Category Archives: Judaism

And, four to go

Lughnasa and the Moon of the First Harvest

The Concert, Gerard van Honthorst

Finishing the fractions to renaissance music. It conjures up visions of castles, balls, courtly life. A world far removed from photons and linear accelerators. No CyberKnifes in the late middle ages. Just a lot of great art, city states. Kim, therapist Kim, says it reminds her she wants to go to the Renaissance Festival. That, too.

Thirty-first fraction yesterday, 4 to go. Gut problems reduced. Much less gas. Nicky measured my bladder. Each day I get a small amount of gel rubbed on my tummy, an ultrasound probe goes on the gel. Yesterday. “100.” Nicky said. That’s ml of urine, btw. 100 is the magic number. Anything above it and the treatment can go ahead. Unless gas. The things we do for a cure.

Michelle and David brought fish, salad, rice, vegetables, and lemon cake on Sunday. CBE folks. When SeoAh was here, we ran into Michelle at Walmart. This was January. Her husband, David, had a month old diagnosis of prostate cancer, with metastases. I told her about my experience in 2015.

Later, when my new diagnosis came, I talked to her at mussar. David and I got together for coffee at the Muddy Buck in Evergreen. As it happened, that was the Friday I saw Dr. Gilroy to discuss treatments. David mentioned Lupron to me in the morning; I had it prescribed for me in the afternoon. David, too, had radiation, though 20 sessions rather than 35.

The Muddy Buck, Evergreen

He’s had side effects from the Lupron. Memory loss, hot flashes at night. Since he had mets, they couldn’t do a radical prostatectomy. Too much chance that would spread the cancer rather than eliminate it. In his case they’re trying to suppress all the testosterone, so he’s getting a second medication that takes care of testosterone produced in places you don’t suspect, like the adrenal gland.

It was good to talk with him again. A mini support group. I’ve got lots of support, but David is the only one who also has prostate cancer.

The last week of treatment, one drive down, four to go.

8

Summer and the crescent (1%) Radiation Moon

Counting down. #8 today. Twenty-seven fractions received. Listened to Buffalo Springfield. After “Something’s Happening Here”, I didn’t recognize any of the other songs. Huh.

In and out yesterday. Bladder at 280 ml. Watched the CyberKnife duck below the table and rise up high over me. Laid still while clicks of the lens modified the photonic field. Stared at the wooden ceiling. Then, thanks, see you tomorrow.

A salmon, macaroni and cheese, ratatouille, green salad, and banana bread meal from CBE yesterday. Thanks, Mindy. The Mitzvah committee knows how to generate meals. It helps since I’m weary when I get back from Lone Tree. We asked for meals through the week after treatment ends. I’ll be ready to get cooking as soon my energy returns. Still no hotflashes.

Being Seen

Summer and the Radiation Moon

25th fraction today. Ten more to go. No longer sure when I finish since we lost two days more this week. Probably the 9th of August, barring other infestations.

Kate’s promoting a new superhero: Bedbugman/woman. It starts in a cancer treatment center where a mild-mannered physician, who looks like Dr. Gilroy, gets bitten by a bedbug irradiated by the CyberKnife. There’s more to figure out, like powers and villains and such, but this could be a rival to Marvel, doncha think?

Wednesday and Thursday were what we prostate cancer patients like to call Bedbug days. Hopefully the heat treatment got the little bastards. But. Will bedbug guy return with a new creepy crawly and start this cycle over again? Not counting on August 9th.

Kate and I went to mussar yesterday. Since my treatments are midday, except for Bedbug days, I’ve been unable to go since I started the radiation. We got there once or twice prior to my treatment, but doctor appointments and general fatigue kept at home most of the time.

The conversation was again about awe, Marilyn presiding. I’m going to do some more research here, but from a slightly different angle. As we talked, I became convinced that awe and mysticism have a distinct correlation. That’s one part of the research. I’m also intrigued with the connection between Rudolf Otto’s work, The Idea of the Holy, and awe. It may be that awe is an element I’ve been looking for in reimagining/reconstructing the idea of faith. Perhaps a crucial one. More later.

CBE and the Thursday mussar group in particular have been part of our lives since we discovered them in 2016. It was nurturing to be seen, to be able to recount some of my journey to friends. To be, again, part of a group I care about and that cares about me. And, Leslie brought us a meal in a blue plastic cooler. Mindy said she’d be bringing food by on Tuesday. Feeling loved. Gratitude.

