Category Archives: Shadow Mountain

My best guess

Spring and the Trial Moon

Sunday gratefuls: Melissa’s shrimp stir fry, chicken noodle soup. Some sleep. Sweet Shadow. Searching for the pony.

Rene Good. Alex Pretti. Say their names.

Sparks of Joy and Awe: Sadness

 

Kavannah:  Zerizut.  Zest and Zeal. Enthusiasm. Risking a gray, homebound life. Need a push.

Tarot: paused

One brief shining: Shooting for minimal but still daily posts. The view from Shadow Mountain, a bit bleak. Weak. Fatigued. Fever yesterday. So. Tired.

 

Not sure, but here’s my best guess. Two vectors, intimate yet distinctive. The physical: Bout, tough bout, of constipation. The trial introduces prednisone. Several sleeplessness nights. Perhaps a g.i. bug of some sort. Limited nutrition. Persistent dry mouth. Side effects of actinium. (maybe) Fatigue induced by low testosterone, low blood pressure, inadequate nutrition.

The psychic: Hard to bounce back emotionally. The body. Day after day. Unrelenting. Little, or glacial, movement forward. At some point a week or so ago: Is this worth it? No. Let’s go with the downward arc. Let it be.

Eleven years, now into twelve of cancer. Blood tests, insurance hassles. A constant, significant background, sometimes pushing into the foreground. Like now. Jon’s divorce. Kate’s long illness. Her death. My grief. Jon’s death. Much more involvement with Ruth and Gabe. Metastases. Stage 4. Holding myself up, finding purpose. Yes. Also. So many points of pressure.

Flash forward. See physical above. Now layer onto that eleven years of shocks and upset. The two together. Reinforcing. A negative synergy.

I know. Stabilize the physical. Clear up the psychic by reaching back, towards resilience earned and learned. Recharge. Forward.

I need to ride this out. Take care it doesn’t overwhelm me.

Right now? Difficult.

 

Finally.

Spring and the Trial Moon

Shabbat gratefuls: Melissa. Ruth. Gabe. Shadow of the morning. CNS. Neck. Gut. Shrimp stirfry. Mac and cheese. Sleep.

Rene Good. Alex Pretti. Say their names.

Sparks of Joy and Awe: Naps

 

Kavannah: Zerizut.  Zest and Zeal. Enthusiasm. Risking a gray, homebound life. Need a push.

Tarot: paused

One brief shining: First. Apologies for my erratic posting. Life over the last month, six weeks has taken a toll. Second, I am getting better sleep. Not enough, but better. I’ll admit the last two weeks have been tough. Yet, I’m still here. Adapting. Moving forward.

 

Ruth came up Thursday around 11:00. We talked. My woes. Her ulna–too long–which will get surgically shortened in early June. She had her last final that morning and all the while we talked, she kept refreshing her phone, hoping more grades had been posted. She’s done well so far.

At 6 PM the now committed Regis University student, Gabe, came up by commuter bus. He and Ruth bought pizza at Ripple for supper. Gabe says he’s not excited yet about Regis. In July, I will be.

This fall all the grandkids will be in college. Wow. A long way from Ruth’s first trip with me to the National Western Stockshow at age 3. From holding a naked 8 day old Gabe on my lap as the mohel made him part of the covenant.

The Great Circle of life.

Melissa came again. Her husband, former paratrooper in the Army’s 101st Airborne, works now as a mechanic on heavy equipment, an installer of car stackers, and the go-to guy if industrial strength belts are involved.

Yesterday she made chicken noodle soup, shrimp stir-fry, and one I don’t remember. She’s quite a cook with a wide repertoire.

Busy day yesterday interspersed with naps. Sorting through my feelings about weakness, my neck, cancer. Trying to find a sweet spot. Eluding me so far.

Debt

Spring and the Trial Moon

Wednesday gratefuls: Better sleep. Melissa. 101st Airborne. Katie. Visiting Angels. Relief.

Rene Good. Alex Pretti. Say their names.

Sparks of Joy and Awe: Sleep

 

 

Kavannah: Contentment, Histakop. I have enough. Friends. Family. Money. Health. House. Help

Tarot: paused

One brief shining: Last night. Woke up only once. Still knackered, but chipping away at the mountain of sleep debt accrued in the days following trial session #1. I also got back to sleep. Though. When I got up, I kept falling asleep at my keyboard, often leaving long trails of a single character I had to delete.

