Category Archives: Aging

Bones Scanned

At 8:30 am this morning Nick, a kind nuclear med technician at Littleton Adventist, swabbed the crook of my elbow and took a needle from a lead-lined box. It contained radioactive isotopes of calcium. Makes sense for a bone scan. With a quick, painless insertion he sent the isotopes into my blood stream. Took thirty seconds.

“Come back at noon. Drink 32 ounces of water. Be sure to use the bathroom before you return.” I did that.

Kate and I left at 7:20 am. There was a heavy fog on Hwy 285 going downhill. It struck me as an apt metaphor. This time between the discovery of my rising PSA and getting data about the cancer puts me in, as I said yesterday, a cloud of unknowing. Today we traveled through it, paying attention, careful attention to brake lights, possible crashes.

The bone scan will lift a bit of the fog, make the path from here a bit more clear. But. The CT scan was not approved yet. Ironically, I stopped at the Post Office on the way home to pick up a certified letter. It was the denial of coverage from New West physicians for the axumin scan. Out of the fog into the fog.

Nick had me remove my belt, all the metal from my pants, my glasses. I could leave my shoes on. Hearing aid? No, the machine won’t bother it. I laid down on the slide, a curved piece of metal. Would you like a warm blanket? Yes. (This would prove to be a mistake.)

We velcro your arms to your sides. That way you don’t block the scan. Oh. The straight jacket like cover went over the warm blanket. Are you claustrophobic? Yes. Hmmm.

This was the mistake with the warm blanket. Since as near as I can discern, my claustrophobia came into existence during time spent in an iron lung as a toddler, heat makes it worse. The claustrophobia comes when the box like device with the screen attached comes down within an inch or so of the nose.

It’ll be there for about four or five minutes. OK. I’ll close my eyes.

A bone scan. Not me.

So here’s a very human anomaly. That scanner scared me more in those five minutes than that which it sought to find. Cancer. Weird. I held it together, but there were moments when my muscles tightened and my stomach clenched. Also, I had this urge, a strong urge, to open my eyes. Which I did a couple of times. And quickly closed them.

After the seventeen minutes in which the scan covered my body, Nick said he’d go see the radiologist. He might need other shots. He didn’t.

I thanked Nick for his kindness. Well, we try. The folks that come to see us are not having a good time. I’m not. And your kindness made this part easier. I didn’t say, but I could have, I’m driving through heavy fog right now.

Nick assured me that the radiologist would read the scan right away and that it would be ready by late afternoon. That’s in time to inform our appointment with Dr. Gilroy tomorrow. At least we’ll have some data.

Are you going to be o.k.?

Mortality signals. Coming through loud and strong. A frisson of the world without me. “Are you going to be ok,” Kate asked, “Psychologically?” “Yeah, I think so. I’ll tell you if I’m not.”

Yamantaka

Hard to avoid running the recent news all the way out to the literal end. (see post below) I’m neither a pessimist nor an optimist, I’m a realist. The indicators are not good. But. At this point that’s all they are. Indicators. As Kate also said, “We need more data.” Yes, an axumin scan would have helped, but a ct and an mri will get us started.

Yamantaka and I have been friends for a long time now. I’ve imagined my death, my corpse. Meditated on it. When my mind insists on following the bread crumbs, I let it. I end up the same place Yamantaka has taken me. The same place we all come to. The question isn’t whether, but when.

Yes, this is morbid. And, yes, even if all the signs are negative, nothing’s happening soon. But I can’t be other than where I am. Right now, on this chilly May Saturday, I’m still absorbing.

I do feel I’ll be ok. Psychologically. Which doesn’t mean I won’t be scared. The unknown is the landscape between here and death. Will treatments be able to slow down the cancer? Is there still a chance for a cure? Unknown.

There a couple of mantras I’ve said over and over for quite a while. Live until you die. I intend to do that. Live in the present. I’m doing that except for those pesky moments when the blood hound of logic starts baying at the trail. I still have books to write, paintings to finish, friends and family. Dogs. Those will not change. Books to read. Places to go. Mountains and nearby states to explore.

On that last. I will see the National Gallery of Art in Taipei. This is the museum which contains the Qing emperors collection, all the best of Chinese art over its long history. Chiang Kai-Shek gathered the collection and took it with him to Taiwan after a losing fight against Mao and the Red Army.

