Category Archives: Family

Wild. Wildness. Wilderness.

Summer and the Recovery Moon

Wild Man on a coat of arms, Albrecht Durer, 1499

Jimmy Johnson. Woolly, artist, designer, wayfinder, South Dakotan. He emphasizes an old men’s movement idea, the wild man. Find your inner wildness. Keep it alive. Present. That way our vitality remains.

OK. But. Cancer. Is wild. Exhibits a form of wildness that has no care for its environment. Only about replication at the expense of whatever can feed it. Sorta like capitalism. Especially fossil fuel companies.

A certain form of inner wildness has found me and I don’t like it. It’s the opposite of the wild man’s inner wildness. Instead of bringing vitality it feeds on life until it is no more. Again, like capitalism, especially fossil fuel companies.

In another sense though cancer’s wildness is no different from any wildness. It’s red in tooth and claw, survival of the fittest it’s prime directive. This vast forest, the Arapaho National Forest, in which we live is like that. Wherever there are deer and elk, there are mountain lions. A Rocky Mountain truism.

The mountain lion feeds from its environment, is ruthless and opportunistic. As an apex predator, the mountain lion may have no enemies here, but after the mountain lion dies, the forest will absorb their essence, put it back into the plant world. Which feeds the deer and the elk. The circle of life.

Cancer is part of this. It’s an element of the natural world just like decomposition, photosynthesis, a mountain lion attacking a mule deer. This wildness within me lives by the laws of natural selection. It doesn’t care who I am anymore than the mountain lion cares which mule deer they can catch. Cancer is predator and I’m its prey.

Luckily I have a means of fighting back. Even so, cancer is wily, persistent. It’s an open question whether this prey can take out so formidable an adversary. TBD

Kudos to Mary

Summer and the Recovery Moon

Kate at Biker Jim’s on Father’s Day

Kate’s recovery continues to go well. She drove the half hour to PetSmart and picked up Kep yesterday. I took him in on my way to the Cyber Knife. She’ll also drive Mary to the Federal Center RTD stop. Mary tried to find a shuttle or taxi and experienced the mountain way. Either not possible or folks didn’t answer the phone. Wish I could take her, but the Cyber Knife beckons.

Mary’s working on school libraries in Singapore. They’re surprised when I tell them I have Masters Degree in Library Science. Libraries are under a lot of pressure these days and are rethinking how they fit into colleges, universities, communities. Mary has helped the nation with her knowledge of how students actually use libraries. She’s so successful that she’s working well past the usual retirement age. Unusual. Kudos to Mary and her internationally acclaimed work.

Brother Mark likes to comment on the Vietnamese currency, the dong. He says it’s drooping right now. What kind of stimulus might make it rise, he wonders. LOL. He’s on vacation, plenty of time to consider the world around him.

With nine treatments my inner glow has increased. I may be a beacon on Shadow Mountain for aircraft trying to orient themselves. Listened to the Cream yesterday. Nicky was not familiar with them, but she knew Eric Clapton. The Cream was one of the first super groups: Clapton, Jack Bruce, and Ginger Baker. I saw them in a weed smoke filled theatre in Chicago’s old stockyard district, maybe 1968. Got stoned just sitting there.

No side effects so far. But. Every ache, like the hip ouching me as I fed the dogs, or some shortness of breath, or general weariness makes me wonder. Is this it? Are the side effects commencing? No. No. No.

Well, at least I think no on that last one. It’s hard to separate the fatigue from driving back and forth, the treatments, pushing myself to get all my exercise in, and any that might be the result of either the radiation or the Lupron.

goes over the faded Baby’s On Board

A strange place to be. Waiting. Not wanting to invite trouble. The runup to both treatments had a lot of focus on the side effects. Cancer care is like that. Here, take this. It’ll help kill your cancer. And, oh, by the way, your hair and teeth will fall out. But that’s only temporary. Oh. Good.

Most important of all: remember why radiation, why lupron. Kill cancer. Go for a cure.

Been focusing on simplicity of the heart as I drive back and forth, reminding myself to stay in the moment, to not let other drivers, current circumstances drag me out of my inner calm. Tough for me, but really good practice. I failed yesterday when a peloton rode up narrow, no shoulder Shadow Mountain Drive. “Ride single file!” I yelled out the window.

Simplicity is about navigating the churn, the “blooming, buzzing confusion” that is our mind, as William James put it. I’ve taken to using advice for people experiencing panic attacks. Find five things you can see. Five things you can hear. Five things you can feel. I like this because it echoes techniques I learned long ago from the existential psychologists like Carl Rogers. Grounding. It helps.

