Imbolc and the Moon of Tides

Wednesday gratefuls: Taylor. Dr. Bupathi. Clinical trial. Dan Herman. Monarchs in Mexico. Honey and bud. Treatment burden.

Rene Good. Alex Pretti. Say their names.

Sparks of Joy and Awe:  Write on

Week Kavannah:   Yetziratiut. Creativity.   Keeping my lev focused on life, not treatment

 

Tarot: Three of Arrows, jealousy

Danger now. Confusing treatments with living. Treatments support living. Not the other way round.

One brief shining: Treatment burden can give us long term cancer patients blinkered seeing. Our world consumed by this decision, that lab test, the next protocol. The next. I’ve fallen into this trap. What Kate meant when she told me on her death bed, trust your doctors. I hear you now.

 

Wrenching myself back, into the life the treatments make possible. Writing. Shadow. Friends. Family. The life of the mind and body. Do not make living about surviving treatments.

Remember treatments give the gift of more life. Dig into revising Superior Wolf. Play with Shadow. Read another novel.

Living. Not for the clinical trial. Yet. Show up for the clinical trial. One pillar of a life well lived and one still worth living.

Do not descend into the swamp of the best care so I can see the most birthdays. No. No. Rise up from the swamp to live this day with as much passion, creativity, and joy as I can.

Back from Rocky Mountain Cancer Care. Thick clinical trial document signed. Questionnaires filled out for baselines. An EKG administered by Sarah, a young hijab wearing Muslim woman.

Asked her. Are you fasting? Yes, Yes, I am. When I mentioned the break the fast meal, her eyes lit up. My mom’s a great cook. We’ll have plenty of food. Sarah said fasting energized her. It’s cleansing. Ramadan in Colorado.

Met Kristine, Dr. Bupathi’s other P.A. I liked her. She answered my question about any opportunity cost to waiting six weeks to start a new treatment. Doesn’t matter to the outcome of my cancer’s progress.

Four weeks of imaging, blood tests. Also, a four week washout period for Erleada which I stop taking today. Orgovyx, Kristine said, is forever. It keeps my testosterone repressed.

After I signed the consent form and had my helpful conversation with Kristine, I felt I regained my agency. No longer floating in an uncertain time, between one treatment and the next, but headed toward a new, potentially better drug.

On another, less sanguine note. It was 70 in Littleton. 70! Shadow Mountain? 49. No Snow. Late February.

Also, high winds yesterday. Chinooks, Snow eaters. Would be fire spreaders.

Working with my writing coach, next moves on Superior Wolf. Editing, revising each Ancientrails post.

When I got back from RMCC, Shadow greeted me with hugs and kisses. Makes me want to see her first when I get home.

Found a new way to use my foam collar. A tighter cinching of it around my neck. Seems to contain the fatigue from my head drop.

A win.