Category Archives: Health

I miss them still

Spring                                                                          Recovery Moon

Doryphoros, MIA
Doryphoros, MIA

Today is Kate’s pulmonology appointment. Another key moment on this journey. Is she fit enough for surgery to place the j-tube? Does she have some lung disease? And, a week delayed.

The cold. My cold, that is, and it’s follow on sinus infection has begun to lose its grip. Glimpses of normalcy, breathing freely. Is this it? The end to this seven weeks of this and that rattling around in my blood stream, squeezing my lungs, filling my head? I sure hope so. May do a little dance.

Ironies. Judge Gorsuch, a Colorado deep conservative appointed to the court by he who shall not be named, has sided with the liberal judges on a Yakima Indian treaty dispute. Being a Westerner, he’s been exposed to much more Indian law than any other member of the court. Not sure where he stands on public lands. Guess we take what we can get in this moment of conservative judges dominant in our judiciary.

Weather here unremarkable. Warmer, blue skies, great clouds.

Lucretia, Rembrandt, MIA
Lucretia, Rembrandt, MIA

On art. 12 years at the MIA opened my heart, my mind to the strange world of art. Not that I hadn’t visited before. Ever since I spent time in the small museum on the campus of Ball State I’ve haunted museums, art fairs, galleries. But then I was an art appreciator in a very random way. I had little context, little history of the art I saw. After my two year class on art history in preparation for being a docent, I had at least a modest grasp of the history of world art. As I prepared for tours, went to continuing education, that knowledge grew.

I’ve been frustrated since leaving the MIA with my inability to interact with art on a regular basis. That’s one reason I started painting. I wanted that intimacy I had while at the MIA. For a few years after my docent training, the museum, closed on Mondays, allowed docents to be in the museum that day. That meant a chance to experience the art with no crowds, almost no other people.

Bonnard, MIA
Bonnard, MIA

I loved those Mondays and would wander happily through the Chinese paintings, the Japanese teaware, the 19th century galleries filled with Delacroix, Goya, Courbet, Gerome, Cole, Church, Bierstadt. I could spend time with Rembrandt’s Lucretia, Dorphyoros, Goya’s Dr. Arrieta, as much time as I wanted.

To know a work of art well you need to see it in person, spend time with it over weeks and years. Let it speak to you as the artist hoped it would with color, with shape, with composition, with subject matter, with brush strokes and chiaroscuro, with its own, often centuries long story. The works become your friends, acquaintances who teach you, let you be your self, but also be affected at a soul level. I miss that still though my friends from the MIA live on in my memory, with me here on Shadow Mountain.

Malaise

Imbolc                                                                         Recovery Moon

Near Seoul, Kate. April, 2016
Near Seoul, Kate. April, 2016

Kate’s above 84 pounds now! The tpn is working and the results are what we expected. We got Kate’s pulmonology appointment rescheduled for this Thursday. Gupta will decide on her fitness for surgery for the j-tube and we’ll get his reading of the ct scan. Potential interstitial lung disease. An important day.

This Thursday she goes on a 14 hours on, 10 hours off schedule with the tpn feeding. They couldn’t go down to 12 and 12 due to the volume of the feeding solution. That will give her 10 hours without the black bag to carry around.

I wish I could report my cold was resolving, but it isn’t. Seems to have slipped over into a sinus infection. Just one more turn of the screw. Oh, well. Major issue. More malaise. This aspect of illness I’d never truly appreciated before. The body needs to devote its energy to fending off the intruders which means it has little left over for daily life. After now having been sick myself for over six weeks (with a brief recovery respite before the cold showed up), I get the burden that Sjogren’s and malnourishment has visited on Kate. I saw it before, of course, but now I get it in my body.

Goya's, Self-Portrait with Dr. Arrieta. Mpls Museum of Art
Goya’s Self-Portrait with Dr. Arrieta. Mpls Museum of Art

Malaise is a side effect, but it’s damaging, too. Every aspect of living takes more effort. Getting up. Staying up. Walking to the mail box. Cooking. Taking care of the dogs. All done on legs that don’t want to be standing, with arms that don’t want to lift, with hands that ache. In the short term the malaise is good because it signals your body to rest. I’ve got this, but you need to slow down while I fight.

