Category Archives: Family

Aging, Dogs, Family, Shadow Mountain, Weather +Climate, Woolly Mammoths

October 8, 2019 Charles Leave a comment

Fall and the Rosh Hashanah Moon

Worked out yesterday. Was sleeping really well, really well. Until. Cold noses in my face. Yes, Kep. Yes, Gertie. A yip from Gertie. Kep jumps up on my legs. OK, OK, give me a minute. Forces head back onto pillow, hopes the dogs will disappear for about fifteen minutes. Nope. All right, all right, I’m getting up. Geez. 4:30. Right on time, but no slack for a tired dad.

Kate had a dentist appointment in the morning. We took Gertie and Rigel with us since it’s cooling down up here. I drive because her ability to walk very far has diminished. I can put the car as close as possible to the entrance. She came out with brighty whities.

requires moving 5 tons of river rock. 10,000 pounds.

We’re scheduled for an absurd temperature drop on Thursday along with some snow. Hope the cold and snow calm down the extreme fire conditions we’ve had for the last month or so.

The CBE Mitzvah committee may help with my fire mitigation. My energy level for doing it is low. My desire to get it done is high. Susan convinced me that she might find some folks willing to help in some way. Here’s my e-mail to her after we talked:

Susan,

I needed your directness. It’s tough for me to ask for any help, ever. I know, I know, I’m a guy. Partly that. Partly, too, I want to do as much as I can as long as I can. It’s about love.

I promise when I wear out, before I wear out, I’ll give you a call. Right now I’m really fine. Except for that fire mitigation stuff.

It has surprised me how much having people out there that care matters. As you say, just knowing that is so much.

I’m pretty self-reliant, one of those blessing and curse sorta things, but I’ve always needed friends and community. Beth Evergreen is both. And, more.

So, gratitude to you, to your committee, to the ancient path that breeds such caring folks. We’re in this together and that makes all the difference. Really, not rhetoric.

Aging, Cooking, Family, Feelings, Shadow Mountain, Third Phase

Hmmm

October 6, 2019 Charles Leave a comment

Fall and the Rosh Hashanah Moon

A culinary Saturday. With a few oddities.

Invited Jon and the grandkids up for a High Holiday meal of brisket. I bought a brisket, two actually, at Safeway. Brought them home, froze one, put the other in the fridge for the meal. Looked up a holiday brisket recipe. Found one for the Instapot. Chopped the onions, salted the brisket, added the tomatoes. Put it in for 65 minutes. Got it out. The meat was tender. Looked good. The jus in the pot also smelled wonderful.

Kate came by and looked at it. That’s corned beef, isn’t it? Oh, boy. Category mistake. I had bought, technically, a brisket. But, well… Anyhow I’d also picked up a white cabbage for the borscht I wanted to make for Kate. It only required a quarter of the head. I cut up the rest, threw it in boiling water and, voilá, corned beef and cabbage! The meal included baked potatoes, not normally part of this actually Jewish, too, dinner, but they fit well with the original brisket plan.

Everyone said it tasted good even though the menu got altered in a strange way.

I did make the borscht, too. That was all day in either the grocery store or the kitchen. Tired.

Jon and the kids were late. Very. When Jon came in the door, I’d just gotten off the phone, the dogs were sending up their usual storm of barks for visitors. I came into the living room. Jon, I gotta tell you, I’m pissed. Oops. Not in front of the grandkids, Charlie. Too late, outta the mouth.

I wanted to talk to him about his chronic lateness, explain that it upset me, see how we could change the settings. Kate suggested this after I fumed when they were almost an hour late. She was right. Didn’t intend (mostly, anyhow) to do in that manner.

Apologized to Jon, Ruth, and Gabe. Not for what I said, but for when and how I said it.

Family. Not always easy.

Aging, Family, Health, Shadow Mountain, Third Phase

Yet More

October 4, 2019 Charles Leave a comment

Fall and the Rosh Hashanah Moon

Piling on. Saw Dr. Gidday yesterday. Follow up on the c.t. scan from Monday. A new nodule on Kate’s lung. Will have to be assessed for malignancy. Dr. Gidday also prescribed a burst of steroids to possibly help with her shortness of breath. Since we have no diagnosis for her interstitial lung disease this is what physicians call an empirical treatment. Basically, making an educated guess.

Kate reluctantly agreed to a lung biopsy, a procedure that will be both painful and dangerous, but is the only way to definitively diagnosis which of two basic types of interstitial lung disease she has. The treatments for the two types are very different, and a pathology defined diagnosis is the only way to know the difference.

We got the name of a cardiac-thoracic surgeon whom Dr. Gidday trusts. The biopsy will happen sometime in the near future. Kate’s new pulmonologist, whom she likes, is unavailable, off for two weeks. He’s at National Jewish, the U.S. hospital for respiratory disease.

