Kate’s had a tough weekend. Short of breath, feeling tired. We didn’t make it to Rosh Hashanah services last night. A year and two days after her bleed. She’s made great progress on weight, nausea, even her Sjogren’s is less problematic. Her stamina, up till this weekend, had increased and she was doing more.
Her daily life involves a lot of tubing and schlepping. At night she carries her Inogen, portable CO2, as well as her pump and feeding supplies. Heavy for her. She does remarkably well with all of it, but this alone takes a toll, too. Hoping for a better day for her today.
Need a lung disease diagnosis, prognosis, and treatment plan. So slow.
Yesterday was Tom and Roxann’s 16th anniversary. At their wedding they featured the mandorla. “In icons of the Eastern Orthodox Church, the mandorla is used to depict sacred moments that transcend time and space…” Wiki Marriages, good ones at any rate, live into their own mandorla. Happy anniversary! It was also the 7th anniversary of Regina Schmidt’s death. Bill continues to honor her and their love. A mandorla still, I think.
Tomorrow, October 1st, I get my second Lupron shot. 9 am at Urology Associates Swedish offices. In the butt. Thank you, Sherry.
works for both paragraphs
Then, let the fun begin! Hot flashes have become more frequent, a bit more intense. Still only annoying, but, they are annoying. They creep up the body, making it flushed and warm. Last night I had my sweatshirt off and the window open, the cool night breeze a relief.
Extreme fire danger here. Red flag warning yesterday and today. We have a higher fire risk rating than the area around Paradise, California. One of the highest in the country. Good times. I’ve been too nervous about the fire danger to get my chain saw going. Maybe this week.
My friend Dave, personal trainer, had bad news about his brain cancer. The tumor is back after surgery only a few months ago. He’s at the extreme end of survival time for glioblastoma. As he said, it’s a horrible place to be. 53 years old.
You might think I would be stressed and anxious, but I’m not. Living today. Will wait for tomorrow.
Today is erev Rosh Hashanah, the evening of the Jewish New Year. Jewish days start at sunset. L’shana tova which you may hear, or say, comes from this longer phrase: l’shana tova tikateyvu, “May you be written [in the Book of Life] for a good year.”
Today is also Michaelmas, the feast day of the Archangel Michael as well as the name for the first term in many Irish and British schools: the Michaelmas term and for the beginning of court sessions, too. It is also the springtime of the soul as Rudolf Steiner wrote. I’ve said elsewhere why I find this apt. The beginning of darkness triumphing over light. Remember the equilux on September 26th?
However, none of this is what’s upper most in my mind this morning. Youthful follies. Mom died in 1964, October. I graduated from Alexandria High School that spring, 1965, and in the fall I matriculated to Wabash College in Crawfordsville, Indiana.
Wabash was, and remains, a bittersweet time for me. Going off to college was a dream, finally pushing away from my then bucolic small town toward, well, I don’t know. The future. Yes, certainly that, but also pushing away from the grief and confusion. I hoped.
Wabash Campus
Nope. Sleeping in the cold dorm at Phi Kappa Psi (we freshmen had to pledge a fraternity since the only dorm rooms available were taken by upper classmen and freshmen couldn’t live off campus.), I had dreams of my father dying. Of my mother coming back. Of deep black holes waiting to consume me.
Even so during the day Contemporary Civilization, C.C., Introduction to Philosophy, English, Introduction to Symbolic Logic, German made my mind spin. I wanted a liberal arts education. I knew that from the beginning. And I was getting one. German knocked me down. I dropped it and felt ashamed at giving up. As for the rest, I hung on every word, studied hard, and did well.
All my inner turmoil disappeared when I took my books to the study carrels at Lilly Library. I could disappear into Plato, the Middle Ages, the law of the excluded middle. This is a pattern that exists for me today. Not the folly.
The folly began in my study room at Phi Kappa Psi. Both of my roommates smoked. And drank. One used Romilar, a codeine based cough medicine. Not for coughs. I didn’t smoke, didn’t drink, didn’t do drugs. But not for long.
