Kate

Imbolc                                                                      Recovery Moon

A cold. Just to round things out, make sure I don’t miss any chance to boost my immune system. Kate, “Clusters of illnesses are common.” “Is that because the immune system is temporarily compromised?” “Yes.” Sigh. Not terrible, sneezing and such, mild malaise.  But. Enough already. Canceled my new workout appointments because I don’t feel well and don’t want to expose others. Next week.

tpn packKate will go to a 16 hour feeding schedule on Thursday. That will give her 8 hours of freedom from the nutrition bag and the pump. If she continues on with the tpn, next week she’ll go to 12 hours feeding, 12 off. That’s the final stepdown, I believe. Carrying her tpn pack with the nutrition bag, which is heavy, and trailing the tubing that connects it to her picc line, is made more complicated by the tubing that connects her to the oxygen concentrator. A fall hazard for sure. 8 hours of not having to juggle all that stuff will be great for her.

We saw her rheumatologist yesterday. A hell of nice guy, sweet. He told a funny 20190311_100818story. His teenage son took his cell phone and created a ringtone using rap music. He didn’t know. He was in with a patient, he said, when all of a sudden, “Then the motherfucker did this, and the motherfucker did that…” started coming from his phone. He’s a good enough guy to see the humor.

This fellow was on his windowsill.

Kate commented yesterday on how tiring it is to be sick. All the doctor visits. Schlepping the tpn bag, the portable oxygen concentrator, using the rollator. And, I added, the anxiety that each visit might bring bad news. This is in addition to the actual illness, the Sjogren’s, the malnourishment and weight loss, whatever lung issues she may have. This has been her life, acutely now since September 28th, and at a more chronic level for almost 18 months. It takes a strong spirit to stay centered, keep a positive attitude. And she’s done that. Most of the time.

On Thursday we see Dr. Gupta, the pulmonologist. He will have the results of the pulmonary function test she took last Thursday and his reading of the CT scan from her pneumothorax hospitalization. Two key and very important learnings for us will happen in that visit.

lungFirst, is Kate strong enough to withstand the surgery that would place the j-tube? My lay opinion is that she is, based largely on how she handled the hemicolectomy (removal of part of her right bowel) under the stress of all that had come prior to that with the bleed. Still, I do see Edwin Smith’s point that killing her to cure her is not the best course of action, so knowing her lung capacity is crucial. Gupta will tell us.

Second, and just as important for her future, is his reading of the CT scan. Does she have an interstitial lung disease? The pulmonologist at Swedish who ordered the CT thought there might be indications of it. I’m not sure what this means long term, but it could mean that there is a treatment for her breathing issues. Her rheumatologist said, “If there’s interstitial lung disease, I can treat that.”

So, no pressure.

The j-tube will improve the whole feeding process since it requires none of the sterile procedures of the tpn and uses gravity to move the nutrition.

Friend Tom Crane says his pneumonia has begun to ratchet down. Hallelujah.

 

When Will It Ever End?

Imbolc                                                                            Recovery Moon

Going to On the Move Fitness to pick up a new workout on Tuesday. Then, back on Thursday to make sure I have the exercises down. This will be a gradual ramp up back to where I was before the month that shall not be named. Buddy Tom Crane, in a surprising show of solidarity, chose to have pneumonia over his birthday, too. Which is today. Not necessary, Tom.

instant potI’ve been using the Instant Pot. Made a wonderful chuck roast, shredded easily, tasted great. On Saturday I made rice. Turns out three cups of dry rice makes a lot of cooked rice. It cooked for 1 minute. Sort of. There’s a learning curve for guys like me. First, the instant pot, a pressure cooker with bells and a literal whistle, has to heat up to the temperature required to produce the right pressure. That can take a while, maybe 5-10 minutes. Then, it cooks for 1 minute in the instance of rice. Fast, right? Well, yes. But, with foods like rice that have liquid and plump up after cooking, you do what the instant pot cook books call natural release. In essence that means you wait until the pressure cooker depressurizes on its own. 10 minutes. So, to cook 1 minute takes around 20 minutes in real time. Has some resonance with DST.

