Category Archives: Health

Still ongoing

Fall                                                                               Harvest Moon

Kate in her birthday chair
Kate in her birthday chair

Not sure what’s happening to Kate post-op. Her hemoglobin has dropped some. She may have bled a bit, though whether the bleeding represents old blood or new seems in question. An important distinction.

She’s down. Makes sense. Since Friday morning she’s had 8 units of blood, had her miserable veins explored too often by needles and IV’s and now a mid-line, a CT, a colonoscopy, a nuclear imaging test for bleeding in the her bowels, an attempted embolization of the bleeding site which failed, then on Sunday, the bowel resection. Too much for anyone. Except to keep them alive. Which is, unfortunately, the situation for her.

I created a caringbridge website for her if you want more updates.

I got my first normal night’s sleep since last Wednesday. That feels good.

Jon’s car blew an engine and he’s having a rebuilt one installed. Means he has no vehicle right now, riding his bike to work. I picked him up yesterday and we went over to the hospital to see Kate. He’s worried about her. In order to get  home in time for a good night’s sleep (achieved) I bought us take out at Katsu Ramen, then took him over to his house on Florence in Aurora.

20181002_110908Had an experience yesterday that opened my eyes a bit to the world of micro-aggressions. Due to all the driving in and out I ate up the miles to my next oil change, but couldn’t get an appointment at Stevinson Toyota, so I went to a Mobile Express  here in Conifer. It’s run by a former Jefferson County Sheriff’s captain. I ponied up keys, said no to synthetic oil, and went over to the chairs along the wall.

The Captain said to a customer who asked how long he’d have to wait, “Sorry. The geriatric crowd is working today. Everybody’s over 50.” Folks laughed. He continued to make slighting comments about his own employees, all in this ageist vein. I wanted to speak up, point out that I was right there, being 71, but exhaustion and a desire not to be seen as a complainer kept my mouth shut. Those of you who know me well know I’m not one to be silenced, yet here I sat, embarrassed by my age, embarrassed that others saw me (us, really) this way. And I stayed quiet.

 

Surgery

Fall                                                                         Harvest Moon

Geez. Since Thursday evening when Kate started bleeding until now, she’s had only one tray of a clear liquid diet. Some sorbet, chicken broth, decaf coffee. It’s now Monday.

Yesterday was another tough day. She called me at 6 am saying she was being prepped for surgery. I fed and positioned the dogs, Gertie in the loft with Rigel and Kep outside, then drove in. She’d misread the situation. I stayed with her until noon or so, during which time she received her 8th unit of blood. And continued to bleed.

The waiting was to see if they could preserve the section of her colon with the bleeds. Though the embolization failed Saturday night, these bleeds do apparently stop on their own, sometimes never to restart. Hers didn’t.

Just as I walked out of her room, Kathy, her nurse, waved me back in, phone to her ear. The surgeons and the New West Physicians’ hospitalist had made a decision. A bowel resection. (From the Latin resectus, from resecare, meaning to trim, prune, cut back.) Dr. Streeter told me the surgery would start at 3:00 pm and last at least an hour and a half.

I had to get home to feed the dogs, let them all outside, lie down a bit. Did that. Back in. Up the third floor and the surgical waiting room where I’ve spent several hours over the past three days. The surgeon came out and explained to me that they had removed a section of her right colon and reattached the two ends. This is big because it means no colostomy.

However. He said, “When we do surgery on the bowel, we see it only from the outside. I don’t know if we got all the diverticuli.” WTF? Medicine is much more imprecise than we’d like to think. The nuclear imaging she had on Saturday found the bleeds in the right segment of colon, but it’s very general. That’s why, when the surgeon went in though a groin artery to emoblize the bleeding sites, he was able to find the right colon easily, but could see no bleeds. They had either stopped or they weren’t in the right place.

It’s possible, then, that the surgery didn’t cut out all the bleeding sites. Only time and Kate’s recovery will let us know. Not what I wanted to here.

BJ, Kate’s sister with the house in Idaho where we saw the eclipse last August, and her s.o., Shecky, flew in on Saturday for a long planned visit to see our house, see Kate and me. Instead they saw Kate in the hospital and took me out for sushi while Kate was in recovery after her surgery. It was really good to see them again and to have some family present.