Over a longer duration, six weeks now for me, and months now for Kate, it drags us down mentally. I can’t do the things I love, or only in short bursts, not good enough for, say, painting or writing. Even important self maintenance like cooking can seem too much. When I neglect those sorts of things, I feel bad. And the feeling can soak in, change the inner weather. In this regard I marvel that Kate has been able so often to stay centered, to adjust to the constant malaise, the constant weakness. It requires mental strength, constantly applied.

This painting, my favorite at the MIA and, I discovered, Kaywin Feldman’s too, (Director of the MIA now headed to the National Gallery) shows extreme malaise. The way Goya’s hand grips the sheet, so slightly, his head tilted over, the wan coloration of his skin. Barely visible, even when in the painting’s presence are shadowy figures, look to Arrieta’s right elbow, just over Goya’s left shoulder, are ghostly figures. His ancestors? The dead, whom he felt he might join? Or the sense of evanescence he feels, part way in this world, part way out of it?

But. the malaise and these illnesses will pass, just as they did for the grateful Goya. Someday, sooner I hope, rather than later, I’ll be motoring along at a more usual speed. Able to cook, work, go to CBE occasionally. That’s my future and I look forward to it. But, today. Moving slow, swimming in molasses.

 

 

Go, Kate

Imbolc                                                                           Recovery Moon

IMAG0139Kate’s tpn feedings have given her energy. She’s finishing our taxes, for some reason she likes to do them, and in doing so has walked up and down the stairs to our third level twice. She hasn’t done that in months. When I compare where she is now with the dark days just after the bleed in September and the hemicolectomy, she’s a new woman. Is there a distance still to go? Yes. And a significant distance, too, but that doesn’t diminish the gains she’s made. Go, Kate.

My cold continues. Blah. Slowed down now as much by Nyquil as the cold itself. Blah. And, baa.

Picking up an Irish dinner from Tony’s today: colcannon, corned beef and cabbage, irish soda bread. Jon and the kids are coming up tonight. Tomorrow is the chicken soup competition at CBE. A food oriented weekend. But, comfort food, for sure.

Worrying. The shooting in New Zealand. The guy was influenced by social media, a version of internet radicalization. This means that even without intentional recruitment the spread of poison speech by cyber means has the capacity to generate murder and terror. Of course, books did it, too, but they’re not as accessible and often not in the hands of those likely to be affected by them.

 

Pi Day!

Imbolc                                                                           Recovery Moon

piHappy Pi day! I know it’s irrational, but pi’s got that kind of attitude. Will you be going to a recitation of pi? Some people will. Yes, that’s a thing. I like this day devoted to a mathematical phenom. I mean, who hasn’t heard of pi? And, it’s another holiday.

Our roof has curves. It looks like a sculpted chalet with deep sine waves marking the edges along the gutters and bulging hat shapes at the top. The road grader’s been by, guess the sagging power lines have returned to normal. This was a big one, stopping traffic in the mountains for a day.

Kate got her new delivery from Option Care yesterday rather than Wednesday. With the new pump we’ve got her on a 16 hours on, 8 hours off schedule now. Much better for living a life. She’ll be off pump from 10 am to 6 pm. She got some tasks done paid the bills, got started on the taxes. Her mood improved dramatically. As she gains weight and returns from malnourishment to normal, her energy level has increased and her spirits have improved. As she’s able to do more, she’ll feel even better.

Frustrating that we couldn’t see Gupta yesterday since the results of both the pulmonary function test and the CT scan have direct bearing on where we go next. Next week, I imagine.

20190313_134135
Gertie, ready to leap in the snow

My cold continues. Sneezing, coughing, generally feeling crummy. Hard to take since I had just begun to feel normal when it arrived. Still, as Kate said, it won’t last forever. Glad.

The dogs have found the snow a joy and a burden. It comes up to their chests, even Rigel’s, and they walk through it deliberately. Kep loves the snow and stays out much longer than Rigel and Gertie. He wanders all over the yard, poking his nose here, then there. Gertie goes outside and immediately plunges her head into a snowbank. She comes inside snow sticking all over her face. Even so there were times yesterday when Rigel didn’t want to go outside. Too much work, I imagine. Gertie, too. Kep? Nope. He goes outside eagerly.

When spring comes close, that’s how we roll up here on Shadow Mountain.

CNS. Bombogenesis.