A lot. More than we need right now, but this stuff doesn’t honor fatigue or worry. It just keeps coming. Kate’s done well, keeping her spirits up mostly, but a steady stream of new matters to consider makes that difficult.

I’m doing well. Did a six-minute walking distance test (self-administered) yesterday. Walked as far a healthy person my age, something like 1580 feet. Means my exercise capacity is still in the normal range. That’s a good sign for life-expectancy with COPD. I’ll take any good signs I can get right now.

Aging, Commentary on Religion, Faith and Spirituality, Family, Garden, Great Wheel, Holidays, Jefferson County, Judaism, Reimagine. Reconstruct. Reenchant., Shadow Mountain, Third Phase

Days of Awe

October 3, 2019 Charles Leave a comment

Fall and the Rosh Hashanah Moon

Here we are, paused between the New Year and the Day of Atonement. The book of life is open, waiting for your next year to be inscribed. This is a new liminal space for me. A holiday(s) in which repentance and forgiveness are the focus, both at the beginning of the new year. It’s location in the early fall (a lunar calendar) makes it a part of the Michaelmas springtime of the year and part of the harvest festivals that end with Samain on the 31st.

Sukkot follows the Days of Awe, coming three days later. Rabbi Jamie says that Sukkot used to be the primary festival at this time of year with the Days of Awe sort of a preparation for it. Sukkot is the big harvest festival in the Jewish liturgical year. It’s fun, ending with Simchat Torah. “Sukkot through Simchat Torah is nine days long. The first two days (Sukkot) and the last two days (Shemini Atzeret and Simchat Torah) are full-fledged festival days, and the middle five days are Chol Hamoed.” chabad.org

The Jewish month of Tishrei is a holiday filled time for Jews. And, they vibrate between profundity and joy. This feels congruent with the turning of the Great Wheel which has three harvest festivals over the same time period. The middle one, Mabon, on the fall equinox, is a celebratory time followed by Samain, the end of summer when the veil between the worlds thins and the dead can walk among us. (where all the goblins and ghosts and ghouls come from at Halloween)

At least in the temperate latitudes temperatures begin to cool, leaves change on deciduous trees. Farmers and gardeners harvest fruits, vegetables, grains, nuts, then prepare gardens and fields for the fallow season. The days grow shorter, frosts and freezes mark, then kill many plants. The bare trees give forests a stark look. A friend was of the opinion that the thinning of the veil came from being suddenly able to see through forests.

Kate and I need all of the spiritual juice available right now and these two holiday traditions, Jewish and pagan, fill that need.

Aging, Family, Health

Another E.R. Visit

October 2, 2019 Charles Leave a comment

Fall and the Rosh Hashanah Moon

One more trip to the E.R. Well, after a no-good, pretty bad Monday, described below, we got home around 6 pm. Both tired. Both hoping things would just magically get better.

They didn’t. When Kate went to bed, the feeding tube that is her main source of nourishment popped out. The nurse at the E.R. said, “It happens.” Kate, being Kate, inserted a #16 Foley into the ostomy, the hole in her gut, and inflated its small balloon with ten ml of water. The Foley plugged the hole, but didn’t serve well for her nighttime feeding.

Kate said this day sucked. Yes, indeed it did.

She had to have a new feeding tube, right away, because that’s how she gets the bulk of her nutrition and calories. Our primary care folks said, “Call the surgeon.” She did. Ed Smith, a solo practitioner, no spring chicken himself, was out getting a total knee replacement.

The E.R. was the next best place. So down the hill we went. New feeding tube number 1, but following up with them on the shortness of breath, number 2.

Dr. Stader, a helluva nice guy, took over. What is that? A 16? Yes. Kate had handed him the defenestrated feeding tube. The feeding tube and the Foley both have a small balloon attached to the end of the tube. It’s inflated by using a syringe to push water into it. See pic. The yellow capped port is where the water goes in.

Getting the new tube in was easy. They had to inflate it a bit more after the first try, but it worked fine last night. Yes, in a first, our fourth trip to the E.R. did not result in a hospitalization.

Kate also gave Don, Dr. Stader, a cd of her c.t. from Monday late afternoon. It had not been read. Don and the E.R. radiologist reviewed it and found no sign of a pneumothorax. Kate had feared that her shortness of breath was a second one, the first one happened back in May or June.

They did find abnormalities, interstitial lung disease, but no obvious reason for a sudden increase in, as they say in the E.R. notes, SOB. We checked out, went to the car, and drove back up the hill. She’ll followup with both her pulmonologist and Dr. Gidday.

This is getting old we both remarked while she was on the hospital bed in Swedish E.R. room #20. But, so are we.

