Category Archives: Aging

Days of Awe

Fall and the Rosh Hashanah Moon

Here we are, paused between the New Year and the Day of Atonement. The book of life is open, waiting for your next year to be inscribed. This is a new liminal space for me. A holiday(s) in which repentance and forgiveness are the focus, both at the beginning of the new year. It’s location in the early fall (a lunar calendar) makes it a part of the Michaelmas springtime of the year and part of the harvest festivals that end with Samain on the 31st.

Sukkot follows the Days of Awe, coming three days later. Rabbi Jamie says that Sukkot used to be the primary festival at this time of year with the Days of Awe sort of a preparation for it. Sukkot is the big harvest festival in the Jewish liturgical year. It’s fun, ending with Simchat Torah. “Sukkot through Simchat Torah is nine days long. The first two days (Sukkot) and the last two days (Shemini Atzeret and Simchat Torah) are full-fledged festival days, and the middle five days are Chol Hamoed.” chabad.org

The Jewish month of Tishrei is a holiday filled time for Jews. And, they vibrate between profundity and joy. This feels congruent with the turning of the Great Wheel which has three harvest festivals over the same time period. The middle one, Mabon, on the fall equinox, is a celebratory time followed by Samain, the end of summer when the veil between the worlds thins and the dead can walk among us. (where all the goblins and ghosts and ghouls come from at Halloween)

At least in the temperate latitudes temperatures begin to cool, leaves change on deciduous trees. Farmers and gardeners harvest fruits, vegetables, grains, nuts, then prepare gardens and fields for the fallow season. The days grow shorter, frosts and freezes mark, then kill many plants. The bare trees give forests a stark look. A friend was of the opinion that the thinning of the veil came from being suddenly able to see through forests.

Kate and I need all of the spiritual juice available right now and these two holiday traditions, Jewish and pagan, fill that need.

Another E.R. Visit

Fall and the Rosh Hashanah Moon

One more trip to the E.R. Well, after a no-good, pretty bad Monday, described below, we got home around 6 pm. Both tired. Both hoping things would just magically get better.

They didn’t. When Kate went to bed, the feeding tube that is her main source of nourishment popped out. The nurse at the E.R. said, “It happens.” Kate, being Kate, inserted a #16 Foley into the ostomy, the hole in her gut, and inflated its small balloon with ten ml of water. The Foley plugged the hole, but didn’t serve well for her nighttime feeding.

Kate said this day sucked. Yes, indeed it did.

She had to have a new feeding tube, right away, because that’s how she gets the bulk of her nutrition and calories. Our primary care folks said, “Call the surgeon.” She did. Ed Smith, a solo practitioner, no spring chicken himself, was out getting a total knee replacement.

The E.R. was the next best place. So down the hill we went. New feeding tube number 1, but following up with them on the shortness of breath, number 2.

Dr. Stader, a helluva nice guy, took over. What is that? A 16? Yes. Kate had handed him the defenestrated feeding tube. The feeding tube and the Foley both have a small balloon attached to the end of the tube. It’s inflated by using a syringe to push water into it. See pic. The yellow capped port is where the water goes in.

Getting the new tube in was easy. They had to inflate it a bit more after the first try, but it worked fine last night. Yes, in a first, our fourth trip to the E.R. did not result in a hospitalization.

Kate also gave Don, Dr. Stader, a cd of her c.t. from Monday late afternoon. It had not been read. Don and the E.R. radiologist reviewed it and found no sign of a pneumothorax. Kate had feared that her shortness of breath was a second one, the first one happened back in May or June.

They did find abnormalities, interstitial lung disease, but no obvious reason for a sudden increase in, as they say in the E.R. notes, SOB. We checked out, went to the car, and drove back up the hill. She’ll followup with both her pulmonologist and Dr. Gidday.

This is getting old we both remarked while she was on the hospital bed in Swedish E.R. room #20. But, so are we.

Another Hard Day

Fall and the Rosh Hashanah Moon

Even tougher day for Kate yesterday. Still short of breath. I took her in to see Tabitha, our doc’s P.A. She ordered a chest x-ray to see if another pneumothorax (collapsed lung) had manifested. Kate felt similar to the time before her last hospitalization which found a small one.

Chest x-ray negative. Hmm? So, Tabitha ordered a ct scan, still searching for either a pneumothorax or another cause for her shortness of breath. Got the scan late in the day yesterday. No results yet.

Meanwhile at home something happened to her feeding tube and she had to effect an emergency repair. Still waiting for what to do about that. Whatever it is, it will happen today along with any other followup from yesterday. And, of course, we will have to fit it in around my 9 am Lupron shot.

Kate’s made tangible progress, but having to deal with this lung stuff dispirits her. And, me. So much going here and there, waiting. Waiting. Wondering. More to come today.

