Category Archives: Health

Tightrope

Beltane                                                                         Closing Moon

Realized after talking to Kate yesterday that I have a tightrope I’m walking.  I need to recognize my prostate cancer as potentially fatal, because of that I need to find the best treatment possible. Yet. I also need to find ways to be with that possibility and not sink into the slough of despond. There’s a tension created by the act of staying focused on the medical issues and trying to maintain calm. I’m sure this is not novel to me. Anyone with a lethal agent inside them must face the same dilemma.

One solution is denial. Nope, nothing’s going on. I’m ok. Another is wallowing in the terrible fate. Poor me, why me, oh my. In between these two extremes is a path that sees things as they are, but does not give up living. Of course I swing between the two poles. At certain points I think oh this is no big problem. It’ll get fixed (how is not part of this thought pattern) and I’ll be better and life will return to normal. At other points the disease has already won and I’m planning my last good-byes, writing my obituary, planning my funeral.

Most of the time I’m aware of the disease, know I’m taking the steps that can be taken, and am at peace. Life is not normal. Concentrating for Latin or writing has not returned. Daydreaming seems to have a foreshortened horizon. I no longer imagine long projects like Superior Wolf or translating Ovid, finding a way to go on another cruise or start researching certain facets of Western history. Now my daydreams stop at tomorrow or next week, do not extend into the next decade. This is, I suppose, my subconscious reminding me of the predicament.

I do not feel anxious. I sleep well and, for the most part, am level and engaged, not wandering off to thoughts of doom or what might be. In my opinion I’m handling the situation, if not always well, at least honestly. Not sure what else I could ask of myself right now.

A Dip Down

Beltane                                                                 Closing Moon

NB: Yet another down post. Skip it if you like.

1st Grade Me
1st Grade

Yesterday’s organ was the eye. Glaucoma check-up. Lots of gazing into my eyes. Dr. Repine said, almost as if she were surprised, “Your eyes look good!” She’s very enthusiastic. “And, you have some cataracts, but if they get too big, we’ll just take them out!” I told her my eyes felt good. She seemed to want a response. Back on Latanoprost, from now on, I imagine.

I felt pretty good up to this appointment, though I was beginning to weary of high stakes medical tests, waiting for results. Didn’t realize how weary until, after squinting through my sunglasses all the way home-they dilated my eyes-and getting a headache, I suddenly dropped into a funk.

 

 

Here’s how the funk went. Moved to Colorado. All that. Then on April 14th a physical. Since then negative findings, consultations, biopsy, diagnosis, echocardiogram, glaucoma check and more to come. Consultation on the 11th about prostate cancer. Treatment, probably surgery, recovery. Holter monitor installed on Tuesday, wear that for a month. What’s causing my shortness of my breath? Not why me. No, not that. But the constant drip of this negative, that one. Of people probing, poking, peeking inside, evaluating, deciding. And waiting. Waiting. Wondering. I was, too, tired.

This morning I’ve decided I need to stay at home, get some stuff done around here. Go easy. Maybe catch a movie today or tomorrow. Better rested this morning I feel better, too. But I need to let my body and mind and my spirit rejuvenate, refresh. This is a marathon, not a sprint.

 

 

 

The Organ Recital

Beltane                                          Closing Moon

Drove back from the echo cardiogram on Interstate 70, turning off at Co. 74 into Evergreen. Rock mitigation had US 285 one way and after my 4pm appointment I would have hit it at rush hour.

Instead I ate at Sushi Win in Evergreen, overlooking front range mountains, some of which looked like old shield volcanoes. Looking at them while I waited for my spring roll and sashimi deluxe, I scrolled through (in my mind) the living images of my heart that I had just seen.

Yes, for the second time this month I had a major diagnostic exam, first the prostate biopsy and now the heart echo. Noah, my sonographer, was a hip looking guy in black scrubs, spiky but neat hair and a pleasant manner. He talked to me throughout the exam.

Awe. That was my heart, beating at that moment. I could, for those 25 minutes or so, look inside my own body. Think about that. The body remains sealed, even to those who inhabit it. Looking inside is a taboo. I read a book by a surgeon who said that overcoming that taboo was necessary to surgical training.

The valves looked so tiny, so frail fluttering away in a steady rhythm, pumping my blood, taking it in from the venous return and pumping it back out, oxygenated by the lungs to the rest of the body. It’s miraculous, I said.

Yes, Noah said, that organ amazes me each time I do this. Everybody’s is different.

7-10 days from now I’ll get a call from my primary care doc, Lisa Gidday. She’ll relay the findings after Tatiana Tsvetkova, the cardiologist, reads the echo. Then you’ll get an official diagnosis, Noah said.

Not done yet, however. I still have to wear a holter monitor. I get fitted for that another time. More fun with organs.

Encouraging and Unsettling

Beltane                                                                      Closing Moon

Since I’ve begun letting folks know about my prostate cancer diagnosis, a curious and, while encouraging, a somewhat unsettling thing, too, has happened. One friend wrote, “Don’t despair. I faced this ten years ago and am doing fine.” Another, “Because of my age (80’s), I have seen more than 50 men go through this and most of them are doing fine. Many over 10 years later.” Another, “We have three friends going through this right now.”