Imbolc                                                                                   Recovery Moon

I’m ready for my third recovery in a month and a half. Looking forward to it. Not yet. Buddy Tom Crane should be on the road to recovery under the recovery moon, too. Kate’s gaining weight. Maybe a trifecta here.

cns challengeToday is chicken soup day. I have a simple truth organic chicken thawed in the refrigerator. It comes out to warm up to room temp. All the ingredients are here. I had to go buy some peas yesterday since I used the original pack in the fried rice I made. Friend Bill Schmidt looked up the Gold’n Plump Chicken soup recipe. It was there, floating out in the internet’s wide reach. It’s simple. Much as I do it now though I’ve added a tweek or two. Some garlic. Deglazing with white wine. Paul Prudhomme’s Chicken Magic. Kate had the bright idea of making our matzo balls green since the CBE competition is on St. Patrick’s Day. I’ll offer green matzo balls and egg noodles as additives.

A great day to make soup. Gonna be a big storm, already underway. Maybe 6-12 inches. Record low barometer readings. One reading in Kansas is lower than any data point in 140 years. Bombogenesis* may happen here. It’s been a good year for the snow pack with all watersheds reporting at least 127% of median years. The all important Colorado River basin is at 136%. Hoping this storm adds to those percentages.

Still generally demotivated except for home, Kate, and dogs. This will lift.

20190312_083623Mary, she persevered. Sister Mary. When my father died, she insisted that he had a portion of an oil well that should come down to herself, Mark, and me. It took her some time and some legal work, but I got in the mail this week three letters from Roan Resources detailing how we make our claim legitimate.

This oil well is in Canadian County, Oklahoma and I have no idea how Dad became a part owner. He and his siblings were all on it. I remember very well our first check, it folded out seven times, was from Sinclair Oil, and was for fifteen cents. Dad cashed it and gave the money to us kids for bubble gum. Of course, we’re now dividing his share into three, leaving us each with what Roan say is a 0.00015625 percent interest in the well. Probably not gonna get rich.

This means we own land in Texas and have oil well shares. I’m not heading over to the Cadillac dealer quite yet.

 

*”Bombogenesis, a popular term used by meteorologists, occurs when a midlatitude cyclone rapidly intensifies, dropping at least 24 millibars over 24 hours. A millibar measures atmospheric pressure. This can happen when a cold air mass collides with a warm air mass, such as air over warm ocean waters. The formation of this rapidly strengthening weather system is a process called bombogenesis, which creates what is known as a bomb cyclone.”  NOAA

Kate

Imbolc                                                                      Recovery Moon

A cold. Just to round things out, make sure I don’t miss any chance to boost my immune system. Kate, “Clusters of illnesses are common.” “Is that because the immune system is temporarily compromised?” “Yes.” Sigh. Not terrible, sneezing and such, mild malaise.  But. Enough already. Canceled my new workout appointments because I don’t feel well and don’t want to expose others. Next week.

tpn packKate will go to a 16 hour feeding schedule on Thursday. That will give her 8 hours of freedom from the nutrition bag and the pump. If she continues on with the tpn, next week she’ll go to 12 hours feeding, 12 off. That’s the final stepdown, I believe. Carrying her tpn pack with the nutrition bag, which is heavy, and trailing the tubing that connects it to her picc line, is made more complicated by the tubing that connects her to the oxygen concentrator. A fall hazard for sure. 8 hours of not having to juggle all that stuff will be great for her.

We saw her rheumatologist yesterday. A hell of nice guy, sweet. He told a funny 20190311_100818story. His teenage son took his cell phone and created a ringtone using rap music. He didn’t know. He was in with a patient, he said, when all of a sudden, “Then the motherfucker did this, and the motherfucker did that…” started coming from his phone. He’s a good enough guy to see the humor.

This fellow was on his windowsill.

Kate commented yesterday on how tiring it is to be sick. All the doctor visits. Schlepping the tpn bag, the portable oxygen concentrator, using the rollator. And, I added, the anxiety that each visit might bring bad news. This is in addition to the actual illness, the Sjogren’s, the malnourishment and weight loss, whatever lung issues she may have. This has been her life, acutely now since September 28th, and at a more chronic level for almost 18 months. It takes a strong spirit to stay centered, keep a positive attitude. And she’s done that. Most of the time.

