Category Archives: Health

Don’t Leave Town

Summer                                                   Healing Moon

With the waning healing moon 13% full I have been healed.

Here’s an analogy. One April day when the air is a bit cool and daffodils have broken through, yellow against the gray, a stranger comes up to you, perhaps at home or at a bus stop, in the grocery store.

“I have something to tell you. You have been chosen at random to be put on trial for a terrible crime. The maximum penalty for this crime is death.”

“Wait,” you say, “What do you mean? How is that possible?”

“You’ll know more after an initial hearing before the judge. Until then keep yourself available. Don’t leave town.”

A month later, in a Gothic courthouse, you visit a judge who opens your file.

“Hmm. Well. This is all in order. Yes. Sorry you had to be chosen, but these things happen all the time, you know. I’ll call with the results of the trial in about a week. Don’t leave town.”

Shaken even more than when you met the stranger, you go home. You don’t leave town.

“This is the clerk of court calling. Is this X?”

“Yes.”

“You have been found guilty and the sentence is death. You’ll be under house arrest since the execution date is not certain. Sometime in the future. Don’t leave town.”

Stunned, you fall back in your recliner. In every way you feel the same as you did before the stranger came except for your various reactions to his news. Anger, fear, courage, hopelessness, resistance, frayed anxiety. Now this.

“Hello, X?”

“Yes.”

“The judge has decided to hold another hearing on your case. Please come back to the courthouse on this date. Thank you.”

On a day almost 3 months from the stranger’s visit, you climb in your car in the dark. They’ve set the hearing for a very early hour. On the way you realize this might be your last chance. You consider the suddenness, the arbitrary nature of your guilt. And you feel afraid. Again.

The hearing is long and you are present, but can neither hear nor see. Hours later you awake in a prison cell, disoriented. You don’t remember why you are there. Slowly, it comes back. The trial, the sentencing, the final hearing.

A jailer in blue prison garb says, “You’re free to go. The report of your hearing will be available in three to five days. Don’t leave town.”

Unbalanced and unsteady from the hearing process your wife drives you home, this time through dense rush hour traffic. At home you gradually put the hearing behind you.

On a quiet afternoon three days later the phone rings. You pick it up. It’s the judge.

“X. How are you feeling? I see. Well, let’s get right to it. The panel looked over your case and decided to set you free. No capital punishment. You may leave town whenever you wish.”

 

 

Surreal

Summer                                                                   Healing Moon

While in Skyridge, I had several nurses, all interesting: Ron, Esther and Elizabeth. When the first of them came in my room I noticed on her security badge: Elizabeth and then Medical Oncology Nurse. Oncology, I thought? Why do I have an oncology nurse? This hours after surgery for prostate cancer. That’s how surreal this whole time has been for me.

I’ve not felt seriously ill, except ironically, after my surgery. I had no symptoms. The context was all new to me: Colorado hospitals, doctors, drives. It’s been difficult to raise my inner sense of alarm to the CANCER level. Yet I have it. Or, hopefully, had it.

The weather yesterday, the day after the surgery, was beautiful. Blue skies entertained parties of cumulus clouds, the eye could follow the unusually green plains as far as the horizon line. The world was unconcerned about my health or the health of anyone on the med-surg floor.

The hospital room was beautiful, too. Nicely appointed in woods and sandy textiles, it was a pleasant place to be.  And yet. There was that surgery. That biopsy. Those things that turned my world inside out and upside down. Strange. Surreal.

 

 

Strange

Summer                                                                   Healing Moon

So. Cleansing continues.

Talking to Kate yesterday I mentioned how strange I feel. Physically, as I’ve said, I feel fine. But tomorrow I’ll have surgery to remove a part of me. Gone forever. A disturbing thought, balanced only by the knowledge that if it stays, all of me might go.

It’s as if I’ve stepped into an alternative universe where I’m desperately sick and can be saved only by drastic actions. Oh, wait.

I’m not describing this well. The cancer is an abstraction, as I’ve said before. I feel no symptoms. My body is not telling me that anything is wrong. Only tests done inside my body, where I can’t see, have found it.