That so many report good news obviously buoys me up, makes me feel more confident about the path ahead. I’m very glad to have personal testimony about the power of current treatment protocols.

But. I compare the general awareness among men about prostate cancer with the broader and much more public awareness of breast cancer among women and realize something is out of joint. The pink ribbon, the runs, the NFL sneakers, the celebrities have all made breast cancer information broadly available. Women are keenly aware of the warning signs, the tests for its presence and the treatment options if faced with a diagnosis.

Why don’t men have the same level of awareness? I imagine it’s a combination of things. Prostate cancer doesn’t strike, typically, until men are older. The average age at diagnosis is 66. The prostate is a less well-known organ that has a little understood function, even by men. Men have not had their feminist movement moment, so there has not been a broader cultural push for health related to men’s reproductive organs.

Men have a stoic reputation when it comes to reporting health issues. I don’t know if that reputations bears up under scrutiny, but it does serve to obscure conversation among men about health matters.

Then there’s sex. Our society has a confused, contradictory and tangled attitude toward matters sexual and the prostate is in that mix. We don’t know much about it to begin with and what we do know we don’t want to talk about.

Is it time for all this to change? At one level, yes. Of course. Just makes sense. On another, no. It isn’t happening and doesn’t seem to be happening. What would it take to create a more general and healthy understanding of prostate cancer? I don’t know.

Zombies

Beltane                                                                         Closing Moon

Cancer still on my mind. This time the battle, war, fighting, struggle words so often attached to thoughts about it. Cancer caused 585,000 deaths in the U.S. in 2013. That’s a city, a whole city the size of Tucson or Milwaukee. From this social perspective perhaps a fight against or a battle against or a war against cancer makes some sense. That’s a lot of people to lose and war would be fought if some nation took out Tucson or Milwaukee.

On a personal level though, say my level, those militant words feel like the wrong metaphor. Cancer is not, in my body, an outside invader that has breached my defenses. No, it’s more like a group of deluded idealists, a utopian commune to which I (or at least parts of me) belong, dedicated to the concept of their own immortality. To extend this metaphor the commune might grow and grow and grow, taking resources from the larger population until everyone outside the commune starves.

Another metaphor might be mental illness. Gripped by the illusion that certain actions will make me live forever, I first cut off a foot and eat it, then a hand. Later, hungrier still, I cut off a leg. At some point there will be nothing left to feed the illusion, but the conviction remains and I take no other sustenance. Death results.

Cancer, of course, has no motive. It has no intention, other than survival. Yet, it is my own cells gone off on their own, to a different rhythm than the rest. As they grow, zombie like, staying alive when they should be dead, cancer recruits other cells to supply it. The host, me, must furnish more and more resources to keep the cancer cells alive. This process has a finite limit.

Cancer cells are more horror movie than battlefield. The first step, it seems to me, is to stop seeing cancer as an enemy and begin to see it for what it is, a deviation from normal cellular processes that left unchecked will slowly consume the host from the inside. It is not fear or violence that will put a stop to it, but careful application of known techniques like surgery (removal), chemotherapy and radiation (to stop the zombie cells). Will these techniques always succeed? No. Not right now.

Horror movies rely on fear for their effect. So do the metaphors of war. We need to back away from both and demythologize this monster. See it clearly. Then, deal with it.

 

 

To Our Future

Beltane                                                                              Closing Moon

We celebrated last night at the Prague in Evergreen, wiener schnitzel, reminiscent of our honeymoon’s late night dinner on the Ringstrasse in Vienna. We’ve traveled a long distance since that red checkered cloth table across from the Hotel Astoria and we’ve traveled it together.

The house in Andover will close next week, the funds from the sale wired into our bank account. This means we can replenish our emergency fund. The emergency fund served us well during the move, providing our our 20% down payment to avoid mortgage insurance, paying the movers and the many miscellaneous expenses of an inter-state change of homes. We did drain it though, almost to the bottom, with all of our non-IRA cash then effectively tied up in the Andover property.

With two mortgages and two sets of utility bills we’ve had a tight budget in Colorado for our first five months and little reserve. So, yippee!Kate and me1000cropped

We’ve also confronted, unexpectedly, a serious challenge to our life together. A cancer diagnosis may not seem like a reason to celebrate, but it was for both of us. As a couple, we work much better with facts, data. We can then make decisions, choose ways to move forward. From April 14th, the date of my physical, until May 21st, the day I got my biopsy results, we were in a zone of ambiguity. That was tough on both of us.

With not only a diagnosis, but actual data about the cancer, we can work together, suss out the most intelligent line of treatment. That removes the anxiety of the unknown and helps us see a way beyond vague fears. It helps a lot, of course, that this particular cancer is usually caught early and has good clinical results for treatment, in many cases a cure.

Kate started our dinner with a toast, “To our future.” That was why we were celebrating.

 

 

An Enemy Within?

