The Hill We Climb

Winter and the Imbolc Moon

Friday gratefuls: Tatiana. A fib. Murdoch’s journey. Brenton. Kate. House cleaning and house cleaners. Morning. Afternoon. Evening. Each day. The sun. The waxing moon. Alan. New meds for Kate.

well worth repeating. put on your hiking gear. let your light shine.

When day comes we ask ourselves, where can we find light in this never-ending shade? The loss we carry, a sea we must wade. We’ve braved the belly of the beast. We’ve learned that quiet isn’t always peace. In the norms and notions of what just is isn’t always justice.

And yet, the dawn is ours before we knew it. Somehow, we do it. Somehow, we’ve weathered and witnessed a nation that isn’t broken, but simply unfinished. We, the successors of a country and a time where a skinny Black girl descended from slaves and raised by a single mother can dream of becoming president, only to find herself reciting for one.

And yes, we are far from polished, far from pristine, but that doesn’t mean we are striving to form a union that is perfect. We are striving to forge our union with purpose, to compose a country committed to all cultures, colors, characters and conditions of man.

And so, we lift our gazes not to what stands between us, but what stands before us. We close the divide because we know, to put our future first, we must first put our differences aside. We lay down our arms so we can reach out our arms to one another. We seek harm to none and harmony for all. Let the globe, if nothing else, say this is true. That even as we grieved, we grew. That even as we hurt, we hoped; that even as we tired, we tried; that we’ll forever be tied together, victorious. Not because we will never again know defeat, but because we will never again sow division.

Scripture tells us to envision that everyone shall sit under their own vine and fig tree, and no one shall make them afraid. If we’re to live up to our own time, then victory won’t lie in the blade, but in all the bridges we’ve made. That is the promise to glade, the hill we climb if only we dare it. Because being American is more than a pride we inherit; it’s the past we step into and how we repair it. We’ve seen a forest that would shatter our nation rather than share it, would destroy our country if it meant delaying democracy. And this effort very nearly succeeded.

But while democracy can be periodically delayed, it can never be permanently defeated. In this truth, in this faith we trust, for while we have our eyes on the future, history has its eyes on us. This is the era of just redemption. We feared it at its inception. We did not feel prepared to be the heirs of such a terrifying hour, but within it, we found the power to author a new chapter, to offer hope and laughter to ourselves.

So, while once we asked: “How could we possibly prevail over catastrophe?” Now we assert, “How could catastrophe possibly prevail over us?”

We will not march back to what was, but move to what shall be: a country that is bruised, but whole; benevolent, but bold; fierce and free. We will not be turned around or interrupted by intimidation, because we know our inaction and inertia will be the inheritance of the next generation. Our blunders become their burdens. But one thing is certain, if we merge mercy with might, and might with right, then love becomes our legacy, and change our children’s birthright.

So, let us leave behind a country better than one we were left. With every breath from my bronze-pounded chest, we will raise this wounded world into a wondrous one. We will rise from the gold-limned hills of the West. We will rise from the wind-swept Northeast where our forefathers first realized revolution. We will rise from the lake-rimmed cities of the Midwestern states. We will rise from the sun-baked South. We will rebuild, reconcile and recover in every known nook of our nation, in every corner called our country our people diverse and beautiful will emerge battered and beautiful.

When day comes, we step out of the shade aflame and unafraid. The new dawn blooms as we free it. For there is always light. If only we’re brave enough to see it. If only we’re brave enough to be it.

46. Yes.

Winter and the waxing Imbolc Moon

Thursday gratefuls: Golden Solar. Finally. Solar power. Running the meter backward. Kate’s better day yesterday. Up until bedtime. Sleep. Exhaustion. Thoughtful gifts from Mary and Diane. Brother Mark. Alan. Tatiana. New West Physicians. Coffee. Did I mention coffee?

Lima, Peru, 2011

Another good day for Kate yesterday. Until bedtime when nausea and chest pain came for a visit. The damned feeding tube now leaks worse than it ever has.