 

Melissa came yesterday. She lives in Pine, a small community west and south of here. In four hours she did two loads of laundry, cleaned up the kitchen, got my mail, and made four containers: two of chili, shrimp scampi, tater tot casserole.

She made these from ingredients I already had. This gal is serious about her work. Lifts some pressure from me.

Melissa, raised in Oregon, has lived all over the U,S,A, Her husband served in the Army, 101st Airborne Division. She has five dogs including a Great Dane and a French Pug.

Once we get ourselves fully in synch. Wow.

Protection protocol for actinium leaking from my body ends today. It’s a hassle but mostly doable. Should be easier the second time.

My body seems to have equilibrated. Glad. Biggest issue now is exhaustion, sleep debt. Strong.

I see Maddie today. Palliative care nurse. We’ll have a lot to discuss.

After Maddie, Tara and Eleanor come. With lunch.

2:30 to 6:30. Window for delivery and installation of my new dishwasher, Whew.

Gonna stop here. Tired.

Touch better

Spring and the Trial Moon

Tuesday gratefuls: Mary. Tom. Ruth. Gabe. Shadow. Night sky. Back to the Moon. More sleep. Visiting Angels. Start today.

Rene Good. Alex Pretti. Say their names.

Sparks of Joy and Awe: New drugs

 

Kavannah: Contentment, Histakop. I have enough. Friends. Family. Money. Health. House. Help

Tarot: paused

One brief shining:  Dry mouth. Makes food taste like cardboard. And, not tasty cardboard. Told my oncologist. He said, “Sweet, wet, and cold foods retain their taste best.” An odd breakdown, but o.k. Wet? Ramen it was. Sweet? Hmmm. Cold? Shrimp cocktail. Watermelon chunks. How to put together?

 

How was last night different from all other nights? I had more sleep than wakefulness. Felt almost normal. Still over tired. A big sleep deficit. Not resolved in one night. Felt so good to realize I’d slept.

A blur. A sleepy haze. No way to spend a day. Reading. Nope! TV.  Making some food. Then, a nap. Or, two.

I let inner darkness, deep shadows taint my mood, my feelings, my thinking. Yesterday. Like a fever breaking. In a moment I recast all those melancholic ideas, feelings. They come from an extreme place. When the cancer rises. When sleep recedes. With extreme visions. Enough. Let’s coast toward the end. Your G.I. tract will never stabilize.

I saw them for what they were: my back against the wall solutions. Accept what they send as a message. Don’t be afraid to do something. Radical moments require radical responses.

Or. Do they? What if the slip into fearful solutions gets hijacked by a miserable guy, leading a not so happy life. For the last week. Could he, say choose hospice? Or drink more Miralax?

A week of disorientation, stomach/bowels upset only evokes a temporary setback. Just feels bad. Yet in the moment I had my melancholy blinker on. I would let in information or thoughts that confirmed my bias. A trap, a Chinese finger puzzle of the mind.

That moment of clarity I mentioned? Took off the blinkers, helped me see the whole wonderful world. Not just the parts of it causing pain. The note from Mary saying she might come and stay with me a while. That ramen. RJ and Michelle at Bond and Devick.

Disoriented? Yes. In psychic pain? Yes. Also companion to Shadow. Maker of ramen. Liking the cool weather.

Sleep, wherefore art thou

Spring and the Trial Moon

Shabbat gratefuls: Alan. Shadow. New meds. Sleepless on Shadow Mountain. Peanut Butter. Dan’s honey. Egg burrito.

Rene Good. Alex Pretti. Say their names.

Sparks of Joy and Awe: Mystery

 

Kavannah: Contentment, Histakop. I have enough. Friends. Family. Money. Health. House. Help

Tarot: paused

One brief shining: Sleep difficulties continue. Working on it. A little pole-axed this morning. Numb. Weary. I do not function well when sleep leaves the house. Mental energy plummets. Tasks go by the way. I feel abandoned on a strip of bare reality.  No street lights. No traffic. No people. Me and the need to sleep.

 

Not loving the impact of this last week on Ancientrails. Decreased mental energy. Decreasing overall energy. Hard to sustain the most regular and predictable part of my life for the last twenty years.