I made the choice. Drinking Singapore Slings until I got sick. Vowed to never drink sweet liquor again. But, didn’t vow not to drink again. It would take until 1976 to put away both smoking and drinking. I knew all along that neither were good for me.
Ball State kicked me off campus for public drunkenness. The recession of 1966 had made Wabash financially unreachable for me. I smoked, drank, discovered marijuana and LSD, peyote, mescaline. The study carrel was still my refuge. My grades didn’t suffer.
These habits carried themselves off campus and into my years as a Presbyterian minister, and two marriages. Not my best choices, clouded by that youthful folly, imagining I could handle it all.
No, I don’t regret any of it. I made my choices and lived with them the best I could for 15 years or so. Besides, what good does regret do? I can’t change the past.
Now, though, I’m living with COPD. Prostate cancer is down to gender, genetics, and bad luck. COPD I created all on my own. Glad it took so long to show up. I’ll do what I need to do to maintain my health, but I know that this one is on me, the youthful me. Who committed more follies than I’ve recounted here.
And so. One year. A year ago today I took Kate into the Swedish Emergency Room. It was early in the morning. In my post that day I said she’d be in the hospital at least one night. Four weeks later she came home after two weeks in the hospital and two in a rehab facility.
It has been an awful year. Two more hospitalizations for her. Imaging studies. Procedures like the placement of her stent in a mesenteric artery. Lots of doctor’s appointments. Pulmonology complications. And a bad pulmonology group. The pic line, then the feeding tube placement. Her lung disease issues are still not treated, not even diagnosed. Soon, perhaps.
She has, gradually, improved. Her weight is now consistently over 100 pounds. Her stamina has improved. She’s happier and more joyful, wonderful to see. Next month’s MVP, mussar evening group, she’s leading the discussion on joy.
Entering the Dark Wood
I had my issues, too. The flu, then pneumonia led to a miserable February and March for me. Also led to my odd kerfuffle with my psa. The one taken during my annual physical in February. I actually told my urologist that it was fine. A mistake. Nope. It wasn’t.
You know the rest of that one. Radiation. Lupron. Treatment still underway. Then, the exciting news this week that I have COPD. Looked at lots of material over the last few days. Scaring myself. Again. Then, oh, not so bad if I keep exercising, eat well, take my prednisone, do regular checkups. Not great, but not bad either.
Tomorrow is Rosh Hashanah, the beginning of the days of yirah. Awe and fear. Seems about right for Kate and me. This new year will be about living joyfully, with alert curiosity, and compassion. No matter what physical or emotional challenges confront us.
Fall and the beautiful crescent of the Harvest Moon
And another diagnosis. Geez. I have what can be called either COPD or asthma. I prefer asthma but if it hacks like COPD and interferes with breathing like COPD, then it’s also that. Short story: smoking related. Errors of my youth coming back to grab me by the lobe.
You might be surprised to learn that this diagnosis gave me joy. Yes, it did. Several factors. 1st. Caught early and treated it’s not likely to progress, so permanent but manageable. 2nd. A low level concern about my breathing that I’ve had for several months has a name and a treatment. 3rd. Told Dr. Gidday that I’d felt a constriction in my lungs. That I knew my body and something was off. After the pulmonary function test, she said, “You do know your body.” I liked that. So, yippee, I’ve got COPD. No, to me asthma. But you get the drift.
The treatment is a prednisone inhaler, two puffs at night before bed. Also, for a while, I’ll use the albuterol inhaler before exercise. Lisa says I probably won’t need it after a while. “You’ll find exercising and breathing a lot easier. You’ll feel better.” Gotta like that.
Kate and I left Lisa’s office and went to NoNo’s for dinner. A New Orleans place. Great po-boys and wonderful beignets. I felt light, like a burden had gone. And, indeed it had. Strange, I know.
