Category Archives: Health

The Dark

A bit of a kerfuffle right now over Shadow. Nashay, the caregiver who described the dangers of the dark-bears, racoons, rabid foxes-with such quavery passion refused to take Shadow out. l protested. She said nobody would take her out. Devolved into her “calling her supervisor.” Who has not showed up. Gonna be a bigger issue as we move toward Samain, then the Winter Solstice.

Telehealth call has me a little anxious. How far has my cancer advanced? Could be minimal; could be a lot. Affects my longevity.

Lunch with Ginny and Janice and two of their friends from Milwaukee. One of them, Janice’s former student at the University of Illinois at Champagne-Urbana, has become a well-known costume designer. Looking forward to it.

Feeling a little down today. Nashay, whom I dislike. The only staff person here I don’t like. Since she’s my assigned caregiver on certain nights… Then, come to Jesus time about cancer. As well as selling my house and still in the midst of unpacking, settling in.  A lot. Glad I’m talking to Tom today and having lunch out.

 

Cancer

Got up late yesterday.

Had a visit from my palliative care nurse sub, Claire. She brought along a nurse practitioner transitioning to palliative  care from the ICU.

Bless their pea-picking bureaucratic hearts the folks at Optum believe I’m doing so well I don’t need palliative care. Peculiar since I still have stage 4 metastatic prostate cancer. It’s not going away. Complimenting me while denying me benefits. Bad insurance company. Take a time out.

The nurse practitioner gave me a new formula for recovery from a hospitalization: a week for each day. Even discounting rehab a bit because I did get out of bed some, that formula suggest months of recovery. In addition she and Claire corroborated that recovery from the pneumonia itself takes months.

These comments were meant to reassure me that I was still on the upward arc of recovery. I appreciated them. I tend to focus on what’s still troublesome-weak legs, wonky balance-and forget where this journey started.

Had my petscan. It will tell the tale about my cancer status. Telehealth visit with Christina tomorrow  for the results.

Elk Run: Week 2

Shadow got to play with Annie yesterday morning. Ginny came to pick her up. When she got home around 1 pm, she laid down and went to sleep.

Took two naps yesterday. A sleepy Sunday. Tried to watch a football game, but the buffering stopped that. When I went in for my second nap.

Got started on documents necessary to list my house. Colorado likes forms, lots of them. I’ll be on that today as well. The house sits empty, deep clean today, painting tomorrow. Staging follows. Showings. Then a contract. May it be soon.

With the house ready to go on the market and my Long Term Care claim underway, I’m moving closer to eliminating the two most complex issues I have right now. Well, cancer, too.

Pet scan this week, Wednesday, telehealth with Christina about  it on Friday. See where things are now. Decide on next steps.

A lot of change since July 1st. Here’s yet another shout out to Mary, Joseph, Melissa, Tom, Ginny and Janice and everyone else who has supported me. I’ve needed every bit of support.

Now

All the book boxes have been unloaded and their content shelved. Thanks Ginny and Janice. This means my living room has begun to take shape. The chairs have been moved back so there’s more room in front of them, yet enough space to access my books.

Ginny will pick up Shadow sometime after nine for doggy time with Annie and Luna. Shadow has a chance to run, visit friends. I’m grateful for that.

Still very weak, but as Janice pointed out, “Yes, but consider where you were two months ago.” Two months today I had just gotten out of rehab, tripped coming into the house, and felt like I should have stayed in rehab. So, fair enough.

I can navigate with the cane. As I said, stamina and leg strength are priorities. In rehab the standard line for recovery had a formula: 3 days recovery for every day in a hospital bed. Roughly 3 months for me. This is the end of month two. As Janice rightly pointed out, I’m much further along now than then.

Hearing

Settling in at Elk Run. Until the place gets put together, a while yet, that process will continue.

It will take longer to settle in with the people. In part due to a fundamental problem–poor hearing. In the dining room the clank of glasses, rising and falling chatter, the ping of silverware on plates, makes hearing a challenge. It also interferes with thought. Hard to think with all the noise. As Mike said, waving his hands over his ears, distressed, “I can’t think with all this.”  Bothered me, too.  As a result, we often trail off mid-sentence, giving over our conversations to the chaos.