The surgeon said Kate could be in the hospital another three to fourteen days. The bowel has to restart and her hemoglobin has to stabilize. After that, six weeks or so of recovery at home.

Three difficult, very difficult, days and more to come. I’m a little fried right now, but the CBE folks will help in any way they can. I’m not used to organizing folks to help with domestic life, something I’m going to have to figure out. Though. Since Kate’s shoulder surgery, I have picked up more and more of the household work and have routines that should make this transition less of a jolt.

Progress!

Fall                                                                          Harvest Moon

So. A source of the bleed, diverticulitis. Probably multiple episodes over the years. Good news.

To come home she still has to get her hemoglobin up and may have a surgical procedure related to the diverticuli and maybe the gall bladder. Not home tonight or tomorrow night, if surgery, then longer yet. We both feel cautiously optimistic about resolving the nausea and very happy about locating the source of the bleed. We also know, thanks to the multiple scopings of her GI tract, that she has no cancer anywhere from mouth to, well, the other end.

I’m home, taking care of the dogs now. Unless she calls, I’ll go back in tomorrow. She’ll see the GI doc that did the colonoscopy and a GI surgeon. Finally, a bit of progress.

A beautiful, red flag day in the neighborhood. High temps, wind and low humidity. A perfect combination if you’re a forest fire.

 

Kate News

Fall                                                                                 Harvest Moon

1000Kate and Charlie in EdenYesterday was tough. Kate’s still losing blood. She spent most of the day yesterday, from about 6:30 am to 2:30, in the E.R. They’re short of beds and wanted to see which department was the best for her. No word yet on the cause of the bleeding. G.I. doc ordered a colonoscopy for this morning at 10 am. She’s not able to eat though she did have a clear liquid meal while I was there in the afternoon. Delicious, she said. And, apparently meant it.

She’s remained in reasonably good spirits since she’s in an environment that she understands with people and procedures she also understands. That relieves a lot of hospitalization’s stress. Which is not to say that she’s happy or comfortable. She’s not. She’s been in and out of procedures for the last six months, the most recent one only this last Monday. No results from it yet. Too much poking, scoping. Except. No definitive explanation for her weight loss, nausea, and now the blood loss.

We both hope that this hospitalization will put enough focus on her to finally discover what’s been making her life miserable.

Her sister B.J. and her significant other Shecky are, by happenstance, coming into town today. Schecky has family in Aurora. B.J. will probably come to the hospital today.

Since I woke up at 3 am yesterday worried about Kate, then took her into the e.r. at 6, drove home, took care of the dogs, rested but didn’t sleep, and went back in at 2:30, returning here around 7 pm, I’m exhausted. Did get a very good 9 hours of sleep last night.

This is a marathon and requires pacing and attention to self care. I’m following, for now, the internal policy of not worrying about what I can’t control and about things I don’t know. So far that’s working well. I’m able to stay focused on what needs to happen. May that continue.

Fall seems to have settled in, at least for the moment, but we’re still without precipitation. The fire danger remains high to very high. Stage 1 fire ban went back into effect yesterday.

E.R.

Fall                                                                                 Harvest Moon

20180928_070937
ER Sign

Took Kate into the E.R. this morning. Unexplained blood loss, enough to make her woozy. May have exceeded the speed limit occasionally. When she got there, a good team took care of her and her color brightened. Nobody seems especially worried. Something to deal with. She’ll be in the hospital at least one night. Getting a blood transfusion right now.

This is getting old, she said. Yeah. More than that even. My hope is that this will result in enough investigation to finally nail down what’s been causing her nausea. She’s very thin and has little stamina.

ER Signs
ER Signs

On the upside we did our mussar session on rachamim. It was a glorious blue Colorado day so we were in the sukkah. Lots of examples of compassion, a lot of tears. It was a heartfelt time together. Some us really needed it.

Kate and I had our usual Vienna beef sandwiches from the Chicago joint in downtown Evergreen. This is a Thursday after mussar dinner for us. Something she can eat; something I really like.

Back home now. Fed the dogs, will wait until I get word from Kate as to where she’ll be. When I find out more, I’ll post it here. Right now, we know very little.