November, 2015
Should help with the fire mitigation work once I get my chain saw fixed. Yeah, about that. I did do the guy thing. I took it apart. I put it back together. But. In the process I jiggled some little hose thingy loose and couldn’t get it to return to its former location. Sorta deflated the guy thing. Guess it got Luproned.
Talked to Derrick yesterday and he’s ready to help and accept logs. I plan to put a sign up if he doesn’t take them all and offer the rest to folks who heat with wood. There are several up here. Cheaper than having them chipped. By a lot. I’ll keep one or two sawed up and split for our fireplace.
The dark sky. Orion high in the south over Black Mountain. The waning crescent of the Harvest moon to his left. Other stars set like diamonds. A regular moment of awe. So lucky to live here.
Yesterday I was sad. Woke up the night before with debbie downer thoughts. Does anyone like me? What have I done with my life? Is there any point to all this? Some part of me pounding on other parts of me. Who’s the witness in this conversation? Who’s the protagonist? It felt so out of character, especially for how I’ve felt over the last several months. Oh. The Lupron. This was a hot flash in my soul. No fun. Last night was fine.
Kate helped a lot that morning over breakfast.
Second injection a week from today
Though I’ve done my share of psychotropics I’ve not made my peace with this alien chemical dominating my testosterone, turning up the thermostat at unusual moments, twisting my emotions. I’d still characterize the side effects as mild though there have been a few moments like last night, a few with Kate, a couple of searing hot flashes. There’s also the fatigue and the sarcopenia. These last two make working out difficult.
Since I’m 72, sarcopenia is already having its way with me. Lupron adds to that, reinforces it. Maybe bumps it up? I get tired quicker. Have trouble advancing my weights. It’s like having a small parachute attached to my belt, extra drag.
Staunton State Park, 2017
Gonna test this on a hike this morning. I’m embarrassed to say I’ve done little hiking since we got here. No excuse. Just haven’t gotten in the car and gone to one of the many mountain trails. I worked out three, four times a week outside when we lived in Anoka county. Hiking, fast walking, snowshoeing. Not here, partly because of my breathing issues.
Going in to see Dr. Gidday today about those breathing issues. My O2 sats are low normal up here, usually ok down the hill. In the evening however and sometimes right after I go to bed they crater, going down once into high seventies. This has been true for most of the time we’ve lived here. I’ve never sought help for it before because I was doing treadmill work with no trouble.
2017, Mt Goliath Natural Area, Bristlecone Pines
On Saturday though I did my usual twenty minute pre-resistance work cardio. It was hard. My lungs felt tight. I struggled. Did it all and at the speed and elevation I wanted, but it was hard. Like with my bicep weights I’ve had difficulty moving my speed and elevation up. Also, lots of coughing, hacking.
I sound like my dad who was an asthma and allergy sufferer his whole life. Things have not been the same for me since the flu/pneumonia episode in February and March. Sorta shoved this aside for the cancer treatment, but I feel like I have to address it now. I really have no desire to wrestle with another organ system right now. But…
Though. Workout a.m. New one. First part is cardio, twenty minutes. Treadmill. I’ve been doing this for years, 25 at least, and yesterday I struggled with breathing as I went up on speed and elevation. I made it through the twenty minutes, pushing myself further than I have in a while, but it was tough.
Gonna see Lisa about respiratory issues. Don’t really want to go down another medical trail right now, but it’s time to get some clarity.
Did, for me, a serious guy thing. I took apart my chain saw, cleaned it, and, ta da! Put it back together. I know this is minor league for most of you, but for me it’s a big deal. Last time I used the chain saw I tried to cut the stall mats with it to make Kate’s walkway to the garage. Did. Not. Work. It did however coat the saw with rubber particles.
Getting ready to make use of fall weather for fire mitigation work. Going to start at the thirty foot ignition zone by taking down trees, limbing them, bucking them. Gonna hire a teenager or two to help move slash, clean up the back. We’ll see about my stamina. If necessary, I’ll take frequent breaks.
Below freezing last night with a spitting rain or meager snow. 34 when I got up. With Mabon behind us and the autumnal equinox tomorrow we’re moving toward fall and already in it. Great sleeping.
