Category Archives: Shadow Mountain

Dry Well

Winter and the Imbolc Moon

Tuesday gratefuls: Cold. Snow. Still falling. Coffee. -45 here in the good ol’ USA. But, +46, too. Rigel, recovering. Kep. Murdoch in Hawai’i. VRCC. Climate change. Action against emissions. Dr. Gustave, back to North Carolina. My third doctor to leave this month: Dr. Gidday, my primary care provider, Dr. Gilroy, radiation oncologist, and Gustave, ophthalmologist. Geez, guys.

Rigel gave us a scare yesterday. She lost full control of her right front leg, started shaking her head in a rhythmic tic, walked into corners. This went on for about 20 minutes while we debated whether I would take her in to VRCC.

Pretty tough on me. The thought of another dire visit to a clinic with a loved one in trouble. Too much. Decided to wait and see. She calmed down, got up in bed with us and took a nap. After that, no head shaking, full control over her right leg. As if nothing had happened.

Sent a note to her cardiologist. This could be a stroke or stroke like incident occasioned by the vegetation in her atrial valves. Or, not. A mystery. Even to Kate.

I feel better now, like I could take her in if necessary.

Kate continues a low-key, modest recovery after her recent stay at Casa Swedish. Her feeding liquid includes the higher calorie version. She’s using two cans of the new and one box of Jevity. A gradual moving up. Makes her feel strange, she says.

She’s not gotten the changed beta-blocker for her atrial fibrillation. It’s on its way. That may help change her day-to-day symptoms, calm them down. May it be so.

Rigel’s episode yesterday revealed the extent of my exhaustion. I’m running on empty. Which, believe it or not, is an actual improvement over where I was last week. Had a good workout yesterday, a long nap. Good night’s sleep. All helping, but the deficit is high.

Thanks to Easy Entrees, gift cards, Tony’s market. Microwaves and dishwashers.

46. Yes.

Winter and the waxing Imbolc Moon

Thursday gratefuls: Golden Solar. Finally. Solar power. Running the meter backward. Kate’s better day yesterday. Up until bedtime. Sleep. Exhaustion. Thoughtful gifts from Mary and Diane. Brother Mark. Alan. Tatiana. New West Physicians. Coffee. Did I mention coffee?

Lima, Peru, 2011

Another good day for Kate yesterday. Until bedtime when nausea and chest pain came for a visit. The damned feeding tube now leaks worse than it ever has.

To compound this situation we have the retirement of our primary doc, Lisa, as of January 1st and a confusing, still not resolved hand off of us as patients to a new doc. Health care reform. Police reform. Racial and economic justice. Hear my cry, oh Congress. Hear my cry, oh Biden.

Golden Solar picked yesterday morning to come and replace two microinverters that have been dead since our solar installation. The inverters report to the makers of our solar panels and we can download the reports through our own webpage. They have nothing to do with actually producing electricity. I’ve been asking them to do this for almost five years. Why now? No clue, but I’m glad it’s done.

On a personal note my PSA test results from Tuesday came back. No detectable psa. This is the test that comes after Lupron has truly left my system. It could signal a cure.

That is, I had a recurrence. My psa went up. That triggered the radiation in 2019. Coincident with the radiation I began Lupron injections. The Lupron, as I have said, suppresses psa, but does nothing directly to the cancer except deprive it of the cells it prefers. Lupron does not not cure. When it stops, the cancer can begin to grow again.

Unless it died in the radiation bath I had over 35 treatments. With the Lupron now gone, the cancer could have begun to grow again, but this test results suggests that it didn’t. That could mean that the radiation did in fact kill the cancer that had reemerged.

How will I know? I won’t. If I continue to get undetectable results for a couple of years, they’ll move my psa tests from every three months to every six months. If I continue to get undetectable, at some point, five years or so, I’ll have a presumptive cure. But. I had one of those in 2015 with my prostatectomy. So…

I’m planning a celebratory meal anyhow. Probably Sushi Win. I’m cured until I’m not. That’s the way I want to think. Not always possible, but it’s my goal.