Beltane                                                                           Closing Moon

No longer the same terrifying monster that stalked through my childhood and adult years, cancer yet demands careful attention. And, it kills.

No longer hypothetical for me, but a fact. Inside my own body, lodged in the core, lies a strawberry sized organ (mine’s a bit bigger) that now carries the seeds of my own apocalypse. I imagined I would feel my body had betrayed me, but no. Instead, if I understand it correctly, some of my cells have reached for that long held human fantasy of immortality. Oddly, if those cells reach their goal they will end their dream and me.

Yesterday I felt stunned when Ana, Dr. Eigner’s physician’s assistant, told me I had a positive biopsy for prostate cancer. So much so that her next words about the Gleason score came in my ears, rattled around hunting for understanding and failed. Later, in the book Eigner recommended, How to Survive Prostate Cancer by Patrick Walsh, they fell into place.

Cancer was what I had expected, given my PSA, the digital exam of both Dr. Gidday and Dr. Eigner and my family history. Dad’s prostate cancer at age 65. And, survival until age 89. Even so, the movement from hypothetical to real caused a reeling sensation that momentarily scrambled my thoughts.

Slept fine last night though there was, before I could get to sleep, a small fiery knot in my lower abdomen, a signal that I had unacknowledged fears. Through a trick I learned from either Carl Rogers or gestalt psychology I let this fiery knot speak to me. It spoke not in words as sometimes happens, but in a release of tension. Those fears needed acceptance, not repression. After that, sleep came and my dreams were usual.

On June 11th Kate and I will see Eigner for a long consult on what treatment option to take. After taking into account the pieces of information I have now and calculating that I have over fifteen years to live, I imagine radical prostatectomy, complete removal of the prostate, will be my choice.

Next up. Echocardiogram. Gosh.

 

 

they cannot and will not define my life

Beltane                                                             Closing Moon

The closing process with dribs here and there. At the UPS store in Aspen Park, Lauren, in a turquoise UPS shirt, opened her book of notarial acts (not kidding) and recorded her work on our closing documents. I signed them in her presence. Creedence Clearwater played on the muzak. When I said, I like your music. She nodded, I’m 67. 68 here.

The closer wants a document we sent by USPS two weeks ago, a document we couldn’t fill out online. Why’s that? Anyhow I took a photo of it with my phone and e-mailed that to her this morning. Another hard copy goes in the mail today.

A lien waiver for work we had done to follow up the inspection report. None of this amounts to much, but after three months on the market and six with double mortgages everything related has an edge. Though. Glad to do it. Want this done.

Got an appointment for an echocardiogram next Tuesday. They’ll fit me with a Holter monitor, too. I’ll wear it for a month. This is the follow up to those episodes of shortness of breath and palpitations. Could be stress related, I suppose. Trouble is, I don’t feel stressed. Slept fine last night for example.

Then, in other news, I get my biopsy results tomorrow. You might image a scene from Mel Brook’s High Anxiety, but instead I’m calm. Yesterday, as I said, I was weary of all the threats to my life and with this weariness I felt a bit down, but that has lifted.

Exercise helps. So does having framed all this in the week after my physical. That frame puts all of it, the house closing, the prostate biopsy, the heart follow-up in life as it is, not as I wish it would be. The closing takes time and exacts small cuts, none fatal. The prostate and the heart, though each could be fatal, do not change my life. I can still read, laugh, love, plan, hope. They may define my death, though I hope not, but they cannot and will not define my life. However much of it is left.

 

Living

Beltane                                                                              Closing Moon

Printed out Superior Wolf’s first few chapters to read today. I need to reenter that world, get back to writing. Will try some Latin as well.

Prime task today. Sign and mail closing documents. This requires visiting a notary.

Second workout. Back at it.

Sleep still problematic. Not anxiety. I don’t feel anxious. I am weary, right now, of possible threats to my life, threats issued by own body. Still in the in-between, some information but not enough stage.

 

The Unrhythm Method

Beltane                                                                        New (Closing) Moon

Hard to get into a rhythm. All this health stuff. Narrows my world, makes it seem focused on what’s wrong, not what’s right. And a lot is right.

Take the mountains. Everchanging. You’d think they’d stay the same, these massive intrusions from beneath the earth’s crust. So solid. So there. But it’s not so. This month the precipitation has put fog all around us, Black Mountains lies obscured not far away. The Rockies look more like the Smokies.

As I have driven them this month, the Blue Ridge Parkway, civil war battles, the early days of the American revolution have stirred in my memory. But this is not the east. This is the arid west and its imprints are from the first nations, from the Spanish and the Mexicans. Here the early years of human habitation stretch back over 11,000 years. Here the lands had no fixed borders, but were fluid, changing as first nations grew and waned, moved.

Here the incursions came not from the east across the broad Atlantic, but from the south, up from Mexico. European contact here brought bull-fights and Spain, a colonial power, yes, but one inflected by the Mediterranean and the Romans rather than the Atlantic and the Celts, the Britons.

This is what I want to engage. But to do it, I have also have to deal with my health. The third phase.