Made pork tenderloin last night. Used a Joy of Cooking recipe. Cut the tenderloin into 3/4″ chunks, doused them in beaten egg and covered them with bread crumbs. Plopped them in my new Lodge cast iron skillet. Tasty.
Autumn days come quickly, like the running of a hound on the moor. –Irish proverb
Mabon grasses, ripe with seed. Hwy 285 near Morrison
Getting close to the fall equinox. It’s late this year, Sept. 23rd. Meteorological fall began on September 1st. Mabon, the second of the Celtic harvest festivals, is today. And, the whole next week.
Here the last several days have been dry, low humidity and higher temperatures. A red flag day yesterday. Fall colors are running behind, about a week or so. The trees with color have slightly withered leaves and the fainter coloration of moisture deprivation. Makes this old horticulturist sad because it means stressed trees.
Felt worn out, exhausted yesterday. Couldn’t get up the energy to go to Gabe Herman’s shabbat last night. His dad, Dan Herman, is the President of the congregation and a bee keeper. Gabe had his bar mitzvah in Israel this summer; this was a night for him to sing the parshah and give his dvar torah, literally the words of torah. Each bar or bat mitzvah must learn their parshah in Hebrew, sing it, and comment on it. Kate represented both of us.
Drove to Baily in the a.m. for our monthly supply of indica chewables. Met Dana, my budtender. I think budmonger would have been better, classier. Sell cheese too and you could have a cheesemonger and a budmonger working together. Not sure why that appeals to me, but it does.
Later, we finally got the O2 concentrator in the mail to Georgia for warranty work. And the illuminated manuscript page on vellum off to Idaho for BJ’s house there. Birthday gift.
Could have just been a long, engaged week. Or, could be the Lupron. Maybe both.
Hmmm. A bit over eager again. For all my equanimity about cancer I’ve made some moves that reveal a reservoir of anxiety. When I wrote my urologist initially about my PSA rise, I convinced myself that I’d overstated it, moved the decimal point in error. I said this out loud to Dr. Eigner and his PA, Anna Willis. They had to call me a couple of weeks later and say, nope. It’s ten feet high and risin’. Oh.
Apparently I bounced out of the blocks ahead of the gun in the PSA I mentioned below. Supposed to be at three months. I imagine they told me that but when I got the lab order in the mail I went in to do it now overdrive. So I got’er done. It is three months, almost, from the start of the Lupron, but it’s only a month and a half from the end of the radiation. Not sure if it I’ll need another one later. Maybe.
Got reassurance yesterday from Carmela. She said, “Those are great numbers!” Feeling a little sheepish here, but it does speak to my eagerness to have information about the state of my cancer. Forgivable, I think.
Kate and I are on the lookout for joy. Simcha. Been in short supply here for a while and we’re both missing that middah. This PSA result brings me joy. Kate’s going off to the CBE board meeting last night, on her own, brought me joy. Rigel’s nose this morning as she pushed against my hand. The softness of Kep’s coat. Gertie’s wiggly desire to get outside. The waning gibbous Harvest moon this morning has shining Aldebaran beneath it. Orion is there, too. The night sky with Black Mountain below lifts me into the broader universe. Joyful.
Drove down to Caliber Collision. Got there at 7:30 am. The guys were still in a conference so I had to wait a bit. Ryan came out, beefy guy with a thick beard. Hmmm. We’ll have to replace those three panels. And, good news, it looks like the dent in the door hasn’t impacted the rest of the door. Back in five minutes.
Coulda been worse
Ryan returned bearing several pages stapled together. It looked like a hospital bill. Now this number is before we’ve looked inside. If there’s any damage to the robotics, for example, there will be supplemental work. Traveler’s requires review of all supplementals.
How long once we’ve got approval? 7 days, I’d say. That’s without supplementals. If we have to do more? Ryan shrugged. The work and the bureaucracy. Yeah. I get it.