I’m trying something new for the sleeping. Going to be fifteen minutes later each night until l hit 8:30 or 9:00. If that works, maybe I’ll be back  soon.

Until then, my eyes slowly close.

Bad, Bad, Bad Sleep

Spring and the Trial Moon

Shabbat gratefuls: Visiting Angels. Starts Tuesday. Xerostomia. Artemis. Shadow. Pole Star. Tesla. BMW. Volkswagen. Bolt.

Rene Good. Alex Pretti. Say their names.

Sparks of Joy and Awe: Calories

 

Kavannah: Contentment, Histakop. I have enough. Friends. Family. Money. Health. House. Help

Tarot: paused

One brief shining: Lay on right side. No. Left side. No. Stomach. Not very long. On Back. A little longer. Sleep. Broken. Insufficient. Frustrating. Annoying. Prednisone at the root? I don’t know. Three new drugs this week. Prednisone the most likely culprit.

 

I know people who’ve trouble sleeping for decades. My desperation after four nights. Helps me get it. Right now I’m half-awake, half-aware and thinking of a nap. At 5 AM!

My mind has not felt clear. As if it has a layer of schmutz between its work and my day. I don’t like to do anything complicated when I feel like that. Mentally disabled for a period of time.

Even so, I did hire Visiting Angels.  Tuesdays and Fridays. 10-2pm. Don’t know who is coming yet. Excited to get this set up and working.

I’m fading. So this ends here. At least I got something down.

Angels and Radioactivity

Spring and the Trial Moon

Thursday gratefuls:  Melania in Pine. Heather. Tara. Trump, the worst President in U.S. history. Iran. Israel. A chaotic world. Actinium-223. Medical physicists. Rebecca. Taylor. Sam.

Rene Good. Alex Pretti. Say their names.

Sparks of Joy and Awe: Nuclear Medicine

 

Kavannah: Netzach. Perseverance. Trial began on Wednesday. I need netzach as I enter this latest round of treatment.

Tarot: paused

One brief shining: Sloppiness. Careless disregard for human lives. Corruption oozing from every pore. Word salad speeches. Dunning-Krueger effect all the time. Trump has cut through our once proud nation with a buzzsaw, bringing the world hegemon to its knees, not through foreign enemies, but by domestic politics.

 

Yesterday. Lost sleep. Went back to bed then had to get up for the drive first to Littleton, then midtown Denver. By the time I got back, I was well and thoroughly exhausted. Didn’t write.

Today. Still fitful sleep, but better. More rested. Nothing out of the house today. Yay.

On Tuesday Heather from Visiting Angels. An in-home care company. She was a good listener and a lover of dogs. We talked for an hour, hour and a half. I liked her and the services they offered.

She said they recruit in the mountains for workers who can work up here. Glad to hear it because down the hill based services often don’t show up or charge higher prices. Melanie, who lives in Pine, has been waiting for an assignment.

Did not sign up yet. Wanted to talk to RJ and to Rich. RJ (money guy) said they’d increase my draw from the rollover to compensate. One box checked. Gonna call Rich this AM. He looked at folks he knew in the Evergreen/Conifer area.

I’m inclined to hire Visiting Angels, maybe today, if Rich has not found anybody. The worker, the Visiting Angel, would probably start next week. Tuesdays and Fridays. 4 hour shifts.

I need the help.

Yesterday. Bad sleep Tuesday night. Got up early, 3:30 am. Went back to bed until 6:30. Barely enough time to get ready for trial, day one.

Rebecca drove her gray Volvo up to the house at 8:00 am. After a hurried breakfast of peanuts and a protein bar, I was ready.

Made it to the cancer center before 9, my appointment time with Taylor, Dr. Dupathi’s other P.A. Perfunctory. Except. Sam, research co-ordinator, had my lab results. Since my last PSA, which was 92, my PSA went up to 520. Good thing I had Actinium-223 circulating about an hour later.

Rebecca and I drove north toward Denver on Broadway. Past the quaint and the curious shops, later the busy Colorado Capitol building with its real gold roof, and past the Brown  Palace Hotel.

At the research center I sat in a leather recliner, felt the familiar insertion of an IV. Two nurses, me, and a medical physicist.

