Category Archives: Health

The 13th Fraction

Summer and the Radiation Moon

Heating up here. 94 down the hill. 73 on Shadow Mountain.

13th fraction today, then a four day rest. Got there early only to discover that they were running behind. Quick when I finally got in. ‘Yesterday was 12 out of 35. Bit more than a third finished.

Mozart today. The time went by fast. It starts with a whir of gears, then the bird’s head of the cyber knife begins to swing toward me. It stops at about my knees, seems to consider what’s next, then moves just above my abdomen. It’s choreography is the same as the little video you may have seen here.

There’s a moment when it dips below the table on my right side, then aims up from underneath. A whir, a twist, and it comes back up high. Finally it returns to roughly the starting position and swings away. Treatment done.

Kim, or Patty or Nicky come in and remove the rubber band from my feet, undo the loose velcro band over my legs, and take the small donut I use to give my hands something to do. The table is lowered to an easy height for getting up. I collect my things from the table, say good-bye and head back toward Conifer.

Today 470 was a mess going west (or north, if you’re silly enough to look at the compass). On occasion it’s bad. The construction to give users of this highway express lanes has been ongoing since we arrived. There are often different traffic patterns due to moved concrete barriers, dips and turns as the road shifts from one old portion of highway to a new one.

Fireworks

Summer and the Radiation Moon

The Radiation Moon will take me all the way to August 1st, within 5 days of the finish. The Algonquin’s called it the Thunder Moon. In the traditional Chinese calendar the July moon is the Ghost Moon. The Hungry Ghost festival follows in August, now the month of the Ghost Moon. Thundering ghosts radiating from the heavens. Or, hells.

Last radiation day this week. July 4th long weekend ahead. Breakfast with Alan at Dandelion.

Not sure what we’re going to do for the 4th although we have never gone to fireworks. Crowds and up too late. In Andover we could see the fireworks the city put on from our house. Later, we could hear the fireworks loving neighbors displaying what they’d found. Meanwhile the dogs would cower in their crates or up against our legs.

Monsoon rains

In the fire prone foothills fireworks displays are often called off. This would be the year for them, since the fire danger is much less than usual. The monsoon season is here already with afternoon storms. You’d think the added water would get the fire danger back down to low, but it’s been stuck at moderate for the last week.

Trump’s very big, biggest ever, best ever fourth of July celebration. With tanks! You can see his mind turning over television news clips of military parades in Hitler’s Germany, North Korea, Russia, even some European countries. Oh, boy. Look at us. Big missiles! Big tanks! Lots of soldiers! Flags. We’re patriotic. We love America. Enough to put on a big fancy beautiful wonderful moment. When will it ever end?

Round 3

Summer and the Radiation Moon

Yesterday

Under the warmth of nuclear fusion’s endless possibilities my body takes in fractions of photon radiation, breaking the DNA of cancer cells and friendlies alike. Outside it was 83 degrees, the sun hitting us with more direct beams. Inside it was all Cyber Knife and its accelerator hitting me. Different nuclear generative processes, but both powerful in their own way.

This is a three day radiation week. The long July 4th weekend is time off, then back at it five days a week until done on August 6th. Yesterday I listened to Bach’s well-tempered clavier. Today, Berlioz. Night on Bald Mountain.

After I said I still had no side effects, Dr. Gilroy, in our weekly management meeting yesterday, said, “Well, you might slide through the whole time. In the last week there’s often an increase in urinary frequency.” Of course that’s just the radiation. The Lupron’s an agent all of its own. Still no side effects from it either.

Kate on the porch on Pontiac Street, 2015

Trying to feel my way toward the life after radiation. Kate’s feeling better, not all the way back, but much, much better. At first I was thinking about 7 weeks in the Cyber Knife tunnel. What it will be like when all the fractions have been given?

I realized though that we entered the true tunnel when Kate’s Sjogren’s began to effect her eating. A couple of years ago. The tunnel narrowed on September 28th, 2018, now nine months past. The bleed and its subsequent hospitalizations, imaging studies, doctor’s visits, and surgeries took more and more of both our energies.

Fortunately, Kate’s long ordeal began to have positive notes as cancer returned for me. If we’re lucky, and I think we will be, we’ll reach a point in September, after the second Lupron shot and a surveillance psa, when we can catch our breath, assess where we’ve been and where we’re going.