To compound this situation we have the retirement of our primary doc, Lisa, as of January 1st and a confusing, still not resolved hand off of us as patients to a new doc. Health care reform. Police reform. Racial and economic justice. Hear my cry, oh Congress. Hear my cry, oh Biden.

Golden Solar picked yesterday morning to come and replace two microinverters that have been dead since our solar installation. The inverters report to the makers of our solar panels and we can download the reports through our own webpage. They have nothing to do with actually producing electricity. I’ve been asking them to do this for almost five years. Why now? No clue, but I’m glad it’s done.

On a personal note my PSA test results from Tuesday came back. No detectable psa. This is the test that comes after Lupron has truly left my system. It could signal a cure.

That is, I had a recurrence. My psa went up. That triggered the radiation in 2019. Coincident with the radiation I began Lupron injections. The Lupron, as I have said, suppresses psa, but does nothing directly to the cancer except deprive it of the cells it prefers. Lupron does not not cure. When it stops, the cancer can begin to grow again.

Unless it died in the radiation bath I had over 35 treatments. With the Lupron now gone, the cancer could have begun to grow again, but this test results suggests that it didn’t. That could mean that the radiation did in fact kill the cancer that had reemerged.

How will I know? I won’t. If I continue to get undetectable results for a couple of years, they’ll move my psa tests from every three months to every six months. If I continue to get undetectable, at some point, five years or so, I’ll have a presumptive cure. But. I had one of those in 2015 with my prostatectomy. So…

I’m planning a celebratory meal anyhow. Probably Sushi Win. I’m cured until I’m not. That’s the way I want to think. Not always possible, but it’s my goal.

My deep exhaustion continues. Not sure there’s a way around it until the vaccines. Naps. Long night’s sleep like last night. Ten plus hours.

Biden. 46. 45 a painful memory, but a memory. Microinverters replaced. Kate’s having good days. I have the psa result I needed. There are bright spots. And, you, dear reader, are one, too.

Home again, Home

Winter and the waxing Imbolc Moon

Sunday gratefuls: Kate at home. Atrial Fibrillation. Meds. Nurses. Wheelchairs. Swedish Hospital. Kate’s refuge. Kep, Rigel. Family home and complete. 3 days. On the way to Mar-a-Lago. Safeway pickup. Mary’s calendar gift. Precious. Thanks. Notes and cards from Kate’s friends. Evelyn Crane. Tom. His sister.

 

Honey, harvesting

Kate is home. An apparently leak free stoma site. Complete with circumferential suture. Grateful to the interventional radiologists. The pulmonologists. The cardiologists.

This visit worried me. Her, too. Had me contemplating life without her. Of course, I can do it. I mean, I can do the tasks, the chores, the necessaries. She pays the bills and folds the clothes. Yes, I can.

But.

Who would share breakfast? Commiserate over the latest Trump outrage? Answer my medical questions? Who would hug me? Sleep next to me? Well, Rigel and Kep. Sure. But not Kate. Who would recognize when I slipped into melancholy and tell me? Our family would be very different without her.

Not now. Now she’s here. And today is what counts. It’s all that counts. The rest is the idle occupation of a worried mind. Today I will see her at breakfast. Hug her. Grump about pardons-are-us in the West Wing. We’ll laugh. Do a money meeting. Wonder how Ruth and Gabe are doing? Think about Murdoch getting ready to head out for Hawai’i.

I know. If you read these pages, it’s been a downer for the last week or so. Maybe longer. This is my journal, my record of being here. Sometimes it’s this, sometimes it’s that.

Kate’s home. I can turn my mind to other things. Like the inauguration. Oh, wait…

At least it’s not the report of an insurrection

Winter and the waxing crescent of the Imbolc Moon

Saturday gratefuls: Kate. Her feeding tube. Tatiana, her cardiologist. Her stable lung disease. Sjogrens. Paul and his breathing help, for stress. The dishwasher. Working. Cottage Pie from Easy Entrees. Kate’s favorite comfort food right now. Kep and Rigel, a little disoriented without Kate at home. Charlie, a little disoriented with Kate at home.