Aging, Family, Health, Shadow Mountain, Third Phase

Another Hard Day

October 1, 2019 Charles Leave a comment

Fall and the Rosh Hashanah Moon

Even tougher day for Kate yesterday. Still short of breath. I took her in to see Tabitha, our doc’s P.A. She ordered a chest x-ray to see if another pneumothorax (collapsed lung) had manifested. Kate felt similar to the time before her last hospitalization which found a small one.

Chest x-ray negative. Hmm? So, Tabitha ordered a ct scan, still searching for either a pneumothorax or another cause for her shortness of breath. Got the scan late in the day yesterday. No results yet.

Meanwhile at home something happened to her feeding tube and she had to effect an emergency repair. Still waiting for what to do about that. Whatever it is, it will happen today along with any other followup from yesterday. And, of course, we will have to fit it in around my 9 am Lupron shot.

Kate’s made tangible progress, but having to deal with this lung stuff dispirits her. And, me. So much going here and there, waiting. Waiting. Wondering. More to come today.

Aging, Family, Friends, Health, Holidays, Jefferson County, Minnesota, Mountains, Our Land and Home, Shadow Mountain, Third Phase, Woolly Mammoths

Tough Weekend

September 30, 2019 Charles Leave a comment

Fall and the Rosh Hashanah Moon

Kate’s had a tough weekend. Short of breath, feeling tired. We didn’t make it to Rosh Hashanah services last night. A year and two days after her bleed. She’s made great progress on weight, nausea, even her Sjogren’s is less problematic. Her stamina, up till this weekend, had increased and she was doing more.

Her daily life involves a lot of tubing and schlepping. At night she carries her Inogen, portable CO2, as well as her pump and feeding supplies. Heavy for her. She does remarkably well with all of it, but this alone takes a toll, too. Hoping for a better day for her today.

Need a lung disease diagnosis, prognosis, and treatment plan. So slow.

Yesterday was Tom and Roxann’s 16th anniversary. At their wedding they featured the mandorla. “In icons of the Eastern Orthodox Church, the mandorla is used to depict sacred moments that transcend time and space…” Wiki Marriages, good ones at any rate, live into their own mandorla. Happy anniversary! It was also the 7th anniversary of Regina Schmidt’s death. Bill continues to honor her and their love. A mandorla still, I think.

Tomorrow, October 1st, I get my second Lupron shot. 9 am at Urology Associates Swedish offices. In the butt. Thank you, Sherry.

Then, let the fun begin! Hot flashes have become more frequent, a bit more intense. Still only annoying, but, they are annoying. They creep up the body, making it flushed and warm. Last night I had my sweatshirt off and the window open, the cool night breeze a relief.

Extreme fire danger here. Red flag warning yesterday and today. We have a higher fire risk rating than the area around Paradise, California. One of the highest in the country. Good times. I’ve been too nervous about the fire danger to get my chain saw going. Maybe this week.

My friend Dave, personal trainer, had bad news about his brain cancer. The tumor is back after surgery only a few months ago. He’s at the extreme end of survival time for glioblastoma. As he said, it’s a horrible place to be. 53 years old.

You might think I would be stressed and anxious, but I’m not. Living today. Will wait for tomorrow.

Aging, Faith and Spirituality, Family, Health, Holidays, Jefferson County, Judaism, Reimagine. Reconstruct. Reenchant., Shadow Mountain, Third Phase

One Year Ago

September 28, 2019 Charles Leave a comment

Fall and the new (Rosh Hashanah) Moon

Much, much better. Earlier this month, Evergreen

And so. One year. A year ago today I took Kate into the Swedish Emergency Room. It was early in the morning. In my post that day I said she’d be in the hospital at least one night. Four weeks later she came home after two weeks in the hospital and two in a rehab facility.

It has been an awful year. Two more hospitalizations for her. Imaging studies. Procedures like the placement of her stent in a mesenteric artery. Lots of doctor’s appointments. Pulmonology complications. And a bad pulmonology group. The pic line, then the feeding tube placement. Her lung disease issues are still not treated, not even diagnosed. Soon, perhaps.

She has, gradually, improved. Her weight is now consistently over 100 pounds. Her stamina has improved. She’s happier and more joyful, wonderful to see. Next month’s MVP, mussar evening group, she’s leading the discussion on joy.

I had my issues, too. The flu, then pneumonia led to a miserable February and March for me. Also led to my odd kerfuffle with my psa. The one taken during my annual physical in February. I actually told my urologist that it was fine. A mistake. Nope. It wasn’t.

You know the rest of that one. Radiation. Lupron. Treatment still underway. Then, the exciting news this week that I have COPD. Looked at lots of material over the last few days. Scaring myself. Again. Then, oh, not so bad if I keep exercising, eat well, take my prednisone, do regular checkups. Not great, but not bad either.