One of the tricks of living is to stay in the moment as much as possible without losing sight of life’s context. Not easy. The context includes the past and the future, yet we never inhabit either one. Only the present. Right now I’m living life fraction by fraction. One trip to Lone Tree at a time. One meal at a time. One workout at a time.

In September are the High Holidays, Sukkoth, Simchat Torah. The month of Elul precedes Tishrei, the month of the High Holidays, and as such is considered a time of repentance and preparation. Perfect for us this year. Too, on September 29th is Michaelmas, the springtime of the soul. In this instance Michaelmas falls on erev Rosh Hashanah.

And, in my own inner calendar, daylight’s change from 14 hours and 54 minutes on June 21, the summer solstice, to 11 hours and 53 minutes on Michaelmas, means that I’ll be moving further into the deep parts of my soul.

Looking gently forward to Elul, to Michaelmas, to Rosh Hashanah and Yom Kippur. This year Rosh Hashanah could be a true new year for us, the start of a healthier time. May it be so.

Recovery

Summer and the Recovery Moon

March, 2019

Kate’s recovery sped up during the Recovery Moon. Yesterday she went with me to the grocery store to pick up a few items. First time in a year or so. She’s doing all the clean up after I cook, a big assist. She’s laughing, smiling, joking. She folds the laundry, does the dog’s second feeding on days I need to get my workout in before radiation. Picture me jumping up and down, grinning. Her, too, for that matter.

Sunday, June 30, 2019

As for me. Itchy eyes. Check. Sneezing. Check. Clogged sinuses. Check. Pine pollen season, unveiled now by the recent dry weather, has come to my head. Not as bad this year as last, at least so far. Thankful for that.

Got out the old Rommertopf clay pot yesterday. Plopped a 5 pound chicken in it with some potatoes, carrots, pearl onions, oyster mushrooms, red wine, and home made chicken stock. Cook from a cold oven for sixty minutes at 480 degrees. Remove lid. Cook fifteen minutes more.

Hadn’t used this handy kitchen tool since we moved here, but I will again soon. The chicken was so moist. A real treat.

No Beano yesterday, drank carbonated water. Enjoying the day off from the radiation protocol.

Inner Wilderness

Summer and the Recovery Moon

Speculating further after my post on Wild, Wildness, Wilderness. Wilderness is a place where humans rarely go, a place where the ebb and flow of life depends on plants and animals, not the artifice of roads and streets, buildings and houses, stores and parking lots. (I’m bracketing the climate change influence for the moment.)

Thought about cancer. Realized that the interior of a human body, even, perhaps especially, your own body, is a wilderness, too. Rarely visited by humans, very, very rarely by yourself-colonscopies, imaging work, sonagrams, echocardiograms being exceptions, of course, but in those cases the boundary of the wilderness is not opened. It’s penetrated by beams and rays and sounds.

As my old internist Charlie used to say, “We’re all a bit of a black box inside.” The inner world is not all that’s hidden from others; the inner world of the body is hidden, too.

We carry wildness and wilderness with us wherever we go.

A Yellow Tinged Orgy

Summer and the Recovery Moon

Pine pollen, June, 2015

The wind blew up last night as the sun set. With it came the yellow cloud, lodgepole pine pollen. The yellowness, which looked like smoke, refracted the deep reds of the evening sky. Coulda been fire. The fine yellow powder settles on everything. We’ve been lucky so far because the rain has knocked down a lot of the pollen. Not now.

It’s a wild sexual orgy, a sign of midsummer, as the lodgepoles go through their ancient reproductive strategy. Here’s an evocative sentence from Walking Mountains: “With their strobili unabashedly protruding and their ovules wide open, the young gametophytes stand ready to receive the blasts of pollen from trees near and far.” 50 shades of green.

When I was in Lone Tree yesterday, the truckometer read 100. I drove the older Rav4 since Kate volunteered to take Mary all the way to the airport. Stifling.

Sushi Rama

Two weeks out of seven over, 10 fractions beamed into my prostate fossa. The weekends are off. I’m finding I really like the break. To reward myself for a solid two weeks of radiation therapy I followed Ruth’s recommendation and found Sushi Rama. So-so. But fun. The conveyor belt idea works very well, I imagine, when the customer base is large and consistent throughout the day. Variability in a burb makes some sushi get that old and tired look.