Tough Weekend

Fall and the Rosh Hashanah Moon

On her birthday

Kate’s had a tough weekend. Short of breath, feeling tired. We didn’t make it to Rosh Hashanah services last night. A year and two days after her bleed. She’s made great progress on weight, nausea, even her Sjogren’s is less problematic. Her stamina, up till this weekend, had increased and she was doing more.

Her daily life involves a lot of tubing and schlepping. At night she carries her Inogen, portable CO2, as well as her pump and feeding supplies. Heavy for her. She does remarkably well with all of it, but this alone takes a toll, too. Hoping for a better day for her today.

Need a lung disease diagnosis, prognosis, and treatment plan. So slow.

Yesterday was Tom and Roxann’s 16th anniversary. At their wedding they featured the mandorla. “In icons of the Eastern Orthodox Church, the mandorla is used to depict sacred moments that transcend time and space…” Wiki Marriages, good ones at any rate, live into their own mandorla. Happy anniversary! It was also the 7th anniversary of Regina Schmidt’s death. Bill continues to honor her and their love. A mandorla still, I think.

Tomorrow, October 1st, I get my second Lupron shot. 9 am at Urology Associates Swedish offices. In the butt. Thank you, Sherry.

works for both paragraphs

Then, let the fun begin! Hot flashes have become more frequent, a bit more intense. Still only annoying, but, they are annoying. They creep up the body, making it flushed and warm. Last night I had my sweatshirt off and the window open, the cool night breeze a relief.

Extreme fire danger here. Red flag warning yesterday and today. We have a higher fire risk rating than the area around Paradise, California. One of the highest in the country. Good times. I’ve been too nervous about the fire danger to get my chain saw going. Maybe this week.

My friend Dave, personal trainer, had bad news about his brain cancer. The tumor is back after surgery only a few months ago. He’s at the extreme end of survival time for glioblastoma. As he said, it’s a horrible place to be. 53 years old.

You might think I would be stressed and anxious, but I’m not. Living today. Will wait for tomorrow.

Youthful Follies

Fall and the Rosh Hashanah Moon

Today is erev Rosh Hashanah, the evening of the Jewish New Year. Jewish days start at sunset. L’shana tova which you may hear, or say, comes from this longer phrase: l’shana tova tikateyvu, “May you be written [in the Book of Life] for a good year.”

Today is also Michaelmas, the feast day of the Archangel Michael as well as the name for the first term in many Irish and British schools: the Michaelmas term and for the beginning of court sessions, too. It is also the springtime of the soul as Rudolf Steiner wrote. I’ve said elsewhere why I find this apt. The beginning of darkness triumphing over light. Remember the equilux on September 26th?

However, none of this is what’s upper most in my mind this morning. Youthful follies. Mom died in 1964, October. I graduated from Alexandria High School that spring, 1965, and in the fall I matriculated to Wabash College in Crawfordsville, Indiana.

Wabash was, and remains, a bittersweet time for me. Going off to college was a dream, finally pushing away from my then bucolic small town toward, well, I don’t know. The future. Yes, certainly that, but also pushing away from the grief and confusion. I hoped.

Wabash Campus

Nope. Sleeping in the cold dorm at Phi Kappa Psi (we freshmen had to pledge a fraternity since the only dorm rooms available were taken by upper classmen and freshmen couldn’t live off campus.), I had dreams of my father dying. Of my mother coming back. Of deep black holes waiting to consume me.

Even so during the day Contemporary Civilization, C.C., Introduction to Philosophy, English, Introduction to Symbolic Logic, German made my mind spin. I wanted a liberal arts education. I knew that from the beginning. And I was getting one. German knocked me down. I dropped it and felt ashamed at giving up. As for the rest, I hung on every word, studied hard, and did well.

All my inner turmoil disappeared when I took my books to the study carrels at Lilly Library. I could disappear into Plato, the Middle Ages, the law of the excluded middle. This is a pattern that exists for me today. Not the folly.

The folly began in my study room at Phi Kappa Psi. Both of my roommates smoked. And drank. One used Romilar, a codeine based cough medicine. Not for coughs. I didn’t smoke, didn’t drink, didn’t do drugs. But not for long.

I made the choice. Drinking Singapore Slings until I got sick. Vowed to never drink sweet liquor again. But, didn’t vow not to drink again. It would take until 1976 to put away both smoking and drinking. I knew all along that neither were good for me.

Ball State kicked me off campus for public drunkenness. The recession of 1966 had made Wabash financially unreachable for me. I smoked, drank, discovered marijuana and LSD, peyote, mescaline. The study carrel was still my refuge. My grades didn’t suffer.

These habits carried themselves off campus and into my years as a Presbyterian minister, and two marriages. Not my best choices, clouded by that youthful folly, imagining I could handle it all.