Gratitude for myself. Never thought of that. But, hey! Why not. I’m grateful for me. Wasn’t always. Those drinking years? I was not always my friend. Now though. With a solid paganism at my core, body working, mind filled with years of learning, loving, experiencing. Yeah, I’m not only grateful to be here, but I’m grateful to be me. Good thing, right? Tough to be somebody else.

Kate with a new born Gabe and toddler Ruth, 2008

Kate’s nearing the end of this time in the hospital. Maybe. The interventional radiologists may extend her feeding tube deeper into her upper digestive track to discourage backing up and leaking. She had a feeding last night and didn’t leak. That’s the reason for uncertainty.

The leaking stoma site sounds innocuous. It leaks, wipe it up? No. First, the leaks happen at night and produce a wet splotch of Jevity. It’s sticky and uncomfortable. If it’s a big leak, the sheets and covers get involved. Result: less feeding, maybe as much as 30%, and lost sleep, plus feeling icky in the sticky.

Kate and Seoah’s mother, April 10, 2016

This has been going on since the tube got placed a year and a half ago. The other sequelae of a leak? An irritated and sometimes infected wound around the stoma site. That’s the wound I’ve been treating now for months under the guidance of Amber, an Advanced Wound Care specialist. If we can stop the leaking, stop wetness around the stoma site, the wound will heal. That would be a big deal.

She has an appointment with her cardiologist this Thursday via telemedicine. Atrial fibrillation followup. She was put on a blood thinner, one somewhat more powerful than the baby aspirin she’s currently on. Need to see what else might help. Tatiana is a good doc. She’s already helped Kate a lot.

Her lung issues have shown stability for a year. Yet. She has had three pneumothorax events. Not sure where that is right now. She has no treatment for the interstitial lung disease. Why? The treatments have bad side effects and Dr. Taryle, her pulmonologist doesn’t want to prescribe them until she exhibits an unstable course for her disease.

I’m looking forward to having her back home though I’m grateful she’s had this chance for scrutiny, especially on the feeding tube. The higher calorie feeding liquid is here, delivered on Wednesday. With this she should be able to lower the flow rate of the pump which might also reduce leakage.

Lot of moving parts.

Oh, and on the 19th I get my PSA tested again. This is, contrary to what I believed earlier, the one with Lupron gone. If it’s clear, the possibility of a cure still exists, might already have happened. That would be nice.

Go to the worst places. Keep on going.

Winter and the young Imbolc Moon

Friday gratefuls: Kate. Always, Kate. The Fall of the Trump, inspired and realized by American Visigoths and barbarians. Illness and frailty. Aging. Covid. 5 days. Impeachment. Again. Still. Always. The winds. A busy day yesterday.

 

 

I posted this on Kate’s Caring Bridge site yesterday afternoon:

Well. Kate will be in the hospital until Saturday. Last night she had atrial fibrillation that dropped her blood pressure and gave her tachycardia. The docs need to decide whether to treat her for it or not. Blood-thinners, for stroke prevention.

The pneumothorax was small and may have healed under 100% oxygen. Her feeding tube reinstalled, she starts getting the higher calorie liquid now.

She is weary. When I asked her how she was feeling, she said, “I wish it wasn’t happening to me.” Yeah, me, too.

Covid makes visiting her not possible. The dogs and I live our usual lives. Get up early. Doggy breakfast. Write Ancientrails. My breakfast. Read newspaper. Around 4 pm doggy dinner. Get fresh water for them morning and evening. In between workout, comb Kep, vacuum, things like that. Wait for a call from the hospital. Eat well, get good sleep.

Lost a little sleep last night. Maybe an hour. Ideas rummaging through memories, trying to find something distressing. Read a good quote: keep the front door and backdoor of your mind open. Let ideas come in and go out. Did that. Took a while but I went back to sleep.

