Seeking Contentment and Joy. Losing them.

Samain and the Moon of Growing Darkness

Tuesday gratefuls: Sadness. Unhappiness. Dismay. Prostate cancer. Dr. Buphati. That P.A. Kristie. Contentment. Joy. Pain. 1883. Ilsa May. Her role as Elsa Dutton. Cold Nights. Snow. Wild Neighbors. The West. Comanche. Lakota. The Great Plains. Buffalo. A Wild and undiscovered country still. The West of my heart.

Sparks of Joy and Awe: Home

Kavannah for election week: Contentment and Joy

One brief shining: In a small office at Rocky Mountain Cancer Care I experienced dismay, unhappiness, a strange intersection of politics and self care, and again, as I did on the drive home three weeks ago from RMCC, I felt alone, this time in the usual patient’s chair listening to the P.A. say they had no PSA for me.

 

First jolt was seeing a P.A. instead of Dr. Buphati. I liked him, was counting on his knowledge to guide me through what came next. She offered to go get him. She said she did not care either way. This was the strange intersection of politics and self care. I wanted to see Buphati, but I didn’t want to deny her skills, her right to be there. Feminism strong in me. In medicine especially. Kate.

Second jolt. We have no PSA for you. I deflated. This appointment was supposed to define the next steps in a journey that had made confusing turns over the summer and early fall. Why not? How can you not know?

She said (I don’t remember her name, if it even got through the fog.) I just got assigned.

Then I got unhappy and said so. I’m unhappy and disappointed. I don’t understand how after three weeks you don’t have it. My expectations about knowing what comes next had me in knots. I wanted, no needed, to know and I couldn’t. But why? In the end it didn’t matter.

Go ahead, I waved my hand dismissively. Still trying to reorient. She handed me the results of the DNA results for my cancer cells. Nothing of significance. That means no clinical trials, no targeted therapies. Oh. I took the papers, glanced at them, wondering where my readers were. Nothing of significance. Oh.

In the end she went to get Dr. Buphati. Who came in masked, as was she. Making it difficult for me to hear. He agreed I had every right to be upset. That somehow the lab didn’t have the results. I told him my upset had started back in June when my PSA went up after my drug holiday. Then went down after going back on Orgovyx. My visit to the radiation oncologist who said I had hormone resistant cancer. After which Kristie said, no. Not without rising PSA on two drugs. Erleada came next. This was the PSA measure that would tell the difference. But there were no test results.

We talked for a bit more. His knowledge and clarity helped me calm, but the dismay and the sadness had already burrowed their way into my feelings of the moment. When the phlebotomist, a kind Latina, young, asked me how I was, I said feeling down. And I was. She knew that already. Helped me put on my jacket.

I wanted contentment and joy. They were/are my intentions for this week, but I lost them at the words no PSA results. I wanted to be calm, clear, kind. But I wasn’t. I felt let down by Dr. Buphati, by RMCC. No mussar moves came to mind.

So the valet got my car and I drove away toward the Mountains, wanting only to be home.

 

Just a moment: That was yesterday. I got some Chicken wings, cole slaw, and Potatoes at Safeway, drove to Shadow Mountain, and binged 1883. Soothing myself. Letting myself feel sad, disappointed.

In 1883 I witnessed one of the best dramatic performances I’ve seen. Ilsa May, a young actress, plays Elsa Dutton who turns 18 as her family makes their way as part of a wagon train headed to Oregon. Her arc from bonneted, piano-playing Tennessee girl to cowgirl, then wife of a Comanche warrior and becoming a warrior herself was an alembic for my feelings. In seeing Elsa take the real agonies and the ecstasies of young maturation I rode with her. Seeing a way through the self-inflicted responses I had. Better this morning. Much better. Thanks, Elsa.

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