Category Archives: Health

Yet Another Appointment

Summer                                                                   Healing Moon

Today is my pre-op/post-op consultation with Dr. Eigner’s physician’s assistant, Ann. She’ll go over what I need to do for surgery prep, what we can expect during the surgery and immediately after, then give us post-op instructions. My level of comfort with all this is substantially higher with Kate involved, both because she’ll be there to hear what I miss and because her own skills make her over-qualified to help me before and after surgery.

I continue to sleep well, have no symptoms (none expected, but still good). Since we are now 10 days out, I’ve stopped my aspirin. My feelings have become more labile as the surgery approaches, which makes sense to me.

The surgery itself has a paradoxical quality, as I imagine many such surgeries do. The paradox is this. It offers me real hope, an opportunity to continue my third phase cancer free. And, that, of course, is the reason for the surgery. On the other hand it has attendant pain and discomfort, improbable but possible complications.

It also might reveal that the cancer is worse than we imagine.  My staging included the seemingly innocent, NxMx. The N refers to the status of the lymph nodes near the prostate and the M refers to possible metastasis, or the spread of the cancer to the rest of the body. The x means unknown.

This is where the paradox becomes strong, intense. The surgery might (probably will) move me past this whole episode. In that case, hallelujah. Or, it might dash that hope and begin another series of tests and treatments. In that case, uh-oh.

The good news is that if Eigner had suspected lymph node or metastatic involvement he would have ordered imaging studies prior to surgery. He didn’t. That’s a positive sign, but only that. We won’t know until the surgery is over, perhaps not even then. We may have to wait on the pathology report, or even the first few p.s.a readings in the year + after surgery.

My emotions ride along the trajectory of which outcome dominates my mood. Most of the time I imagine negative margins on the removed prostate. That means no cancer cells in the tissue surrounding the removed organ. Not definite relative to NxMx, but very positive. Occasionally my rational side will bring me up short while I’m feeling good about this most likely outcome. Wait, it says. You might be right, but what if you’re wrong. Then, you’re feelings will fall from the height of hope to the canyon of uncertainty. Oh. Right.

When rationality moves me to consider all the possible outcomes, then I can slip into fear. One problem with an active imagination (7 novels and one underway) is that I have no difficulty following the path of more tests, more treatment all the way to death. The first feeling that comes in the wake of that thought is fear.

I’ve worked out over the last 50 or so years, a philosophical position that calms me before the fear dominates and shakes my foundations. Usually. Nothing’s 100 percent. I’ve expressed it elsewhere. The short version is: something, some time. It’s buttressed too by my belief that life is the mystery, death is ordinary. And those rocks around Turkey Creek and Deer Creek Canyon roads. The ones that have been here so much longer than I’ve been alive and will be here so much longer after I die.

 

Possibilities Opening Up

Summer                                                             Healing Moon

Bookcases 300Spent part of yesterday morning moving books, unloading the old IKEA shelves so that Jon can install my new birch shelves. The loft finally feels poised to move from stacks of books, boxes of art, rows of bankers boxes to a finished space. It won’t happen this week, probably, but very soon.

Having my library in boxes or in stacks on the floor has made me feel claustrophobic. I can’t stretch out, find the books I need, the knowledge I need. It’s difficult to express, but I’ve developed a working environment that fits my peculiar needs; and, it’s been unavailable as a whole since we decided to move late April of 2014. That’s a long time.

There’s a building excitement for me as I can see it together again. Sure, family is critical. Friendships are essential. Travel, the arts, going out is fun, even necessary. But also core is work. Not work in the get ahead, I want to be successful and rich sense, but work as an expression and fulfillment of your unique Self. In work that ability to draw, to do math, to invent new machines, to sing, to dance, to heal, to create quilts, to write, to learn flows out into the world as a new creation, a gift the universe needs, a giving back to the source of our life.

I need to work, now as much as ever, and I’ve felt blocked for months with the move, selling the Andover house, settling in and the emergence of medical problems that have to be dealt with. In this last instance the tomorrow wall has blocked me, too.

I’ll say again that the tomorrow wall, which stops my imagination at around July 8th, has forced me to stay in the here and now of doctor visits, decisions, settling in matters. A good thing. But, it will need to come down. It has become a Berlin wall between me and my work. With the changes underway in the loft I can feel it begin to crumble.

Fear Leaves

Summer                                                         Healing Moon

Denver had some serious weather yesterday: a tornado not far from Jon and Jen’s home, beating rain that took out Jon’s cucumbers, urban flooding that set off alarms in the building where Bernie Sander’s spoke last week. We have rain in the forecast for the next week or so.

The fear subsided over night. Not sure why, but it’s replaced this morning with the calm about the process that I’ve felt most of the time. The trigger yesterday was, obviously, my pre-op physical. It pushed the surgery and its low, but real, uncertainty right in my face. Calmness can be a trap, too. If I’m not calm, am I doing this wrong? Am I not centered? Not grounded? Not spiritual enough?

