Category Archives: Health

Alan, demyelination, days with no nausea

Lughnasa                                                            Waning Summer Moon

Alan
Alan

Alan came over for work on the religious school lesson plans. Kate made her oven pancakes (always delicious) and Alan told us stories about early Jewish Denver. West Colfax (think Lake Street) between Federal and Sheridan was an orthodox Jewish community when he grew up. He said on Friday afternoons with folks scurrying from the deli to the bakery to the kosher butcher it looked like, well I can’t recall exactly, but any typical European Jewish community.

His dad was going to be a University professor before the Holocaust. Instead he came here and ended up in the dry cleaning business. In those day Alan’s friends and neighbors were either children of Holocaust survivors or survivors themselves. That old neighborhood, like north Minneapolis, has completely changed. The first synagogue in Denver is now an art museum on the Auraria campus of the University of Colorado. The Jewish community concentrated itself in south Denver, more to the east.

We worked for a couple of hours, putting specific lesson plans on the calendar, deciding which days to do the Moving Traditions curriculum, which days for middah, which days for Jewish holidays, which days for our own lesson plans. I’m experiencing some anxiety about this since we start next Wednesday with the first family session of the Moving Traditions curriculum. This approach to the student preparing for their Bar or Bat Mitzvah will, apparently, be controversial because it doesn’t focus on the ritual of the morning service, but on the students’ social, emotional, and developmental needs. Alan, Jamie, and Tara will deal with that. Not me.

20180408_182236Kate’s had several days in a row with no nausea. Yeah! That means she feels better and can get some things done. In doing so, however, the extent of her loss of stamina, weight loss and Sjogren’s Syndrome, has become apparent. She still needs to rest frequently. If she can modulate the nausea, either through careful eating or an eventual diagnosis or using medical marijuana, the next step is to get some weight gain, some stamina improvement. If possible. Or, we may have to adjust to a new normal.

I’ve been absorbed in lesson planning, training for the school year, climbing my steep learning curve about matters Jewish and matters middle school. That’s my way. Dive into something new, leave most other things behind until I’ve gotten where I feel like I need to be. Not there yet, though I imagine after a few class sessions, I will be. Sort of a head down, blinkers on time. My writing has dwindled and so have submissions.

Over the last couple of weeks, while I work out, I’ve been watching a Teaching Company course on the aging brain. I recommend it. Highly. It’s helped me understand why this approach, head down blinkers on, is developmentally appropriate for me. For example, the aging brain, on average, loses some processing speed, executive functions, and crispness of episodic memory (memory tied to a person or place and seen from a first person perspective.) over each decade, beginning in the twenties.

Myelin Sheath – a layer of fatty cells covering the axon, helps speed neural impulses.
Myelin Sheath – a layer of fatty cells covering the axon, helps speed neural impulses.

The underlying issue seems to be gradual demyelination of the axons which constitute the white matter in our brain. With myelin sheathing over their length axons can carry information very fast, without it somewhere around 2 meters per second, or human walking speed. As our processing speed declines, so do brain functions like the executive management of brain activity by the prefrontal cortex. It’s this one, the decline in executive function, that requires the head down, blinkers on approach to new activity or to tasks we need to complete. As we age, we no longer handle distractions as well, getting pulled away from this to focus on the shiny that.

I like knowing this because it helps me understand my daily third phase life better. The thinking process itself is not impaired, just the speed and our ability to stay with a task. It helped explain a very uncomfortable moment for me at the Genesee Ropes Course on Sunday. Jamie and I were with the 6th and 7th graders. Adrienne, a ropes course employee had just explained the rules of a warmup game. One of the rules was that we had we could not throw a soft toy to someone who’d already gotten one on that round.

geneseeI got the stuffed unicorn on the third or fourth toss. When I tossed it to Alex, Adrienne asked, “Did he break a rule?” All the kids and Jamie nodded. Yes, he had. Why? Alex had already gotten the unicorn. Oh, shit. This was the first interaction between me and these kids as a group and I looked like a doofus. I didn’t remember the rule at all. There were plenty of things to distract me. The continental divide in the distance. A wind blowing through the trees. Trying to concentrate on learning kid’s names. General anxiety about not knowing the kids at all. Whatever it was, my executive function let me go, Oh, fish on bicycle, instead of hearing, no throwing to someone who’s already received it.