Back up to Evergreen where I had breakfast at the Dandelion. Home. New workout in the home space. Oh, those one legged squats. My quads burned. And, those bicep curls into a shoulder press? Shoulders feeling it.
Dr. Gidday said the other day, “You have to retire to have enough time for all the doctor appointments.” All this other stuff takes time too and my stamina is not what it once was. I’m feeling crowded in my schedule with fewer things to do.
As friend Tom Crane said in an e-mail, the carnival ride here continues with Gabe’s glove and Kate’s crash. Geez. I’ve never been a fan of karma as anything more than a metaphor, but I’m beginning to wonder…
Read an excellent interview with Ram Dass in the NYT. Ram Dass Is Ready to Die. “Thoughts, thoughts, thoughts: Those are the daily attention-grabbers that make it so that you can’t come from your mind to your heart to your soul… Soul doesn’t have fear of dying. Ego has very pronounced fear of dying.”
Hadn’t considered it that way before, but it seems right. The carnival ride is just that, a contraption meant to cause fear and anxiety. If you can step aside, witness it: Oh, that guy from Denmark ran into Kate. and Oh, that Gabe. Swallowing a rubber glove; you can stay engaged, but not captured.
Yamantaka and my soul
My time with Yamantaka contemplating my own death must have helped me with step aside, be a witness. Not perfect at it, of course. Anxiety and fear about certain things still creep into my life, into our life here on Shadow Mountain. During the most intense days of the last year I really wanted respect for the work I was doing with Kate, with our life. When I felt I wasn’t getting it, I got mad. Demanded it.
In retrospect I can see the flaw in my response. The need for recognition took me away from my love for Kate, the why of my care. It negated the very stimulus that made me stay in the heat, rather than pull away. So, far from perfect.
If I look back over my life, using, as Kate calls it, the retrospectoscope, I can see that need for recognition as a stumbling block. Often. When Dad wanted me to cut my hair or leave, I chose to leave. Why? Because he wasn’t respecting my choices about the war in Vietnam. Big loss for both of us and, from this perspective, unnecessary.
I’ve been stubborn in wanting to live my life my way. Not wanting to be shaped, molded by convention or usual modes of thought. Question everything could be the Latin inscribed on my personal crest. As long as that leads me to step aside from the received way of doing things and question them, decide on my own response, it’s beneficial. When it makes me dig in my heels, be reluctant to change, it’s not. Ram Dass might say when it concentrates on my ego.
Come from your mind to your heart to your soul, Ram Dass says. This, too, feels right though that last move, from heart to soul, is hard to grasp. At least for me. Soul. A big, big idea in my current inner work.
Mind. Sure. My mind has written most of this. It’s active and a source of pleasure for me. Moving to the heart response, compassion for Gabe and his glove, Kate and her crash, Tom and his colonoscopy today (with you in my heart, guy!), I get that, do that. Perhaps not as effortless as thinking, writing, but getting to the heart is a natural move.
On the other hand the move from heart to soul, from engaged actor to witness, to the deeper, the eternal? Harder. Hard because I jettisoned the idea of a soul for so many years. Existentialist, all there is, is right here, right now. Mind and heart, yes. But nothing escapes death. Nothing remains except memories in the hearts and minds of others still living. Over the last year or so I’ve been questioning this nihilist conclusion and that questioning focuses on the soul.
Not saying I’m back to believing in an afterlife, neither heaven nor hell, reincarnation resonate for me. Not at all. But the sense that their is a core part of me, a grain of sand around which the pearl of heart and ego grow, yes, I can see that now.
Why? Namaste. The god in me bows to the god in you. Yes. There is, in you, a god, and I can sense it. Namaste’s reciprocal claim, the god in me, has lead me to nod.
Love your neighbor as you love your Self. (my capitalization) Yes. Love you, because you are in the image of the divine, as I love my own divine image. Yes.