Stress? Oh, yes. Using all my learnings. Deep breathing. Front and back doors open. Consolation of Deer Creek Canyon. Looking out, clearly, over the absurd and the abyss. Checking in with friends and family. Workouts. Being with the dogs. Seeing Black Mountain, Arapaho National Forest, our wild neighbors. Really seeing them.

Working. Stress not overwhelming me.

I’ve allowed myself to go to the worst places, the most difficult imaginings, then go on. Kate is not dead, not dying; but, she is in great difficulty. We can navigate our way beyond this current rocky stretch, get back to cribbage and Sherlock, meals together. Her crosswords. My writing.

I want that. She wants that. We’ll see.

Hard

Winter and the Imbolc Moon

Wednesday gratefuls: Swedish ER. Swedish hospital. Feeding tubes. Interventional radiologists. Pulmonologists. A long sleep last night. Exhaustion. That fuckhead. One week. Impeach him. Convict him. Imprison him. No mercy. Calm. Deep breathing.

Kate with friends

Kate’s back in the hospital. She has a pneumothorax again, in the same spot as last two times. A leak, if you will. Her feeding tube, the one placed on Sunday, came out on Monday. So it needs replacing, too. Not sure how long she’ll be there and I can’t visit her. Covid.

A lot. She’s had two trips to the E.R. this week already and now a hospital stay. The last three weeks have increased the level of difficulty here. For both of us. So much that I’m glad she’s in the hospital so I know she’s ok. That’s weird, eh?

Not easy to describe my feelings right now. I’m so tired. I slept almost 12 hours last night. Kep and Rigel were more than ready for breakfast. I’m worried about Kate, of course, but I’m glad she’s where some folks can pay attention to her medical needs.

We’ve both become frustrated, which is a nice word, with the medical care system. Managing her feeding tube is a nightmare when a problem occurs. No one owns it as their responsibility. Most don’t know how to handle it. See this Sunday’s ER visit. Yet it feeds her. Pretty important.

She’s been sick so long that it’s hard to discern serious symptoms from not so serious ones. And, to know who to reach out to discern the difference. Sjogren’s complicates everything with its suite of symptoms, like fatigue and low grade fevers, that mimic the symptoms of other diseases.

Then there’s the emotional toll all this takes on both of us. Hard.

Ah, well

Winter and the Imbolc Moon

Tuesday gratefuls: Easy Entrees. Pork Schnitzel. Peasant salad. Feeding tube. Jevity. Kate, always Kate. Our democracy. Our nation. 8 days. Impeaching. Prosecute. Sleep. Sleep.

 

 

And, again. The tube slipped out again. When the E.R. doc put it in, she couldn’t get in the same size Kate had, so she inserted one one size down. For whatever reason the balloon that we inflated yesterday, deflated. And, out came the tube.

This time I couldn’t reinsert it. It’s tricky. The tube too flexy. The stoma has begun to close a bit. That’s the worry. That the stoma will close and have to be reopened surgically. Kate’s so fragile that anesthetic and the insult of surgery might be too much for her.

Kate’s nausea kicked up this morning. That’s the worst condition for her. She hates retching and nausea. I mean, nobody likes it, right? But, she hates, hates it. Waiting for all that to stabilize, then I imagine we’ll head back to the ER at Swedish where they did a poor job last time. Get them to fix their error. We’ve had good experiences there. This was an anomaly.

It does come, however, after Sunday’s long visit there. It does come, however, after Friday’s O2 concentrator failure and the resulting hypoxia. It does come after three weeks of extreme fatigue and low grade fever. It also comes, this time, without a feeding since it came out as she was starting last night’s Jevity. So very not good.

I got good rest last night. I’m no longer exhausted, though I am tired. My mental state is fine. Yesterday morning, not so much. I had to have a morning to myself. It was good, too. Got a workout in. Had time to just be. To recuperate myself. This introvert had been on task too long, with too many people in the picture.

Not sure where all this is going. More time at the E.R. ahead of us. Tough.

Passed (not past) the red line

Winter and the waning sliver of the Moon of the New Year

Is there time?