Wild. Wildness. Wilderness.

Summer and the Recovery Moon

Wild Man on a coat of arms, Albrecht Durer, 1499

Jimmy Johnson. Woolly, artist, designer, wayfinder, South Dakotan. He emphasizes an old men’s movement idea, the wild man. Find your inner wildness. Keep it alive. Present. That way our vitality remains.

OK. But. Cancer. Is wild. Exhibits a form of wildness that has no care for its environment. Only about replication at the expense of whatever can feed it. Sorta like capitalism. Especially fossil fuel companies.

A certain form of inner wildness has found me and I don’t like it. It’s the opposite of the wild man’s inner wildness. Instead of bringing vitality it feeds on life until it is no more. Again, like capitalism, especially fossil fuel companies.

In another sense though cancer’s wildness is no different from any wildness. It’s red in tooth and claw, survival of the fittest it’s prime directive. This vast forest, the Arapaho National Forest, in which we live is like that. Wherever there are deer and elk, there are mountain lions. A Rocky Mountain truism.

The mountain lion feeds from its environment, is ruthless and opportunistic. As an apex predator, the mountain lion may have no enemies here, but after the mountain lion dies, the forest will absorb their essence, put it back into the plant world. Which feeds the deer and the elk. The circle of life.

Cancer is part of this. It’s an element of the natural world just like decomposition, photosynthesis, a mountain lion attacking a mule deer. This wildness within me lives by the laws of natural selection. It doesn’t care who I am anymore than the mountain lion cares which mule deer they can catch. Cancer is predator and I’m its prey.

Luckily I have a means of fighting back. Even so, cancer is wily, persistent. It’s an open question whether this prey can take out so formidable an adversary. TBD

Kudos to Mary

Summer and the Recovery Moon

Kate at Biker Jim’s on Father’s Day

Kate’s recovery continues to go well. She drove the half hour to PetSmart and picked up Kep yesterday. I took him in on my way to the Cyber Knife. She’ll also drive Mary to the Federal Center RTD stop. Mary tried to find a shuttle or taxi and experienced the mountain way. Either not possible or folks didn’t answer the phone. Wish I could take her, but the Cyber Knife beckons.

Mary’s working on school libraries in Singapore. They’re surprised when I tell them I have Masters Degree in Library Science. Libraries are under a lot of pressure these days and are rethinking how they fit into colleges, universities, communities. Mary has helped the nation with her knowledge of how students actually use libraries. She’s so successful that she’s working well past the usual retirement age. Unusual. Kudos to Mary and her internationally acclaimed work.

Brother Mark likes to comment on the Vietnamese currency, the dong. He says it’s drooping right now. What kind of stimulus might make it rise, he wonders. LOL. He’s on vacation, plenty of time to consider the world around him.

With nine treatments my inner glow has increased. I may be a beacon on Shadow Mountain for aircraft trying to orient themselves. Listened to the Cream yesterday. Nicky was not familiar with them, but she knew Eric Clapton. The Cream was one of the first super groups: Clapton, Jack Bruce, and Ginger Baker. I saw them in a weed smoke filled theatre in Chicago’s old stockyard district, maybe 1968. Got stoned just sitting there.

No side effects so far. But. Every ache, like the hip ouching me as I fed the dogs, or some shortness of breath, or general weariness makes me wonder. Is this it? Are the side effects commencing? No. No. No.

Well, at least I think no on that last one. It’s hard to separate the fatigue from driving back and forth, the treatments, pushing myself to get all my exercise in, and any that might be the result of either the radiation or the Lupron.

goes over the faded Baby’s On Board

A strange place to be. Waiting. Not wanting to invite trouble. The runup to both treatments had a lot of focus on the side effects. Cancer care is like that. Here, take this. It’ll help kill your cancer. And, oh, by the way, your hair and teeth will fall out. But that’s only temporary. Oh. Good.

Most important of all: remember why radiation, why lupron. Kill cancer. Go for a cure.

