Category Archives: Health

Ikigai

Lughnasa and the Harvest Moon

Radiation done. Lupron still on board. At least one more injection. Oct. 1st. If that’s it, three months after January 1, I’ll have a PSA that tells the tale of the radiation. Did it work?

Hot flushes, the occasional flash. One drastic mood swing. All I have to show for the forces of life vs. the forces of mortality. Leaves me in this in-between place. Cured? Maybe. Can’t know until I’m off the Lupron. Cancer still stalking me? Can’t know until I’m off the Lupron. So. Caught between knowing I have a reemergence and not knowing what my oncologist’s treatments have accomplished. In the quickest scenario it will be a year from the diagnostic PSA in March of this year.

Though I feel calm, not agitated or anxious about this, that’s not to say there’s no effect. The chief of which is a floaty, not grounded sensation. Am I living or am I dying? To be sure both are always true, but in this instance I’m not sure whether the dying has gotten the upper hand. Leaves me unmoored. The dirigible of my Self has broken loose from its tie down on the Empire State Building and has drifted out to sea.

Result. Not sure what comes next. Motivation hollowed out. Sense of purpose broken up like ragged clouds in a high wind.

Ikigai (生き甲斐) – Reason for Being “Finding it requires a deep and often lengthy search of self-discovery and reflection… The word “ikigai” is usually used to indicate the source of value in one’s life or the things that make one’s life worthwhile… In the culture of Okinawa, ikigai is thought of as “a reason to get up in the morning”; that is, a reason to enjoy life.” from Creative by Nature.

Right now the reason I get up is to feed Rigel, Gertie, and Kepler. After that I write Ancientrails. On three days I follow breakfast with a workout. After that my day begins to wander, to pull away from my choosing. Not used to that. At least not for any length of time. I don’t want to be at this in March of next year.

Maybe my ikigai right now involves finding my ikigai for a place between life and death. So the search is the thing. Not the destination? I don’t know. Wish I did.

Second Act

Lughnasa and the 1% crescent of the Moon of the First Harvest

Workout yesterday. Used my new 10 kilogram kettlebell for goblin squats. My legs could tell. Even this morning coming up the stairs to the loft. Good to feel the work.

Kate finished up the peaches, preserving them in oj. Put them in the freezer, ready for dessert or snacking anytime we want. Western Slope goodies.

The hot flushes have held off the last couple of days. Good. They can stay away. Side effects from the Lupron not bad so far. I’ve hit the cancer back, hard. Kept up exercising. Altered my diet some, not as much as I could.

2015, first act

Spent some time yesterday blocking out a plan for wildfire mitigation, the second act. Lots of moving parts, many requiring a chain saw. Not sure what my stamina is like now, but I hope to do much of the work myself. Before the snow.

Not sure if I mentioned our new neighbor Derrick. He lives in the rental next to us. They’re heating with wood, so I imagine most of the downed trees will end up at his place. Good for him, good for us.

Today is finish mowing the fuel day. Also roundup on the grasses and plants around the house, the shed, and the garage out to five feet. Where the landscape cloth and rocks will go. It’s been way too hot for tree work. At least for me. Cooler days are ahead.

Not Giving It My Life

Lughnasa and the waning crescent of the Moon of the First Harvest

Orion glistened in the dark morning sky. Looked fancy, like a huge piece of jewelry hung to adorn the heavens. Soon we’ll have a new moon. Might be able to see the Milky Way. Hope so.

Kate and I had a workday yesterday. So good to do things together. She fixed some Western Slope peaches in orange juice for freezing. I gathered up trash and recycling, took it out. Moved boxes and hung photographs of the grandkids. She swept up Kepler hair. Things like that. Ordinary things have become extraordinary.

We had lasagna, the last of the mitzvah committee’s work for us. Thanks, Annie. Tonight I’m cooking for the first time in over a month. Not sure what yet.

When I was in the radiation treatment slog, I felt like I was doing something to counter the cancer. But. It also reminded me everyday that I had cancer. Now that I’m over two weeks out from my CyberKnife days, I go hours, sometimes almost a whole day without thinking of it. Then, I get a hot flush. Oh. Right.

After prostate surgery, it took some time, maybe three/four months, maybe a bit more, and I forgot about prostate cancer. Where I want to be. Of course, every PSA reminded me, but they were only occasional. Don’t believe I’ll achieve cancer as a thing of the past until I’m off the Lupron for three months and get that definitive PSA.

Will cancer kill me? Don’t know. Something will. Whatever it is, it will bring my death, but I’m not giving it my life. Life is precious, short. Don’t waste it fearing things you can’t control.

Sunny Saturday Morning

Lughnasa and the Moon of the First Harvest

Kate’s second birthday. Yesterday Jon, Ruth, and Gabe came up after school. Ruth brought a special piece of lemon cake for Kate. Ruth made a birthday card at school with 75 in raised numbers and a sweet note on the back. Gabe sent photographs of minions wishing Grandma a happy birthday. Jon made her a card, too.

I drove over to Golden, to Ali Babba’s, and picked up a gyros meal for 5. We dined like sheiks in a tent.