Here is a large copy of one piece I most want to see:

Fan Kuan, Travelers with Mountains and Streams, Song Dynasty

Immoral and Barbaric

CBE and visitors

It’s been warm, even hot down the hill. When I went to the Avengers movie, it was 85 when I came out. Largest temperature swing I can recall. It was 66 when I got back to Shadow Mountain. Not a fan of the heat.

Kate went to the board meeting at CBE last night. She stayed for the whole time, three hours. Her stamina has improved a great deal and she’s using her rollator less and less.

Just put the all season tires in the truck. Headed to Stevinson’s this morning to replace the snow tires and get some dye in the air conditioning system. We’re gonna fix the air conditioning one way or the other this time.

Then, Anova Cancer Care at 12:30. Told Kate yesterday that I want definitive treatment rather than quick treatment. My anxiety level is low. Doesn’t mean I’m not feeling some stress. Of course I am. Just not projecting outcomes, results. So, Dr. Gilroy, here we come.

I did see this yesterday, Judge rips insurance company: “A federal judge blasted UnitedHealthcare last month for its “immoral and barbaric” denials of treatment for cancer patients. He made the comments in recusing himself from hearing a class-action lawsuit because of his own cancer battle — and in so doing thrust himself into a heated debate in the oncology world.” The issues are slightly different, but guess which insurance carrier I have?Immo

Hey, Gram

Beltane                                                                               Cancer Moon

mitochondrial-eve
Your great to some power Gram

Exhausted this weekend. Those six days of thinking, feeling, writing, probing, going down the holy well of the self. All good. But, tiring.

It’s Mother’s Day. Another Hallmark moment, I know. Yet. Mom’s. You don’t get here without one. Except maybe that kid in China. Unless you’re a wonder of high, high tech biology, you came out of a womb. Indian Hills, just down the road from us, has these funny signs. You may have seen them on Facebook. The one today reads, “Mom, thank you for the womb and board.”

mitchondrialI come from a long line of mothers. So do you. This thought always strikes me as strange. Think of how many things had to go right for you to exist. Sure, there’s that whole randomness of the sperm that crosses the finish line, but think historically, think evolutionarily, think all the way back to that first organism that took the lightning bolt or the warmth of the undersea vent. Whenever and however life first appeared. Your existence, and mine, means we exist in an UNBROKEN chain of reproduction from that first wiggler, that first animate entity. One after another after another after another, for billions of years. Maybe 4.1 billion years according to this article. From that beginning until now something protoplasmic has cheated death by producing one of your ancestors. Could be billions of ancestors, maybe even trillions.

To shorten the time frame a bit consider mitochondrial Eve. Who? From wiki: “…the most recent woman from whom all living humans descend in an unbroken line purely through their mothers, and through the mothers of those mothers, back until all lines converge on one woman.” Between 100,000 and 300,000 years ago. How many mothers in her line running up to you? Not sure, but a lot. And each one had to survive all the rigors of the out-of-Africa migration, a turn either toward what is now Europe or what is now Asia, and whatever history your ancestors had once civilization began to direct the movement of human populations.

So, when you say happy Mother’s Day, you might consider saying happy Mothers’ Day. After all, no womb and board, no you.

 

Onward

Beltane                                                                                 Cancer Moon

20190509_124939Go now, the workshop has ended. Paraphrasing the end of the Catholic mass. Appropriate in this case having just come Mother Cabrini’s shrine. The experience of being at Mother Cabrini was familiar in its physical surroundings. In college I would always retreat to Catholic sanctuaries to be still, to reflect. I always found them/find them, soothing.

I have my Intensive Journal beside me as I write this. I left it at the workshop over the last week. It’s filled with thoughts, meditations, exercises. The tabs in the journal, some of them, have esoteric names like Peaks, Depths, and Explorations or Twilight Imagery. Others more ordinary. Daily Log. Dreams. Meditation. The workshop itself both teaches how to use the journal on an ongoing basis and creates a gestalt of life now, as considered as it can be. This latter, for the other three workshops I attended, has been enough for me. Not this time. Not sure what changed, but I’m feeling a need to keep using the journal outside the workshop.