Trust has guided me to tomorrow. Trust in Lisa Gidday, my internist, trust in Kate, trust in Edward Eigner. That trust says this is serious. It’s now. And must be dealt with. Still, trust itself is an abstraction even though those people are not.

But. I feel. Fine. Yet tomorrow I’ll lie feet up high for 3.5 hours as a robot crawls around my innards snipping, cutting, removing, sewing. Very, very strange.

BFFs

Summer                                                              Healing Moon

Down to new Bent’s Fort in Morrison last night. Perched high in the red rock (Fountain formation) foothills overlooking a glittery Denver to the east, the Fort is an unusual Western experience. Tom and Roxann Crane took us out for a second wonderful meal and honest, heartfelt conversation.

This meal really started over 28 years on a cold January late afternoon when Tom and I were initiated into the Woolly Mammoths at Valhelga. No kidding, that’s the name. It’s the family retreat of the Helgeson clan, designed by architect and fellow Woolly, Stefan Helgeson. Tom and I didn’t know each other then, though in the six degrees of connection way we had mutual friends.

Since that time both Tom and I have married again, this time to the last partner. We’ve shared twice monthly meetings, annual retreats with this group of 11 men. The relationship among the Woollies now has decades of memories, intense and often intimate sharing, hard times and good times. The extraordinary piece of the experience is the durable and deep friendships we have formed with each other. These are not buddy relationships with a lot of backslapping, sports watching, gun shooting or fish line throwing; rather, these are bff type friendships, now irrevocable and unbelievably precious.

These men will be with me when I fade out on the morning of July 8th and when I wake up hours later. Their support and that of family, docent friends and high school classmates will make that isolated moment far from lonely. Too, they all constitute a reason to recover and continue living this one life.

 

 

This Is Happening.

Summer                                                      Healing Moon

Coming back from the pre-op/post-op consultation things felt different. As Kate said, “We’ve moved from thinking to doing.” Since April 14th, it’s been tests, visits to various doctors, reading, talking with friends and family, taking in information,  then decision making. That time period ended with our visit to Eigner on June 11th. We decided on a prostatectomy on July 8th.

The intervening period was a sort of suspension between deciding and acting, knowing the diagnosis and treatment, but having to wait for the surgery. With yesterday’s visit matters have moved to consent forms, instructions for surgery prep, yet more systems checks to see if this body can stand the procedure. It can.

On the way out from talking with Anna, we saw Dr. Eigner. He shook my hand and we had a brief chat. “That looks like a Santa Fe shirt.” “No, Montevideo.” “Ah, that’s Uruguay.” “See you on the 8th.”

It has been an odd experience, this prostate cancer. On April 13th I considered myself a pretty healthy guy. On April 14th I first heard the word malignancy related to me. After the biopsy result I was terminally ill. I went from healthy to definitely not in a matter of weeks, yet I felt no symptoms. There were only clinical findings (digital exam), an elevated PSA, then the biopsy results. All abstract and outside my view. I can’t see my prostate. I can’t feel the cancer. I really don’t feel any different physically than I did on April 13th.

A penumbra of shortened mortality rose over me, shading the future sun. Under its cooler light I felt fine, but wasn’t. In 1992 I went to the Plaza de Toros in Mexico City, the largest bullfighting ring in the world. Tickets were sold sombre y sol. Shade or sun. I bought tickets sombre. Now I would like to move back into the sun.

Definitely feeling a bit more jittery. Imagining the 4:30 am drive to the Sky Ridge Hospital for a 5:30 arrival. Preps. Talking with anesthesiologists and Dr. Eigner. Nurses. Needles. Then quiet for 3 and a half hours. Real. This is coming.

 

Yet Another Appointment

Summer                                                                   Healing Moon

Today is my pre-op/post-op consultation with Dr. Eigner’s physician’s assistant, Ann. She’ll go over what I need to do for surgery prep, what we can expect during the surgery and immediately after, then give us post-op instructions. My level of comfort with all this is substantially higher with Kate involved, both because she’ll be there to hear what I miss and because her own skills make her over-qualified to help me before and after surgery.

