“We’re a pair.” A phrase often on our lips. Kate loads up her feeding tube with Jevity, tapes it to the bed, and gets most of her calories overnight while sleeping. I go to bed two or three times a day trying to quiet my stomach, hoping it will be up for food later. My muscles ache as I go up the stairs to the loft. We’re trying to sort out now whether between the two of us we have one functional adult. A bit of a stretch right now, I think.
Yeah, we’re beyond waiting for the side effects. The Lupron’s expressing itself in multiple ways: nausea, gut pain, diarrhea, fatigue. Lassitude. None of this is too awful. So far. On the other hand it’s not great either. The walls of the tunnel have narrowed even further for me, though Kate’s tunnel has gotten wider.
2014
Gratitude here for her recovery. She takes off for the grocery store, the liquor store just like old times. Sorta. By that I mean those trips usually are the peak activity of the day. Way more than she could have done even two months ago, however.
In sickness and in health is a dominant theme of our marriage. I’ll be happy for that to recede, but we’ve both been able to be there for each other. Wonderful.
We’re at a point where we need some help with meals. At least until the radiation is done and a week or so after that. I usually don’t have the energy to cook and Kate’s stamina gets a challenge from standing for a long time. This is temporary.
I’m still ok to drive since the “good” part of my day comes around midday when I travel out to Lone Tree.
Instead of Travels with Charlie this blog has become the Travails of Charlie. I know that. But, it’s my reality right now. A Woolly friend wrote to me and said three of his friends have prostate cancer. As we get older, that number will go up. Maybe somebody can get some solace or ideas from reading these post. I hope so.
Kate’s recovery sped up during the Recovery Moon. Yesterday she went with me to the grocery store to pick up a few items. First time in a year or so. She’s doing all the clean up after I cook, a big assist. She’s laughing, smiling, joking. She folds the laundry, does the dog’s second feeding on days I need to get my workout in before radiation. Picture me jumping up and down, grinning. Her, too, for that matter.
Sunday, June 30, 2019
As for me. Itchy eyes. Check. Sneezing. Check. Clogged sinuses. Check. Pine pollen season, unveiled now by the recent dry weather, has come to my head. Not as bad this year as last, at least so far. Thankful for that.
Got out the old Rommertopf clay pot yesterday. Plopped a 5 pound chicken in it with some potatoes, carrots, pearl onions, oyster mushrooms, red wine, and home made chicken stock. Cook from a cold oven for sixty minutes at 480 degrees. Remove lid. Cook fifteen minutes more.
Hadn’t used this handy kitchen tool since we moved here, but I will again soon. The chicken was so moist. A real treat.
No Beano yesterday, drank carbonated water. Enjoying the day off from the radiation protocol.
Each day now I’m privileging exercise over other activities. I usually get in at least two, aiming for three resistance sessions a week. Three now for sure. On the other days I do cardio, planning to start back on my interval training tomorrow. I want to get out and hike, but somehow haven’t. Just the press of things, I think.
Also, beginning Monday we’re going to focus on more healthy eating. Our diet’s not bad, but it could be better. Less red meat, more chicken, fish, pork. More vegetables and fruit. Importantly for the radiation, too, avoiding foods that cause gas. Why? Because of bubbles in the rectum. Geez, how silly that sounds. But it screws up the location of things in my gut. Bad for aiming the beam.
Things I think about while falling asleep. Life. A stream rushing down the mountain of time, a branch into a tributary, tributary to river, river to the gulf of eternity, a small part of the sea of infinity.
Project print ancientrails update. Got into May of 2015. Then, printer spooling error. Spent an hour on it yesterday, got tired. Learned long ago to quit at a point when I’m doing the same thing over and over. Come back the next day with fresh eyes. Later this morning I’ll be back at it.
Looked out the bedroom window this morning. Frost. Rained over night and the temperature is just below freezing. A nubbly ice covered the deck and the stall mats, but the driveway was only wet. Saw a mule deer crossing Eduardo and Holly’s yard.