20190511_082432Here are two examples of next steps that have me excited. The first is to do a dialogue with reading. In the dialogue section of the journal, orange tabs, there is a method for developing one to one conversations with people important to you, living or dead, fictional or actual. That seems to makes sense. But the other four tabs in the orange section: Works, Events, Society, and the Body perhaps not so much. It works though. The journal method posits that a dialogue can be had with work you’re doing. I wrote a dialogue with Superior Wolf and in it realized I needed to pull the novel apart and focus one story only on Lycaon. In the Body section I’m in the midst of a dialogue with cancer.

Back to reading. Here’s the method. Each discrete entity under these tabs has a conception, a period of growth, then a waning, perhaps even a death. I’ll write a focusing statement, a short introduction to whatever it is: cancer, my mom, alcoholism, reading. Then, I’ll do steppingstones that move my experience with reading from its conception, through its history in my life, and finally where reading is for me right now. (also in the focusing statement.) When those are done, I re-read them, make a comment about how it felt to write them, anything new that has occurred in the re-reading. At that point I’ll enter a meditative place, a twilight place, that will allow me to engage reading in a dialogue, not from my intellect, but from deeper within what Progoff calls my well. Then I write a conversation, a back and forth between me and reading. I’m eager to see what will come of that. Also, in completing the dialogue with cancer.

My Intensive Journal from 2014
My Intensive Journal from 2014

The second example is another dialogue, a dialogue with ancientrails that will both focus on where I want to go with this fourteen year old project and how it and the intensive journal can work together. Again, I’ll write a focusing statement, write steppingstones, re-read and comment, go into the twilight place, and write a dialogue between me and ancientrails as a work.

This week, the follow on week after the workshop is going to see a cleaning up in the loft, a tidying. After that I’ll develop a routine with the intensive journal and ancientrails, do some of the deep work that I left undone in the workshop like the dialogues with reading and ancientrails, but some more work in the dream log, twilight imagery log and in the section labeled testament. Probably others, too.

Mother Cabrinins confirmation
Mother Cabrini’s confirmation

I’ll need both ancientrails, the intensive journal, and caring bridge to weather the critical medical work that faces both of us next week. Kate’s lung disease. Her four crowns. My axumin scan. My glaucoma check. My visit with the radiation oncologists. This time a week from now we should both have a much clearer understanding of where our respective health challenges will take us.

Down for breakfast, then back up here to get some of that work begun.

In a room off the chapel there were several windows that recounted the life and work of Mother Cabrini. It just occurred to me that those windows are steppingstones in her life. All up there with beautiful stained glass for others to see.

Not yet

Beltane                                                                             Cancer Moon

20190510_064922
from my computer, this morning

5 or so inches of snow over the night before and yesterday. Looks like winter again here. Solar panels covered. Black Mountain hidden in the clouds. The drive down the hill yesterday took some skill. Slick spots, long runs snow and ice covered while going down. Wouldn’t want to have to do that everyday for work. On occasion it’s interesting, different. Our workshop leader, Joanne, lives in Fresno where it gets hot, and in Hawai’i, where it never gets cold. This weather is not to her liking.

This is the last day of the workshop. Now considering how to continue this work on my own. Each other time, three before this one, I’ve come back and not continued the journal. This time it feels like I finally understand the method enough to do it unguided, or at least with the help of Progoff’s main book, At a Journal Workshop. The week long retreats have been sufficient for me to gain new insights, position myself in my life at the moment, and chart out a path forward. That’s why I’ve come to back to this experience.

One thing I’ve not touched on yet in this new journal is reading. I want to read more, more methodically. This desire comes over me from time to time, right now it’s coming in strength. I read a lot anyhow, you know that, but I want to take specific time for more difficult reading. Gotta figure out how to work that in.

There is, too, some overlap between ancientrails and the intensive journal. Sometimes they’re covering the same or similar ground. Will have to work out the relationship between them.

20190506_084930It’s a bit strange to be at May 10 and have the temperature at 24, snow covering the driveway, the roofs, the walkways. In Minnesota the safe time for planting was typically May 15. Don’t think it would work here, at least not every year. We warm back up next week. For now, though. Winter wonderland. Like, I wonder why it’s still winter?

