines that extend your self into the wider world. These machines, like Opportunity, do function independently from us, are definitely an it in the usual understanding of the term, but perhaps we misunderstand the distance, the separateness. “Our beloved Opportunity remained silent.” “Like a death in the family.”
Opportunity was not only the physical entity on Mars. It was also a literal physical extension of those who made it, those who guided it, interacted with it, and gathered its data. It was like a hand or an eye, an arm or a leg, not separate, though able to operate independently. As such Opportunity’s death was just that, a death, the loss of an I-thou relationship.
How do these relationships happen? I believe this quote says it very well:
“Real isn’t how you are made,” said the Skin Horse. “It’s a thing that happens to you. When a child loves you for a long, long time, not just to play with, but REALLY loves you, then you become Real.”
“Does it hurt?” asked the Rabbit.
“Sometimes,” said the Skin Horse, for he was always truthful. “When you are Real you don’t mind being hurt.”
“Does it happen all at once, like being wound up,” he asked, “or bit by bit?”
“It doesn’t happen all at once,” said the Skin Horse. “You become. It takes a long time. That’s why it doesn’t happen often to people who break easily, or have sharp edges, or who have to be carefully kept. Generally, by the time you are Real, most of your hair has been loved off, and your eyes drop out and you get loose in the joints and very shabby. But these things don’t matter at all, because once you are Real you can’t be ugly, except to people who don’t understand.” chewy.com
*Buber’s main proposition is that we may address existence in two ways:
The attitude of the “I” towards an “It”, towards an object that is separate in itself, which we either use or experience.
The attitude of the “I” towards “Thou”, in a relationship in which the other is not separated by discrete bounds.
One of the major themes of the book is that human life finds its meaningfulness in relationships. In Buber’s view, all of our relationships bring us ultimately into relationship with God, who is the Eternal Thou. wiki
Starting my 73rd year feeling better. Better, of course, is relative. In this case relative to a lost two weeks. I mean that almost literally. The last two weeks were a fog. I know things happened. I know I did things. But what were those things? Mushed together in a perceptual porridge put through a blender. Indistinct.
Saw the doc yesterday. Left lobe cleared of pneumonia according to stethoscope. None in the right lobe. But wait! There’s more! Yes, another “incidental” finding. Atelectasis in my lower right lobe. Sounds ominous, right? Could be old, probably is. It means that some of the aveoli have collapsed.
When Tabitha listened to my lungs, she thought she heard pneumonia in my lower right lung. It was the atelectasis. So it’s significant. It can be the precursor to other bad things like lung cancer. Hope not. Still, when you consider my history. Smoker in my 20’s and early 30’s. Working in two different factories where asbestos and fiberglass were used. Cutting rags to make fine rag bond paper. I did this last job for a year or so and worked in a room filled with the dust from, of all things, Munsingware scraps from making underwear.
I’ve known for years that something like this could come up. If I could go back and change the choices I made while my chooser was broken (grief, alcoholism, lack of wisdom, plus general youthful stupidity), I would. But, I can’t. In my own vernacular, those problems are bought and paid for. That is, I did things that may cause serious problems for me physically, now, later in life. Can’t deny it, ignore it, or wish it away. It’s not clear right now of course whether this will be a serious issue or not, may not be clear for some time, though I imagine there will be a follow-up CT to more closely i.d. the causes of the atelectasis.
We all have to die of something. If this is mine, well, so be it. Not gonna dwell on it, but I do acknowledge it. I don’t blame anyone, not even myself. My 20s, as they are for so many of us, were a time of transformation, mutation, evolution. I learned so much, felt so much, did so much. There was another path for me through that thicket, many paths, I’m sure, but the one that transpired is the one I followed. And, it may be beginning to have consequences.
In other news Kate’s stent is open. CT proved that. Hopefully today she’ll get a pic line put in and get started on some nutritional supplements by iv. TPN, total parenteral nutrition. This should help her overall and make any surgical procedure, like the feeding tube placement, more likely to succeed. A home health service will send nurses here to set it up. Eventually, I’ll manage it. A step in a good direction for her.
Sun. Blue skies. Black Mountain standing tall. All things that will be here no matter how any of this turns out. And, again, I find this a source of deep consolation.
Well, no matter what else happens I can say I made it to 72. Valentine’s Day on Shadow Mountain. Black Mountain obscured by low lying clouds, but still visible. A thin dusting of snow on the solar panels and the driveway. 32 degrees.
The pneumonia continues. Rattling in the chest, coughing, back to night sweats, shortness of breath, some fever. Not how I imagined my birthday, but there you are. I go to see Tabitha, Dr. Gidday’s p.a. today. Hopefully I’ll learn some more. Kate’s ct is today, too. I scheduled my appointment close to hers so I can take her to the imaging center at Porter Adventist, then scoot over to Dr. Gidday’s office for my 11:30.
I’ve been sick 15 days now. Figured out the last time I was this sick was not Austria, but when we lived on Edgcumbe Drive in St. Paul. Never diagnosed. Kate thought it might have been myocarditis. That was 29 years ago. It’ll be ok with me if it’s another 29 between bouts like this.