It still looks the same to the outsider. I missed the rule, and as a result, screwed up in its execution. But now I understand that this is not a sign of dementia or other deep seating problem, but rather a normal, though irritating, side effect of demyelination.

 

 

The Queen of Shadow Mountain, Spliffs, Spring Rolls

Lughnasa                                                                     Waning Summer Moon

20180828_185716Kate’s birthday present came yesterday. It has excellent lumbar and neck support, plus it inclines with the press of a small lever. She’s the queen of Shadow Mountain.

Went down the hill yesterday to the Native Roots dispensary. I wanted something Kate could use to quickly attack nausea, perhaps eliminate it. Research suggested Durban Poison, Northern Lights, Lemon Haze, or a strain like those.

Native Roots is a franchise operation, very slick and a little cold in their approach. Like all the dispensaries they check i.d. Here they made me take off my hat and glasses so the camera could get a shot of me. Inside I made a mistake when the budtender (silly, silly name) called me forward. I told her my wife had nausea and I wanted something that might help. “Never tell a budtender you’re buying for someone else. That’s illegal.” Oh, ok. “Well, I have nausea, then.” “OK. We’re good there.”

They didn’t have any of the particular strains I wanted, but she recommended a strain called Jilly Bean, one they grow themselves. I wanted a bong, but they “…don’t sell glass.” She offered me pre-rolled joints. Oh, the distance from the late sixties and its furtive culture, wrapping papers, sorting seeds and stems out on the kitchen table. These joints, spliffs, blunts have a spiral filter on the end to cool the smoke and neatly wrapped wrapped paper twisted off at the end. Very producty looking. And, not cheap. $7 each.

I bought two. She’ll try them when the nausea hits next time. If it works, we’ll get her a bong and some flower rather than pre-rolled joints. Can you believe I just wrote that sentence? This is truly the new millennium.

native roots

Kate wanted spring rolls for supper using some of the mushrooms she grew. (I know. This sounds like a back to the sixties day for us.) I sauteed the mushroom at noon. Kate got some shrimp out to defrost. After her throne arrived, I got busy. Cut up cucumber into matchstick sized pieces. Mix chopped nuts and carrots, shredded. Add fish sauce, juice of two limes and sugar. Mix. Heat water to boiling, pour over rice noodles. Mint leaves. Cilantro leaves. Lettuce leaves. Run the rice paper under the tap. Put on plate, assemble.

These were our first spring rolls, so they weren’t as elegant as, say, the Jilly Bean prerolls, but they tasted great. A successful beginning from the new Asian cookbook.

Alan is coming today and we’ll work on a calendar for our lesson plans. Classes start a week from today. Oh, my. Lots more to say about that, but not now.

 

The Weekend

Lughnasa                                                                              Waning Summer Moon

religious school kids with Rabbi Jamie
religious school kids with Rabbi Jamie

Up and out the door too early yesterday to write, too tired when I got home around 5:30. A long day. An education training session at Temple Emmanuel in Denver. A huge building, lots of cash there. Flowing cut stone for an outer wall, inside modern metal sculpture, lots of wood, a huge reception area, a Sisterhood Lounge, a more than gymnasium sized hall, divided by foldout doors, and lots of folks milling about.

(just noticed that the full waning summer moon stands about 4 degrees over Black Mountain in the dark early morning sky. Southwest. My cataracts give it four rays, two straight out from sides, two up and down at a slight angle.)