Next week will test the equanimity. Monday am. Kate’s appointment with Gupta. Lung disease diagnosis and fitness for j-tube surgery. Later in the day, her new crowns. Tuesday, axumin scan to determine the extent and location of my cancer. Wednesday, a visit with my ophthalmologist. Retinal photography. Thursday, mussar. Friday, all-season tires and dye into the air conditioning system. A visit to Anova Cancer care for a treatment plan. A jump shift from this quiet week.

One important thing the journal workshop has underlined for me is that I’m not ready to die. I have family I want to care for, see grow up, grow older. Friends I want to know better. I have books to write. Places to visit. Deep work still ahead of me. This is not new, of course, and the journal workshop hasn’t made me aware of it, no. But, it has put me in touch with the gestalt of these things and my desire to keep at them all. The feeling level.

Death will come, but as I heard someone else say, let it be tomorrow.

 

 

Jettison Some Shame

Beltane                                                                          Cancer Moon

plowRead yesterday in the group. Iam asked me afterwards if I was a professional writer. Well, I write novels. But, I’ve not sold any so I don’t know if I’m a professional. Drina, who works for a website connected with the founders of Findhorn, said I was a “bright light.” Not sure what that meant, but it was a compliment. Nice to get feedback.

The intensive journal is a plow for the psyche. It turns over the soil, reaching well below the surface, often down into what Progoff called our well. Up pops things hidden, things repressed and suppressed. I worked yesterday with my one year at Wabash. I’ve always been proud of going to Wabash, ashamed of going to Ball State. Yes, even now 50 years later, still ashamed. Enough of that. Shame is not a big part of my inner world, but in this case it’s stuck around.

What I realized yesterday was that I went to Wabash because I believed in a liberal arts education, in studying what was important to me, not what was useful for a career. Its brick buildings, main quad, great library, and 150 year old traditions gave that sort of education a physical manifestation. It was liberal arts. When I transferred to Ball State, primarily a teacher’s college that got big and became a university, I kept up with the liberal arts. I continued my philosophy major from Wabash, picked up an Anthropology major and almost enough credits for a minor in African Studies. I got my liberal arts education. And am still getting it, yet today.

the_foolWe wrote spiritual steppingstones, what experiences in our life have led us to our current spirituality. Those of you who know me know that it’s been a long journey. An ongoing one, too. I would characterize my current spirituality as a tablespoon Taoist, two tablespoons existentialist, a teaspoon Christian, a teaspoon and a half Reconstructionist Jew, and a half cup of paganism (of the earth, the sun, the starting of the universe, aware of it and finding it enough). Mix together and bake until dead. Then, we’ll see.

We also wrote about ultimate concerns, those things which excite us, motivate us, about which we have passion. I had several: the Great Work, Economic Justice, Writing, Painting, Reimagining Faith, Horticulture. Each of these continue in my life, some more prominently than others, but they are the core. Economic justice work proceeded them all. Writing came next. Then, horticulture at Andover. The Great Work. Reimagining Faith. And, most recently oil painting.

The third day of creation
The third day of creation

We’ll work with these today and tomorrow in this last of the three segments, Life Integration. My experience with these workshops is that it’s often days, weeks later that the fruits of the work begin to manifest. I already know I’m going to revise Superior Wolf, separating out the two story lines I merged in it and giving them their own books. I’m going to focus as much as I need to on getting well, on the scan results and potential treatment options. And, obviously, continue taking care of Kate as long as she needs it. Beyond those things, tbd.

It’s been more exhausting than I imagined it would be, commuting. I’m tired, but glad I’m doing this, weariness a small cost.

 

 

Illness and Legacy

Beltane                                                                           Cancer Moon

Saguaro National Park, edited
Saguaro National Park, 2014

Struggled a bit with naming the moon for this new month. Didn’t want to put up my first idea. It seemed, dark. Yet when I went to other ideas, nothing came. Usually the new moon’s name comes easily. It’s a fun way to emphasize an important aspect of the upcoming lunar month. This time though. Not fun. I try to think of something that might dominate the next 30 days or an important (to us or the mountains) event. Recovery Moon. Rushing Waters. Valentine. So. Cancer.

But. Ewww. Debbie Downer. Even so. Axumin scan. Meeting with Dr. Gilroy, a radiation oncologist. Most probably treatment. In my world cancer will dominate. So. Cancer.