I’m up in the loft early. Feels nostalgic after 15 days of mostly miss on the mornings. I’m ready to get back to my old life, resume painting, teaching, writing. Not yet. There’s this big bump in the road.
A while back I read an interesting article about snow. A heavy snow eliminates boundaries, covers fences and streets, rocks, even mountains. The world becomes white, curvilinear, jagged edges smoothed. The affective mood of the landscape undergoes a transformation, becomes more connected.
Illness has a similar totalizing affect. The landscape recedes. Old linkages like grocery stores, schools, churches, synagogues fall away. The house, or even a room, becomes a world. In this world there is struggle, the body trying to hang on to life, an invader not caring about that life, but wanting the resources the life has to offer. It’s a raw, pitched battle, tough to watch, tough to experience. Not all illnesses are this extreme of course but pneumonia at 72 is a life or death matter. Either the pneumonia is defeated or the body dies. High stakes.
Like a heavy snow the world around this struggle transforms, becomes homogeneous. Can it help? It exists. No help? It disappears.
The fun continues. See doc tomorrow to check on lungs. Still coughing, still some fever. But! I am now 138 pounds. Back to my 20’s weight wise. Weird.
Kate has a ct tomorrow to check on the stent, see how it’s positioned, if it’s functional. That’s necessary because the feeding tube placement needs a good stent to produce the results we hope.
Strange how the world shrinks when you’re sick. Your body demands attention, often full attention. It wants to know where the bathrooms are, where the bed is, and the approximate time necessary to navigate between them. It knows other things are going on in the world, Trump’s still the president, right?, but doesn’t really give a damn. How can I get out from under this damned thing. That’s on the top of list.
Discovered King Sooper delivers! Whew. That made things a lot simpler. Got the first order this morning. A few missed beats, but not too bad and the young lady brought the stuff into the kitchen. $12 to avoid the trip, the trek through the store, checkout. Way, way worth it. Especially with my old bud pneumonia dogging my every breath.
From my home based hospital ward to yours, cheers.
New diet. I have two sure fire diet plans for those with enough cojones. The first one I’ve written about before. The interstate move from sea level to 9,000 feet diet. The benefits begin when you start packing, but they really peak (lol) when you arrive at your new home with a houseful of boxes. Unpack as you acclimate to your new altitude. It was good for 20-25 pounds for both of us.
The second one, the adenovirus diet. You may need to locate a friend or neighbor with a bad, bad cold, but, hey, it’s winter! How hard can it be? Expose yourself. Get sick. Start enjoying the benefits of your new weight loss plan. The symptoms? Oh, they’re troublesome all right. But you know what they say: No cross, no loss. This one’s been good for ten pounds for me. Yep. I’m at 140 right now, within ten pounds of my weight throughout my twenties and well into my thirties.
Too drastic? Well. I get it. Two weeks of sore throats, coughs, fevers, chills, chest infections, and serious malaise have made this diet less than fun. Of course, no one ever said weight loss programs were a laugh riot, eh?
I have gotten modestly better. I’m up here, for one. My sore throat has diminished. The fevers are gone. Still coughing, still have pneumonia. Kate has a ct of her stent on Thursday and I have a followup on my pneumonia at the same time.
I know this last couple of week’s posts have not been cheery reading, but there you are. A life is a life and sometimes its challenging.
Just a note to say I’m still kickin’, albeit a bit feebly right now. Pneumonia continues. Fatigue. Coughing. Occasional fever.
Just talked to Kate, told her I needed to be sick now. Not responsible. Tough one, given her condition. We’re looking at options. Maybe Jon. Maybe Sandy. Maybe the Mitzvah committee again.
Need help with getting groceries, light cleaning, that sort of thing. Not onerous unless you’re sick, in this case both of us. Ouch.
Such a romantic lead into my romantic birthday. Kate’s going to get the feeding tube put in sometime. CT next week to make sure the stent’s working, then the tube soon? thereafter. Don’t know. Looks like it will be a home-based operation from the git. No rehab.
Meanwhile on Friday I drug my sorry, tired a@@ to the doctor. Doc thought I’d had the flu. Have you ever had a flu swab? Oh, man. A long plastic handle, a scrub like brush at the top, thin, and a hunk of wire joining the two. One up each nostril? The wire? That’s so they can get up behind the bend of your nostril. Exquisite, but short, pain. Negative, too. As Kate pointed out, that did mean my flu shot worked. Yeah.
So, whatever I’ve had, probably an adenovirus of some type, acts like the flu. Huh. Don’t let me ever get the flu. Doc yesterday it hits “you like a truck.” Good description of the last 1o days. Anyhow, that seems to be gone now, replaced by a follow-on, pneumonia! Yep. Just be too sure I was paying attention, I guess. Got my antibiotics course, ten days, doxycycline. I hope to pass.
Missed two days here. I can feel it when I miss a day, like I’m not yet complete. Don’t like it, but I didn’t feel like climbing the stairs. Hopefully, the plateau has changed to slight upward curve.