Family Week on Shadow Mountain

Summer and the Recovery Moon

It’s family week on Shadow Mountain. Mary is here, arriving Tuesday night from Minneapolis, heading out tomorrow for Minneapolis to see her friend Debbie in Eau Claire. After a brief stop in Indiana, she heads back to London, on to Cornwall, Devon, for a memorial service. Greece for a conference. Back to England, Cambridge, for a conference with Japanese colleagues from her time in Kobe last year.

Meanwhile Mark sends missives about Bangkok. He’s been in Chinatown, Yaowarat Road, the old main street of Bangkok. I stayed there when I was in Bangkok in 2004. A fascinating place with traditional Chinese apothecaries, lots of street food on weekend nights, small, crowded lanes packed with shops selling diverse wares.

Guru, Mary’s s.o., is back in K.L., Malaysia, defending a couple of drug traffickers facing the death penalty. They’re tough on drug dealers.

Kep

The Kep, shredder extraordinaire, goes into PetSmart today for furmination. If, that is, I can find his rabies certificate. No, I know where it is. He still doesn’t like to be left. He is joyous when we return. You remembered me!

Yesterday I listened to Creedence while the Cancer Predator bobbed and weaved around my body-as Mark observed. Keith, who’s taking the radiation cure for just diagnosed prostate cancer, said, Half done! I’ll get to half some day, but not soon. Another guy, older than me, gave me a bemused smile, all radiated! We’re all on death row, hoping to commute the sentence with clean living and radioactive photons.

2014

Kate saw Gupta. He’s going to see her again in a month. No diagnosis. She’s doing so well that getting a lung biopsy done, the only way to make a definitive diagnosis, might interfere with her recovery. It’s a surgical procedure, requiring anesthesia. If she continues to improve, and I think she will, then any lung disease is not bad enough to justify the trauma of the biopsy.

Wisest of Owls

Summer and the Recovery Moon

The weather here has veered back toward seasonal norms and will continue warm to hot. Hard to say when the next snowfall might be.

Gabe found the antler. A very excited 11 year old. He went for a walk with Ruth and found another bone. A knife blade, too. He’s a bone collector. Jon says he wants a metal detector. Oh, boy.

Ruth varnished the owl house. It will get up in a tree soon. It has book jackets on it. She made it in wood arts class and gave it to me for my birthday. I told her the book jackets would assure I’d get the wisest owls. “I didn’t think of that metaphor!”

Drove down the hill last night at 9 pm to the Federal Center RTD stop. Picked up Mary at 10. The lights of Denver twinkle coming down 285, the air was warm, the sky clear. Perfect summer night. Good for a drive.

She’s going from here to Wisconsin, thence to Indianapolis, and, after that, back to London. She came through London to Indy.

Kate had a not so good day yesterday. Some random not feel good stuff. Another grocery delivery. What a mind saver.

Pattie told me my bladder was perfect yesterday. So nice to hear. Took the last of my radiation to Riders in the Storm. I did ask Nicky what was the most popular musical choice. Hmm. Let me give you the top four: classic rock, blues (pretty appropriate), classical, and new country. Interesting.

Got to thinking about why classic rock. Listening to the Doors I replayed college. Hmmm. At 72 I choose to transport myself back to when I was young and foolish. Made me wonder what musical choices are made in hospices these days? Anybody leaving this world to “I’m So Glad” by the Cream?

At rest, waiting for me

Prostate cancer tends to produce patients of a certain age. Like me. When we pass each other, we smile. A bit grimly. Yeah. You, too? The guy with the Titelist ball cap on Monday looked serious today waiting his turn on the gurney.

I’ve wondered, once or twice, what the attitude is like in breast cancer treatment centers. I imagine it as a bit more warm and fuzzy.

Back to the Inner Glow

Summer and the Recovery Moon

And, summer. A warm week ahead. Of course. Mountain weather. Great sleeping.

My first weekend respite from the radiation is over. It’s off to Lone Tree and Anova around 11:10 or so. Have to get gas. Burn through a lot of the fossil fuel with an hour commute. But, it is in a nice car. Back on the Beano, only drinking tap water. No seltzer. Bubbles.

The Gleaners, Jean-Francois Millet

Sunday is my rest day from working out. I read. An essay on charity and justice in the Torah parshah for Kate and mine’s bagel table on September 14th. These suckers are long. In this instance Deuteronomy 21:10–25:19. It contains the most laws of any parshah in the Torah. The charity and justice essay is a reflection on the laws concerning gleaning.