The sun is now well up at 5:30. The victory of the light will peak in three weeks. I look forward to the Summer Solstice as the moment when night begins to claw its way back into prominence.
Jon and Ruth left Gabe here yesterday while they went skiing. A-Basin. It still has peak snow cover, may be open until July 4th. Unusual. When they got back, Ruth and I made spaghetti and meatballs. She’s turning into a sweet, loving person. A real pleasure to see.
While walking back to the house after getting the paper this morning, I thought about her and Gabe. We moved here to have these kind of interactions with them, casual and frequent. It was the right thing for us to do.
50th High School Reunion, Alexandria, Indiana
When I was in school in Alexandria, Memorial Day marked the end of the school year. Summer begins! Days of freedom wandering alleys collecting pop bottles for small change. Going to the field with Rick Meyers and the Kildow boys to play army. Playing blackjack every weekday afternoon in the paper boys shack of the Times-Tribune. The occasional pickup softball game. Riding bikes around town. Outside until well after dark. No thoughts of pedophiles, school shooters, terrorists. No climate change worries. No computers. No cell phones.
Here in Colorado school typically ends in June though Ruth, because of McCauliffe’s schedule, got out a couple of weeks ago. This is Gabe’s last week. They will both start school again in the second week of August, both at McCauliffe for this one year, Ruth in the 8th grade and Gabe in the 6th.
Ruth, as do most of her friends, has a season pass to Elitch Gardens, an amusement park that serves as summer day care for many Denver teens. They have rides named Brain Drain, Mind Erase. You can see the attraction after school’s over.
Jupiter hangs west of the Rushing Waters Moon while Antares sits below it, also to the west. Black Mountain has a faint reddish glow as dawn sun pushes up the Shadow Creek valley. In this light our lodgepole pines look lush, a vibrant healthy green against the red-tinted Black Mountain. Another Rocky Mountain morning.
Made corned beef and cabbage last night using the Instapot. I can’t say why I like this appliance so much, maybe the idea of using a pressure cooker at altitude. This was on Kate’s list of meals for me to cook this week. Strangely liberating, having someone else come up with the menu.
Got a call from Anova Cancer Care last night. A warm young woman. We scheduled an appointment for May 17th, hoping that’s out far enough for me to have had my axumin scan. They want a cd of it. The docs at Anova are radiation oncologists. Who wants to need an oncologist? Nobody. But, to have them available and experienced when you do. Pretty damned valuable.
Impeachment. A bad idea. Trump needs to be invalidated at the ballot box. Impeachment and all the hoopla surrounding it would only embolden all the creepy crawling things wearing those red hats. Vigilantes at the border. Proud Boys gearing up to attack the liberal left. McConnell. Republicans who have been Jim Jonesed by the orange tumor on our democracy. The regular white folks who think putting others in their place, domestically and abroad, is what Americur is all about. The judges who somehow believe in the infallible words written in the constitution, not by founders who were complex and nuanced, but by the almighty herself working through their pens. We need all these folks to suffer defeat in the democratic way, in an election, a fair election. Which might be more difficult to pull off than we imagine.
Kate and I discussed ways to relieve my stress. One source of stress for me was the evening meal. Part of me, a very strong part, wants to be a chef every night. Something new, something remarkable. Understand the ingredients, bring out their best, try new techniques. Problem. That requires a lot of forethought. Buy the right ingredients. Have them to hand. Try to replicate things I barely understand. And, it results in duds. Failures. Sometimes. Unnecessary stress.
Kate’s solution? She’ll make a menu plan for a week and I’ll cook it. Oh. I can do that. That relieves me of the need to create and in this instance I’m happy to let it go. Last night I followed her suggestion: spaghetti and sauce, spinach. Straightforward. Tasty. And, no cheffing required. Doesn’t seem like it would be much, but I felt so much better when I saw that menu plan.
