Category Archives: Health

Green

Summer Solstice and the Recovery Moon

This morning

Black Mountain has a wispy cloud draping over its peak, moving slowly toward the northwest. The greens this summer, with so much water, are intense, Hawaiian. The lodgepoles are a deep dark green, the aspen groves a yellow green spotlighted by the sun. The grasses are lush, the dandelions abundant, cheery dots of yellow.

The white cloud dances with the blue sky, revealing it now, obscuring it. It’s another cool morning, 43. Perfect for sleep. The mountain streams continue to flow fast, white where they hit the rocks, still not full with the snow melt proceeding slowly. On the way to CBE yesterday Kate saw a cardboard sign, hand lettered, Slow: Fawns.

And, snow is in the forecast for this weekend. Yes, on the day of the summer solstice, weather5280 predicts snow that might hit us. Snow. The fire hazard signs are still on low, have been since March. Never this far into the summer. I’m grateful for the wet, for the dampening of wildfire probabilities. One less thing.

Patsy Cline

Day 5, fraction 5, of the 7000 cGy prescription. After today’s isotopic rain, only 30 to go. The weekends are off. Time for the body to rest, they say, though I imagine not running a seven day a week practice has something to do with it, too. Pandora so far: The Band, Baroque, Coltrane, Patsy Cline. Haven’t decided about today. Maybe Izzy.

No side effects so far. Early days for both the radiation and the Lupron. Feels like I have a job. Get in the car at a certain time each day, navigate four lane highways to Lone Tree. Same exit, same turns. Same office. But in this case I don’t have a job, I am the job.

The Beano seems to work, suppressing the gas which screws up the Cyber Knife’s navigation of the volume created by Dr. Gilroy. The Miralax helps as well. The calcium/d3 pills are horse pills, almost as long as a finger joint.

Mussar Vaad Practice group, MVP, last night. Rich Levine led a wonderful session on simplicity. Kate and I went for the second time in a row. Still wears us out. Finished at 9:30 pm, way past both our bed times. Here’s an interesting statistic, of the 10 of us in the MVP group, two of us have active cancer right now and one is in remission from breast cancer. 30%.

The Mountains Called Me

Beltane and the Recovery Moon

After I wrote about the one-antlered elk, another buck jumped our fence. He had two antlers, both velveted, as you can see. These two large animals are the Rocky Mountain subspecies of Cervus elaphus, one of six in the U.S., and the subspecies with the largest racks. In the 700 pound range. They’re big.

These guys stayed all night, lying down from time to time, then getting up to continue snacking on grass, dandelions, our backyard aspen, a Colorado Blue Spruce. When I woke up yesterday morning, they were dining right outside our bedroom window.

The dogs have to go out in the morning and when they did, they chased the elk to the corner of our property. One-antlered guy jumped the fence while I watched. He walked over to it and jumped. Right over. Our fence is five feet high. Dr. Gilroy, who’s from Wyoming, said to keep elk out there, they have to put ten foot fences. I believe it after seeing this one clear ours with grace and ease.

The two-antlered buck stayed a while, but he eventually left, too.

Another instance of synchronicity. I mentioned the three mule deer bucks I saw on Samhain when I came for the closing on our property in 2014. In the intervening four and a half years we’ve had neither mule deer nor elk in the back, fenced in portion of our property. In the front, yes, but not in the back.

We say this to prostate cancer

These two spirits of the mountain came the day I started my radiation treatment. And they stayed the night. No wonder our ancient ancestors painted these creatures in soot and ochre on cave walls. No wonder cultures around the world find spirit animals to guide them. When big animals show up in your life voluntarily, your life shifts. You have to consider their presence.

Some have said that Colorado has not been kind to us. I get it, too. Prostate cancer diagnosed four months after we got here. A new knee. Jon’s divorce. Kate’s shoulder, Sjogren’s, bleed, lung disease. All since we got here.

It’s not Colorado though. AA has a saying, wherever you go, there you are. This comes from the notion of the geographic escape. If I just leave this town where all my trouble started, I’ll start over fresh. Nope. Wherever you go, there you, the alcoholic, are.