We all cycle through various perspectives on important issues. That’s a normal and healthy way of seeing different sides. Some of those perspectives can be frightening, e.g. the instance in which the surgery goes well, but some cancer has escaped into my body, metastasized. It was that possibility that creeped into my awareness yesterday and it took hold, stayed present for much of the day. Oddly, even though I found Dr. Gidday very reassuring and I believed her confident appraisal of my prognosis, at the same time, the fear tickled my heart and fingers.

There are, too, family matters to deal with and I had to work out how to deal with them. These things don’t come naturally to me so I have to consider them, plan. Decided on a frank and open conversation which, I admit, could have come to me first, but didn’t.

So this is what I’m doing with my one wild and crazy life. Right now.

Fear Was My Co-Pilot

Summer                                                      Healing Moon

Had my pre-op physical this morning, two weeks before my surgery date of July 8th. On the way over I drove through Turkey Creek and Devil’s Creek canyons, a beautiful backway to the southern Denver suburb of Littleton.

I was afraid on the way over. I’ve been distracted and anxious, unsettled so far on this journey, but have not felt afraid. The fear crept in as I drove, not paralyzing, but evident. The beauty of the canyons with their pines and aspens, the exposed rock and the mountain sides climbing up for the road soothed me. That’s why I chose that route.

Those rocks, I thought, have been here long, long before me and will be here long, long after me. At an intellectual level I find that comforting. Today though the surgery was getting more and more real. The fact of cancer, too. The fear was not about the surgery or the recovery. It was about the results of the surgery.Will I be cured or will there be lingering doubts, cells that escaped into the lymph nodes or into the body?

98% of the time I believe Eigner will get all the malignant cells and the pathology report will relieve me. 2% of the time, I’m not sure. Today was/is all 2%.

Dr. Gidday, my internist who did my pre-op, was great. She referred her 82 year old father to Eigner when he was diagnosed. She trusts Eigner and so do I. Dr. Gidday’s nurse Katie, who had another patient and couldn’t check me in, stuck her head in the room and asked me how I was doing. There’s a lot of caring in that office and I feel it.

Fear seems natural to me, so I’m just reporting it. It’s not dominating me. At least not right now.

 

Nourishing the Self

Summer                                                      Healing Moon

Finding myself driven into my Self, wanting to nourish my soul/Self, my inner life, needing to do that. Mood a bit down, usually precedes inner work, and I plan to follow that thread today.

I may use the intensive journal, read some poetry, look into some books on the inner life. Meditate. Maybe hike a bit.

The tomorrow wall has gone back up, closing off my dreams for the future. This is not bad. It focuses me on the here, the now, but I will not allow this wall to stand after July 8th. No matter what the final pathology report says I plan to regain my usual rhythm. Write. Translate. Explore Colorado. Learn new things. Go out with Kate, the grandkids.

An example of what’s going through my mind right now. In traffic on I-70 yesterday, headed east, away from the mountains, I looked at all the cars and trucks and buses filling lanes, six lanes altogether, going east and west. Unbidden came the thought that all these drivers, all the passengers will get taken off the board.

This traffic, filled with strangers on unknown journeys to unknown destinations, purposeful and not, was a moment in history. And history’s tide would wash over it, sweeping in its wake all the souls present.

This was not a dark thought, rather a descriptive realization, offered to me, I think, by my unconscious. Why? To place my current predicament in context. Am I going to die? Yes. And so are all these others. As have all the others who lived, say, 120 years ago.

A Paradox. (more on dealing with cancer. if this bums you out, skip it.)

Summer                                                                Healing Moon

I’m sleeping fine. I don’t feel that jittery, too many cups of coffee acidity in my stomach. I know what regular anxiety feels like, having been all too familiar with it for many years. Aches in my bunched up shoulders. Uncertain about my worth, what I should do. Waves of small fear about what now seem like the silliest things. For example, will the clerks at Best Buy demand to see my driver’s license if I pay by check? And refuse to let me use the check?

So it’s easy to assume that I’m not anxious. Easy for me to assume that. Yet, if I step back a minute, I’m not writing, I’m not doing my Latin. The tomorrow wall rises more often than it falls, not allowing my thoughts and dreams past July 8th. I am, in these significant ways, distracted, not feeling well, dis-eased.

I want to be cool about this, not degenerate into the life of a patient whose every waking moment is taken up with illness, with matters of medicine. That’s no life. That’s waiting for life. Cancer is, however, hard to ignore. This is one of the more difficult struggles in my life.

Trusting the diagnosis, the treatment feels both justified (I’m confident in the pathology, the physical findings, the PSA jump. I trust Dr. Eigner’s experience and his approach.) and necessary. No second guessing, I say to myself, at this point. You know what you’re up against, you’ve weighed the options and made a decision, just let all that play out. I’m doing that. That’s why I can sleep at night, why I don’t feel those frank expressions of anxiety.

I realize, of course, the irony of writing this. It focuses on the very thing I’m saying I want to let be, but I’m living in just that paradox. I feel confident about my decisions and about the probability of their resulting in a cure. At the same time there is this part of my body that no longer participates in the general keep Charlie healthy idea. All of these things persist and tumble around in me at the same time.