Tomorrow is Rosh Hashanah, the beginning of the days of yirah. Awe and fear. Seems about right for Kate and me. This new year will be about living joyfully, with alert curiosity, and compassion. No matter what physical or emotional challenges confront us.

Aging, Family, Health, Mountains, Plants, Science, Shadow Mountain, Third Phase

You know your body

September 25, 2019 Charles 2 Comments

Fall and the beautiful crescent of the Harvest Moon

And another diagnosis. Geez. I have what can be called either COPD or asthma. I prefer asthma but if it hacks like COPD and interferes with breathing like COPD, then it’s also that. Short story: smoking related. Errors of my youth coming back to grab me by the lobe.

You might be surprised to learn that this diagnosis gave me joy. Yes, it did. Several factors. 1st. Caught early and treated it’s not likely to progress, so permanent but manageable. 2nd. A low level concern about my breathing that I’ve had for several months has a name and a treatment. 3rd. Told Dr. Gidday that I’d felt a constriction in my lungs. That I knew my body and something was off. After the pulmonary function test, she said, “You do know your body.” I liked that. So, yippee, I’ve got COPD. No, to me asthma. But you get the drift.

The treatment is a prednisone inhaler, two puffs at night before bed. Also, for a while, I’ll use the albuterol inhaler before exercise. Lisa says I probably won’t need it after a while. “You’ll find exercising and breathing a lot easier. You’ll feel better.” Gotta like that.

Kate and I left Lisa’s office and went to NoNo’s for dinner. A New Orleans place. Great po-boys and wonderful beignets. I felt light, like a burden had gone. And, indeed it had. Strange, I know.

Should help with the fire mitigation work once I get my chain saw fixed. Yeah, about that. I did do the guy thing. I took it apart. I put it back together. But. In the process I jiggled some little hose thingy loose and couldn’t get it to return to its former location. Sorta deflated the guy thing. Guess it got Luproned.

Talked to Derrick yesterday and he’s ready to help and accept logs. I plan to put a sign up if he doesn’t take them all and offer the rest to folks who heat with wood. There are several up here. Cheaper than having them chipped. By a lot. I’ll keep one or two sawed up and split for our fireplace.

Aging, Anoka County, Family, Feelings, Health, Jefferson County, Mountains, Original Relation, Shadow Mountain, Third Phase, Weather +Climate

Sound like Dad

September 24, 2019 Charles Leave a comment

Fall and the Harvest Moon

The dark sky. Orion high in the south over Black Mountain. The waning crescent of the Harvest moon to his left. Other stars set like diamonds. A regular moment of awe. So lucky to live here.

Yesterday I was sad. Woke up the night before with debbie downer thoughts. Does anyone like me? What have I done with my life? Is there any point to all this? Some part of me pounding on other parts of me. Who’s the witness in this conversation? Who’s the protagonist? It felt so out of character, especially for how I’ve felt over the last several months. Oh. The Lupron. This was a hot flash in my soul. No fun. Last night was fine.

Kate helped a lot that morning over breakfast.

Though I’ve done my share of psychotropics I’ve not made my peace with this alien chemical dominating my testosterone, turning up the thermostat at unusual moments, twisting my emotions. I’d still characterize the side effects as mild though there have been a few moments like last night, a few with Kate, a couple of searing hot flashes. There’s also the fatigue and the sarcopenia. These last two make working out difficult.

Since I’m 72, sarcopenia is already having its way with me. Lupron adds to that, reinforces it. Maybe bumps it up? I get tired quicker. Have trouble advancing my weights. It’s like having a small parachute attached to my belt, extra drag.

Gonna test this on a hike this morning. I’m embarrassed to say I’ve done little hiking since we got here. No excuse. Just haven’t gotten in the car and gone to one of the many mountain trails. I worked out three, four times a week outside when we lived in Anoka county. Hiking, fast walking, snowshoeing. Not here, partly because of my breathing issues.

Going in to see Dr. Gidday today about those breathing issues. My O2 sats are low normal up here, usually ok down the hill. In the evening however and sometimes right after I go to bed they crater, going down once into high seventies. This has been true for most of the time we’ve lived here. I’ve never sought help for it before because I was doing treadmill work with no trouble.

2017, Mt Goliath Natural Area, Bristlecone Pines

On Saturday though I did my usual twenty minute pre-resistance work cardio. It was hard. My lungs felt tight. I struggled. Did it all and at the speed and elevation I wanted, but it was hard. Like with my bicep weights I’ve had difficulty moving my speed and elevation up. Also, lots of coughing, hacking.

I sound like my dad who was an asthma and allergy sufferer his whole life. Things have not been the same for me since the flu/pneumonia episode in February and March. Sorta shoved this aside for the cancer treatment, but I feel like I have to address it now. I really have no desire to wrestle with another organ system right now. But…