No, I don’t regret any of it. I made my choices and lived with them the best I could for 15 years or so. Besides, what good does regret do? I can’t change the past.

Now, though, I’m living with COPD. Prostate cancer is down to gender, genetics, and bad luck. COPD I created all on my own. Glad it took so long to show up. I’ll do what I need to do to maintain my health, but I know that this one is on me, the youthful me. Who committed more follies than I’ve recounted here.

One Year Ago

Fall and the new (Rosh Hashanah) Moon

Much, much better. Earlier this month, Evergreen

And so. One year. A year ago today I took Kate into the Swedish Emergency Room. It was early in the morning. In my post that day I said she’d be in the hospital at least one night. Four weeks later she came home after two weeks in the hospital and two in a rehab facility.

It has been an awful year. Two more hospitalizations for her. Imaging studies. Procedures like the placement of her stent in a mesenteric artery. Lots of doctor’s appointments. Pulmonology complications. And a bad pulmonology group. The pic line, then the feeding tube placement. Her lung disease issues are still not treated, not even diagnosed. Soon, perhaps.

She has, gradually, improved. Her weight is now consistently over 100 pounds. Her stamina has improved. She’s happier and more joyful, wonderful to see. Next month’s MVP, mussar evening group, she’s leading the discussion on joy.

Entering the Dark Wood

I had my issues, too. The flu, then pneumonia led to a miserable February and March for me. Also led to my odd kerfuffle with my psa. The one taken during my annual physical in February. I actually told my urologist that it was fine. A mistake. Nope. It wasn’t.

You know the rest of that one. Radiation. Lupron. Treatment still underway. Then, the exciting news this week that I have COPD. Looked at lots of material over the last few days. Scaring myself. Again. Then, oh, not so bad if I keep exercising, eat well, take my prednisone, do regular checkups. Not great, but not bad either.

Tomorrow is Rosh Hashanah, the beginning of the days of yirah. Awe and fear. Seems about right for Kate and me. This new year will be about living joyfully, with alert curiosity, and compassion. No matter what physical or emotional challenges confront us.

You know your body

Fall and the beautiful crescent of the Harvest Moon

And another diagnosis. Geez. I have what can be called either COPD or asthma. I prefer asthma but if it hacks like COPD and interferes with breathing like COPD, then it’s also that. Short story: smoking related. Errors of my youth coming back to grab me by the lobe.

You might be surprised to learn that this diagnosis gave me joy. Yes, it did. Several factors. 1st. Caught early and treated it’s not likely to progress, so permanent but manageable. 2nd. A low level concern about my breathing that I’ve had for several months has a name and a treatment. 3rd. Told Dr. Gidday that I’d felt a constriction in my lungs. That I knew my body and something was off. After the pulmonary function test, she said, “You do know your body.” I liked that. So, yippee, I’ve got COPD. No, to me asthma. But you get the drift.

The treatment is a prednisone inhaler, two puffs at night before bed. Also, for a while, I’ll use the albuterol inhaler before exercise. Lisa says I probably won’t need it after a while. “You’ll find exercising and breathing a lot easier. You’ll feel better.” Gotta like that.

Kate and I left Lisa’s office and went to NoNo’s for dinner. A New Orleans place. Great po-boys and wonderful beignets. I felt light, like a burden had gone. And, indeed it had. Strange, I know.

November, 2015

Should help with the fire mitigation work once I get my chain saw fixed. Yeah, about that. I did do the guy thing. I took it apart. I put it back together. But. In the process I jiggled some little hose thingy loose and couldn’t get it to return to its former location. Sorta deflated the guy thing. Guess it got Luproned.

Talked to Derrick yesterday and he’s ready to help and accept logs. I plan to put a sign up if he doesn’t take them all and offer the rest to folks who heat with wood. There are several up here. Cheaper than having them chipped. By a lot. I’ll keep one or two sawed up and split for our fireplace.

Sound like Dad

Fall and the Harvest Moon

Black Mountain from our mailbox

The dark sky. Orion high in the south over Black Mountain. The waning crescent of the Harvest moon to his left. Other stars set like diamonds. A regular moment of awe. So lucky to live here.

Yesterday I was sad. Woke up the night before with debbie downer thoughts. Does anyone like me? What have I done with my life? Is there any point to all this? Some part of me pounding on other parts of me. Who’s the witness in this conversation? Who’s the protagonist? It felt so out of character, especially for how I’ve felt over the last several months. Oh. The Lupron. This was a hot flash in my soul. No fun. Last night was fine.

Kate helped a lot that morning over breakfast.