 

Oh

Lughnasa                                                             Harvest Moon

Black Mountain, yesterday. From Shadow Mtn. Drive
Black Mountain, yesterday. From Shadow Mtn. Drive

Tomorrow we peek over the transom toward the fallow season. Six more weeks of harvest,  the heart of the harvest season is now, then Samain, summer’s end. Up here the temperature cooled off overnight and we’re at 35 degrees right now, getting close to a first frost. There’s even a small hint of snow for next Wednesday. As I wrote earlier, Pike’s Peak and the much closer Mt. Rosalie had snow last week. Happy with the change.

Deb Brown, my personal trainer at On the Move Fitness, really made me feel good yesterday. “You move better than most of the 30 & 40 year olds I see. And, you’re strong.” She was sincere and I was touched. I told her about the odd finding I got from the 23&me folks; I have the same genetic muscle profile as elite power athletes. “Well, you’re capitalizing on it.” “My wife said, ‘What happened?” “Tell to her to ask you that again when you’re 108!” We laughed. Left me smiling.

book of lifeThe book of life closed on Wednesday. It was a fast day, unusual in Judaism which finds asceticism puzzling, but on this day, once a year, there is a fast for the whole of Yom Kippur*. That’s from evening to evening. The point is to make us tune into our bodies, to remember that the body carries our soul, and to make the final push for teshuvah, return to the holy soul our body carries.

OK. I’ll admit I surprised myself, right here, with this keyboard. It happens, but not often like this. I wrote “make us tune in to our bodies.” Oh. It may be, as Bill Schmidt suggested obliquely earlier this month, that this Jewish experience runs deeper than I’m admitting.

*“The purpose of fasting is to bring one to repent, and true repentance brings about a change in actions. However, repenting without fasting is not enough,” Jewish educator Aliza Bulow explains on Aish.com.

Although there are medical exceptions to fasting, the Yom Kippur tradition dates back to biblical times, according to Chabad.org. When the Jewish people were wandering in the desert for 40 years after enslavement in Egypt, they worshiped a golden calf — which is contradictory to the religion’s monotheistic tenets — and Moses went to Mt. Sinai to ask for God’s forgiveness. Moses came down from the mountain after God forgave (them) him, and that day became known as Yom Kippur. The tradition of Yom Kippur continued when the Jews reached the land of Israel — Jews gathered in the first two temples until they were destroyed — and persisted again when they were ultimately exiled and dispersed across the globe.Time

 

No Problem!

Lughnasa                                                                  Harvest Moon

be thereHappy medical people. “Everything looks good. We didn’t find any problems!” Sounds good, right? Well, we’ve reached the odd juncture with Kate where these are not the exclamations we want to hear. We want to hear, “Ah, so this is what causes the nausea.” Yesterday’s endoscopy was yet another “positive” result. So frustrating. Another test in the near future, looking for something in the liver, gallbladder area.

After we went to one of Kate’s happy places, Appleby’s. A light lunch. 93 degrees yesterday down the hill. A fine July day. Except for it being the middle of September.

Back home I fed the dogs, changed shirts and drove on to mussar at Beth Evergreen. The topic was gossip. Jewish sages compared public embarrassment to murder. Seems extreme to me. Gossip is saying anything about someone that’s not there. Anything. Again, seems extreme to me. If I recall correctly from my long ago anthropology days, gossip is, like joking, boundary setting behavior. It’s one of the ways social cultures create and enforce norms. The sages, in this case, may be more scrupulous than usual. In the opinion of many of us, too scrupulous. Not a rant in favor of gossip. Just an attempt to soften the edges of the argument.

gossipIt seems to me that the more important issue with gossip is judgment. When gossip spreads a negative judgment about another, another who is not present to contest the judgment, then it becomes serious and harmful. The old cliche says it well, “If you can’t say anything nice about someone, don’t say anything.” I did show up late to the class, so I missed the early part of the discussion.

Rabbi Jamie has translated several psalms into a more contemporary, more in your face style. At some point here I’m going to share some of his work alongside other translations.

Brother Mark is inching toward the sands of Araby once again. I say inching because the visa process takes as long as it takes, even for those who’ve worked in the Kingdom before. When the visa processing completes, he will once again climb aboard a jet plane headed for what he calls SA. Good luck, Mark.

 

The Journey, It’s Always About the Journey

Lughnasa                                                           Waning Summer Moon

The first day of our Latin American cruise
The first day of our Latin American cruise

We may be inching toward a diagnosis for Kate’s nausea. As successive hunches and medical tests have identified nothing wrong with her G.I. tract, trés frustrating, one of Kate’s early notions might turn out to be correct.