My deep exhaustion continues. Not sure there’s a way around it until the vaccines. Naps. Long night’s sleep like last night. Ten plus hours.

Biden. 46. 45 a painful memory, but a memory. Microinverters replaced. Kate’s having good days. I have the psa result I needed. There are bright spots. And, you, dear reader, are one, too.

Home again, Home

Winter and the waxing Imbolc Moon

Sunday gratefuls: Kate at home. Atrial Fibrillation. Meds. Nurses. Wheelchairs. Swedish Hospital. Kate’s refuge. Kep, Rigel. Family home and complete. 3 days. On the way to Mar-a-Lago. Safeway pickup. Mary’s calendar gift. Precious. Thanks. Notes and cards from Kate’s friends. Evelyn Crane. Tom. His sister.

 

Honey, harvesting

Kate is home. An apparently leak free stoma site. Complete with circumferential suture. Grateful to the interventional radiologists. The pulmonologists. The cardiologists.

This visit worried me. Her, too. Had me contemplating life without her. Of course, I can do it. I mean, I can do the tasks, the chores, the necessaries. She pays the bills and folds the clothes. Yes, I can.

But.

Who would share breakfast? Commiserate over the latest Trump outrage? Answer my medical questions? Who would hug me? Sleep next to me? Well, Rigel and Kep. Sure. But not Kate. Who would recognize when I slipped into melancholy and tell me? Our family would be very different without her.

Not now. Now she’s here. And today is what counts. It’s all that counts. The rest is the idle occupation of a worried mind. Today I will see her at breakfast. Hug her. Grump about pardons-are-us in the West Wing. We’ll laugh. Do a money meeting. Wonder how Ruth and Gabe are doing? Think about Murdoch getting ready to head out for Hawai’i.

I know. If you read these pages, it’s been a downer for the last week or so. Maybe longer. This is my journal, my record of being here. Sometimes it’s this, sometimes it’s that.

Kate’s home. I can turn my mind to other things. Like the inauguration. Oh, wait…

A trip to paradise

Winter and the Waning Crescent of the Moon of the New Year

Extraordinary Time

Sunday gratefuls: A calm day yesterday. A travel day. Light, beautiful snow all day. Bruce Lee. Warrior. Writers. Painters. Sculptors. Poets. Musicians. Dancers. Actors. Great literature. Pretty good literature.

Another night from 8 pm to 7 am. All the way through. Guess I’m tired. Wonderful. Dreaming. Rigel warming my back. Kate asleep and peaceful. Kep dreaming.

Kate and I talked yesterday about an issue first raised to me by Steve Miles, a former friend and bioethicist, a physician. When I first knew Steve, he was in medical school and had devoted a lot of his time to care of his grandfather. While in that role he began to consider this question: what is health in a dying person? Bit of a mind-bender, that.

We modified the question. What is health in a chronically ill person? Like Kate. Part of it is simple: calm, disease not worsening, able to engage functions of daily living.

Part of it is not easy. How do you integrate the fact of losing capacity? When you can no longer do the things you loved? Like sewing. Going out to eat. To concerts. To sewing groups. To synagogue. Like walking easily across the floor or upstairs. Yet her mind remains sharp. Crosswords still come easily. Word finds. Solitaire. Dissing Trump.

Kate had almost a month of what we call good days. Little to no nausea. Fatigue level normal. Some desire to eat. Enough energy to play cribbage, Sherlock Holmes. Now she’s had an almost equivalent length of time with a low grade fever, intense fatigue.

So what is optimal? What is health for her? What’s the best we can expect? Seems like that month of good days might define it for now. So health means she has enough energy and stamina for getting up and down the stairs, enough desire to eat, to have some meals. It means she’s not so fatigued that bed is the constant.