Second injection a week from today

Though I’ve done my share of psychotropics I’ve not made my peace with this alien chemical dominating my testosterone, turning up the thermostat at unusual moments, twisting my emotions. I’d still characterize the side effects as mild though there have been a few moments like last night, a few with Kate, a couple of searing hot flashes. There’s also the fatigue and the sarcopenia. These last two make working out difficult.

Since I’m 72, sarcopenia is already having its way with me. Lupron adds to that, reinforces it. Maybe bumps it up? I get tired quicker. Have trouble advancing my weights. It’s like having a small parachute attached to my belt, extra drag.

Staunton State Park, 2017

Gonna test this on a hike this morning. I’m embarrassed to say I’ve done little hiking since we got here. No excuse. Just haven’t gotten in the car and gone to one of the many mountain trails. I worked out three, four times a week outside when we lived in Anoka county. Hiking, fast walking, snowshoeing. Not here, partly because of my breathing issues.

Going in to see Dr. Gidday today about those breathing issues. My O2 sats are low normal up here, usually ok down the hill. In the evening however and sometimes right after I go to bed they crater, going down once into high seventies. This has been true for most of the time we’ve lived here. I’ve never sought help for it before because I was doing treadmill work with no trouble.

2017, Mt Goliath Natural Area, Bristlecone Pines

On Saturday though I did my usual twenty minute pre-resistance work cardio. It was hard. My lungs felt tight. I struggled. Did it all and at the speed and elevation I wanted, but it was hard. Like with my bicep weights I’ve had difficulty moving my speed and elevation up. Also, lots of coughing, hacking.

I sound like my dad who was an asthma and allergy sufferer his whole life. Things have not been the same for me since the flu/pneumonia episode in February and March. Sorta shoved this aside for the cancer treatment, but I feel like I have to address it now. I really have no desire to wrestle with another organ system right now. But…

Guy Thing I Did

Lughnasa and the Harvest Moon

Better rested yesterday. Less fatigue.

Though. Workout a.m. New one. First part is cardio, twenty minutes. Treadmill. I’ve been doing this for years, 25 at least, and yesterday I struggled with breathing as I went up on speed and elevation. I made it through the twenty minutes, pushing myself further than I have in a while, but it was tough.

Gonna see Lisa about respiratory issues. Don’t really want to go down another medical trail right now, but it’s time to get some clarity.

Did, for me, a serious guy thing. I took apart my chain saw, cleaned it, and, ta da! Put it back together. I know this is minor league for most of you, but for me it’s a big deal. Last time I used the chain saw I tried to cut the stall mats with it to make Kate’s walkway to the garage. Did. Not. Work. It did however coat the saw with rubber particles.

Getting ready to make use of fall weather for fire mitigation work. Going to start at the thirty foot ignition zone by taking down trees, limbing them, bucking them. Gonna hire a teenager or two to help move slash, clean up the back. We’ll see about my stamina. If necessary, I’ll take frequent breaks.

Below freezing last night with a spitting rain or meager snow. 34 when I got up. With Mabon behind us and the autumnal equinox tomorrow we’re moving toward fall and already in it. Great sleeping.

Made pork tenderloin last night. Used a Joy of Cooking recipe. Cut the tenderloin into 3/4″ chunks, doused them in beaten egg and covered them with bread crumbs. Plopped them in my new Lodge cast iron skillet. Tasty.

Mabon

Lughnasa and the Harvest Moon

Autumn days come quickly, like the running of a hound on the moor.
Irish proverb

Mabon grasses, ripe with seed. Hwy 285 near Morrison

Getting close to the fall equinox. It’s late this year, Sept. 23rd. Meteorological fall began on September 1st. Mabon, the second of the Celtic harvest festivals, is today. And, the whole next week.

Here the last several days have been dry, low humidity and higher temperatures. A red flag day yesterday. Fall colors are running behind, about a week or so. The trees with color have slightly withered leaves and the fainter coloration of moisture deprivation. Makes this old horticulturist sad because it means stressed trees.

Felt worn out, exhausted yesterday. Couldn’t get up the energy to go to Gabe Herman’s shabbat last night. His dad, Dan Herman, is the President of the congregation and a bee keeper. Gabe had his bar mitzvah in Israel this summer; this was a night for him to sing the parshah and give his dvar torah, literally the words of torah. Each bar or bat mitzvah must learn their parshah in Hebrew, sing it, and comment on it. Kate represented both of us.

Drove to Baily in the a.m. for our monthly supply of indica chewables. Met Dana, my budtender. I think budmonger would have been better, classier. Sell cheese too and you could have a cheesemonger and a budmonger working together. Not sure why that appeals to me, but it does.

Later, we finally got the O2 concentrator in the mail to Georgia for warranty work. And the illuminated manuscript page on vellum off to Idaho for BJ’s house there. Birthday gift.

Could have just been a long, engaged week. Or, could be the Lupron. Maybe both.