Jon, Ruth, and Gabe came up last night. Ruth brought a wonderful loaf of challah she’d made. Tasted like Irish soda bread. The braids were clear. I brought up the silver platter I bought for Kate a long time ago. A set, with a serrated knife. For the sabbath meal. I had my pastrami on chunks of challah. They’d stopped at the New York Deli on their way up, buying matzo ball soup as well as stuff for supper and eating it on the way.

Ruth and Gabe laugh easily now, tease each other. As happy now as they were angry and sullen a couple of years ago. Jon’s doing something right as a parent and it’s a pleasure to see. He’s been out of school for a week or so now. The Aurora school district chose Montview to renovate this year. His art room will have a patio and windows. His old room had no windows. Hard to imagine for an art classroom, eh?

The Great Kiva, Chaco Canyon
The Great Kiva, Chaco Canyon

The move. In 2014 my last Progoff workshop stirred something in me, made me realize if Kate and I were going to make a change in our lives right then was the time to do it. We were both still in good health. We had enough money. Kate had retired.

On the way up here from Tucson I saw the Mogollon Rim, Ship Rock, and stopped at Chaco Canyon. The Mogollon Rim is the southern edge of the Colorado Plateau, the massive geological feature that underlies parts of Arizona, New Mexico, Utah and Colorado west of the Rockies with its center roughly at the Four Corners. Ship Rock, if you’ve read any Tony Hillerman mysteries already familiar to you, has a sacred role in Diné culture. Chaco Canyon was the Vatican of the Anasazi, direct ancestors of the Pueblo people. As I drove the Mogollon Rim in the early hours of March 28th, 2014, the full moon rose.

Ruth, March 29, 2014
Ruth, March 29, 2014

Ruth, April 5, 2019
Ruth, April 5, 2019

I could feel, and wrote it about even then, a Colorado self forming. That same Colorado self that I chose to dress last summer. The one with the plaid flannel shirts and jeans. Unexpectedly a lot like my Minnesota self. Yet not. This is a self not with its roots in Lake Superior, North Woods country, but in the Colorado Plateau, in the Rocky Mountains, in the ancient history of human settlement here. And that Colorado self, forming as I drove, wanted that. More than I knew at the time.

I left the Colorado Plateau and drove north to Denver.

Jen wanted to surprise Ruth. Her 8th birthday was only days away when I got to Denver. This from a post on March 29th, “When I knocked on the door, Ruth, the birthday girl who did not know I was coming, fluttered her hands and got a shy look.  Taken aback and surprised.  Then, glad to see me.” In retrospect I think it was in that moment I took an internal turn away from my home of 40 years and turned to face the Rockies.

 

“I won’t optimize the length of my life.”

Beltane                                                                                Rushing Waters Moon

Black Mountain
Black Mountain

The Rushing Waters Moon is down to a thin crescent. 2% of the lunar surface illuminated. Maxwell, Cub, Blue, Shadow, Brook, and Bear Creek are still pulsing, but they will begin to slow as we move deeper into Beltane. Alan Watt’s little book, The Water Course Way, comes to mind when I write about these patient devourers of mountains. Soft wins over hard.

Cool today. 29 when I got up. Snow all gone for now. The prediction is for a wetter and cooler May, something both of these former Minnesotans can enjoy. Good sleeping. Too, coming after a wet winter, this sort of May will further reduce fire dangers. Told Kate yesterday it could be cool and wet right up to the monsoons, late August. A summer without fire worries would be nice.

Got an e-mail yesterday from Dave, of Deb and Dave, who own On the Move Fitness and have been my personal trainers for two years. He sent it to all those who use their small fitness center. Dave has brain cancer, up until this last week in remission. Not now. Resonates for me. I wrote him back. “Cancer’s a bitch.” Both he and Deb responded. Deb said, “I agree, cancer’s a bitch.”

cocoMichelle is a mussar friend. Her husband has prostate cancer, too. Already metastasized. Leslie, also a mussar friend, has had her breast cancer reemerge twice. I mention these because it underlines that cancer is probably in your circles as well. Yes, treatments have improved life expectancy and some prevention efforts have helped, but cancer itself, in its multiple manifestations, continues to be an agent of Azrael, the angel of death.