Safety checks ahead of time, facetime with a nuclear medicine doc who had to give the go-ahead. The injection of the Actinium took five seconds. A thimble’s worth. If that.

Two ekg’s, three taking of my vitals, and an hour in the recliner after the injection.

About thirty minutes into the time, a nurse came with a Geiger counter. Click. Click. Click. Above my feet. Yes, the Actinium was in circulation.

After a review of the stringent protocols for the next seven days, a tired me got in Rebecca’s back seat, passenger side. Keeping my distance.

An hour later I let Shadow out, the first day of my trial winding down as I slumped into my chair.

Help

Spring and the Trial Moon

Monday gratefuls:  G.I. tract calmer. Lightning. Red flag day. W.U.I. Rebecca. Visiting Angels. Politics. All dogs. Shadow.

Rene Good. Alex Pretti. Say their names.

Sparks of Joy and Awe: Actinium

 

Kavannah: Netzach. Perseverance. Trial begins on Wednesday. I need netzach as I enter this latest round of treatment.

Tarot: paused

One brief shining: Today I have a meeting with folks from Visiting Angels. I need help at home. They will help me decide what kind. Looking forward to it. I realized a while ago I need help.

 

I have a difficult time making meals, seeing I get adequate nutrition. Cleaning the kitchen. Doing laundry. Standing and bending over, my head drops, straining my lower back from above. Changing sheets, pillow cases, blankets. Picking up and putting away groceries.

My old self exists. It looks at various household tasks, says, Oh, I can get those done in no time. So I get up to cook, to load the washer, to reorganize a crowded kitchen counter. And then, my back seizes up, my head drop exacerbates the back. Oof.

A helper for these tasks could lift the psychic burden–dishes, meals, laundry. I carry those unfinished tasks as a heavy collar around my neck.

I’m motivated by the trial which begins tomorrow. New, unknown side effects. Probably more appointments. I could use the unburdening.

Not cheap. Once Visiting Angels and I talk, I’ll create a budget and consult my financial folks at Bond and Devick. Plenty of money. Still, how much I leave behind matters to me.

In addition to the rollover I also have substantial equity in the house. I imagine that will more than compensate for whatever expenses I incur.

Rich Levine offered to help me look for a person. He found a companion for his mother, so he’s familiar with resources up here. After Visiting Angels and my financial consultation, I hope Rich and I can move quickly.

Moving through stages. I cooked and cleaned. Did the laundry. Not so long ago. Then, in September of 2023, I visited the Joseon Palace in Seoul. After a half hour of wandering this huge palace of Korea’s last dynasty, my back, which had never given me problems, failed. I hobbled to the car which seemed twice as far as when we entered.

A watershed moment. After much physical therapy and regular workouts, my back did not get better. Two and a half years of constant pain until my nerve ablation last November. That took away the pain, but my back problems continued.

This is why I need help.

I’m ready.

Not what I want.

Necessity.

 

Push Cancer Back

Spring and the Moon of Liberation

Thursday gratefuls: Dr. Josy. Tara and Eleanor. Marshdale Burgers. Ana. No winter winter. Shadow and the puzzle.

Rene Good. Alex Pretti. Say their names.

Sparks of Joy and Awe: Women

 

Kavannah: Areyvut. Mutual responsibility.  All humans are accountable one to another.

Tarot: #11, The Woodward. Cancer requires an unflinching acceptance of hard truths. Not easy.

 

One brief shining: Disturbing news. PSA went way up. Surprised everybody. Especially me. Bupathi says we’re so close to the trial, maybe April 8th for first treatment, that it makes sense to go forward. I hope actinium is a wonder drug.

The trial has three arms. It matters, a lot, which arm I get assigned to.

Randomization. An ugly word. Happens probably tomorrow. That’s when I’ll know. Or soon after.

A high PSA with multiple new metastases. Not a place I want to be. But. It’s where I am. I’m in need of something to slow down this latest run.

An ornery beast, this cancer of mine. Hiding, biding its time. When a treatment fails, it leaps out with a roar. As oncologist Kristie said, “This disease will run its course.”

I want my PSA lower, much lower. I want my cancer pushed back. If I can get a year, a year plus before having to change protocols, I’ll feel good. May not happen. I fear a minimal response.