The sessions were ok. The food was great, lots of veggies and fruit and hard boiled eggs. All of us from Beth Evergreen had to leave early because we had an outdoor experience afternoon in Genesee Park, the oldest of the Denver Mountain Parks. Denver owns several parks in the Front Range, especially in and around Evergreen and Morrison. Genesee might mean shining valley.

religious school at Jeffco Action Center, packing Thanksgiving meals
religious school at Jeffco Action Center, packing Thanksgiving meals

This was a ropes course for the purpose of team building. The students who will be in the religious school this fall and their parents came, as did Debra and me. We were the only teachers there. I knew a few of the adults, none of the kids.

No ropes for me. I did put on a harness (reminded me of the harnesses for sled dogs) and a blue helmet. Most of the rope  features were reached by spikes driven into the trees and were high enough to require both a rope attached to the harness and managed by a Genesee Outdoor Adventure employee and the helmet.

Wasn’t the heights or the difficulty of the features that made me not go up. I realized only this morning that it had to do my with introversion and in particular my dislike of having others watch me exercise. That’s why I go to On the Move Fitness for two sessions, then follow the workouts on my own. If somebody watches me, I get self-conscious and screw up. I suppose this is something I could overcome with time and opportunity, but yesterday wasn’t enough of either.

Artemis Hives
Artemis Hives

The day before, Saturday, I went over to Rich’s, also early in the morning to help him harvest honey. We cranked his hives down from the high wire on which they hang, much like a ropes course feature, and checked first his flow hive and then a honey super on another of the four hives he has on his primary line. He has a pulley system with which he lowers and raises the hives. They’re heavy even with the mechanical advantage of a four rope pulley. Unfortunately, for reasons I don’t understand, Rich has no honey in his flow hive or in the honey super. The colonies themselves looked healthy.

Afterward, Rich and I went over to the Muddy Buck and had some coffee. His daughter was still asleep at his house.

Kate had a good day yesterday. Unfortunately, I missed it out gallivanting for Jewish education. We’re investigating medical marijuana, specifically strains used by cancer patients for nausea induced by chemo. Kate may have a bong in her future.

 

Bees, Nausea, Beth Evergreen

Lughnasa                                                                     Waning Summer Moon

At 7 I’m off to Evergreen to Rich Levine’s. We’re going to harvest honey from one honey super and try to use the flow hive. The flow hive is an invention by an Australian beekeeper that has the bees put honey in plastic frames instead of a honey super. An ingenious torquing mechanism uncaps the honey and it flows through a tube into jars or a bucket. Mine came just after Kate and I decided to move to Colorado, so I’d hung up my beesuit. I have it Rich. Hope it works. That was five years ago now, and they’ve come up with improvements. Rich has one of the new ones, too.

Kate’s growing more frustrated with her nausea and I don’t blame her. Imagine if, on any day, you could be debilitated, often without warning. Imagine, further, if that debilitation resulted in weight loss and as a direct result, loss in strength and stamina. Her gall bladder ultrasound came back normal. We’re in an odd situation now of hoping that at least some test will show something. Normal is usually a good result in any medical test, but when you have something unexplained. Well. What we want now is something diagnostic, and that something treatable.

I put up 7 lesson plans, or at least what qualify in my very rookie way, as lesson plans. Each lesson plan has to relate to the overall theme for the year, reconstruction and the b’nai mitzvah experience, yet stand alone. Here’s an example. Might be used before Simchat Torah, when the reading of the Torah finishes and then starts over again.

Understanding the centrality of Torah in Jewish life

Intro. What is Torah? Why is the Torah read through, then repeated? Discussion

Lesson content:

a. Write, in Hebrew, the names of the books of the Torah

b. A conversation about the broader and deeper meaning of Torah.

c. What stories shape your life? Family stories? Childhood stories? Books, movies, anime

Finish: Dance with the Torah scrolls. (a common practice on Simchat Torah)

I’m moving further and further into the life of Beth Evergreen. Kabbalah, mussar, Jewish Studies Sampler Sundays (or, as Rabbi Jamie said at the annual meeting on Thursday: Jesuss) teaching bar and bat mitzvah students about this central ritual in Jewish life. Participating in a mussar group focused on spreading mussar in congregational life. Getting to know well at least a few members: Marilyn, Jamie, Tara, Rich, Alan, Anshel, Sally, Ron, Susan, Sheri. Seems both odd and normal. Odd in that I’m a pagan; normal in that I love this community and want to help sustain it.