We brought aging with us. My PSA was 4.0 the last physical I had in Minnesota. I’m 72, Kate’s 75 this August. Stuff begins to catch up with us at these ages. Genetics plays a large role as do dietary choices, exercise. Even with those all good, it’s still: eat right, exercise, die anyway. Not blaming Colorado. The contrary.

I have what I consider solid evidence that we not only belong here, but that we are welcome. Congregation Beth Evergreen. The frequent visits with Jon and the grandkids. The everchanging, but always wonderful beauty of the mountains.

And, for me, the grace note of these animals. Yes, Charlie, we know this is a difficult time. We know too that you are, like us, an animal. You can worry and fret or you can stop, eat the dandelions, the grass. Lie down among the lodgepole pines and the aspen. Jump the fence into another world. You did just that when you and Kate moved to Shadow Mountain and we’re glad you came. Amen. Blessed be.

Day 2

Beltane and the Recovery Moon

Left early for Lone Tree, around 8 am. Had to find my Lupron. Met Shelley, the four-month transplant from Georgia. She’s a nurse practitioner who came here from a 45-doctor group. I’ll be your prostate cancer guru.

We talked. Nobody likes these side effects, Shelley said. She especially underlined hot flashes. Black Cohosh was her top recommendation. A plant based product you pick up in the herbal supplement segment of a drugstore or grocery store. Some have mild hot flashes, some not so mild, some extreme. We have a medicine we can give you if they get really bad. Didn’t find that reassuring.

She also told me to get a calcium-vitamin d3 combo. Lupron makes your bones soft, Shelley said in her distinct Southern drawl. If you fall, it’s easier to cause a break. She also gave me a copy of the Man Plan. Geez. It’s an exercise program for those getting dosed by Lupron.

I have to go back to see Shelley in September. Apparently Lupron alone can suppress the PSA all the way down to zero. That’s why you put up with the side effects. It doesn’t cure cancer, but it can slow it down. I don’t understand why blocking the cancer’s main energy source doesn’t cure it. A question I’ll have to ask.

So. Put a negative sign in front of each of these.

She gave me two pamphlets, a folder with helpful hints, and, a shot of Lupron in the left hip. Didn’t hurt much though it can. They asked me about it later at Anova. Had a couple of hours until my radiation, so I hit breakfast spots near me on my phone. Found the Three Griddles a couple of miles away.

It was, synchronistically, a Southern breakfast joint. Shelley would like it. I had corned pork on cheese grits with two eggs over easy. No coffee though. Two glasses of water. While enjoying this taste of Savannah, I read about Lupron.

Later at Anova my second session got delayed by an emergency for some guy who looked gray, sick, unhappy. Then it got further delayed by gas. I’ve been following the recommendations. I want to be a good patient, help them align the Cancer Predator, so I felt a little ashamed.

Baroque music this time. A poor choice, it turned out. The piece that played longest was downright funereal. Not the mood I was looking for while a red laser beam bisected my torso and the Cyber Knife did its robot dance around me.

Not this

Afterward I got a note from Dr. Gilroy to get Beano and Miralax. I drove through Deer Creek Canyon. Stopped at King Sooper. Bought the Black Cohosh, the calcium plus vitamin d3, Beano, and a big bottle of Miralax. Fun times.

Here’s the takeaway on this, the third day of treatment. The Lupron is racing around right now suppressing the manly hormone. The radiation has begun its job of killing cancer cells. I don’t know what the side effects of either of these are going to be.

Is the loggy feeling I have this morning normal or the Lupron? Will the hot flashes start? What about that achy knee? A strange sensation, waiting, not for Godot, but for the first sign of a foreign agent’s impact on my body.

Told Kate last night that I’m used to taking pyschoactive drugs. There’s a period between when you take them and when they begin to alter your mind. But, I said, in that instance I’m expecting something pleasurable, significant, interesting. In this one the primary purpose, killing cancer cells and suppressing testosterone, is silent, while the knock on effects of the treatment is neither pleasant or significant or interesting.

Look Who Came to our House

Beltane and the Recovery Moon

When I first came to Shadow Mountain, on Samhain of 2014, I went out back to look around. In the backyard were 3 mule deer bucks. We looked at each other for a long time, seeing each other. We didn’t get too close, but we didn’t move away either.

It felt at the time, and feels now, that the mountains had sent spirit animals to greet me, to say it was ok if I chose to live among them. 3, that mystical number.