On Thursday we see Dr. Gupta, the pulmonologist. He will have the results of the pulmonary function test she took last Thursday and his reading of the CT scan from her pneumothorax hospitalization. Two key and very important learnings for us will happen in that visit.

lungFirst, is Kate strong enough to withstand the surgery that would place the j-tube? My lay opinion is that she is, based largely on how she handled the hemicolectomy (removal of part of her right bowel) under the stress of all that had come prior to that with the bleed. Still, I do see Edwin Smith’s point that killing her to cure her is not the best course of action, so knowing her lung capacity is crucial. Gupta will tell us.

Second, and just as important for her future, is his reading of the CT scan. Does she have an interstitial lung disease? The pulmonologist at Swedish who ordered the CT thought there might be indications of it. I’m not sure what this means long term, but it could mean that there is a treatment for her breathing issues. Her rheumatologist said, “If there’s interstitial lung disease, I can treat that.”

So, no pressure.

The j-tube will improve the whole feeding process since it requires none of the sterile procedures of the tpn and uses gravity to move the nutrition.

Friend Tom Crane says his pneumonia has begun to ratchet down. Hallelujah.

 

When Will It Ever End?

Imbolc                                                                            Recovery Moon

Going to On the Move Fitness to pick up a new workout on Tuesday. Then, back on Thursday to make sure I have the exercises down. This will be a gradual ramp up back to where I was before the month that shall not be named. Buddy Tom Crane, in a surprising show of solidarity, chose to have pneumonia over his birthday, too. Which is today. Not necessary, Tom.

instant potI’ve been using the Instant Pot. Made a wonderful chuck roast, shredded easily, tasted great. On Saturday I made rice. Turns out three cups of dry rice makes a lot of cooked rice. It cooked for 1 minute. Sort of. There’s a learning curve for guys like me. First, the instant pot, a pressure cooker with bells and a literal whistle, has to heat up to the temperature required to produce the right pressure. That can take a while, maybe 5-10 minutes. Then, it cooks for 1 minute in the instance of rice. Fast, right? Well, yes. But, with foods like rice that have liquid and plump up after cooking, you do what the instant pot cook books call natural release. In essence that means you wait until the pressure cooker depressurizes on its own. 10 minutes. So, to cook 1 minute takes around 20 minutes in real time. Has some resonance with DST.

Before I start posting here I look at my favorite comic, Questionable Content. You have to go back several months to get the drift. Then, I often move on to Ancientrails and begin to write. But, just as often, I think, “I wonder what the idiot did now?” That means turning to the NYT. He almost never disappoints. Like cutting social programs, plumping up the military, and cutting 8.6 billion dollars out of the total budget to build this shibboleth. Team Trump is one heroic gutted, long red tied, obsessive ideologue trying to do something he doesn’t understand, using tools he doesn’t understand. When will it ever end, as the 1972 song by the Awakening asked.

20190117_103526
And Big Foot’s gone even further into the mountains.

There was a time, not that long ago in historical terms, when being in the Rockies, living on a mountain peak as Kate and I do, would have been an effective shield against the current chaos and cruelty that passes for the U.S. Executive Branch. Not today. The elk, the mule deer, the bears, the mountain lions, moose, bobcats, fox, fishers, and martins still live here, but even these wild inhabitants cower before the Trump. He appoints people like Ray Zinke to watch over the great public lands of the West. He dismantles clean air regulations. He loosens the rules governing hard rock mining. He opens those same public lands to oil drilling, uranium mining, and industrial forestry. When. Will. It. Ever. End.

Even the mythical, or semi-mythical creatures of the Rockies are under siege, too.

 

This, That

Imbolc                                                                    Recovery Moon

Dave and Deb
Dave and Deb

My recovery is going well. Scheduled two sessions with my personal trainers for next week. Gotta get back to working out. Important for both Kate and me. Still need to improve my stamina and these workouts will do that.

Kate’s pleased. She’s gained a bit of weight, up to 81.6 and these new nutrition bags have about a third more calories in them. Hopefully they’ll bump her up some more. So far medicare has relented and agreed to pay. We’ve got seven more days of the tpn for sure. Hope they agree to keep it up until she can have her j-tube placement.

When we see Gupta next Thursday, he will review the pulmonary function test she had yesterday and the ct scan from her pneumothorax incident a couple of weeks ago. He’ll make a determination then about her surgery risks.

