Imbolc Recovery Moon
A cold. Just to round things out, make sure I don’t miss any chance to boost my immune system. Kate, “Clusters of illnesses are common.” “Is that because the immune system is temporarily compromised?” “Yes.” Sigh. Not terrible, sneezing and such, mild malaise. But. Enough already. Canceled my new workout appointments because I don’t feel well and don’t want to expose others. Next week.
Kate will go to a 16 hour feeding schedule on Thursday. That will give her 8 hours of freedom from the nutrition bag and the pump. If she continues on with the tpn, next week she’ll go to 12 hours feeding, 12 off. That’s the final stepdown, I believe. Carrying her tpn pack with the nutrition bag, which is heavy, and trailing the tubing that connects it to her picc line, is made more complicated by the tubing that connects her to the oxygen concentrator. A fall hazard for sure. 8 hours of not having to juggle all that stuff will be great for her.
We saw her rheumatologist yesterday. A hell of nice guy, sweet. He told a funny
story. His teenage son took his cell phone and created a ringtone using rap music. He didn’t know. He was in with a patient, he said, when all of a sudden, “Then the motherfucker did this, and the motherfucker did that…” started coming from his phone. He’s a good enough guy to see the humor.
This fellow was on his windowsill.
Kate commented yesterday on how tiring it is to be sick. All the doctor visits. Schlepping the tpn bag, the portable oxygen concentrator, using the rollator. And, I added, the anxiety that each visit might bring bad news. This is in addition to the actual illness, the Sjogren’s, the malnourishment and weight loss, whatever lung issues she may have. This has been her life, acutely now since September 28th, and at a more chronic level for almost 18 months. It takes a strong spirit to stay centered, keep a positive attitude. And she’s done that. Most of the time.
On Thursday we see Dr. Gupta, the pulmonologist. He will have the results of the pulmonary function test she took last Thursday and his reading of the CT scan from her pneumothorax hospitalization. Two key and very important learnings for us will happen in that visit.
First, is Kate strong enough to withstand the surgery that would place the j-tube? My lay opinion is that she is, based largely on how she handled the hemicolectomy (removal of part of her right bowel) under the stress of all that had come prior to that with the bleed. Still, I do see Edwin Smith’s point that killing her to cure her is not the best course of action, so knowing her lung capacity is crucial. Gupta will tell us.
Second, and just as important for her future, is his reading of the CT scan. Does she have an interstitial lung disease? The pulmonologist at Swedish who ordered the CT thought there might be indications of it. I’m not sure what this means long term, but it could mean that there is a treatment for her breathing issues. Her rheumatologist said, “If there’s interstitial lung disease, I can treat that.”
So, no pressure.
The j-tube will improve the whole feeding process since it requires none of the sterile procedures of the tpn and uses gravity to move the nutrition.
Friend Tom Crane says his pneumonia has begun to ratchet down. Hallelujah.
I’ve been using the Instant Pot. Made a wonderful chuck roast, shredded easily, tasted great. On Saturday I made rice. Turns out three cups of dry rice makes a lot of cooked rice. It cooked for 1 minute. Sort of. There’s a learning curve for guys like me. First, the instant pot, a pressure cooker with bells and a literal whistle, has to heat up to the temperature required to produce the right pressure. That can take a while, maybe 5-10 minutes. Then, it cooks for 1 minute in the instance of rice. Fast, right? Well, yes. But, with foods like rice that have liquid and plump up after cooking, you do what the instant pot cook books call natural release. In essence that means you wait until the pressure cooker depressurizes on its own. 10 minutes. So, to cook 1 minute takes around 20 minutes in real time. Has some resonance with DST.
“We had expected everything but revolt

Third grocery delivery today. Won’t keep this up forever, but for right now, with my recovery still young and home chores, medical visits, it’s an errand I don’t need. Glad the option exists.



When we can surf the oncoming power of seasonal change, laying our bodies on the waves and riding them all the way into calm water amazing things can happen. Imagine being in the tube of the curl, the always radical, vital current of the growing season pushing toward the frozen ground, warming it, crashing into it as Phaeton whips his sunny chariot against the dark of the fallow season’s long night.
Zoomed yesterday with old friends Paul, Tom, Bill, Mark. Paul’s in Maine, the other three are still in the homeland, getting blasted by an old-fashioned grit your teeth, squeeze the steering wheel, freeze up the nasal passages Minnesota winter. Nostalgic, eh? Given my 40 year residence there I’m ashamed to say that I’m not sorry to have missed it. Minnesota macho no longer.
Not my goal. I thought about it. I see the allure. In some ways I wish I could want that, too, bow out of the ongoing stream of pressures, both domestic and personal. But I don’t want it. To be clear I’m not a stress junkie, nor an adrenaline junkie. I manage my anxiety much, much better than I ever have, not letting the day’s troubles spill over into what might happen next. I’ve tried and often succeed at acting without care for results. But stress per se still keeps me engaged.