 

 

 

Diagnostics

Lughnasa                                                                  Waning Summer Moon

Then he discovered the small plastic pan below the freezer and lo, there was the water, not sublimated at all, but ordinarily melted. Well, the explanation fit the evidence I had, just not all the evidence there was. (see post below) Shows how tough diagnostics can be if you don’t look in the right place.

700 pixels- punta arenasSpeaking of diagnostics. Kate had a gallbladder ultrasound yesterday at Touchstone Imaging. Touchstone is in one of a series of large office buildings, all of the same architecture. And difficult to differentiate. Touchstone’s building is #52. It’s an immense complex and in other instances we’ve been given addresses, which makes the actual location harder to find. With a building number it was easier. I suppose using the Garmin all the time would be easier, eh, Tom?

Kate saw a gastroenterologist last week who listened to her. He said they’d get these tests done as soon as possible and that has happened. Tomorrow morning at 7 am is the second endoscopy. This one will look for a tiny scar induced closing below her stomach. This guy is paying attention to her distress and I like him for that.

After the ultrasound we drove over to the Bernini repair shop. The embroidery module on this very sophisticated sewing machine failed while Kate was finishing mug rugs for the quilt documentation day. As I have in the past, I sat down among the vacuum cleaners and read.

Kate. Naikan practice.

Lughnasa                                                              Waning Summer Moon

Kate’s not having a good week. Yesterday was especially bad, enough so that she considered going to the emergency room. Or, to the hospital. That thought, born more I think of frustration than any particular worsening of her symptoms, gives you a sense of how this series of insults effects her.

Jon picked up Gabe from Mussar yesterday. It was his Meet the Teacher evening at Swigert Elementary. When I asked him how these things were, he said, “boring.” I imagine so.

Mussar was interesting. We did a Jodo Shinsu Buddhism practice called naikan. It involves asking yourself three questions, then writing as detailed an answer as you can for each of them. Traditionally, the three questions start off with your mother. What did my mother do for me? What did I do for my mother? What trouble did I cause her? Over time you can add father, siblings, work, nature, whatever can be explored with these questions. After you write down the answers, in a naikan retreat, a person will come and interview you; that is, they will listen to you read your answers out loud with no comment, no interaction. They are there only as a witness. Sort of like the 4th step in AA.

A variation on this theme that Rabbi Rami Shapiro uses is to ask yourself these related questions just before going to sleep: What gifts did I receive today? What gifts did I give today? What trouble did I cause today? I did it last night and found it soothing.

We’ve been exploring, too, the link between suffering, acknowledging the suffering of others or our own, not trying to fix it, just acknowledging it and the apparently strange link between that practice and happiness. Frequent readers know happiness is not much on my menu. I prefer eudaimonia, human flourishing. Still, the point is the same. Our flourishing is not about a life without suffering. It’s about a life that engages and embraces suffering, does not push it away, yet does not become consumed by it.

I struggle with wanting to fix Kate’s nausea or just being with her as she goes through its impact on her life. Like most, I think, I do a bit of both. Chronic illness presents the greatest challenge here. The suffering continues. My ability to be present for her waxes and wanes with my own feelings of vulnerability, frustration. I want, simultaneously, to wave that unavailable magic wand and hold her hand. Tough. At best.

Brain Tumors, Cute Baby Videos and Climate Change

Lughnasa                                                          Waning Summer Moon

Sandy came yesterday. She’s now four weeks or so out from the last of the radiation treatments for her brain tumor. A difficult medical story with an unsatisfying partial resolution. They couldn’t remove the tumor all at once, left much of it in place after the first surgery, then nerves grew into the tumor meaning it couldn’t be removed at all. Hence, radiation to shrink it. It’s benign, stretching the meaning of that word, but it has knocked out her hearing in one ear and seems to have left her in a permanent state of slight dizziness. She’s young, late forties I imagine, so a lot of her life is ahead.