Going Nuclear

Summer and the Radiation Moon

Debra came by yesterday with chicken, couscous, cucumber, and a swiss chard topping. We ate the meal with her. I’ve not seen Debra in some time, wanted to catch up. The mitzvah committee at CBE has gotten traction with the meals. Gratitude.

In other news. Trump still occupies the Whitehouse. I think occupies is a good word here, since it feels like an unfriendly invasion. With Boris Johnson becoming Britain’s Prime Minister, Trump will have competition for xenophobic, racist, generally clueless utterances. Must be that special relationship?

On the downward slope with the radiation. Twenty-four fractions given, eleven more to go. Since the bed bug incident moved my finish date to August seventh, I will now complete my treatment between the anniversaries of the atomic bombs: Hiroshima on August sixth and Nagasaki on August 9th.

Left-Hiroshima, Right-Nagasaki, photo credit

Consider atomic bombs, nuclear tipped missiles, the “club” of nations with nuclear weapons, nuclear power plants generating electricity, axumin and other radio isotope scans, radiation treatments for cancer. Nuclear engineering has had a big impact on the world though its negatives often (usually?) overshadow its positives.

Malignant uses multiplied after WWII. Most nations tacitly agreed nuclear weapons should never be used again after the horrors of Japan, yet nuclear weapons themselves became the apex of military power. There are uneasy, even dangerous situations right now that involve nuclear weapons: North Korea, Iran, India/Pakistan. Those old enough to remember the Cold War know, too, that whenever relations with Russia sour, the world’s two largest nuclear arsenals have humanity ending power.

The first light bulbs ever lit by electricity generated by nuclear power at EBR-1 at Argonne National Laboratory-West, December 20, 1951. wiki

The peaceful uses of nuclear power seemed to hold a lot of promise. Nuclear power plants generate electricity without the burden of adding carbon emissions to the sky. Yet Chernobyl, Three Mile Island, and Fukushima proved that potential problems with nuclear power can become awful reality.

In my own opinion nuclear power should still be a part of the transition to renewable sources of energy. Nuclear power plants built with adequate safeguards can help move us beyond fossil fuels. Yes, there’s the question of nuclear waste, but it’s a solvable problem, at least in the short term. Nuclear power and renewables can be a bridge to a world where nuclear fusion is our dominant energy source.

The medical and industrial uses of nuclear engineering have proven themselves over the decades since WWII. I’m glowing proof of that.

22

Summer and the Radiation Moon

22 fractions absorbed. 13 to go. Bed bug means I won’t be ending on August 6th. August 7th. Two weeks plus three days and I’ll have the full 7000 cGy of photons.

This week’s been difficult. I’ve tried various strategies for managing my ouchy gut. Anti-nausea meds. Zofran. Miralax. Immodium. Results mixed. A general sense of gut not feeling right has pervaded my days and nights. Add to that fatigue from the radiation itself and the couple of hours in traffic. Result: low energy, unsettled, spotty eating. Glad I’m over halfway done.

Could have been worse. Could get worse. Seems like a fair price to pay for the possibility of a cure.

The fans up here are cooling the loft. A breeze is coming down from Black Mountain. The sun is up. The sky is blue. Another beautiful Colorado Rocky Mountain day.

2014

Kate went to mussar on Thursday while I was in Lone Tree. Yesterday she went to a memorial service for Vanessa, a long time member of the Thursday afternoon mussar group. I mentioned her a while ago. She had a degenerative disease that slowly shut down her organs.

Vanessa’s mind remained strong, supple but eating, chewing, swallowing was very difficult. Over the last week or so she had had trouble breathing. Her spirit remained good.

We had a neighbor in Minnesota, Greg, who developed MLS. He also deteriorated over time, but his spirit turned sour. Why him? Why this disease? Why didn’t people treat him better? He died last year.

We’re not promised a smooth ride. And, most of us don’t get one. Gratitude is one antidote. Vanessa remained grateful for life, for friends, for family, for her faith. She lived fully even as her body betrayed her. Greg was not grateful. He lived miserably, then died.

Kate and I have plenty of opportunity to express our gratitude. From distant friends who stay in touch to family, grandkids, CBE folk. Lots of help, encouragement and love. Thank you all, again. Still.

Awe

Summer and the Radiation Moon

An orange disc slipped up between two cumulus clouds, darkening one and throwing rusty beams on the other, the Radiation Moon. We drove home from MVP. Up Brook Forest Drive.

At the curve before Upper Maxwell Creek the moon rise showed itself in the cleft of Shadow Mountain. These vignettes, available and free for those who choose to see, give us a glimpse into the wonder, the beauty, the power, the mystery of our universe. Those who knew it as caterpillar may not recognize the butterfly.