Then, some art criticism in a book Hot, Cold, Heavy, Light. Peter Schjeldahl. This guy is a genius. Wonderful, short essays on contemporary artists and their work.

Finally, a couple of articles on what conservatives are up to intellectually right now. It seems Trump has unveiled cracks in a conservative consensus begun around the time of William Buckley: a corporate oriented focus on the economy, a robust military with a kickass foreign policy, and conservative social values. Simpler times, man. Simpler times.

A CBE friend brought over a blueberry lemon pound cake and a large plastic container of serious vanilla ice cream. She’s in cancer treatment right now, too. We talked for an hour or so until Jon, Ruth, and Gabe came up to take another run at the serious clog in our bathroom sink.

He knows a lot about houses and their inner workings. I don’t. With Ruth and Gabe’s help the three of them spent a lot of time in our crawl space first with a snake, then with Drano, then with the snake again. It was a stubborn clog, mostly hair, I think. They persevered and got it. Yeah!

I made mashed potatoes with cut up steak from yesterday’s left overs. Broccoli florets. Ice cream, as you might imagine, for dessert.

Getting a plumber up here to come by for such a small task is difficult. Only a few good ones up here and they spend most of their time on remodels and new construction. They work in small jobs when they can. Good thing Jon could help.

Ruth decided to stay all night so she can help us today. I hope she and Kate can get back to sewing.

Green

Summer Solstice and the Recovery Moon

This morning

Black Mountain has a wispy cloud draping over its peak, moving slowly toward the northwest. The greens this summer, with so much water, are intense, Hawaiian. The lodgepoles are a deep dark green, the aspen groves a yellow green spotlighted by the sun. The grasses are lush, the dandelions abundant, cheery dots of yellow.

The white cloud dances with the blue sky, revealing it now, obscuring it. It’s another cool morning, 43. Perfect for sleep. The mountain streams continue to flow fast, white where they hit the rocks, still not full with the snow melt proceeding slowly. On the way to CBE yesterday Kate saw a cardboard sign, hand lettered, Slow: Fawns.

And, snow is in the forecast for this weekend. Yes, on the day of the summer solstice, weather5280 predicts snow that might hit us. Snow. The fire hazard signs are still on low, have been since March. Never this far into the summer. I’m grateful for the wet, for the dampening of wildfire probabilities. One less thing.

Patsy Cline

Day 5, fraction 5, of the 7000 cGy prescription. After today’s isotopic rain, only 30 to go. The weekends are off. Time for the body to rest, they say, though I imagine not running a seven day a week practice has something to do with it, too. Pandora so far: The Band, Baroque, Coltrane, Patsy Cline. Haven’t decided about today. Maybe Izzy.

No side effects so far. Early days for both the radiation and the Lupron. Feels like I have a job. Get in the car at a certain time each day, navigate four lane highways to Lone Tree. Same exit, same turns. Same office. But in this case I don’t have a job, I am the job.

The Beano seems to work, suppressing the gas which screws up the Cyber Knife’s navigation of the volume created by Dr. Gilroy. The Miralax helps as well. The calcium/d3 pills are horse pills, almost as long as a finger joint.

Mussar Vaad Practice group, MVP, last night. Rich Levine led a wonderful session on simplicity. Kate and I went for the second time in a row. Still wears us out. Finished at 9:30 pm, way past both our bed times. Here’s an interesting statistic, of the 10 of us in the MVP group, two of us have active cancer right now and one is in remission from breast cancer. 30%.

Inner Glow

Beltane and the Recovery Moon

Oh, gosh. Today.

Driving Kate to Lisa’s office for her annual physical, then heading on to Lone Tree, another 20 minutes. Dressed in blue sweats and my radiation hazard t-shirt from Los Alamos. This first day I’m going to choose The Band for my Pandora station. Tomorrow baroque.

I had a light supper last night, as suggested. Egg drop soup and a cookie. I’m on my second glass of water this morning. Hydration is important. I want Patty to tell me again that my bladder’s a perfect size.

Woke up at 3:30, not ruminating, but uneasy. Went back to sleep for an hour. Up at my usual 5:00. Fed the dogs, got the paper. Came up here to the loft.

The next seven weeks are about healing, staying with the protocols, adjusting to the unknown. Not daunting, but not easy either. Tomorrow is the Lupron injection.

Black Mountain this morning

Leaving the mountain top, going down the hill. From cool (44 right now) to hot. 75 at noon in Lone Tree. Well, that’s hot to us. Will get hotter as the weeks roll by.