Gabe
Gabe

Gabe’s been watching cute baby videos. His words. I asked him if he might want a baby of his own someday (he’s 10). He said, “I don’t know. Maybe.” We’re going to a movie today.We can do that because Kate wisely decided to skip needleworkers today.

This book is the culmination of more than 125 years of tradition and countless “Documentation Days,” during which quilting council members record the block technique, age, batting, backing, and color of each quilt their fellow quilters trust them to preserve.
This book is the culmination of more than 125 years of tradition and countless “Documentation Days,” during which quilting council members record the block technique, age, batting, backing, and color of each quilt their fellow quilters trust them to preserve.

On her 74th birthday, this Saturday, she’s organizing food for an interesting event. The Rocky Mountain Quilt Museum in Golden offers a documentation service for quilts. They have teams that go to quilt clubs (and other venues, too, I suppose). The teams collect archival data like maker, history, description and photograph the quilts. Those records become part of the ongoing collection of the museum. The Quilt museum folks are coming to the Bailey Patchworkers meeting place, the Catholic church in Bailey. It’s before Crow Hill, the steep decline that goes into Bailey proper.

Her stamina seems to be decreasing, too. I really hope the ultrasound for her gall bladder and the new upper GI look find something. She needs to be able to gain weight. Soonest.

Thunderstorm yesterday. Nice rain. Lots of noise. Wildfire fears have eased for this year. This article in my favorite publication about the West, the High Country News, explores the angst that many of us who live out here feel. “One truism about the future is that climate change will spare no place. Still, I suspect the threat of warming feels more existential in New Mexico than it does in Minnesota, the land of 10,000 lakes. Drought has gripped the Southwest for 19 years, more than half my life.” In this rapaciously dry year, a quiet question grows louder: What are we doing here? HCN, Aug. 6, 2018

fire mitigationCalifornia fire seasons, which have grown longer and longer, producing worse fires, the Mendocino Complex Fire is now the largest ever in the state’s history, keep us always aware that what’s happening there can certainly happen here. Damocles. Closer to Shadow Mountain there are, too, the 416, the Spring Creek, the Buffalo Pass fires now out, but active this year in Colorado.

I agree with Cally Carswell, the author of the article, that our experience, our Western experience, is a foretaste of what is to come for most if not all of the planet. Her article says out loud what lurks just below the surface for Westerners. When might the fire or the water shortages be too much? When might the increasing heat dry us out or burn us down?

As the Donald might say, sad.

Police Treating Blacks Awfully

Lughnasa                                                                Waning Summer Moon

Gabe and Jon
Gabe and Jon

Gabe opened up his large notebook yesterday and showed me a page empty except for a sort of title: Police treating blacks awfully. This is his project. Jon wanted me to help him with some research so we went up to the loft. I suggested to him that we put his title into google. We did that. He chose several articles ranging from an essay on prison brutality to a Gallup poll on how blacks perceive their treatment by the police.

To put a generational spin on it, he said, “We could just add these to Googledocs.” Oh. Well, ok. Do you know your Google account information? He got up and typed it in, commenting, as Ruth always does, that he doesn’t like my track ball mouse. We then added links to all the articles he chose to a blank Google doc that will show up wherever he has access to a computer. No library involved, at least so far. He will also interview black friends and adults. This is all interesting not least because this project isn’t due until May/June, 2019. Pretty long range thinking for a 10 year old.

Love
Love

Meanwhile corned beef simmered on the stove, awaiting the addition of potatoes, carrots, and cabbage. Sounded good to Kate and these days I try to cook whatever sounds good to her. I still can’t get it moist like Frank does. Gotta ask him his secret. Tasted ok. Today. Corned beef hash. A real favorite for my palate.