The middot of that night’s meeting was awe. Yirah. Often translated, especially in Christian translations of the “old testament” (doesn’t feel old when it’s ever present in the life of CBE) as fear. Fear of the Lord is a common phrase, usually meaning faith.

Marc Chagall

“We are to love God. Can we love that which we fear? Stockholm Syndrome. Can we love that which is distant? What is love? Are we in some way held in relationship by fear? What does that say about our relationship with God?” Susan offered several provocative ideas for discussion. We left-my stomach made me do it-before the conversation got to this set of questions.

Sent this note to Susan about them: “Awe is the main driver of my (small r) religious life. I experience awe looking up at Black Mountain, down at the Columbine, when I eat, the true transubstantiation, when I see others, knowing their inner life is as rich as mine, but hidden. Awe begets gratitude. Gratitude begets simplicity. Enough for me.”

And so it is.

Round 3

Summer and the Radiation Moon

Yesterday

Under the warmth of nuclear fusion’s endless possibilities my body takes in fractions of photon radiation, breaking the DNA of cancer cells and friendlies alike. Outside it was 83 degrees, the sun hitting us with more direct beams. Inside it was all Cyber Knife and its accelerator hitting me. Different nuclear generative processes, but both powerful in their own way.

This is a three day radiation week. The long July 4th weekend is time off, then back at it five days a week until done on August 6th. Yesterday I listened to Bach’s well-tempered clavier. Today, Berlioz. Night on Bald Mountain.

After I said I still had no side effects, Dr. Gilroy, in our weekly management meeting yesterday, said, “Well, you might slide through the whole time. In the last week there’s often an increase in urinary frequency.” Of course that’s just the radiation. The Lupron’s an agent all of its own. Still no side effects from it either.

Kate on the porch on Pontiac Street, 2015

Trying to feel my way toward the life after radiation. Kate’s feeling better, not all the way back, but much, much better. At first I was thinking about 7 weeks in the Cyber Knife tunnel. What it will be like when all the fractions have been given?

I realized though that we entered the true tunnel when Kate’s Sjogren’s began to effect her eating. A couple of years ago. The tunnel narrowed on September 28th, 2018, now nine months past. The bleed and its subsequent hospitalizations, imaging studies, doctor’s visits, and surgeries took more and more of both our energies.

Fortunately, Kate’s long ordeal began to have positive notes as cancer returned for me. If we’re lucky, and I think we will be, we’ll reach a point in September, after the second Lupron shot and a surveillance psa, when we can catch our breath, assess where we’ve been and where we’re going.

One of the tricks of living is to stay in the moment as much as possible without losing sight of life’s context. Not easy. The context includes the past and the future, yet we never inhabit either one. Only the present. Right now I’m living life fraction by fraction. One trip to Lone Tree at a time. One meal at a time. One workout at a time.

In September are the High Holidays, Sukkoth, Simchat Torah. The month of Elul precedes Tishrei, the month of the High Holidays, and as such is considered a time of repentance and preparation. Perfect for us this year. Too, on September 29th is Michaelmas, the springtime of the soul. In this instance Michaelmas falls on erev Rosh Hashanah.

And, in my own inner calendar, daylight’s change from 14 hours and 54 minutes on June 21, the summer solstice, to 11 hours and 53 minutes on Michaelmas, means that I’ll be moving further into the deep parts of my soul.

Looking gently forward to Elul, to Michaelmas, to Rosh Hashanah and Yom Kippur. This year Rosh Hashanah could be a true new year for us, the start of a healthier time. May it be so.

Back to the Inner Glow

Summer and the Recovery Moon

And, summer. A warm week ahead. Of course. Mountain weather. Great sleeping.

My first weekend respite from the radiation is over. It’s off to Lone Tree and Anova around 11:10 or so. Have to get gas. Burn through a lot of the fossil fuel with an hour commute. But, it is in a nice car. Back on the Beano, only drinking tap water. No seltzer. Bubbles.

The Gleaners, Jean-Francois Millet

Sunday is my rest day from working out. I read. An essay on charity and justice in the Torah parshah for Kate and mine’s bagel table on September 14th. These suckers are long. In this instance Deuteronomy 21:10–25:19. It contains the most laws of any parshah in the Torah. The charity and justice essay is a reflection on the laws concerning gleaning.

Then, some art criticism in a book Hot, Cold, Heavy, Light. Peter Schjeldahl. This guy is a genius. Wonderful, short essays on contemporary artists and their work.

