Imbolc Valentine Moon
UPS delivers vitamins and bags of nutrients for Kate. On Tuesday we got a box with a styrofoam container, two gel packs to keep things cool, bubble wrap filling the container, about 12x12x12. Two vials of vitamins. Next day, two more boxes, same size, syringes, nutrient bags, batteries (a fresh 9 volt goes into the pump every day), saline flushes, heparin locks, tubing for the pump that connects to Kate’s picc line.
The logistics of this tpn feeding are remarkable. Not only do they have to ship us the right amount of stuff, it has to get here on a timely basis. And, the nutrient bags have a mixture that is tuned according to Kate’s labs, which can change on a weekly basis. Somebody has to coordinate all that and make sure the counts are right, the nutrient’s up to date, and that it gets here so we can use it. But, you can’t send too much at once because the tpn might be stopped, or certain things, like the vitamins and nutrients might spoil.
It’s no wonder medical costs are high. All of these things are one use only: syringes, nutrients, saline flushes and heparin flushes (each in their own individual packing), batteries, tubing, alcohol wipes, even the packaging for the deliveries. The need for sterility drives most of this. Kate’s picc line ends near her heart in the superior venous cava, which means there is a direct link between the outside, non-sterile world and that vip organ. Even the tiniest mistake in sterile procedure could have disastrous, catastrophic results. No pressure, eh?
I’ve gotten more facile with the various steps required to change out Kate’s nutrient bags. She draws the vitamins out of their vials using syringes. She and Julie, the home health nurse, make that look easy, but my fingers don’t find it so. As Kate said, my dexterity is in my brain, not my fingers. The rest of it, I can do. I could figure that one out, too, but with Kate’s expertise, why?
Grieving now. Looking at things around the house with that critical, ok what do we need to do with this in order to sell the house eye. Driving up the mountain considering how many more times I’ll be able to see Black Mountain on my left as I climb Shadow Mountain to our home near its peak. Not anxious about it, just sad.
Place is very important to me. Andover taught me that. Even though we lived there twenty years I never made my peace with the suburban blandness. No there there, was the way I put it. Oh, yes, our property had a definite sense of place, but it was set in a context that numbed the mind. At least my mind. Here, the opposite is true. I love the mountains, the vistas, the curves in the road. The weather. The ever changing face of Black Mountain.
As the John Muir quote on my e-mails says, “You are not in the mountains, the mountains are in you.” It’s an aesthetic sensibility. Over my years at the MIA I learned how important aesthetics were to me. Always have been. Deep in my soul. Perhaps it’s even the root of my pagan leanings, the aesthetic link I feel between myself and the natural world.
Every day I’m getting a bit stronger, stamina improving. Probably back to a new workout in a few days. I’m feeling the need to get moving, but my trainer said to wait another week. As my buddy Mark Odegard pointed out a couple of years ago, our old bodies don’t snap back the way they used to. I went way down with this whole illness and my body will require time to climb back up again.
Oh, my. Physical yesterday and a visit for Kate to see Lisa, too. We often go for each others appointments, especially with Lisa, our internist. I got a clean bill of health though I have to have labs drawn today. My follow-up chest x-ray was clear. Clear. No pneumonia, no disease process. Just clear. Wasn’t expecting that after the first one, but hey…
The woes of the body, our lamentations here on Shadow Mountain, are of the tactile world, the one bound up in life and death; but, they are not of the soul, the spirit, the ohr, the imago dei. No. In my soul (a word I’ve come to use more freely of late, meaning that part of me that bows to the god in you, namaste.) I can hear the sweet, though often very far-off hymn. It hails a new creation coming into existence even now, one shaped by the lamentations, but not determined by them.
Two saline flushes, then the heparin lock. Clamp the picc line. Half of the thiamine bottle, one each of the white cap and blue cap bottles, all injected into the tpn bag of milky, 950 calorie nutrition. The thiamine is yellow and floods into the bag creating a branched, river like stream. Shake the bag so that the vitamins and other additives mix up. Spike the bag with the plastic spike that connects to the tubing. Clamp the tubing. Connect the cassette that holds the tubing to the pump. It slides in and locks. New battery for the pump. Turn pump on. Wait, go through the pump’s programming. Unclamp the tubing. (lots of alcohol wipes in here. sterile technique required since the picc line ends just above the heart.) The tpn nutrients gradually, a milliliter at a time, snake up to the connector. Saline flush. Wipe. Connect tubing to picc lock. And, voila, breakfast, lunch and dinner.
Three weeks ago I drove through Denver around 8 pm exhausted and wondering why I was so damned tired. Getting home was hell. Today, thankfully, I’m able to be up and get things done. Still operating at about half to three-quarters power, stamina not great, but improving. Stronger today is my day phrase.
I can still hear the others singing, feel the resonance of my voice joining theirs, marching, marching, marching. So many times. The song was the old spiritual,