On this, the first day of my radiation therapy, the mountains sent another messenger, a large elk buck with one large antler covered in velvet and the other side empty. He is damaged, like me. Yet he’s eating dandelions, proceeding with his life. Not handicapped, just different.

The mountain has assured me that, like this buck, I will be different, too. No prostate. Radiated and testosterone suppressed. Just different. I belong here, the mountain says, and I agree.

Inner Glow

Beltane and the Recovery Moon

Oh, gosh. Today.

Driving Kate to Lisa’s office for her annual physical, then heading on to Lone Tree, another 20 minutes. Dressed in blue sweats and my radiation hazard t-shirt from Los Alamos. This first day I’m going to choose The Band for my Pandora station. Tomorrow baroque.

I had a light supper last night, as suggested. Egg drop soup and a cookie. I’m on my second glass of water this morning. Hydration is important. I want Patty to tell me again that my bladder’s a perfect size.

Woke up at 3:30, not ruminating, but uneasy. Went back to sleep for an hour. Up at my usual 5:00. Fed the dogs, got the paper. Came up here to the loft.

The next seven weeks are about healing, staying with the protocols, adjusting to the unknown. Not daunting, but not easy either. Tomorrow is the Lupron injection.

Black Mountain this morning

Leaving the mountain top, going down the hill. From cool (44 right now) to hot. 75 at noon in Lone Tree. Well, that’s hot to us. Will get hotter as the weeks roll by.

Tom and the Woollies are going boating on Lake Minnetonka today. A floating meeting. Tom will motor over from Shorewood to a Wayzata dock to pick up the guys. A better parking lot, a bit easier access from the Cities. Had my druthers, I’d be there instead of staring at the Cyber Knife listening to When They Drove Old Dixie Down.

Resilience

Beltane and the Recovery Moon

Late April

Kate’s stamina has improved so much. Thursday. Mussar in the afternoon and a board meeting in the evening. Last night we went to the Gospel Shabbat. The Beth Evergreen singers, supplemented by members of the Evergreen Chorale, were led by Val, a committed choir director with a lot of energy, plus a fine pianist added to the CBE band.

It was high, good energy and Kate stayed the whole time, including for a bit of the oneg. (oneg is snacks and goodies provided after a service.) Her hip bothered her a bit, but she walked and stood, clapped and sang. A real simcha.

Rabbi Jamie came by yesterday around lunch time to see how I was doing. We fed him chicken pot pie (mine) and watermelon, then he and I retired to my loft. He’s a good guy. A dog person. His first dog was a wolf hybrid, 105 pounds, that lived an astonishing 18 years.

He lost a dog recently to a porcupine. Awful way to die. But natural. We agreed it was a good death, both animals doing what evolution had taught them.

Tomorrow, for father’s day, Jon, Ruth, Gabe, Kate and I are going, at my request, to Biker Jim’s Gourmet Dogs. No less a foody than Anthony Bourdain recommended Biker Jim’s. Apparently he soaks his onions in Coca-Cola. After Biker Jim’s hot dogs will become a special occasion treat for me, no longer in my diet. Other processed meats, too. Gonna miss’em.

Some modest change

Beltane and the Recovery Moon

Each day now I’m privileging exercise over other activities. I usually get in at least two, aiming for three resistance sessions a week. Three now for sure. On the other days I do cardio, planning to start back on my interval training tomorrow. I want to get out and hike, but somehow haven’t. Just the press of things, I think.

Also, beginning Monday we’re going to focus on more healthy eating. Our diet’s not bad, but it could be better. Less red meat, more chicken, fish, pork. More vegetables and fruit. Importantly for the radiation, too, avoiding foods that cause gas. Why? Because of bubbles in the rectum. Geez, how silly that sounds. But it screws up the location of things in my gut. Bad for aiming the beam.

Bagel Table

Beltane and the Recovery Moon

Torah

As Kate feels better, we’re gradually getting back to CBE. We both went to mussar yesterday afternoon and Kate went to her board meeting last night.

We also agreed to lead the discussion for a bagel table. A bagel table is a Saturday morning discussion held in lieu of a service on Friday night. This one will be on September 14th, after radiation is done and the Lupron is in full swing.