I continue to sleep well, have no symptoms (none expected, but still good). Since we are now 10 days out, I’ve stopped my aspirin. My feelings have become more labile as the surgery approaches, which makes sense to me.

The surgery itself has a paradoxical quality, as I imagine many such surgeries do. The paradox is this. It offers me real hope, an opportunity to continue my third phase cancer free. And, that, of course, is the reason for the surgery. On the other hand it has attendant pain and discomfort, improbable but possible complications.

It also might reveal that the cancer is worse than we imagine.  My staging included the seemingly innocent, NxMx. The N refers to the status of the lymph nodes near the prostate and the M refers to possible metastasis, or the spread of the cancer to the rest of the body. The x means unknown.

This is where the paradox becomes strong, intense. The surgery might (probably will) move me past this whole episode. In that case, hallelujah. Or, it might dash that hope and begin another series of tests and treatments. In that case, uh-oh.

The good news is that if Eigner had suspected lymph node or metastatic involvement he would have ordered imaging studies prior to surgery. He didn’t. That’s a positive sign, but only that. We won’t know until the surgery is over, perhaps not even then. We may have to wait on the pathology report, or even the first few p.s.a readings in the year + after surgery.

My emotions ride along the trajectory of which outcome dominates my mood. Most of the time I imagine negative margins on the removed prostate. That means no cancer cells in the tissue surrounding the removed organ. Not definite relative to NxMx, but very positive. Occasionally my rational side will bring me up short while I’m feeling good about this most likely outcome. Wait, it says. You might be right, but what if you’re wrong. Then, you’re feelings will fall from the height of hope to the canyon of uncertainty. Oh. Right.

When rationality moves me to consider all the possible outcomes, then I can slip into fear. One problem with an active imagination (7 novels and one underway) is that I have no difficulty following the path of more tests, more treatment all the way to death. The first feeling that comes in the wake of that thought is fear.

I’ve worked out over the last 50 or so years, a philosophical position that calms me before the fear dominates and shakes my foundations. Usually. Nothing’s 100 percent. I’ve expressed it elsewhere. The short version is: something, some time. It’s buttressed too by my belief that life is the mystery, death is ordinary. And those rocks around Turkey Creek and Deer Creek Canyon roads. The ones that have been here so much longer than I’ve been alive and will be here so much longer after I die.

 

Possibilities Opening Up

Summer                                                             Healing Moon

Bookcases 300Spent part of yesterday morning moving books, unloading the old IKEA shelves so that Jon can install my new birch shelves. The loft finally feels poised to move from stacks of books, boxes of art, rows of bankers boxes to a finished space. It won’t happen this week, probably, but very soon.

Having my library in boxes or in stacks on the floor has made me feel claustrophobic. I can’t stretch out, find the books I need, the knowledge I need. It’s difficult to express, but I’ve developed a working environment that fits my peculiar needs; and, it’s been unavailable as a whole since we decided to move late April of 2014. That’s a long time.

There’s a building excitement for me as I can see it together again. Sure, family is critical. Friendships are essential. Travel, the arts, going out is fun, even necessary. But also core is work. Not work in the get ahead, I want to be successful and rich sense, but work as an expression and fulfillment of your unique Self. In work that ability to draw, to do math, to invent new machines, to sing, to dance, to heal, to create quilts, to write, to learn flows out into the world as a new creation, a gift the universe needs, a giving back to the source of our life.

I need to work, now as much as ever, and I’ve felt blocked for months with the move, selling the Andover house, settling in and the emergence of medical problems that have to be dealt with. In this last instance the tomorrow wall has blocked me, too.

I’ll say again that the tomorrow wall, which stops my imagination at around July 8th, has forced me to stay in the here and now of doctor visits, decisions, settling in matters. A good thing. But, it will need to come down. It has become a Berlin wall between me and my work. With the changes underway in the loft I can feel it begin to crumble.