Finally, a couple of articles on what conservatives are up to intellectually right now. It seems Trump has unveiled cracks in a conservative consensus begun around the time of William Buckley: a corporate oriented focus on the economy, a robust military with a kickass foreign policy, and conservative social values. Simpler times, man. Simpler times.

A CBE friend brought over a blueberry lemon pound cake and a large plastic container of serious vanilla ice cream. She’s in cancer treatment right now, too. We talked for an hour or so until Jon, Ruth, and Gabe came up to take another run at the serious clog in our bathroom sink.

He knows a lot about houses and their inner workings. I don’t. With Ruth and Gabe’s help the three of them spent a lot of time in our crawl space first with a snake, then with Drano, then with the snake again. It was a stubborn clog, mostly hair, I think. They persevered and got it. Yeah!

I made mashed potatoes with cut up steak from yesterday’s left overs. Broccoli florets. Ice cream, as you might imagine, for dessert.

Getting a plumber up here to come by for such a small task is difficult. Only a few good ones up here and they spend most of their time on remodels and new construction. They work in small jobs when they can. Good thing Jon could help.

Ruth decided to stay all night so she can help us today. I hope she and Kate can get back to sewing.

Green

Summer Solstice and the Recovery Moon

This morning

Black Mountain has a wispy cloud draping over its peak, moving slowly toward the northwest. The greens this summer, with so much water, are intense, Hawaiian. The lodgepoles are a deep dark green, the aspen groves a yellow green spotlighted by the sun. The grasses are lush, the dandelions abundant, cheery dots of yellow.

The white cloud dances with the blue sky, revealing it now, obscuring it. It’s another cool morning, 43. Perfect for sleep. The mountain streams continue to flow fast, white where they hit the rocks, still not full with the snow melt proceeding slowly. On the way to CBE yesterday Kate saw a cardboard sign, hand lettered, Slow: Fawns.

And, snow is in the forecast for this weekend. Yes, on the day of the summer solstice, weather5280 predicts snow that might hit us. Snow. The fire hazard signs are still on low, have been since March. Never this far into the summer. I’m grateful for the wet, for the dampening of wildfire probabilities. One less thing.

Patsy Cline

Day 5, fraction 5, of the 7000 cGy prescription. After today’s isotopic rain, only 30 to go. The weekends are off. Time for the body to rest, they say, though I imagine not running a seven day a week practice has something to do with it, too. Pandora so far: The Band, Baroque, Coltrane, Patsy Cline. Haven’t decided about today. Maybe Izzy.

No side effects so far. Early days for both the radiation and the Lupron. Feels like I have a job. Get in the car at a certain time each day, navigate four lane highways to Lone Tree. Same exit, same turns. Same office. But in this case I don’t have a job, I am the job.

The Beano seems to work, suppressing the gas which screws up the Cyber Knife’s navigation of the volume created by Dr. Gilroy. The Miralax helps as well. The calcium/d3 pills are horse pills, almost as long as a finger joint.

Mussar Vaad Practice group, MVP, last night. Rich Levine led a wonderful session on simplicity. Kate and I went for the second time in a row. Still wears us out. Finished at 9:30 pm, way past both our bed times. Here’s an interesting statistic, of the 10 of us in the MVP group, two of us have active cancer right now and one is in remission from breast cancer. 30%.

Resilience

Beltane and the Recovery Moon

Late April

Kate’s stamina has improved so much. Thursday. Mussar in the afternoon and a board meeting in the evening. Last night we went to the Gospel Shabbat. The Beth Evergreen singers, supplemented by members of the Evergreen Chorale, were led by Val, a committed choir director with a lot of energy, plus a fine pianist added to the CBE band.

It was high, good energy and Kate stayed the whole time, including for a bit of the oneg. (oneg is snacks and goodies provided after a service.) Her hip bothered her a bit, but she walked and stood, clapped and sang. A real simcha.

Rabbi Jamie came by yesterday around lunch time to see how I was doing. We fed him chicken pot pie (mine) and watermelon, then he and I retired to my loft. He’s a good guy. A dog person. His first dog was a wolf hybrid, 105 pounds, that lived an astonishing 18 years.

He lost a dog recently to a porcupine. Awful way to die. But natural. We agreed it was a good death, both animals doing what evolution had taught them.

Tomorrow, for father’s day, Jon, Ruth, Gabe, Kate and I are going, at my request, to Biker Jim’s Gourmet Dogs. No less a foody than Anthony Bourdain recommended Biker Jim’s. Apparently he soaks his onions in Coca-Cola. After Biker Jim’s hot dogs will become a special occasion treat for me, no longer in my diet. Other processed meats, too. Gonna miss’em.