No word yet on the Progoff workshop. When I registered, there were only 4 of us and they require 7. Hope it happens. I need the clarity about this time that these workshops always give me. The Colorado years have been wonderful, filled with family as we wanted, saturated with mountains and wild life and blue sky, anchored by new friends and community at CBE. The Colorado years have been awful. Cancer. Sjogren’s. Knee and shoulder replacements. (which have helped us both) Kate’s bleed and the sequelae. Interstitial lung disease. Trips to the E.R. Hospital stays. Vega’s death.
So much here. The grit of my life over the past three and a half years. How has all this changed me? What direction does it suggest? How might I live into it with greater joy, greater passion, greater serenity? I also need a break from the every day. Not just because it’s been stressful as I said below, but because it’s been a long time between breaks. Tom and Mark’s visit was a nice respite, but too short.
The Progoff workshop is five days, morning and afternoon in a retreat center. I’ll be a commuter because of the dogs and Kate’s tpn, plus it’s cheaper. If it doesn’t happen, I’ll have to figure out some other way to get perspective and get a break.
A bit of snow. Twice. Over the last couple of days. Any moisture is good moisture in a drought and we’re climbing out of one here in Colorado.
Cooked that tenderloin roast yesterday. Oh, boy, is that good meat. And, it provides several meals over the week. Bread, potatoes (instant pot for 6 minutes), and asparagus in a sauce Kate found at Tony’s. We ate at 4 p.m. Kate said it was like a holiday meal.
Yes, a sabbath meal, I replied. I’m still fascinated with the idea of the sabbath, especially as I’ve learned more about it at CBE. In Jewish thought the sabbath is far from a day of rest, though it is that, too. It is a foretaste of life when tikkun olam, healing of the fractured world (or, more interestingly, of a fractured God), has succeeded and every day is a sabbath. The sabbath pulls the observer away from the technological world which has come to so dominate us, setting aside a time for family, for study, for nourishment of the self.
There are, it’s true, a lot of rules. I don’t even know most of them, but one of the rules is that you have the best food on the sabbath. Also, sex. You can’t light a fire (or, turn on electricity since it causes a spark), so the cooking has to be done before hand.
It could be one model for retirement, for the third phase. That is, the third phase as a time of personal enrichment, caring for others, enjoying the best life has to offer. Why not? And, you could golf, too, if that turns your crank.
Got an appointment with Dr. Eigner’s physician’s assistant, Anna Willis. If my PSA rise needs further attention, I know she’ll get me in to see Eigner. I’ve calmed down about it, the tincture of time as Kate says. Who knows, perhaps it’s nothing at all. Though I don’t think so. Glad it’s this Monday. Although. That could mean the confluence of death and taxes. Would be ironic.
Next Saturday night is the communal seder at Mt. Vernon Country Club. We’ve gone a couple of times, had reservations last year, but Kate’s shoulder surgery knocked us out of that one. Although the pesach meal is commonly referred to as the seder, seder means order. The haggadah, which means telling in Hebrew, reflects the order of the passover ritual. Used to be many, if not most, of the haggadah were a small blue booklet from Maxwell House Coffee. Over the last decades though the number of haggadahs has multiplied, driven by changes among the various branches of Judaism, yes, but more by cultural/political concerns like feminism, environmentalism, reconstruction.
The central point of the passover is the reenactment of the Exodus and the creation of a Jewish people. I learned last year that the telling (the haggadah) of the story focuses on children. You might be familiar with the four questions, proceeded by the often satirized question, Why is this night different from all other nights?
Easter is coming, too. I plan to take Gabe plus Jon and Ruth to a Rockies game to celebrate. No, not Easter. Gabe’s birthday.
Took Kate yesterday to her electro phys (pronounced, fizz) appointment. This one monitors her pacemaker. Unremarkable in terms of her health, really, since it hardly ever fires, but if necessary it’s there. What was interesting to me is the building. It looks like Valhalla for cardiologists. After that final operation, after that final payment on the Maui condo, after that last beat of their own hearts, cardiologists might gather in this Viking long house and feast on Sæhrímnir, the ever dying, ever resurrecting beast that feeds the fallen doctors of the heart. If such a final destination is anywhere, here near the Rockies seems appropriate. May they upcode in peace.