Fear Leaves

Summer                                                         Healing Moon

Denver had some serious weather yesterday: a tornado not far from Jon and Jen’s home, beating rain that took out Jon’s cucumbers, urban flooding that set off alarms in the building where Bernie Sander’s spoke last week. We have rain in the forecast for the next week or so.

The fear subsided over night. Not sure why, but it’s replaced this morning with the calm about the process that I’ve felt most of the time. The trigger yesterday was, obviously, my pre-op physical. It pushed the surgery and its low, but real, uncertainty right in my face. Calmness can be a trap, too. If I’m not calm, am I doing this wrong? Am I not centered? Not grounded? Not spiritual enough?

We all cycle through various perspectives on important issues. That’s a normal and healthy way of seeing different sides. Some of those perspectives can be frightening, e.g. the instance in which the surgery goes well, but some cancer has escaped into my body, metastasized. It was that possibility that creeped into my awareness yesterday and it took hold, stayed present for much of the day. Oddly, even though I found Dr. Gidday very reassuring and I believed her confident appraisal of my prognosis, at the same time, the fear tickled my heart and fingers.

There are, too, family matters to deal with and I had to work out how to deal with them. These things don’t come naturally to me so I have to consider them, plan. Decided on a frank and open conversation which, I admit, could have come to me first, but didn’t.

So this is what I’m doing with my one wild and crazy life. Right now.

Fear Was My Co-Pilot

Summer                                                      Healing Moon

Had my pre-op physical this morning, two weeks before my surgery date of July 8th. On the way over I drove through Turkey Creek and Devil’s Creek canyons, a beautiful backway to the southern Denver suburb of Littleton.

I was afraid on the way over. I’ve been distracted and anxious, unsettled so far on this journey, but have not felt afraid. The fear crept in as I drove, not paralyzing, but evident. The beauty of the canyons with their pines and aspens, the exposed rock and the mountain sides climbing up for the road soothed me. That’s why I chose that route.

Those rocks, I thought, have been here long, long before me and will be here long, long after me. At an intellectual level I find that comforting. Today though the surgery was getting more and more real. The fact of cancer, too. The fear was not about the surgery or the recovery. It was about the results of the surgery.Will I be cured or will there be lingering doubts, cells that escaped into the lymph nodes or into the body?

98% of the time I believe Eigner will get all the malignant cells and the pathology report will relieve me. 2% of the time, I’m not sure. Today was/is all 2%.

Dr. Gidday, my internist who did my pre-op, was great. She referred her 82 year old father to Eigner when he was diagnosed. She trusts Eigner and so do I. Dr. Gidday’s nurse Katie, who had another patient and couldn’t check me in, stuck her head in the room and asked me how I was doing. There’s a lot of caring in that office and I feel it.

Fear seems natural to me, so I’m just reporting it. It’s not dominating me. At least not right now.

 

Nourishing the Self

Summer                                                      Healing Moon

Finding myself driven into my Self, wanting to nourish my soul/Self, my inner life, needing to do that. Mood a bit down, usually precedes inner work, and I plan to follow that thread today.

I may use the intensive journal, read some poetry, look into some books on the inner life. Meditate. Maybe hike a bit.

The tomorrow wall has gone back up, closing off my dreams for the future. This is not bad. It focuses me on the here, the now, but I will not allow this wall to stand after July 8th. No matter what the final pathology report says I plan to regain my usual rhythm. Write. Translate. Explore Colorado. Learn new things. Go out with Kate, the grandkids.

An example of what’s going through my mind right now. In traffic on I-70 yesterday, headed east, away from the mountains, I looked at all the cars and trucks and buses filling lanes, six lanes altogether, going east and west. Unbidden came the thought that all these drivers, all the passengers will get taken off the board.

This traffic, filled with strangers on unknown journeys to unknown destinations, purposeful and not, was a moment in history. And history’s tide would wash over it, sweeping in its wake all the souls present.

This was not a dark thought, rather a descriptive realization, offered to me, I think, by my unconscious. Why? To place my current predicament in context. Am I going to die? Yes. And so are all these others. As have all the others who lived, say, 120 years ago.