Been focusing on simplicity of the heart as I drive back and forth, reminding myself to stay in the moment, to not let other drivers, current circumstances drag me out of my inner calm. Tough for me, but really good practice. I failed yesterday when a peloton rode up narrow, no shoulder Shadow Mountain Drive. “Ride single file!” I yelled out the window.

Simplicity is about navigating the churn, the “blooming, buzzing confusion” that is our mind, as William James put it. I’ve taken to using advice for people experiencing panic attacks. Find five things you can see. Five things you can hear. Five things you can feel. I like this because it echoes techniques I learned long ago from the existential psychologists like Carl Rogers. Grounding. It helps.

Family Week on Shadow Mountain

Summer and the Recovery Moon

It’s family week on Shadow Mountain. Mary is here, arriving Tuesday night from Minneapolis, heading out tomorrow for Minneapolis to see her friend Debbie in Eau Claire. After a brief stop in Indiana, she heads back to London, on to Cornwall, Devon, for a memorial service. Greece for a conference. Back to England, Cambridge, for a conference with Japanese colleagues from her time in Kobe last year.

Meanwhile Mark sends missives about Bangkok. He’s been in Chinatown, Yaowarat Road, the old main street of Bangkok. I stayed there when I was in Bangkok in 2004. A fascinating place with traditional Chinese apothecaries, lots of street food on weekend nights, small, crowded lanes packed with shops selling diverse wares.

Guru, Mary’s s.o., is back in K.L., Malaysia, defending a couple of drug traffickers facing the death penalty. They’re tough on drug dealers.

Kep

The Kep, shredder extraordinaire, goes into PetSmart today for furmination. If, that is, I can find his rabies certificate. No, I know where it is. He still doesn’t like to be left. He is joyous when we return. You remembered me!

Yesterday I listened to Creedence while the Cancer Predator bobbed and weaved around my body-as Mark observed. Keith, who’s taking the radiation cure for just diagnosed prostate cancer, said, Half done! I’ll get to half some day, but not soon. Another guy, older than me, gave me a bemused smile, all radiated! We’re all on death row, hoping to commute the sentence with clean living and radioactive photons.

2014

Kate saw Gupta. He’s going to see her again in a month. No diagnosis. She’s doing so well that getting a lung biopsy done, the only way to make a definitive diagnosis, might interfere with her recovery. It’s a surgical procedure, requiring anesthesia. If she continues to improve, and I think she will, then any lung disease is not bad enough to justify the trauma of the biopsy.

Wisest of Owls

Summer and the Recovery Moon

The weather here has veered back toward seasonal norms and will continue warm to hot. Hard to say when the next snowfall might be.

Gabe found the antler. A very excited 11 year old. He went for a walk with Ruth and found another bone. A knife blade, too. He’s a bone collector. Jon says he wants a metal detector. Oh, boy.

Ruth varnished the owl house. It will get up in a tree soon. It has book jackets on it. She made it in wood arts class and gave it to me for my birthday. I told her the book jackets would assure I’d get the wisest owls. “I didn’t think of that metaphor!”

Drove down the hill last night at 9 pm to the Federal Center RTD stop. Picked up Mary at 10. The lights of Denver twinkle coming down 285, the air was warm, the sky clear. Perfect summer night. Good for a drive.

She’s going from here to Wisconsin, thence to Indianapolis, and, after that, back to London. She came through London to Indy.

Kate had a not so good day yesterday. Some random not feel good stuff. Another grocery delivery. What a mind saver.

Pattie told me my bladder was perfect yesterday. So nice to hear. Took the last of my radiation to Riders in the Storm. I did ask Nicky what was the most popular musical choice. Hmm. Let me give you the top four: classic rock, blues (pretty appropriate), classical, and new country. Interesting.

Got to thinking about why classic rock. Listening to the Doors I replayed college. Hmmm. At 72 I choose to transport myself back to when I was young and foolish. Made me wonder what musical choices are made in hospices these days? Anybody leaving this world to “I’m So Glad” by the Cream?

At rest, waiting for me

Prostate cancer tends to produce patients of a certain age. Like me. When we pass each other, we smile. A bit grimly. Yeah. You, too? The guy with the Titelist ball cap on Monday looked serious today waiting his turn on the gurney.

I’ve wondered, once or twice, what the attitude is like in breast cancer treatment centers. I imagine it as a bit more warm and fuzzy.