Shadow seems happy. She likes her walks, her times with Annie, and playing with me.

Alan and Joanne came by yesterday. We spoke of many things. The marginalization of creativity; whether an AI doomsday await us all, my doggie. It was a delight to have them here.

Stamina sucks. Need to workout in long hallway. Thighs are weak. Strengthening my legs and increasing stamina: priorities.

LTC policy

Big event of the day. I filed my claim with Allianz. Long Term Care policy. The initial intake took about 45 minutes. Chronic illness? Prostate cancer. Trouble with activities of daily living, aka ADLs? Showering. Dressing. Other questions. These were the important ones.

Allianz now sends queries to Elk Run, Visiting Angels, Sue Bradshaw, Dr. Bupathi. At some point a decision gets made. Often a first denial, sometimes a second, then my financial people will step in. Help me.

Once approved there’s a 90-day waiting period before payment begins. That means I have to pay for Elk Run on my own for at least three months.  I will get a check covering all of Visiting Angel’s invoice. The LTC policy will also cover my bill at Elk Run. Can’t wait.

Carol, my physical therapist, came by for our last visit. As I mentioned before, her entire department, Mt. Evans Home Health Care, got axed. Announced only three weeks ago. September 30th is her last day. I snuck in as a last patient to be fully discharged.

Exercise has been hard to keep up as I learn a new routine, have visitors, and remain fatigued. I need it though or I will never dig myself even part way out of the deep hole left over from my medical July. Note to self: do it.

The cardboard wall of book boxes behind me has vanished like the Berlin Wall. Ginny and Janice. Many boxes remain; many have left the building empty. Closer and closer to moved in.

 

Need

Lasts. Last Thursday, Friday, Saturday on Shadow Mountain. Next to last visit from Melissa. Last meals. Joseph as the last guest. Ruth and Gabe coming up Sunday for their last visit here. Selling the last car I’ll ever own.

A change in address does not reveal the life change that made it happen. Shadow Mountain to Elk Run. Descending 1,600 feet. Permanently. But why?

In Maslow’s hierarchy of human needs, at the base of his pyramid, are the absolute necessities: oxygen, food, water. The second set of needs that come when those are met is safety: “The need for physical, emotional, and financial security, protection from harm, stability, and health.” Gemini

After my hospitalization I got shaken to my core. Weak and depending on others for essential activities, I lay in my bed in rehab. Nothing intruded except lunch, my next P.T. or O.T. session. No uncut grass. No need to make a meal. No worry about a wildfire forcing Shadow and me to flee. I liked that feeling, a decompression after five plus years managing on my own.

Maybe I don’t have to stay on Shadow Mountain? Before the pneumonia I wanted to leave Shadow Mountain in a hearse. Die in our bed. Remain in place until the end.

I never questioned this resolve. An expression of loyalty: to Kate, to Ruth and Gabe, to memory. A way of asserting my agency, my independence. Sovereignty over my life. A mountain man.

But then. Huh. I could live without that set of concerns? How would that work? In itself this insight about the option to live in a different way would not have jostled me loose. It was not the only motivator.

When I came home from rehab, I tripped and fell at the front door. Not a great start. As I lived into life at home after a full month in hospital beds, my level of weakness, of dependence on others added itself to my thinking.

I realized that once Joseph and Mary left, I would be alone. Something I had reveled in felt like a burden. I could no longer count on myself if I fell. Grew suddenly ill. What had been a mark of my aging, alone but not lonely, now had the feel of rationalization.

What did that mean? Projecting into life with only me in the house, I identified the source of dis-ease. Safety. I no longer trusted my physical safety, even with my Life Alert medallion.

That critical need could no longer be met alone. I did not feel safe, physically safe, living alone. No matter the memories. My living situation had to change.

On Wednesday, September 16th, it will.

 

A Morning at Elk Run

Edging closer and closer to a new way of life. Assessment at Elk Run followed by a stack of legal documents requiring my signature. Lunch there, too.