Kate had a consult with a gastroenterologist, a Korean/American, Dr. Rhee. He’s going to look at her gall bladder and do another upper GI endoscopy to look for a possible stricture below her stomach. She sounded hopeful, but weary. Easy to understand. This is like torture. Her nausea is episodic, but always looming.

She was tired last night and so was I. She asked me to clean up after the meal and I said,”No.” Felt bad immediately. I was tired, too, but I don’t have her inner fatigue. So, I cleaned up. This is tough stuff because it creates tension where tension only exacerbates.

I’m lucky to be in relationship with such an intelligent and confident woman. Have been. Am. Will be. I see that woman every day; she often doesn’t. Painful.

Muddy BuckThere’s a sort of sneaky self-satisfaction that comes from holding a business meeting on the boardwalk in Evergreen. Alan Rubin and I met at the Muddy Buck in the morning, sitting outside on its veranda, really a wide spot on the couple of blocks long board walk that I mentioned a few posts ago. On a Monday morning discussing the religious school class we start teaching on September 5th, we saw the usual flow of cars on Hwy 74, the main street of this tourist destination portion of Evergreen. This is a place people come to visit for an afternoon or a weekend or a week. And we live here.

 

 

Monarch of the Mountain Spirits

Summer                                                                            Monsoon Moon

101
at Running Aces

Kate’s getting hammered again by Sjogrens or illness or some very difficult to identify g.i. tract problem. She’s tough and resilient, my new favorite virtue, but, geez. She shouldn’t have to prove it so often.

Get to ride in a Tesla today, going into Denver with Alan for the Moving Traditions training. He bought his Tesla last year, sort of a I’m retired, this is a really good car thing. His dad did the same though he wanted a Cadillac and ended up buying an Oldsmobile. Alan bought the Cadillac.

No good deed goes unpunished. We’ve had significant rainfall the last couple of days. Yay. But. Hwy 285 in Bailey closed down yesterday due to a mudslide. Open now.

After a swim, from September, 2015
After a swim, from September, 2015

I waited on the hosta division for the monsoon rains to begin. Hot dry weather is very tough on transplants. The rains have kept the air cooler, the cuttings evaporate less so the leaves stay strong. The roots don’t dry out. Gives them a chance to get over the shock of a new spot, send out some rootlets. There’s also a concoction made by Miraclegro called Quickstart that I’ve used for years when dividing plants. It encourages root growth and gives the plants a burst of nutrients.

That buck yesterday was magnificent. He was the sort you see in bronze on the stony gate pillars guarding expensive homes. His bearing was regal. This is his kingdom. Unhurried, strolling the easement like it was a path in the gardens of Versailles. Perhaps the monarch of the mountain spirits who visit us.

 

 

 

You know what?

Summer                                                                           Monsoon Moon

AAIncidentally, you have aortic atherosclerosis. But, no arthritis in the sacroiliac joints. Oh, well, thanks. X-ray results. Learning to flinch a bit when I get x-ray reports since the last two have had incidental findings. They’re not just a BTW, but a, hey, look at this! My usual position is knowledge is better. In this case though it comes unexpectedly, sort of out of left field. It can, and has, shocked me.

Neither this finding nor the one earlier are exactly surprises. I’m 71. I’m an American Midwesterner raised on meat and potatoes. I still eat red meat, including bacon and wienies. I get a certain transgressive pleasure from them. But, I know they have consequences. I also know, and this is an upfront reality for those of us past 70, that we’re in the death zone. Maybe not now, maybe not tomorrow, but life no longer stretches out beyond the horizon. Which feels appropriate and natural to me.

12042872_10207259131010620_7945654758127613848_nThe third phase of life is anomalous in many ways from the first two. It’s happier, less tense. It encourages self-expression and downplays, if not eliminates, striving. At the same time the slow insults of age begin to accumulate kidney disease, prostate cancer, high blood pressure, atherosclerosis, arthritis severe enough to require a new knee in my case. Each of these is a mortality signal. Still flashing yellow, but evidence that the light’s gonna change at some point. To red. As it has and does, for 100% of us.

Anyhow, have a good day!