We’re getting her higher caloric density feeding this next delivery. It might help. Give her more calories in less time. Perhaps some more weight, some more energy. Perhaps the stoma site could heal even more.

2014

These are not easy conversations, but they’re necessary. Imagining an impossible goal means always measuring each day by its defeciency rather than by its sufficiency. Yet not hoping for better risks settling into less when more is still possible. A tough see-saw.

Meanwhile, in other news. Murdoch has a plane ticket for the 21st of January. First stop, Seattle. Then, on to Oahu on Delta. He’s cargo. Out of the snow and into the surf. Can you imagine? What will he be thinking? Leaving a cold Colorado, crated, in the dark. No place to pee or poop except in the crate. Then, into the light, a warm to hot Hawai’an island. Mom and Dad! What a transition.

Oh. And this just in. Kate’s feeding tube popped out. Not the first time. But… Geez.

Still here. Still ok.

Winter and the beautiful waning crescent of the Moon of the New Year

Ordinary time. Is there any such thing right now?

Saturday gratefuls: Kate. A good night’s sleep. For both of us. Much needed. Rigel keeping me warm. Kep the good boy. Impeachment. 25th Amendment. Resignation. January 20th. All. Subway last night. Beef stroganoff tonight. Easy Entrees, thanks Diane and Mary. Life. Its wonder even amidst its difficulties.

 

 

 

Whoa. Yesterday was tough. I slept from eight last night to seven this morning. All the way through. Thankfully. Feel rested and ready for today. Grateful, really grateful.

Kate’s still worn out though the oxygen situation has resolved. She’s already fatigued from whatever has been going on for the last three weeks, then to have an insult like the oxygen concentrators gave her was hard. She’s still asleep. I’m glad.

As long as I can stay rested, healthy, get my workouts in, see friends and family on zoom, I am ok. Though on occasion I get pushed right up against my limits. I imagine Covid is helping me since I don’t get out, am not around sick people. Or, when I am, I’m masked. Odd to consider, but I’m sure it helps.

Life continues, no matter. Until it doesn’t, of course. That is, even when an evil bastard like Trump is in office, we still have to eat. When a rampant virus rages, we still have to sleep. When a family member is ill, we still love each other, support each other. Life is a miracle and wasting it, well, please don’t.

Got an article about building a computer. Something I’ve always wanted to try. Might just do it. Also read about an experiment that proved quantum entanglement is not instantaneous. And one about the lost merry customs of Hogmanay. And about lyfe, the idea that life might be, probably is, existing in forms we carbon based life forms might not recognize, even if it’s in front of us. And another on why water is weird. And another on why the universe might be a fractal. (thanks, Tom)

No matter how proximate or distant disturbances in the force, science goes on, literary folks write books and articles, the past remains a source of inspiration, and the future a source of hope. No matter whether life has meaning or whether it is absurd (as I believe) the secondary effects of this strange evolutionary push into awareness persist. And, yet they persisted.

Lucretia hangs in the Minneapolis Institute of Art, ready for witnesses to her dignity, her sense of honor, and her tragic fate. Goya’s Dr. Arrieta, not far from her, documents gratitude for healing and the comfort of ancestors. Van Gogh’s Olive Trees teach us that perspective differs from person to person, yet each perspective can be beautiful while remaining unique. Beckman’s Blind Man’s Buff embraces the mythic elements of life, helps us see them in our own lives. Kandinsky. Oh, Kandinsky. His colors. His lines. His elegance.

Mt. Evans and its curved bowl continues to deflect weather toward us here on Shadow Mountain. The light of dawn hits Maine first, as it has for millennia. The polar vortex slumps toward Minnesota.

Roman Ephesus. The last standing pillar of the Temple of Diana. Delos. The Temple of Apollo at Delphi. The ruined temples of Angkor Wat. Chaco Canyon. Testimony to the ancientrail of human awe. Of an eagerness to memorialize wonder.