Maybe all the grains of sand, from trees and sharks and eagles and even Donald Trump, roll down the great river of death into the Gulf of Silence, creating there a sandbar, a shifting stretch of land in the water of eternity. Is there a simulacrum of life there? No idea. But I can imagine us all together, equal to each other, all who’ve lived. In some strange way substantial. So, who knows?
42 degrees this morning on Shadow Mountain. Orion standing guard over the Southern gate, the sky black. Walked out to the white Denver Post tube nailed next to our mailbox, picked up the paper, took it back inside. Put it at Kate’s place so she’ll have it when she gets up around 7.
Spent most of yesterday with buddy Tom Crane in from the Twin Cities. We went to the Cutthroat Cafe in Bailey for breakfast. Have to remember that the room there is very live, lots of ambient noise.
front left, Mark, front right, Warren. Back left Jim, Bill, Paul, Tom, Me June, 2012
Catching up. The Woollies, our men’s group, the place we met as sort of initiates well over thirty years ago, continues to age, but with no deaths. Two Woollies turn 75 around now: Warren and Mark. Frank and Bill are 82. Or is Frank a bit older? Can’t recall. Haislet’s over 75 as is Jim Johnson. Paul and I are 72. Tom’s 71 and Scott must be about that. Stefan is the youngster, still in his mid-sixties.
Tom made an interesting comment about friendship, recalling something I’d said about foreign travel. I travel, I said, to see how other cultures eat, love, do the ordinary things of life, and to then, in turn, reflect on the options my own culture has chosen. Long term friendships are the same, he suggested. A way we can see how others live their lives.
Yes. We’re all anthropologists to one degree or another, trying to draw understanding from other cultures and from the lives of others we know well, about ourselves, the paths we’ve chosen.
It was a topic we discussed, our own paths now since we’ve laid aside some of the paths we loved. Tom the pilot is in the past. Tom the CEO, mostly in the past. Charlie the horticulturist, the beekeeper. The docent.
Bill (foreground), Tom. On his boat on Lake Minnetonka, August 2018
We drove up the Guanella Pass, repeating a journey Tom, Bill Schmidt and I took a few years ago. At 11,670 feet it’s almost exactly 3,000 feet higher than Shadow Mountain. And, chilly, with a stiff wind. While up there, I mentioned to Tom how much I love the mountains, their wildness. Later, over ice cream in Georgetown, he said much the same thing about the ocean. These are paths we’ve not given up.
Tom keeps a boat on Lake Minnetonka, a cabin cruiser, that continues his passion for the water. He built a boat, an eight-footer, when he was young. Went to sea as an officer in NOAA’s uniformed service. Spends downtime often in Mendocino, California and on Maui.
To see yourself as another sees you is to receive a gift, a gift of self-awareness stimulated by an honest, loving gaze from outside. A rare and precious thing.
Friendship, family, marriage. And unique communities like Congregation Beth Evergreen, the Woollies. That’s where we go to find out things about ourselves that we’ve overlooked, underestimated, suppressed. In a real sense the examined life is not possible without others, an irony of a sort.
Tom sent me this photograph, Guanella Pass Summit, with a caption, “You’ve found your path.” Not sure if he meant that literally, the path there beside me, or metaphorically, but it hit me in a profound way. Oh, yeah. The mountains. They’re my path. Altitude. Wildlife. Wild and stony places.
A quote often seen here on t-shirts, back windows of cars and suv’s, attached to the ubiquitous Thule cargo carriers on tops of Subarus: “The mountains are calling and I must go.” John Muir. Kate and I chose for Muir, for the mountains.
Gabe, ninth birthday, 2017
While Tom and I ended his visit with a meal at Sushi Win in Evergreen last night, Kate called. Gabe was in the hospital again. This time with a bowel obstruction. He had surgery at 1 am this morning. Seems he had swallowed a couple of magnets that screwed up his small intestine as they danced around each other. WTF.
We’ll see Gabe today after Kate’s pulmonology appointment. This one, we hope, will move us toward a diagnosis, prognosis, and treatment plan for her lung disease. National Jewish docs this time, not Colorado Pulmonology Intensivists.