In itself, as I’ve written before, I consider whatever ultimately kills me as a friend. Life is not forever. We cherish our mothers who bring us into this life. (Well, we cherish some mothers.) Why not cherish what completes our cycle? No, I’m not rooting for prostate cancer to be that friend. And, yes, I’ll wait as long as I can to meet my friend, yes.

In “Free Solo”, the documentary about his free climb of El Capitan, Alex Honnold says to his girlfriend, Sanni McCandless, “No, I’m not going to optimize the length of my life.” The comment hit me a couple of ways. First, it’s so contra-normative for this health obsessed age in which this diet or that exercise regimen or those supplements will ensure you’re not only healthy, but will live long. (and, maybe prosper) No keto diet or paleo diet or spinning class or hot yoga or ginseng will extend your life beyond a human’s natural limits. And the death angst that causes folks to fantasize that maybe this intervention will do just that is fantasy. Denial. Fear. I like Honnold’s up front recognition of death as a part of life.

free soloSecond, he’s not giving up his central purpose, to push climbing as far as he can, because it might kill him. Neither should we put any part of our life on hold because we’re going to die. Yes, cancer puts that right up in your face, like climbing free solo, but it does not control your response. If you’re brave enough to say with Alex, “No, I’m not going to optimize the length of my life,” then you’ve found a platform firm enough to withstand whatever existential threat comes along.

This is what Yamantaka wants to teach us. Our death is sure. Our fear is unnecessary and interferes with our ability to live. Life is precious, rare, and finite. It is a gift bestowed upon us without condition, ours to use, to enjoy, to contemplate, to share, to embrace. Don’t let anything get in your way.

A Difference Maker for My Heart

Spring                                                                              Rushing Waters Moon

20190420_173752Back to mussar yesterday. First time in quite a while. It was a gift, as was the minyan for Debra Copes’ mother’s memorial the night before.

Odd though, in both instances. I find myself an insider and an outsider. There is no question that Beth Evergreen accepts both Kate and me. I’m of the community, not a Gentile pagan interloper. Yet when the prayers are said and the knee bending and bowing begins, I feel like an outsider. I don’t know the words, nor do I fully understand why we’re bending and bowing. I try to follow the person next to me, but I feel awkward and a bit inauthentic. Also, I don’t wear the kippah during services. Again, it doesn’t seem authentic for me since I’m not of the tribe.

When Alan Rubin and I went to lunch on Wednesday, for example, I ordered a reuben, a pannini. When Alan ordered a salad, I said, “Oh, on your diet, eh?” “Well, yes, but also we can’t eat bread during Passover.” Oh? Oops. Passover, it turns out, is 8 days and eating leavened anything during this time is out. Yet they trust me enough to teach in the religious school.

high holy daysBeing away for a while makes me more aware of these moments. Yet Debra wanted me at her mother’s minyan. She did a universal worship service which consists of lighting candles for Hinduism, Zoroastrianism, Christianity, Buddhism, Islam, Judaism, and a general candle for other witnesses to the divine. Rabbi Jamie said, at a meeting a couple of weeks ago, “This ex-Presbyterian understands Reconstruction better than anybody else around this table.” Around the table were key leaders of the synagogue.

Yesterday I offered what was for me a mussar interpretation of a table of virtues set out by Renee Brown, a favorite author of many in the congregation. Yes, to generosity. But, also, yes to retaining sufficient resources for yourself and your family. Yes, to freedom, but also yes to submission, to recognizing those times when serving others is more important. Yes, to accountability, but also yes to breaking the rules, to recognizing that not all instances of being held to account (even by ourselves) are equal or worthy.

20180316_191858The Jewish approach to death, too. Sitting shiva with someone after a death. Having those in mourning stand and be acknowledged during the mourner’s kaddish at every worship service. Celebrating each year the yahrzeit, the year anniversary of a loved ones death. Calling together a minyan as Debra did for honoring her mother. Those who knew it, repeated the mourner’s kaddish from memory. A vital and key part of maintaining community, acknowledging that the dead live on, not gone, just absent.

When I told Alan about my new reality with the axumin scan and oncologists, he said, “You know you’ve got the whole congregation behind you?” He meant it. Wow. Makes me feel like crying. Because I’ve always chosen an outsiders role, I’ve rarely known complete acceptance in a group; but, I feel it at CBE like I felt it in the Woollies. Profound. A difference maker for my heart.