Max Bruckner (1836-1918), The Walhalla, backdrop for the scenic design of The Ring of the Nibelungs by Richard Wagner (1813-1883). Bayreuth, Richard-…
Afterward we went to Tony’s Market. I like Tony’s because you can spend a hundred dollars and still only have one bag to carry to the car. We’ve kicked our frequent eating out down two notches and do it at home now. We buy things at Tony’s like a tenderloin roast. Expensive? Yes. Compared to tenderloins at a steak house? Not at all. Tonight with asparagus, home cooked bread, boiled potatoes.
Kate’s much better. Her stamina has improved enough that we went to CBE last night for the Grateful Dead shabbat. Rabbi Jamie loves to perform and the CBE house band is better than good. Steve Posner on lead guitar rips it out. The harmonica player is wonderful. Drummer and bass ditto. Cheri Rubin, my friend Alan Rubin’s wife, an accomplished musician, plays the piano. She made a living in New Orleans before turning to reinsurance. Four singers, two men and two women, provided voice backup.
This particular Grateful Dead shabbat, they occur occasionally, honored Leah, who recently left her position as synagogue administrator. She’s a Dead-head who sells tie dyed shirts and other craft items at Grateful Dead tribute concerts. She had a small shrine to the Dead over her desk. What was remarkable about this evening was that Leah’s leaving the job was not completely voluntary.
In a small community this could have been cause for bitterness or dissension. Instead folks got up and told Leah how much they appreciated her. Rabbi Jamie altered the words to a Dead song, changing the name of the woman in the song to Leah. She came up and sang with the two women in the backup group. It was delightful, charming, and altogether unlikely (in my experience of leave takings in churches that weren’t voluntary.). And, Leah responded by saying that she looked forward to getting back into the congregation, volunteering. Pretty damn amazing.
First full week of resistance work in two months plus. And I have the aches to prove it. That’s the irony at 72. Get in shape. Get some aches and pains. My o2 sats alone have made me glad to have them. You may think it’s a technique problem for me, but I’ve been at this a long time, so my technique is pretty good. It’s mostly the normal strain and wear that comes from making muscles and joints do things they’re not yet quite ready to do.
You probably know this, but it’s always struck me as weird that you build muscle by creating small tears in the muscle tissue. That’s what the resistance work does. I can’t think about it too much or it makes me not want to work out. Similar to my attitude toward shaving. Here, take a very sharp piece of metal and scrape it across the delicate skin on your face. Every day. Without fail. Or be shunned socially. Well, no.
for instance
Jon gave Ruth a copy of Howard Zinn’s, A People’s History of the U.S., and three alt-history sci-fi novels that imagine different futures for our country. 13 is the age of disenchantment, so very fitting. Next comes the alt-history of parents, the one in which they know nothing, never knew anything, and have nothing whatsoever to offer. Somewhere in college or soon after, that alt-history changes to a utopian vision of parents for many. Not me, however. At least not with Dad. Would have happened with Mom had she lived.
Forgot to tell Ruth that I was 13 in 1960 and her grandma was 13 in 1957. That should give her an idea of how old we are. Almost before rock and roll. Well before the moon landing. Dial, bakelite phones. Black and white TV. You know, antecellphonian.
Drove into Denver yesterday on an empanada run. Kate loves these Argentinian pierogis, and she has them for snacks, sometimes meals. The closest Maria’s is on South Broadway, a street I call the Green Mile for its high population of cannabis dispensaries. It also has funky shops, art galleries, wine bars, lots of interesting restaurants.
Always wanted to stop at this drive-through hamburger stand, so I did yesterday. For health food. Two hot dogs and a chocolate shake. The hot dogs were good, so was the shake. I do wonder about the health risks for the people who work there though since the drivethrough is, as you can see, a covered affair. Gotta concentrate the car exhaust.
It was 78 in Denver. 78! I mean, really. Widest temperature swing so far going home. It was 57 back here on Shadow Mountain. The upside of being up. Compensation for low oxygenation.