Monday gratefuls: Swedish ER. New feeding tube. Putting the new feeding tube back in. Rigel whining. Sleep. Kep. Kate and her endurance. Jevity. Food. Water. Oxygen.

 

 

Oh, geez. Hitting the red line. Burn out. Exhausted. Both of us. Kate’s feeding tube popped out about 8:30 am. I have put in back in before successfully, but not this time. The stoma had tightened up. Call to a physician. No help. Call Dispatch Health, they’ll come to you. Except they won’t because we’re not in their service area. Call urgent care. No, we don’t do gastronomy tubes. Call Swedish E.R. in Littleton. Nope. Go to the E.R. at the hospital. In Englewood.

Finally left house around 10:30. Didn’t get back until 3:30 or so. In the E.R. more critical patients get cared for first, as they should. But. That bumps folks in Kate’s situation back in priority.  I sat in the car and read while Kate was in the E.R. Covid.

Got back home.

At bed time Kate says, “Charlie, I need help.” What was it? The feeding tube had popped out. The new one! Jesus. The E.R. doc had not inflated the little balloon that keeps it in place. Sigh. I reinserted the tube and Kate inflated the balloon using a syringe and air. Pulled on it a couple of times. Should stay.

I went back out to watch TV. “Charlie.” Rigel had pulled the plug for Kate’s oxygen concentrator out of the wall. Again. Of course this brings up the string of incidents on Friday morning when Kate became hypoxic after one of our O2 concentrators died. Again. That day was tough because it took a while for her to reoxygenate. BTW: I have ordered a cord lock for the outlet.

Rigel chose last night to whine for about an hour or so. Sounded like she was sick. I couldn’t believe it. I was so sleepy. Finally got up and let her outside. She ran away happily. Grrrr. When she and Kep came back in a bit later, she went on the couch upstairs and went to sleep.

Back to sleep.

At this moment the feeding tube is in place. Kate’s got oxygen. Rigel has eaten breakfast as has Kep.

I’m in the loft writing this. Might work out. Tired. Not sure. I do need no contact time right now. Down time. Alone time. Recuperative time.

Used up my reserves over the last three days. And, it’s not like it was a quiet week in Washington either.

I’ll be fine. I only need rest and sleep. And quiet. And no problems to solve. Kate’s resting, too. A genuinely difficult week.

A trip to paradise

Winter and the Waning Crescent of the Moon of the New Year

Extraordinary Time

Sunday gratefuls: A calm day yesterday. A travel day. Light, beautiful snow all day. Bruce Lee. Warrior. Writers. Painters. Sculptors. Poets. Musicians. Dancers. Actors. Great literature. Pretty good literature.

Another night from 8 pm to 7 am. All the way through. Guess I’m tired. Wonderful. Dreaming. Rigel warming my back. Kate asleep and peaceful. Kep dreaming.

Kate and I talked yesterday about an issue first raised to me by Steve Miles, a former friend and bioethicist, a physician. When I first knew Steve, he was in medical school and had devoted a lot of his time to care of his grandfather. While in that role he began to consider this question: what is health in a dying person? Bit of a mind-bender, that.

We modified the question. What is health in a chronically ill person? Like Kate. Part of it is simple: calm, disease not worsening, able to engage functions of daily living.

Part of it is not easy. How do you integrate the fact of losing capacity? When you can no longer do the things you loved? Like sewing. Going out to eat. To concerts. To sewing groups. To synagogue. Like walking easily across the floor or upstairs. Yet her mind remains sharp. Crosswords still come easily. Word finds. Solitaire. Dissing Trump.

Kate had almost a month of what we call good days. Little to no nausea. Fatigue level normal. Some desire to eat. Enough energy to play cribbage, Sherlock Holmes. Now she’s had an almost equivalent length of time with a low grade fever, intense fatigue.

So what is optimal? What is health for her? What’s the best we can expect? Seems like that month of good days might define it for now. So health means she has enough energy and stamina for getting up and down the stairs, enough desire to eat, to have some meals. It means she’s not so fatigued that bed is the constant.