Here’s the description:

Wonderful! Thank you SO much – what a huge help!
Basically, you prepare a discussion on the week’s reading (which for that week is Ki Teitzei / Deuteronomy 21:10 – 25:19). If there are enough people you can say kaddish, but you don’t have to. We will have bagels and goodies present for noshing; you may need to set them out but you won’t be responsible for buying anything.
I think that’s it! If you come up with a theme for the discussion before mid-August, I can put it in the Shofar, but that’s not necessary either. Overall it should be a pretty easy gig. Thank you so much for agreeing to lead it!

Atomic Love

Beltane and the Recovery Moon

Next week Monday is my first radiation treatment. On Tuesday the first Lupron injection. The radiation continues every weekday until August 6th, which is both the Hiroshima anniversary and Raeone’s birthday. (Raeone is my ex) Not sure what to make of that. Also, Sunday is Father’s Day. I told Kate I wanted a Geiger counter. Hope she knows that was a joke.

Gonna try to have a little fun with this. Don’t want things grim, mordant. I found a gift shop in Los Alamos and bought a couple of t-shirts. Only found an image I could reproduce for one. I intend to wear both of them, off and on, for my treatments. As soon as they get here.

Been reading a book about Androgen Deprivation Therapy. Helpful. It may not be as bad as it sounds, at least for me. The longest I’ll be on Lupron is two years, probably less. The intense side effects seem to emerge over longer periods of time. Hope so.

October 9th, 2018

In a twist not unlike prostate cancer treatment the day after Father’s Day and ending on the Hiroshima anniversary Kate continues to improve markedly as my journey heads into a difficult period. Her affect is almost bubbly. Sort of. Not sure Norwegians do bubbly, but she’s feeling good.

Her weight is at 99.4! Wow. 76 was the nadir back in February, I think. The j-tube feedings, with some minor exceptions, go well and she’s able to eat more, too. We had shrimp scampi, rice, and Brussels sprouts last night and she ate a full plate.

Showing off her new crowns on May 13, 2019

Our relationship has had the sort of strains that you might infer from a long, long bout of medically related bad news. Eight and a half months now since her bleed and she was not well before then. But open communication kept us out of any deep potholes.

Our partnership, this marriage that got started in the seats of the Ordway Theatre, St. Paul Chamber Orchestra concerts, is stronger than ever. I wrote much earlier that adversity unveils gratitude. So many people show so much caring. Well, I would add to that today that adversity deepens love.

New (to us)

Beltane and the Recovery Moon

4. Altitude. The height into the atmosphere, away from sea level (0 m) Temperature decreases 3F every 1000 ft (333 m) in elevation.

Air conditioning is important in our house. Kate and I both prefer cool weather to warm, cold weather a lot more than hot weather. Explains our maybe incomprehensible to some commitment to living on top of Shadow Mountain. 8,800 provides natural air conditioning.

When the a/c in the 2011 Rav4 began to sputter three years ago, I began a series of missions to get it fixed. Cost me basically zero. I’d take it in, they’d put die (oops. dye. what’s on my mind?) in it, charge it up and not give me a bill. They never found a leak. This year I decided, time to solve this. But. As I wrote below, we’d end up with a $3,200 or so bill and no assurance that it was fixed.

I’m more tolerant of heat than Kate though not by a lot. It was time to do something. Buying a car (like buying a house) gives me the heeby-jeebies, I don’t like the sense of manipulation. I don’t want to get a bad deal. Yet, we need transportation and shelter.

Kate came out to Colorado, worked with a real estate agent and found our home here on Black Mountain Drive. I would have dithered. I asked Kate to head up the car situation. She did. We have a new car.

2018 Rav4

Kate, “Medical school trained the dithers out of me.” How? “Code red.” Oh. A philosophy major and a theology degree trained me in the fine art of dithering, the paralysis of analysis. Good thing I’m married to Kate. In so many ways.

Part of the urgency was anticipation of 70 hour long trips to and from Lone Tree for visits to the Cyber Knife. All in late June, July, and early August. Heat. Don’t need exasperation from an a/c-less car to go with radiation and Lupron. Bad combo.

Not an easy decision in a financial sense since it draws down the corpus of our IRA, but the now to be known as the white car was no longer adequate. Also, Kate and I have been musing over these last medical months that we don’t need to have our money last into our 90’s since we probably won’t.