Minnesota has had and is having a brutal winter from both a cold and snow perspective. I feel ya, guys.

grocery deliveryThird grocery delivery today. Won’t keep this up forever, but for right now, with my recovery still young and home chores, medical visits, it’s an errand I don’t need. Glad the option exists.

Asked Gupta about moving. He said it’s not urgent and not necessary if using oxygen is ok with Kate, and me. I suspected that was the case. He did say, too, that we’d feel better if we moved down the hill and even better if we moved to sea level. So, a judgment call. Kate’s to make. I’m all right here though by definition I would benefit, too.

Alan and Tara
Alan and Tara

We’ve been absent for a little over a month from CBE. Feels weird. Lots of social support there, e-mails, phone calls. But seeing folks in person, being part of the regular ebb and flow is important. Missing it. Next week is the chicken soup cookoff. I’ve entered. Kate loves my chicken soup. The recipe is straight off a Golden Plump chicken. Golden Plump was formerly owned by the Helgeson’s, including my friend Stefan. Lost the recipe a long time ago, but I’ve got it down now. I like the frisson of entering my Minnesota chicken soup in a contest with the folks who talk about CNS as the Jewish penicillin. Gonna have Kate make the matzo balls.

Today is a travel day here. R&R. Get the groceries put away. Cook something. Read. Relax.

Breathe

Imbolc                                                                              Recovery Moon

Black Mtn. Drive, toward Evergreen
Black Mtn. Drive, toward Evergreen

Black Mountain has the early sun, golden, on last night’s wet snow. Stolid. Present. Vishnu to the winds’ Shiva.

While making the instant pot chuck roast on Monday, I took all the spices and herbs out of the cabinet, spread them out on the counter. Gonna put’em back in an order that makes sense to me. But. We’ve been so busy that they’re still there. This afternoon or tomorrow for sure. Most used are going to go in the door rack, then I’m thinking alphabetical for the first two shelves, storage on the top. An undone chore.

Back to the pulmonologist today for a full pulmonary function test for Kate. That plus the ct from her pneumothorax will determine whether she’s fit to have the j-tube placed. I liked Gupta, the pulmonologist. Clear, straight, no bullshit.

We got another shipment of styrofoam containers with supplies for Kate’s tpn. More nutrition bags, bigger this time. She’s going to 20 hours, down from 24, of feeding. Not sure why the bags are bigger for less time, but I’m sure there’s a good reason. These folks seem to know their business.

These last few days have felt hectic, like we’re moving faster than our energy level allows. That’s ok for a bit, but at some point we need what Kate and I call a travel day. On our honeymoon we decided to give ourselves a quiet day after travel to each new city. Catch up from the hassle and fatigue of travel. Stayed in our vocabulary.

I’m feeling good. Pretty much back to normal.

 

Geez.

Imbolc                                                                       Recovery Moon

Tom, Durango, Co. pre-beard
Tom, Durango, Co. pre-beard

I’m kicking the Valentine Moon off the header at 1% waning. Just want it off my page. No more Valentine Moons. Bad February. Bad. I hope, with Recovery, to initiate a month in which both Kate and I head towards healthy. I’m already well on the road and Kate looks like she’s taking the first tentative steps.

Here’s some irony. Good buddy Tom Crane wrote me a note. Guess what it said. “I have pneumonia, too.” WTF! Paul Strickland, who was on the Zoom call on Sunday as well, had the plague. As his doctor called it. I mentioned that earlier. I had the plague plus pneumonia. That’s 3 of the 5 guys, all over 70, who had or have serious respiratory illnesses. Again, I say, no more Valentine Moon. Bad February. Bad.

Kate and I are off to a pulmonologist today. Haven’t seen one of those yet. She may get a full pulmonary function workup because part of the visit is to assess her fitness for surgery to place the j-tube. It’s also to follow-up on x-ray findings of possible interstitial lung disease. Afterward we plan to go to Maria’s Empanadas and pick up a dozen of Kate’s favorite midnight snack.

The solar snow shovel has melted most of the snow from the “monster” storm we had over the weekend.

Got out the Instant Pot and made chuck roast last night. Tasty. Also, got all of the spices and herbs out of the cabinet. They’re currently all over the kitchen counter. I’m going to rearrange them in hopes of being able to find easily what I need. Where’s Maria Kondo? I might need her. Do I love the second can of cumin? Does it bring me joy?