We’re getting her higher caloric density feeding this next delivery. It might help. Give her more calories in less time. Perhaps some more weight, some more energy. Perhaps the stoma site could heal even more.

2014

These are not easy conversations, but they’re necessary. Imagining an impossible goal means always measuring each day by its defeciency rather than by its sufficiency. Yet not hoping for better risks settling into less when more is still possible. A tough see-saw.

Meanwhile, in other news. Murdoch has a plane ticket for the 21st of January. First stop, Seattle. Then, on to Oahu on Delta. He’s cargo. Out of the snow and into the surf. Can you imagine? What will he be thinking? Leaving a cold Colorado, crated, in the dark. No place to pee or poop except in the crate. Then, into the light, a warm to hot Hawai’an island. Mom and Dad! What a transition.

Oh. And this just in. Kate’s feeding tube popped out. Not the first time. But… Geez.

Still here. Still ok.

Winter and the beautiful waning crescent of the Moon of the New Year

Ordinary time. Is there any such thing right now?

Saturday gratefuls: Kate. A good night’s sleep. For both of us. Much needed. Rigel keeping me warm. Kep the good boy. Impeachment. 25th Amendment. Resignation. January 20th. All. Subway last night. Beef stroganoff tonight. Easy Entrees, thanks Diane and Mary. Life. Its wonder even amidst its difficulties.

 

 

 

Whoa. Yesterday was tough. I slept from eight last night to seven this morning. All the way through. Thankfully. Feel rested and ready for today. Grateful, really grateful.

Kate’s still worn out though the oxygen situation has resolved. She’s already fatigued from whatever has been going on for the last three weeks, then to have an insult like the oxygen concentrators gave her was hard. She’s still asleep. I’m glad.

As long as I can stay rested, healthy, get my workouts in, see friends and family on zoom, I am ok. Though on occasion I get pushed right up against my limits. I imagine Covid is helping me since I don’t get out, am not around sick people. Or, when I am, I’m masked. Odd to consider, but I’m sure it helps.

Life continues, no matter. Until it doesn’t, of course. That is, even when an evil bastard like Trump is in office, we still have to eat. When a rampant virus rages, we still have to sleep. When a family member is ill, we still love each other, support each other. Life is a miracle and wasting it, well, please don’t.

Got an article about building a computer. Something I’ve always wanted to try. Might just do it. Also read about an experiment that proved quantum entanglement is not instantaneous. And one about the lost merry customs of Hogmanay. And about lyfe, the idea that life might be, probably is, existing in forms we carbon based life forms might not recognize, even if it’s in front of us. And another on why water is weird. And another on why the universe might be a fractal. (thanks, Tom)

No matter how proximate or distant disturbances in the force, science goes on, literary folks write books and articles, the past remains a source of inspiration, and the future a source of hope. No matter whether life has meaning or whether it is absurd (as I believe) the secondary effects of this strange evolutionary push into awareness persist. And, yet they persisted.

Lucretia hangs in the Minneapolis Institute of Art, ready for witnesses to her dignity, her sense of honor, and her tragic fate. Goya’s Dr. Arrieta, not far from her, documents gratitude for healing and the comfort of ancestors. Van Gogh’s Olive Trees teach us that perspective differs from person to person, yet each perspective can be beautiful while remaining unique. Beckman’s Blind Man’s Buff embraces the mythic elements of life, helps us see them in our own lives. Kandinsky. Oh, Kandinsky. His colors. His lines. His elegance.

Mt. Evans and its curved bowl continues to deflect weather toward us here on Shadow Mountain. The light of dawn hits Maine first, as it has for millennia. The polar vortex slumps toward Minnesota.

Roman Ephesus. The last standing pillar of the Temple of Diana. Delos. The Temple of Apollo at Delphi. The ruined temples of Angkor Wat. Chaco Canyon. Testimony to the ancientrail of human awe. Of an eagerness to memorialize wonder.

It is, in spite of it all, a wonderful world.