Ginny and Janice got here around 9:15 on Tuesday. I was ready to go. Ginny brought up the walker, put it in their truck. They’re such sweet, kind women. Lucky to have them as chosen family.

At Elk Run Miguel, the executive director, met me at the door. Ginny handed my folders and phone to him and we went inside, the walker bumping on the metal riser, catching a bit. I felt odd using the walker again after so much time walking on my own.

Oops. Thought I finished this. Nope.

I imagined an infirmary setting, but no. He led me to the library. The library? My kinda place. Michelle, dressed in maroon scrubs pants and a cowboy/cowgirl themed top, smiled, offered me a seat in a wooden chair. She introduced herself as the director of health services.

She held a sheaf of paper. I have a lot of questions to ask you.

OK. The wooden chairs unforgiving seat ground against my bones. I’ll do my best. Post polio syndrome. Head drop. Metastatic cancer. Exercise.

We talked, too, about Shadow. The tattooed LPN who joined in just after we got started has an Australian Cattle dog, too. Name? Charlie. But wait. She changed his name to Charlie. His first name? Shadow.

After the assessment finished, Miguel came in and I signed a stack of legal documents and learned how to pay my bill. He offered lunch. Which I ate. Chicken Kyiv with a vegetable medley and pearled grain. Delicious.

Ginny and Janice came to pick me up. I slumped into the front seat exhausted.

Elk. Elk Run.

A week from today is packing day. Yikes! Just kidding. I have confidence in Robin and in the work done up till now. We’ll be ready.

A week from tomorrow I’ll be outta here. Hard to imagine. Eleven years plus on Shadow Mountain. Living on a mountain peak. All downhill from here. Evergreen, for example, sits 1,600 feet lower at 7,200 feet. Should aid my O2 saturation.

Elk Run’s main road passes the Life Care Center and the synagogue before ending at the entrance to Elk Meadow Park. This huge open area remains an Elk dense area as it has, I imagine, for centuries. I’ve seen herds of hundreds in it. Not often.

As a result, the synagogue, Life Care Center, and Elk Run have numerous Elk Bulls, Cows, and Calves on their property. Eating grass. Lounging under a bright blue Colorado sky. I look forward to seeing them.

 

Over to Elk Run today for an assessment that will determine what services I’ll need upon moving in. Shower help. Light help dressing. Rides to appointments. A walker for Shadow. That’s what I think I’ll need. We’ll see.

I will also sign a contract for my stay and any other documents necessary. A full morning. Ginny and Janice pick me up at 9:30.

They came over yesterday. Luke was here, too. Great conversation, laughing. Leo, Luke’s 13 year old Belgian Malnois, creaked around on arthritic legs. In spite of them he wanted to play with Shadow. Great to see his inner puppy.

 

Meanwhile, Dopy Don breaks ground for his triumphal arch. Please let this be one that can be stopped.

Tasks and Perennial Questions

Organized money for the roof. Signing contract today. Work starts this week. Peak Window cleaning comes tomorrow AM. Getting the place in shape for listing this month.

Each day this month has tasks related to the Elk Run move. Yesterday and Friday address changes in addition to arranging the roof and the window cleaners.  Colorado DMV. Social Security/Medicare. Voter Registration. Fussy, often frustrating but so much easier online. Can you imagine doing this by snail mail or telephone?

More address changes and a first in a long time trip up to the loft today. Checking on the status of book pulling for volumes going to Elk Run.

 

Friday’s visit to the oncologist has me pondering existential questions. Death. Decline. Living fully. Where is my flourishing?

Philosophers talk about permanent questions. So do conservatives. “In philosophy and ethics, permanent questions (often called perennial questions) are the fundamental mysteries of human existence that never go away.” Gemini

These questions loom large during major transitions like moving to Elk Run. Getting a tough diagnosis. Death of a loved one.

Or when you enter your eighties. Charmingly known among some as the decade of death. Will be on my mind.

I miss talking with Mary over an early a.m. cup of coffee. She’s back in hot, humid Southeast Asia. In a week or so she’ll travel back to Melbourne where spring is springing.