This comes, too, after an interstate move complicated by what felt like a very long time to sell our Minnesota house. Becoming integrated into the family here in Colorado has not been as easy as we had hoped either. It’s getting better, we’re all learning how to appreciate each others needs and feelings, but it’s not been what we imagined, at least not at first. It has been family, with joy and travail.

Laying this down as a record, an in this moment statement of how I am. Take it for what it’s worth.

Summer Solstice: 2015

Summer                                                                 Healing Moon

The longest day. The summer solstice. Is here.

Black Mountain Drive is a Great Wheel home. We closed on Samain, moved in on the Winter Solstice and celebrate our half year anniversary as Coloradans on the Summer Solstice.

While Beltane, the season just passed which began on May 1, begins the growing season, the Summer Solstice, with its abundant sun and gathering heat, is its zenith. Now the vegetables have taken root and begun to flourish, the corn and the wheat and the soybeans fill farmer’s fields, flowers brighten fields and gardens. Food is abundant for all living creatures.

Mother earth shows off her power to nourish and sustain. The shades of green become infinite, vibrant grasses shading to chartreuse aspens, light green iris blades shoot up next to gray green sage. The true transubstantiation on display everywhere, chlorophyll dominant in the landscape.

Spring fawns, calves, piglets, squirrels, fox kits, wolf pups all play and roll on the green. It is a season for life, for new life and old. This is the time when the Great Wheel reminds us that life, this one wild amazing life as Mary Oliver says, is a gift freely given and freely supported. Life is not always in its summer season, but when it is, rejoice!

It is in this season of life, of growth, of nourishment, of color that I will have my prostate surgery. Fitting, I think. Its purpose is to remove a multiplying threat to my life and what better season to excise it than the season of life at its most vibrant. My healing will gain from the sunshine, the flowers, the fresh foods available in this, the season of midsummer.

Beyond the tomorrow wall

Beltane                                                             New (Healing) Moon

“The cure to boredom is curiosity. There is no cure for curiosity.”  Dorothy Parker

Things have begun to change internally, too. Yesterday all my various appointments for the surgery were made. That’s all I can do about prostate cancer for now. The sale of the Andover house relieved that drag on the day to day. As I reported below, planned changes are underway around the house.

Though I do still have the holter monitor until July 3rd, I’m sure the end result of all the cardiology related tests will show me in good cardiovascular health. That leaves the question of my lower oxygen saturation when on Shadow Mountain. It’s normal at Denver altitude. My take on that. Let it be until after the surgery and recovery.

With all this positive change underway, my inner compass, the one that guides me into the next work, has begun to wake up. I’m not quite ready to get back to the Latin and Superior Wolf, but I can feel tendrils of my imagination creeping out beyond the tomorrow wall. (see 6/13 post) They’re tentative, not always formed, but I know their marks, their sign.

The most reliable of these marks and signs is curiosity. How might we seed and/or otherwise nurture native flowers and plants in our yard? Where are those books on Robert Oppenheimer and the Manhattan project? Would buying a 3-D printer for Gabe and Ruth to use make sense?

Other signs. Making notes here and there for future projects. Planning new trips with Gabe and Ruth. Looking forward to visits from friends. Unpacking the remaining boxes in the garage and organizing their contents. Getting the generator installation underway. And the bookshelves and workplaces for the loft.

The tomorrow wall still stands, but small vines have begun to penetrate it seeking nourishment beyond it.

 

 

Tomorrow’s Wall

Beltane                                                                           Closing Moon

As I wrote here before, my internal timeline comes up short, now around July 8th, does not, will not extend much beyond that. This interferes with the kind of dreaming that moves projects like becoming fluent in Latin and writing a novel forward. With no time in the future-it feels walled off-there is little incentive for the incremental work necessary to move long term projects.

This is frustrating, of course, but the effect, and probably the underlying sense behind it, focuses me on the here and now. This cancer. That appointment. This work around home that needs to get done. Stay close in to the center, don’t try to project your Self and your work out ahead right now.

I trust the anxiety when it comes, as I trust the relief from it. This is not new for me, but the oscillations have become more apparent, their purposes more clear.

Surgery July 8

Beltane                                           Closing Moon

The consultation with the urologist went well. My cancer has some outside the prostate presence, which makes the situation a bit more dire, but still one within the reach of a radical prostatectomy.

Kate and I both feel good about Dr. Eigner, the surgeon/urologist, and his experience. He’s done hundreds of robotic prostatectomies and hundreds of open prostatectomies. Practice is important.

We discussed the options, from hormone treatment to radiation to surgery. The moderately advanced nature of my cancer, my age and general health (good), make me a logical candidate for surgery. Kate and I had decided that already.

On the irrational side, I want that organ out of me. It’s no longer on my side. On the rational side surgery gives me the best chance of negative margins, a procedure in which all the cancer is removed, none showing at the tissue margins.

I feel good this evening, at peace with the choice, confident in the skill of my doctor and the support of family and friends.