Another King Sooper delivery, too. Their service has been a grocerysend for us. Ha. Gabriel was our shopper yesterday. Kate put away the refrigerated and frozen stuff. She also folded clothes, bagged up her empanadas, and did her ot/pt. This was a good, but hard week for her. We were out to eat three times, twice related to appointments. Each time wore her out. A lot. The good news? She got up chipper each morning. The tpn with the ot/pt has advanced her stamina and her resilience.
Went to Domo last night. Ruth’s favorite spot and her choice for birthday number 13. In fact I think we’ll probably be at Domo for her birthday until Ruth leaves for college. Kate went along. It wore her out, but it was worth it. She took a box of several rings and gave them to Ruth. This was in addition to our $10 for each year present we give in the Korean red gift envelopes.
Ruth, Jon, and I had wank0sushi. This is sushi prepared with different sauces, toppings. No soy sauce. It’s a lot of food and I ran out of room, so the birthday girl happily finished mine. Gabe’s using chopsticks, sort of, and had a big bowl of ramen. Kate chose appetizers, bland appetizers since she’s had more than her usual issues with dry mouth this week.
When we decided to move to Colorado, now five plus years ago, the primary reason was to be part of Ruth and Gabe’s life as they grew up. Ruth was 8 and Gabe 6 at the time. Their lives as children had begun to whizz by. Occasional visits weren’t enough.
Last night when we left the restaurant for Shadow Mountain I turned to Kate and said, “The move was worth it.” She smiled, “Yes. It was.” Birthday dinners and a big smile like that one. Way worth it.
Gabe is also an April baby, born on Earth Day, April 22nd. I’ll take the three of them to a Rockies’ game for his birthday. He’s pretty excited about that.
One baseball game a year. That’s me. I like the whole take me out to the ballgame thing. Once. Then I remember that I never developed the chops to enjoy the game itself. But the hot dogs and the brick and the seats and the national anthem. I even like the groundsmen doing their job. The first three innings or so, I’m interested, watching the pitchers, the hitters, infielders and outfielders. However, this repeats and repeats and repeats. I’m not much of a sports fan.
The move also had the unintended consequence of allowing us to support Jon during his divorce. Ruth and Gabe, too. Again, worth it. Glad we’re here.
Alan in the Evergreen Chorales Holiday Concert
Had lunch with Alan Rubin yesterday at the Wildflower Cafe in downtown Evergreen. Kate and I used to go to the Wildflower and do our money meetings a couple of years ago. Alan’s taking over as President of the Ovation West board in July. He performs in their musicals, too. And, sings in the Evergreen Chorale. With the Rotary and Beth Evergreen he’s got an active third phase underway and having a great time with it. It’s healing to get out of the house, to talk with another adult. Good to have a friend like Alan.
While parked, I also saw Dan Herman, who will be president of the CBE board after Hal Stein’s term is up. He had coffee with our nearby neighbor, Sheri Pissoneault. She’s the chair of the education committee for the synagogue. I liked seeing them in Evergreen, helps with that this is our home feeling. Small town.
Back to regular workouts, still very far from back in shape, but getting there the only way you can, by repetition. I haven’t gotten back to the off resistance days cardio, but I will. A few aches and pains go along with working out at 72. Part of it. Interestingly, my o2 sats have already improved with the limited work I’m doing right now. 95 in Denver last night. 93 here this morning. (that’s % of 100, or full saturation of the blood with oxygen)
When we got into Domo, Denver was 70 degrees. We were, as often happens at this time of year, over dressed. When we got back home around 7 pm, it was 48 up here, headed down to 30. Vivé la differencé!
Grocery delivery today. Having a delivery service for groceries is a wonderful thing right now. Sometimes the week’s activities wear us both out. Like this week. Kate and I ate three meals in restaurants: No No’s, Aspen Perks, and Domo. The first three we’ve eaten out since her bleed last September. While it was wonderful to be out with her, it tired her out a lot. Me, too, though not as much. Not having to spend the time and the energy shopping in person is a real gift.