Earlier in the day I worked out. Something odd in the workouts. I’ve been able to advance weight on most of the exercises: inclined bench press, lawnmowers, triceps. I’m holding my plank a bit longer, doing more crunches, increased my goblin squat. But bicep curls. I’m still at 12 pounds and can’t seem to get past it. Unusual. My cardio is harder right now, too. Might be the Lupron.

Rigel has developed a rabbit habit. She goes out, goes straight to the shed and starts digging under it. And barking under it, too. Come on out, rabbits! Come on out. I’m hungry.

I’ve never believed in this tactic, but she’s used it for years. She’s also chewed up boards on our back deck, dug under it, plucked a board off one of the pallets. A board nailed to the pallet’s supports. The definition of dogged.

All this began again after she dug up a vole a couple of years ago. It reignited her inner predator and she’s been trying for critters ever since. She’d calmed down about this stuff after our move. At nine and a half years she’s older, but still very strong, graceful, powerful.

Other Nations

Lughnasa and the Moon of the First Harvest

If you look at the post below, you’ll see a line about a minor fall and osteopenia. Fell this morning going downstairs. Landed, fortunately, on my right side, right hip hitting the ground. It was the left hip that had the softened femoral ball. Could have been, well…bad.

Lots of chatter on Pinecam.com and Next Door Shadow Mountain regarding the 8 year old attacked by a mountain lion Wednesday night. There’s a Greek chorus that sings every time a wildlife incident happens. Two different songs.

The first. We moved up here into their home. We need to respect them, expect things like this, don’t taunt them. Know their habits, live accordingly. The second. When (bears, mountain lions, wolves) harm people, put them down. Sad, yes, but human life is more important.

It’s government policy here to euthanize any animal that takes livestock or injures a human. It was a similar policy that eliminated wolves from most of the lower 48.

planning.org

We live in the wui (woo-ee), the wildland/urban interface. We have to accept and account for it in our daily lives. Wildfire mitigation. Care in driving mountain roads. Fox, deer, elk, bears, and, yes, mountain lions may cross in front of you. Rocks from mountain sides may tumble down. This is wild nature.

This Henry Beston quote is on our Vet’s lobby wall. And, I agree with it:

“…the animal shall not be measured by man. In a world older and more complete than ours, they move finished and complete, gifted with the extension of the senses we have lost or never attained, living by voices we shall never hear. They are not brethren, they are not underlings: they are other nations, caught with ourselves in the net of life and time, fellow prisoners of the splendour and travail of the earth.” Henry Beston, The Outermost House: A Year of Life on the Great Beach of Cape Cod

Friends

Lughnasa and the Moon of the First Harvest

Got a card yesterday from the Black Forest, Das Schwarzwald. A get well card purchased at the Minneapolis Institute of Arts by my buddies in the Woolly Mammoths. They had gone together to see a show of Native American women artists, one of the more powerful exhibits in recent years my docent friends have told me.

Each man wrote a personal message on the card. I read them all, smiling, seeing this gray head, that gray beard. The old smiles. Hearing the laughter. Knowing the Black Forest, probably outside at a round metal table, traffic whizzing by on 26th Street. Frank ordered a sausage, if memory serves. Maybe some spatzle, weinerschnitzel, lentil soup. St. Pauli Girl drafts.

And, felt sad. Wistful. I love these guys and know them. Well. In the way only 30 + years of being together could allow. It was a sweet sadness, one that told me these relationships still live within me, not extinguished, not weakened by almost 5 years in Colorado.

Ely, 2015

Regrets? No. An affirmation of life, of the power of friendship, of its durability. The sadness is real, as is my gladness at driving up Brook Forest Drive to our home on top of Shadow Mountain.

Both Minnesota and Colorado have wildness and wilderness at their hearts. The Northwoods, the Boreal forest, the lakes, Lake Superior. Wolves, deer, lynx. Muskie and walleye. Mt. Evans, Rocky Mountain National Park, the San Juan Wilderness. Black bears, moose, elk, mountain lions, fox. The Black Canyon of the Gunnison.

Tibetan monks at Congregation Beth Evergreen, 2018

Colorado has Congregation Beth Evergreen. A quirky synagogue with a collection of folks who call themselves mountain Jews. It’s where I’m seen and where I see others. Deep moments of human connection, like the Woollies. Glad for both.

Slipping Away

Lughnasa and the Moon of the First Harvest

A not so good day yesterday. Not sure why, felt achy, tired. Might be expecting a full recovery from the radiation a bit too soon. Pushing myself to recalibrate, rejigger my/our life. Too soon, too. I need to lean into the Lupron, the radiation as cancer treatments, not just inconveniences.

There’s a paradox here. The radiation burned into my prostate fossa ten minutes a day for 35 days. Lupron heats me up, makes me foggy, gives me mood swings. Not fun. Although. If I focus on the trips to Lone Tree, the fatigue, the bowel upsets, the cancer itself disappears behind the Cyberknife. When I’m having a hot flush or suddenly feel despondent or angry or sad, the cancer disappears again, hidden by the physical and psychological effects of testosterone suppression.