My weariness peaked last week.  How do I get through this? I’m not alone.

 

Yesterday. An accidental confluence. Ana came first: dusting, vacuuming, cleaning sinks and toilets. Tara came second, bearing cheeseburgers from Marshdale Burgers. Tater tots, too. Dr. Josy came, too. She had dog poop removal equipment.

Ana has been cleaning my house since before Kate died.

Tara I’ve known for over ten years. She brings her black Doodle, Eleanor, over to the house for a Shadow play date. While the dogs play, we talk.

Yesterday, in addition to bringing lunch, Tara brought in my canned water and put it in the fridge. Then, she unloaded my dishwasher. She also brought soup.

Dr. Josy scooped up all of Shadow’s poop deposited after the dog run went into effect. She also walked the perimeter of my fence, finding two trouble spots. Which Tara volunteered Arjean to fix.

Key elements of my resilience.

Love
An empty dishwasher.
A clean dog run.

Hands in the Soil

Spring and the Moon of Liberation

Wednesday gratefuls: Dr. Josy. Heirloom Tomato Farms. Pine. Artemis. Starting the day. Trash pickup. House cleaning. Rain.

Rene Good. Alex Pretti. Say their names.

Sparks of Joy and Awe: Heirloom Tomatoes

 

Kavannah: Areyvut. Mutual responsibility.  All humans are accountable one to another.

Tarot: Nine of Stones. Tradition.    I find value in the Shema, teshuvah, tikkun, talmud Torah.

One brief shining: Set chatgpt to work on this query: I want to buy heirloom tomato plants. Can you find places? The first entry: Heirloom Tomato Farms specializes in them. Where is it? Pine, Colorado, about 20 minutes from here.

 

In Andover Kate and I grew exclusively heirloom vegetables: garlic, tomatoes, carrots. No pesticides. Careful attention to soil chemistry. Daily care.

We came to love heirloom tomatoes in particular: Brandywine, Cherokee Purple, Black Krim. These plump, heavy tomatoes– some weigh more than a pound–had a meaty interior that shamed store bought tomatoes.  What tomatoes were like before industrial farming.

It gave me pleasure to imagine a nineteenth-century gardener weeding around these same varieties. Probably in a kitchen garden on a farm. Kate and I were their hands and feet in not only a different century, but a new millennium.

I’m drawn to Heirloom Tomato Farms. In fact, I sorta want to jump in Ruby and drive over there today. Just to see their operation. Online sales begin April 12th. It’d be nice to have already developed a relationship with them before then.

Tomatoes do well in Artemis. As she proved last year. Night time warmth. Daytime temperature control by exhaust fan. I’ll have to restrain myself, not purchase more plants than I need.

I do plan to order at least two heirloom cherry tomato plants since I have all these sheetpan meals in my repertoire. We never grew them in Andover.

Soil. Hands in the soil. Seeds planted in the soil. Heirloom tomato plants. Transplanted in the soil. Water. Sun. Time. Yield: nourishment, excellent taste, abundance.

I saw a youtube video on the release of 5,000 bison on a 150,000 acre reserve of Texas panhandle scrubland. I watched twenty minutes of it, fascinated by the multiple effects a bison herd could have on that much land.

I wanted it to be true. It wasn’t. Yellowstone has a four thousand plus bison herd, by far the largest in the U.S. I don’t know why people would make such a video, but I do know this: My heart wanted it to be real.

My passion. Visionary projects. I have a list of those projects I support,* but Artemis says I’m in it, too. To plant my own seeds. Reap a local harvest. Stay in the tradition of those nineteenth-century kitchen gardens.

The Andover years put Kate and me in that tradition. With a bad back and limited stamina Artemis gives me a chance to offer an echo of them, but a real echo nonetheless.

We had a no snow winter on Shadow Mountain. My neighbors have built chicken coops and greenhouses. I’m growing heirloom vegetables. Artemis.

I have a passion for radical solutions like perennial grains; but I also have a passion for the wisdom of gardeners past, for the solutions of yesterday.

Artemis.
Hands.
In the soil.

 

*The Land Institute and its search for perennial grains. The American Prairie, creating a large, contiguous prairie restoration where, someday, bison herds might roam. Regenerative agriculture. Restoring the chinampas in Xochimilco.