It is, in spite of it all, a wonderful world.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Redlined

Winter and the waning crescent of the Moon of the New Year

Ordinary Time

Friday gratefuls: Oxygen concentrators. The Oxygen Concentrator Store. Kate. Hypoxia. This crisis. That crisis. Covid. Armed seditionists, domestic terrorists, right wing Trump cultists. Exposed for what the word patriotism means to them. Trump. Go away, and, don’t come again another day. Brother Mark. Diane.

So Kate. Hypoxia. One of our concentrators gave out in the middle of the night. One we’ve had in for repairs twice, the last only two months ago. A confused time ensued when I got her the portable O2 concentrator and it didn’t seem to lift her O2 saturation readings. Sleepy. Gave her my O2 tubing, connected to the O2 generator I use at night. Not a big deal for me. My need for O2 at night is due to 8,800 feet and slight COPD, but I can do without it.

In the morning her O2 sats remained low. She was gray and chilled. Very unusual, that last, for Nordic Kate. Worked stuff around, got our third O2 concentrator kicked up a level and gradually her color returned. She got warm.

But the whole ordeal had wiped her out. Understandably.

Called the O2 concentrator store and said I’d like a new one. Joshua sympathized. But. We’d get you a recertified one right away, but Covid has us with no inventory. No recertified or new units. We’ll have to ship it off and see that you have no costs involved. Best I can do.

Just another random effect of the Covid crisis. Like Seaoh spending a full month of 2020 in quarantine. Like sister Mary unable to teach in Japan or make her way to Kuala Lumpur. Like brother Mark well into his longest stay in Saudi Arabia. Like toilet paper and standup freezer shortages.

Not to mention the newest superspreader event, the storming of the US Capitol by thousands of unmasked domestic terrorists. Seditionists. Acts of treason. These are the blasphemy equivalents for a democracy.

Fraught. Tired. Running at max rpms. Anymore and I’m into the redline. Exercise tomorrow. Not now.

Ordinary time. Yeah…

 

sedition: incitement of resistance to or insurrection against lawful authority

treason: the offense of attempting by overt acts to overthrow the government of the state to which the offender owes allegiance or to kill or personally injure the sovereign or the sovereign’s family

Both definitions from Merriam-Webster

Evergreen, Pine, and Conifer

Winter and the Moon of the New Year

Christmastide, Day 9: Evergreen Day

Sunday gratefuls: Coffee. Cold coffee. The Denver Post. All print newspapers still at it. An informed citizenry. Trump, for exposing our weakness. 17 days. Buh, bye orange one. 2021. 2020 in the rear view.  Tara. Marilyn. Rabbi Jamie. Lobster and ribeye.

Vega in the snow

Once again. Pine, Conifer, Evergreen. This is our day in Christmastide. This day and the Snow day have no festivals associated with them, so we celebrate aspects of midwinter that bring us joy.

Matthews cites an interesting Cherokee story about the origin of the evergreen. The Great Spirit created plants and wanted to give them each a special gift, but could not decide which gift would go to which plants.

Second and third year cones. Cones have a lot of resin.

Among the trees, the Great Spirit decided on a contest. He asked all of the trees to keep watch over creation for seven days. After the first night, all the trees remained awake, excited at the opportunity. On the second night some fell asleep, but woke right back up.

As the nights went on, most of the trees began to fall asleep, unable to stay alert for so long. By the seventh day, all but the pine, the cedar, the spruce, the holly, and the laurel had fallen asleep.

“To you,” the Great Spirit said, “I shall give the gift of remaining green forever. You shall guard the forest even in the winter when all your brothers and sisters are sleeping.” And so they do to this day.

At our elevation the Lodgepole guard the Aspen whose golden leaves in the fall proceed their winter sleep. At lower elevations the Ponderosa, the Spruce stand guard. At the treeline ancient Bristlecone Pines patrol. In other parts of Colorado the Douglas Fir, the Engleman Spruce, the Pinon Pine, the Rocky Mountain Juniper, and the White Fir watch. The Great Spirit reminds us each Winter of the Evergreens special gift.