She saw her rheumatologist, Dr. Westerman, yesterday and he conceded that gastroparesis may be the cause of her nausea. It’s a bugger. Something, usually unknown, causes the stomach to lose its motility. The result is that the stomach does not empty as well, sometimes, in severe instances, not at all. Weight loss, malnutrition, lack of appetite. All symptoms, all one’s she has.

Still, knowing the cause would mean we can begin to adjust things like diet for her. If gastroparesis turns out to be right, there are other things we can do, too, including possible experimental drugs.

this morning
this morning

Rain and chill here this morning, 43 and gray as the sky begins to lighten. All rain is welcome. Sleeping is much better with the cooler nights.

I zoomed again yesterday, this time with Jen Kraft of Moving Traditions (the b’nai mitzvah curriculum), Alan, Rabbi Jamie, and Tara Saltzman, director of religious education at Beth Evergreen. We were nailing down roles and expectations for the first night of religious school, tonight. My anxiety level has gone down as we approach the actual launch, which means I’ve prepared as well as I can. After that, inshallah.

hiit2Getting back to five days a week exercise. Always feel better. Trying to regain my former high intensity workouts on the off days from resistance work. These workouts increase cardiac fitness, important especially in the mountains. In my case I do two five minute sets, varying speeds each minute from medium intensity (30 seconds), high intensity (20 seconds), and as fast as possible (10 seconds), with a two minute rest between them. I like high intensity because it’s effective and short in duration.

625448_164319917056179_937468223_nLooked into stamina after last week’s exhausting day at CBE with Alan. Discovered that I’m doing, mostly, what can be done. The part I’d let drift away was the high intensity workout. So, I’ll return to that. But, the real message is that stamina decreases with age, even with good sleep, decent diet and exercise.

What’s happening for Kate and me, I think, is a difficult and grudging acceptance of certain physical changes. It’s easy, and understandable, to focus on what’s wrong, to look for the better tomorrow if only we can do this or that. Yet, and it’s a big yet, I feel there may be a tricky, more important, and nuanced reaction available. We need to also concentrate on what we can do well, even given the limitations of stamina and chronic medical conditions.

Back in the long ago faraway I went through a series of therapists, one a guy, Brian, I really liked. He was a former Catholic priest, insightful and well-educated. But, his approach, existentialist psychology, focused on what was wrong. Each session we would identify problems and seek solutions, changes in behavior or inner narrative. Each session. Problems, work for solutions. Always what was wrong, what needed to change.

Abandon all attachment to the results of action and attain supreme peaceI finally realized that a problem oriented therapeutic approach kept me trapped in a continuing circle of what’s wrong? What do I need to do? How can I change? In other words my life was always problematic. Like whack a mole for psychological issues. No relief, just unending work on what was wrong. What was wrong was me.

Nope. Needed to get out from under that weight, accentuate the resources I had, the strong parts. I needed a therapeutic approach (and, a concomitant approach to myself) that found strengths, that put my struggles in the broader context of a life that was not a problem, not a puzzle, but a human journey. Jungian psychology and John Desteian did that for me. What a relief and I finally got movement in my inner life.

yourselfKate and I, I think, are at a similar cross roads. We need to accentuate the resources, the strengths that we each have, and they are considerable. Loss of stamina and chronic diseases (which we both have) are part of our lives, yes, but they are not our lives. Our lives are about sewing, quilting, the board at CBE, old friends, grandchildren, sons, our life together. They’re about writing and teaching and hiking and reading. About filling our days with purpose and love. Death is a certainty, but we don’t have to reach for it. It will come for us, in its own time. Until then, carpe diem!

 

Worn Out

Lughnasa                                                                         Waning Summer Moon

shiviti
shiviti

Oi. Over to Beth Evergreen yesterday morning at 8:30. Alan and I sat down, knocking together our rough draft of the calendar for our sixth and seventh grade class. There will be dream interpretation, several sessions on what it means to become a teenager, understanding Torah, understanding the morning prayer service, making your own Israeli flag, making your own Jewish mandala, a shiviti, a session on Funny, You Don’t Look Jewish, and much more. This took until 11:30 or so.