Tom and the Woollies are going boating on Lake Minnetonka today. A floating meeting. Tom will motor over from Shorewood to a Wayzata dock to pick up the guys. A better parking lot, a bit easier access from the Cities. Had my druthers, I’d be there instead of staring at the Cyber Knife listening to When They Drove Old Dixie Down.

Resilience

Beltane and the Recovery Moon

Late April

Kate’s stamina has improved so much. Thursday. Mussar in the afternoon and a board meeting in the evening. Last night we went to the Gospel Shabbat. The Beth Evergreen singers, supplemented by members of the Evergreen Chorale, were led by Val, a committed choir director with a lot of energy, plus a fine pianist added to the CBE band.

It was high, good energy and Kate stayed the whole time, including for a bit of the oneg. (oneg is snacks and goodies provided after a service.) Her hip bothered her a bit, but she walked and stood, clapped and sang. A real simcha.

Rabbi Jamie came by yesterday around lunch time to see how I was doing. We fed him chicken pot pie (mine) and watermelon, then he and I retired to my loft. He’s a good guy. A dog person. His first dog was a wolf hybrid, 105 pounds, that lived an astonishing 18 years.

He lost a dog recently to a porcupine. Awful way to die. But natural. We agreed it was a good death, both animals doing what evolution had taught them.

Tomorrow, for father’s day, Jon, Ruth, Gabe, Kate and I are going, at my request, to Biker Jim’s Gourmet Dogs. No less a foody than Anthony Bourdain recommended Biker Jim’s. Apparently he soaks his onions in Coca-Cola. After Biker Jim’s hot dogs will become a special occasion treat for me, no longer in my diet. Other processed meats, too. Gonna miss’em.

Bagel Table

Beltane and the Recovery Moon

Torah

As Kate feels better, we’re gradually getting back to CBE. We both went to mussar yesterday afternoon and Kate went to her board meeting last night.

We also agreed to lead the discussion for a bagel table. A bagel table is a Saturday morning discussion held in lieu of a service on Friday night. This one will be on September 14th, after radiation is done and the Lupron is in full swing.

Here’s the description:

Wonderful! Thank you SO much – what a huge help!
Basically, you prepare a discussion on the week’s reading (which for that week is Ki Teitzei / Deuteronomy 21:10 – 25:19). If there are enough people you can say kaddish, but you don’t have to. We will have bagels and goodies present for noshing; you may need to set them out but you won’t be responsible for buying anything.
I think that’s it! If you come up with a theme for the discussion before mid-August, I can put it in the Shofar, but that’s not necessary either. Overall it should be a pretty easy gig. Thank you so much for agreeing to lead it!

Atomic Love

Beltane and the Recovery Moon

Next week Monday is my first radiation treatment. On Tuesday the first Lupron injection. The radiation continues every weekday until August 6th, which is both the Hiroshima anniversary and Raeone’s birthday. (Raeone is my ex) Not sure what to make of that. Also, Sunday is Father’s Day. I told Kate I wanted a Geiger counter. Hope she knows that was a joke.

Gonna try to have a little fun with this. Don’t want things grim, mordant. I found a gift shop in Los Alamos and bought a couple of t-shirts. Only found an image I could reproduce for one. I intend to wear both of them, off and on, for my treatments. As soon as they get here.

Been reading a book about Androgen Deprivation Therapy. Helpful. It may not be as bad as it sounds, at least for me. The longest I’ll be on Lupron is two years, probably less. The intense side effects seem to emerge over longer periods of time. Hope so.

October 9th, 2018

In a twist not unlike prostate cancer treatment the day after Father’s Day and ending on the Hiroshima anniversary Kate continues to improve markedly as my journey heads into a difficult period. Her affect is almost bubbly. Sort of. Not sure Norwegians do bubbly, but she’s feeling good.

Her weight is at 99.4! Wow. 76 was the nadir back in February, I think. The j-tube feedings, with some minor exceptions, go well and she’s able to eat more, too. We had shrimp scampi, rice, and Brussels sprouts last night and she ate a full plate.

Showing off her new crowns on May 13, 2019

Our relationship has had the sort of strains that you might infer from a long, long bout of medically related bad news. Eight and a half months now since her bleed and she was not well before then. But open communication kept us out of any deep potholes.

Our partnership, this marriage that got started in the seats of the Ordway Theatre, St. Paul Chamber Orchestra concerts, is stronger than ever. I wrote much earlier that adversity unveils gratitude. So many people show so much caring. Well, I would add to that today that adversity deepens love.