Here is a special Solstice salutation from Italy’s sixteenth century:

 

I salute you!

There is nothing I can give you which

You have not.

But there is much, that while I cannot give,

You can take.

No heaven can come to us, unless our hearts find

Rest in it today.

Take Heaven!

No peace lies in the future which is not

Hidden in this present instant.

Take Peace!

The gloom of the world is but a shadow.

Behind it, within our reach, is joy.

Take joy!

And so at this Christmastime, I greet you,

With the prayer that for you, now and forever,

The day breaks, and the shadows flee away!

Matthews, p. 200

Truth

Winter and the Moon of the New Year (and, Christmas Eve)

Thursday gratefuls: Alan. CBE. Jamie. Marilyn. Tara. Kate. Rigel’s clean bowl this morning. Christmas Eve. Our best present only 27 days away! Nordic Advent Calendar. Santa Claus. Magic and wonder. Young children. Another big present only 7 days away. 2021.

 

Kate’s had a long Sjogren’s flare. Started on Monday or so. Low grade temp. Fatigue. Little nausea, which is good. Drains away energy, leaves the slows. Unusual for it to last this long, often gone in a day.

We had a tough, sad, necessary talk on Tuesday. It came after a scam call about our Amazon account, after Rigel’s refusal to eat, after Kep threw up, after Option Care failed again to deliver the bags Kate uses for her tube feedings.

Pierced my calm. Frustration leaked out. Not angry. Momentarily overwhelmed. Got us to talking about this new normal. What we can reasonably expect of each other.

The tough and sad part. I’m not getting better.  It’s taken me months to accept that, to accept this. She put her hand up, indicated a long, slow decline.

I know. I just… I know, too. Wu wei. We flow with this. But, it makes me sad.

Me, too. I used to wonder which of us would die first. Now, I know.

Maybe not. Heart attack. Stroke. Car accident.

Maybe not. But, probably.

There it was. On the table. The dining room table, where, I imagine, most of these conversations happen. Laying things out, saying what’s been unsaid. Right where the plates and the knives and spoons and forks go.

Acceptance, though. Has its own power. Increases intimacy. Clears the haze away. No one is dead. No one is dying quickly. And, we’re all dying anyhow, every day closer.

OK. Not a cheery Christmas message. Maybe not. But the divine with us came out and walked the room while we talked. Reminded us of evanescence. Of the joy of being together. Of the time we have, rather than the time we don’t have.

Brought us together, appreciating each other even more. A gift of a long ancientrail, marriage and love and steadfastness.

It came upon a midnight clear, that glorious night of old.

Oh. We live in interesting times.

Samain and the Moon of the New Year (and the great conjunction of Saturn and Jupiter)

Saturday gratefuls: 32 days. 32! Nearly finished with the cds. A snowy, snow globe day. Rigel and Kep, our bed warmers. Kate. A wise woman. Smart, too. Vaccines. Coming to an arm near you. Soon. That light in the tunnel went up a bit in brightness. The star over Bethlehem explained? The Winter Solstice. Soon. Staycation.

 

Complex feelings. Friend Tom Crane talked a couple of days ago about the feelings that come up when considering climate change. Made me think about all of us right now. I’ve been labile this week, up and down. Unusual for me. If I get melancholy, I stay there a while. Up and bright? Ditto. But. Covid. Trump. Kate’s long illness. Climate change plus the long road ahead for our nation. Isolation from friends and loved ones.

Bet I’m not the only one experiencing complex emotions. Up. Vaccines. Down. 377,000 deaths. 250,000 + new cases a day. Up. 32 days! Down. Still 32 days left. Up. Renewable energy. Back into the Paris Accords. Down. Baked in heat. Record carbon emissions this year. Up. Jon and Ruth and Gabe on Google Meet. Down. Having to see them on Google Meet. Up. Many good days in a row for Kate. Down. Sudden fatigue yesterday. Up. Good days mean no nausea, no fatigue beyond the usual. Down. Stamina poor.