But the cancer remains. Or, maybe does not. Could be gone now. Supposed to be. A terminal diagnosis unless the treatments work. Serious matter. How to handle the ultimate nature of this threat? I don’t want to deny it, but I am ok with slipping away from its presence, letting the dire nature of its aim recede into the background of life.

Still stuff to do

Lughnasa and the Moon of the First Harvest

Deer Creek Canyon Fire, 8/14-8/16

My no glow first week is over. I feel better, gut behaving like old times. More energy. I’ve put together a list, checked one off. This list will take me well into the fall. It includes more fire mitigation based on Ben Yellin’s report back to us. He visited last Tuesday.

Example. Going to put down landscape cloth five feet out from the house. Then, river rock on top of that. This is the no ignition zone. Ben also marked many trees, adding his thoughts about strings of trees that lead from tree to tree to house. He explained the thirty foot out and hundred foot out zones clearly.

The idea is to get the fire to drop down from the trees to the ground, then run up to a no ignition zone around the house. This will, he said, give our house a good shot at surviving even a crown fire.

He also said, “Risk rating agencies around the country say the Evegreen/Conifer area is the most at risk for a big, damaging fire.” Oh, that was good to hear. A spur to more action though.

The photos above come from the Deer Creek Canyon Fire, now 100% out. This is along a route I use to get to my docs, so I know it well. Not that far from us as the fire crowns.

Continuing to do my three workouts a week, cardio plus resistance. Working hard to counteract the sarcopenia caused by the Lupron.

Did you turn the heat up in this room has become a favorite question. Kate still has hot flashes, too. The family that flashes together, sweats together. Carrying this togetherness thing to its absurd conclusion.

Doc said I’ll gradually return to pre-radiation mode in about a month, so three weeks from now.

First Week No Glow

Lughnasa and the Moon of the First Harvest

Nuclear blast shadow, Hiroshima

First week with no radiation treatments since June 17th. Still seems odd to me that I started radiation for this most male of diseases the day after Father’s Day. And, even odder, that I ended in the week of both Hiroshima and Nagasaki’s anniversaries. Peaceful or deadly, the use of technology and science matters. A lot.

goal: bell pepper all the time. reality: poblano, jalapeno at times

And in other cancer treatment news. Why did the room get so hot last night? More than once? Not exactly hot flashes, more like hot surges. Still so new to me that I don’t tumble to them immediately. I just wonder why someone turned the heat up in the room. So far they’re in the evening for the most part. None at night and only a couple during the day. I’m taking Black Cohosh and if they get bad I’ll find an acupuncturist.

Yesterday we got a great beef stew, peach and strawberry cobbler, smoothies for breakfast, and salad from Judy Sherman. This is the last week of meals from CBE. Counting on Gilroy’s one week and you’re beginning to feel a lot better.

Yamantaka. Yes.

Lughnasa and the Moon of the First Harvest

wow. Beano and a Woolly Mammoth!

Still in the weekend. First day with no radiation is tomorrow. And tomorrow, and tomorrow. Not fully sunk in yet. Except for putting away the Miralax, the Beano, the Renew Life. Back to regular bowel life in a week or so. Yeah! Spent Friday night and Saturday eating forbidden foods like cucumbers, carrots, ice cream, fried falafel. Bring on the gas.

Kate got up yesterday, wasn’t feeling well. I can tell quickly. She went back to bed. Sometime around noon she realized she’d not taken her morning meds. Oh, she said. Turns out they’re really important. A better afternoon.

It’s been cooler here the last three days. Nice sleeping. Overcast this morning. What my Aunt Roberta would have called a dull, gray day. She often opened letters with that line. A variation, I think, on: it was a dark and stormy night. In this usually sunny state overcast is an oddity.

Sent out notes about the end of radiation. Receiving messages back. The support of such a wide group of folks has given me a safety net for those times when the weight bore down. Thanks to you all. You know who you are. Especially to Kate who has role modeled a phlegmatic response to medical issues. Thanks, sweetheart.

More convinced than ever that resilience is key to the third phase. By definition we’re going to hit tough, scary bumps in the road at our age. How we respond will determine how miserable they make us.

In my case I’m pretty sure it’s acceptance of death that has undergirded me. Got into accepting my own death thanks to the Yamantaka Mandala that hangs in the Minneapolis Institute of Arts Himalayan gallery. He is not, as often identified, the Tibetan Buddhist God of Death. He’s the god of conquering your own death. Contemplate yourself as a corpse. Feel what it will be like for your loved ones when you die. Practice being calm in dire physical situations. Whatever makes you really feel your absence from this world.

If death is not scary, then a potentially terminal disease isn’t either. What Yamantaka taught me has allowed me to go through this whole process with little anxiety. It allowed me to be present for conversations about what to do, for the treatments, and for the possibility of failure. It also helped me accept support and not push it away.

Worth considering for all of us in the third phase, I believe. Second phase, too, but definitely now as we live into the last phase of life.