We met there because Alan said he had some work to do at the synagogue. When we finished, I asked him if I could help. Turns out, yes, I could. I spent another two hours with a power drill in hand, helping him put up the final trim on the yahrzeit wall. First impressions can be weird. The doorbell rang and I let a guy in, first time I’d met him. I had the drill in my hand, so the first time he met me, he saw me as a person who could use a power drill. Oh, my.

yahrzeit-lightingA yahrzeit wall consists of plaques with deceased member’s name, date of death, and a small light to the left of the plaque. Technology allows Leah, who manages the wall, to program the lights so that they come on during the month of the person’s death, following the Jewish calendar. Yahrzeit, literally year time, is the yearly anniversary of a relative’s death, during which mourners say the kaddish, or the mourner’s prayer, during services. I like this idea a lot. It keeps a relative’s memory alive and it honors the living by giving them certain knowledge that they will not be forgotten. Someday it may be Kate’s name will be up there, maybe mine, too.

20180718_141451The surprising part of all this, unpleasantly surprising, was that when I got home around 2 pm, I felt exhausted. Not just tired, but done in for the day. The degree of exhaustion seemed exaggerated. Yes, I’d been gone a long while (for these days), had no lunch and was on task the whole time. Even so. Kate reminded me that working with my hands wears me out. She’s right. The combination of careful, thoughtful work for two and a half hours followed by a roughly similar amount of time with a power tool resulted in sagging. Even a nap didn’t cover it.

It gave me a sense of what Kate deals with nearly every day. Unpleasant. In my next workouts I’m going to focus on stamina.

One Toke Over the Line Sweet Moses

Lughnasa                                                          Waning Summer Moon

The loft is clean. Sandy does such a great job. And, she does it while living with the after effects of two brain surgeries and the yet remaining tumor which necessitated a round of radiation to shrink. A tough way to earn your daily bread.

marijuana2We tried a Colorado cure for Kate’s nausea symptoms. She toked up yesterday morning, lighting one of the pre-rolled Jilly Belly spliffs. She took four hits. Result: nausea subsided, heartburn began. And, she said, I feel spacy. Which she didn’t like. So she went back to bed anyhow. A work in progress. Next time she’ll try two tokes. If it does reduce the nausea, we will get her a bong and use ice in the water to cool down the smoke. I told her she was one toke over the line sweet Jesus; then added, well, maybe better, one toke over the line sweet Moses.

At mussar Ariel, the defense lawyer turned consultant to lawyers on how to navigate court procedures, gave a powerful and well-researched hour and a half on the concept of tzedakah. Tzedakah boxes are an art form in Judaica and usually have a slot for change or bills. The money collected typically goes to charities, in the American diaspora often charities that support the state of Israel, though the money can go to any good cause. In this way tzedakah has come to be associated with charity, but its real translation is justice, equity.

Tzedakah-1080x675In the packet that he offered, Ariel quoted Rabbi Abraham Heschel, a great friend to Martin Luther King: “There is immense silent agony in the world, and the task of man is to be a voice for the plundered poor, to prevent the desecration of the soul and the violation of our dream of honesty.” And, “Morally speaking there is no limit to the concern one must feel for the sufferings of human beings, that indifference to evil is worse than evil itself, that in a free society, some are guilty while all are responsible.”

empty-bowlsAfter mussar Kate and I went with many members of the group to a place called Go, Paint in downtown Evergreen. It was the start of an interesting local expression of an international movement called Empty Bowls. (the link is to an Empty Bowls event in Hopkins, Minnesota) Go, Paint has many objects in bisque (the stage for pottery after throwing and before firing when glazes and paints can be applied.). In this case we all had bisque bowls, dull white and maybe 8 inches across. There were various paints and glazes we could apply, even small clay creatures. Kate, for example, put a turtle in the bottom of her bowl.

We paid for the event. The bowls get fired, then distributed to two sites nearby which run Empty Bowl events. One is Mt. Vernon Country Club and the other is a church in Evergreen. At the empty bowl event a meal is served, $65 at Mt. Vernon, $20 at the church. When the meal is over, each participant gets a bowl. The money goes, in this instance, to the Mountain Resource Center. A friend of Kate and mine’s, Marilyn Saltzman, will be the incoming president of the MRC in January. Interesting idea.

A long day for Kate.