Midsommar Kate’s Moon
With concern about my knee prosthetic assuaged, I’ve gotten a better workout routine going. It’s taken me awhile to match my new workout time, start between 9 and 10 am, with productivity on other projects like reimagining and a new novel, but I’m getting there.
Yesterday I printed out work on Loki’s Children, the second part of the Missing trilogy, and the Protectors, a nugget about a group called the Carthaginians. That gives me three stories to consider. I’m also going to through a file I have in Evernote called story ideas. Check out what I’ve been squirreling away for the past couple of years.
Reimagining work right now consists of scissors and a stapler: cutting up the printed out pages from ancientrails, stapling individual posts together, then filing them under the conceptual (chapter?) headings I’ve defined. I ended up with well over 200 printed pages so this is no small task.
The kabbalah class is over until after the high holidays, but I plan to read in both the first volume of the Zohar and the key work by Isaac Luria. No idea right now about how to organize that reading, but Rabbi Jamie will help. Kate and I continue to study mussar, the Thursday at 1 pm group grounding us in both Jewish ethics and a small community.
Sister Mary and her s.o. Guru will be here Tuesday through Thursday. They’re flying here from Tamil Nadu where Mary and her friend Anitha were presenting at a conference. Mary has a conference in L.A. beginning on Friday. She’s got lots of air miles to her credit.
Kate’s doing a lot of self care. She’s eating more, trying to get her weight up, an irony lost on neither of us. She does facial saunas, sinus clearing saline, pays attention to the development of thrush and knocks it back. Yesterday was her third or fourth infusion of Remicade for her r.a. Her rheumatologist gave her a drug for her dry mouth, a saliva stimulator. She uses the oxygen concentrator at night and sometimes at naps. Its humidifier has been a big help. None of these aggravations are fatal, but they do rob her of energy and sleep, of time, of resilience. Hard. But, she’s a strong, smart woman and able to develop a solid care plan for herself.
We’re grieving. Kate visited her rheumatologist yesterday. She has both Sjogren’s Syndrome and rheumatoid arthritis. Eric told her that patients with Sjogren’s struggle in the arid west since it’s a disease that creates dryness in the mouth and the eyes. The low humidity here exaggerates and reinforces those symptoms. In addition both Sjogren’s and r.a. (rheumatoid arthritis) can sap energy, cause joint stiffness and generally make life difficult. “This is the new normal,” Kate said.
Life is different now and will remain that way, that’s what we’re grieving. We had hoped there would be some medicine, some procedure, some magic that would put these insults behind us, but no.
Jon’s house deal in Aurora finalized. He takes possession on September 7th. That will put him much closer to his school, within a long bike ride. The ride to school is how he got his exercise before moving up here so he’s looking forward to that. It also means that the custody arrangement will revert to 50/50, which will be a dramatic change for all involved.
If you’re an alcoholic like I am, you learn early in treatment that the geographical escape won’t work. Wherever you go, there you are is the saying. It’s true that the addictive part of my personality follows me from place to place as well as through time. Even so, this move to Colorado has awakened me to an unexpected benefit of leaving a place, especially ones invested with a lot of meaning.
While it’s true, in the wherever you go there you are sense, that these memories and social roles, the feeling of a continuous self that lived outside Nevis, in Irvine Park, worked at the God Box on Franklin Avenue remain, they are no longer a thick web in which I move and live and have my being, they no longer reinforce themselves on a daily, minute by minute basis. And so their impact fades.
This is obvious, yes, but its effect is not. This unexperienced territory leaves open the possibility of new aspects of the self emerging triggered by new relationships, new roles, new physical anchors for memories. Evergreen, for example, now plays a central part in our weekly life. We go over there for Beth Evergreen. We go there to eat. Jon and the grandkids are going there to play in the lake this morning.
Organ recital: Kate does not have throat cancer. Didn’t know that was what Dr. James Chain, an ENT, was thinking until he eliminated the idea yesterday. Nothing quite like dodging the metaphorical bullet you didn’t even hear fired. Her sense of smell, adumbrated, and her sense of taste, flattened, however, may not return. Tough for weight loss. If food doesn’t taste-bad or good, it’s not appealing. We’re working right now to figure out what she can taste so we can emphasize them in our menu choices and cooking.
We’re going to need a sign: A Scandinavian and former Minnesotans live here. It will hang below the window air conditioner we purchased yesterday in Evergreen. Nobody has air conditioning up here. At least not visible from the road. We moved here for the cooler average temperatures and Shadow Mountain has obliged, so that’s not surprising. But. In the summer, for a few weeks, it does get hot up here and the house heats up. So does the loft.
When we went into Home Depot (our choices for purchasing a unit were two: Walmart or Home Depot. Community busters or a CEO who loves and supports the Donald. Sigh.), I had to go up to Customer Service and say, “I want to buy an air conditioner, but I can’t lift it.” The woman behind the desk said, “All right. Where is it?” Then she came with me. I looked at her. If she can lift the damned thing, I should be able to. But, no. She had a trick. She tilted the box back while I moved the flat-bed cart underneath it, then she worked it onto the low orange bed.
In other health news an x-ray of my left knee (total knee prosthetic imaging) raised a question. On Monday I see Dr. Peace, my orthopedic surgeon, for a follow up. Kate thinks and I hope he will say nothing’s wrong. I will use the time to ask again about how much I can challenge the knee. Can I, for example, kneel? It’s painful now, yes, but does it actually harm the prosthetic? Is hiking up a mountain trail too stressful for it? Why do I still have pain seven and a half months after surgery? Are my high intensity workouts too much? I don’t want to be too cautious, neither do I want to be cavalier.