And these are the big drivers. Every day has mood changes. That unexpected money from the oil well! That crabby e-mail from a relative. Work or relationship stress. Kids. Dogs. Weather. Feelings of self-worth or self-worthlessness. Whatever triggers you. And we all have triggers.

Point. A complex web of stressors has us all dangling in our silken cocoons and each shake of the web warns us that the spider might be coming for her next meal. This is not normal. Where do we go? Out to eat? To a movie? Have friends over? A sabbath service? Take a vacation? Not for most of us. What’s the right metaphor? See-saw. Spider web. Thin ice with cracks. Fingernails on chalkboards. Whatever it is, this is a fraught time. An interesting time.

I’m giving myself permission to feel these movements, up and down, and to react to them. To not be hard on myself for not maintaining an up feeling in down times. Perhaps you need this permission, too.

Music

Samain and the Moon of the New Year (with the great conjunction of Saturn and Jupiter)

Friday gratefuls: 1:00 am this morning. Time to think about things. Mark and Riyadh. The Winter Solstice. The Green Knight. The evergreen Trees with lights. That big log that burns this year and next. Presents. Holiday cheer. Diane and her Easy Entrees gift. Yum. CD’s. Music. Especially Chamber Music. And, jazz. And, Janis Joplin. Vaccines. 33 days. His moving van. His moving carcass. Climate Change. Covid. And all of its many blessings.

 

A few years ago, copying Charlie Haislet, I bought a cd carousel. We put as many in it of ours that would fit. It took a long time and we created an elaborate system for knowing where each cd was in the system. Never used it. Moved it out here. It’s big and clunky. Why did I do that, I wondered? We decided to take them out, replace them in their clamshells. Underway, maybe fifty percent done. As we’ve sorted them, I’ve begun to yearn for more music in my life. Again.

Kate and I met at the St. Paul Chamber Orchestra, as you probably know. I went for seventeen years, Kate even longer. When we moved to Andover, driving in became less and less attractive. We would want to go. Mean to go. And sit at home anyhow. I love Mozart, Haydn, Faure, Chopin, Ives, Barber. I love hearing them live. Chamber music, after all. Without the big, to me often overwhelming sound, of a full orchestra. So many memorable evenings at the Ordway in Rice Park. In particular, of course, the one where I finally found the courage to ask Kate out for coffee.

Next. Figuring out a way to connect cd player to the inhouse speakers. Folks before had an elaborate sound system, but we’ve never made it work. Chicken soup? I can do. Wiring? Oy vey. I’m gonna give it the old college try, then hire geek squad or somebody like them if I can’t get it.

It has given Kate and me something to do together twice. putting them in and taking them out. Oh, well. Best laid plans…

Awake last night. Spent a few minutes wondering why I eat so much red meat. Result: I like it. An addictive personality I guess, but I can’t quit. Moved on as anyone pondering matters at 1 am is wont to do. Imaging the ending of Jennie’s Dead. The twilight of the gods. A deomachy. Want to write it. Covid. Vaccines.

Glad for Covid. Got trump on his way. Making us consider our nation and democracy at their core levels of meaning. Sad about the deaths, the isolation from friends and family. Yes. But nothing is only one thing.

Very glad Biden picked Deb Haaland to run the Interior Department. A Native American in charge of the Cabinet department most implicated in crimes against them. Should make for a very interesting four years. “ … I’ll be fierce for all of us, our planet, and all of our protected land.” WP And Michael Reagan as head of the EPA. Brenda Mallory will head the White Office of Environmental Quality. Both Black. The Sierra Club has had environmental justice at the forefront of its work for years because communities of color are disproportionately affected by dirty water, polluted air, and toxic waste. So, bout time.

Now we have to win those two Senate races in Georgia. If I were younger and Kate healthier, I’d go to Georgia to work on the campaigns. So, so important.

What a fucking year.