Before I start posting here I look at my favorite comic, Questionable Content. You have to go back several months to get the drift. Then, I often move on to Ancientrails and begin to write. But, just as often, I think, “I wonder what the idiot did now?” That means turning to the NYT. He almost never disappoints. Like cutting social programs, plumping up the military, and cutting 8.6 billion dollars out of the total budget to build this shibboleth. Team Trump is one heroic gutted, long red tied, obsessive ideologue trying to do something he doesn’t understand, using tools he doesn’t understand. When will it ever end, as the 1972 song by the Awakening asked.

20190117_103526
And Big Foot’s gone even further into the mountains.

There was a time, not that long ago in historical terms, when being in the Rockies, living on a mountain peak as Kate and I do, would have been an effective shield against the current chaos and cruelty that passes for the U.S. Executive Branch. Not today. The elk, the mule deer, the bears, the mountain lions, moose, bobcats, fox, fishers, and martins still live here, but even these wild inhabitants cower before the Trump. He appoints people like Ray Zinke to watch over the great public lands of the West. He dismantles clean air regulations. He loosens the rules governing hard rock mining. He opens those same public lands to oil drilling, uranium mining, and industrial forestry. When. Will. It. Ever. End.

Even the mythical, or semi-mythical creatures of the Rockies are under siege, too.

 

Nightmare Number Three

Imbolc                                                                              Recovery Moon

Friend Tom Crane found this very, very strange Steven Vincent Benet poem, Nightmare Number Three. You can find the whole poem here.

Made me think of the Charlie Chaplin movie, Modern Times.

Modern Times“We had expected everything but revolt
And I kind of wonder myself when they started thinking–
But there’s no dice in that now.
I’ve heard fellow say
They must have planned it for years and maybe they did.
Looking back, you can find little incidents here and there,
Like the concrete-mixer in Jersey eating the wop
Or the roto press that printed “Fiddle-dee-dee!”
In a three-color process all over Senator Sloop,
Just as he was making a speech.  The thing about that
Was, how could it walk upstairs?  But it was upstairs,
Clicking and mumbling in the Senate Chamber.
They had to knock out the wall to take it away
And the wrecking-crew said it grinned.
It was only the best
Machines, of course, the superhuman machines,
The ones we’d built to be better than flesh and bone,
But the cars were in it, of course . . .”

The Shadow of an Autocrat

Imbolc                                                                          Recovery Moon

Been meaning to post this for a while. I have a stack of books (surprise) next to my reading chair. When I turn on the lights in the loft, this is the shadow they project on the wall under the south facing windows.

Is it his true shadow? Manifest on Shadow Mountain. If I move the books, will his shadow leave him? Anyhow. Weird, I thought.

20190308_061931

This, That

Imbolc                                                                    Recovery Moon

Dave and Deb
Dave and Deb

My recovery is going well. Scheduled two sessions with my personal trainers for next week. Gotta get back to working out. Important for both Kate and me. Still need to improve my stamina and these workouts will do that.

Kate’s pleased. She’s gained a bit of weight, up to 81.6 and these new nutrition bags have about a third more calories in them. Hopefully they’ll bump her up some more. So far medicare has relented and agreed to pay. We’ve got seven more days of the tpn for sure. Hope they agree to keep it up until she can have her j-tube placement.

When we see Gupta next Thursday, he will review the pulmonary function test she had yesterday and the ct scan from her pneumothorax incident a couple of weeks ago. He’ll make a determination then about her surgery risks.

Minnesota has had and is having a brutal winter from both a cold and snow perspective. I feel ya, guys.

grocery deliveryThird grocery delivery today. Won’t keep this up forever, but for right now, with my recovery still young and home chores, medical visits, it’s an errand I don’t need. Glad the option exists.

Asked Gupta about moving. He said it’s not urgent and not necessary if using oxygen is ok with Kate, and me. I suspected that was the case. He did say, too, that we’d feel better if we moved down the hill and even better if we moved to sea level. So, a judgment call. Kate’s to make. I’m all right here though by definition I would benefit, too.

Alan and Tara
Alan and Tara

We’ve been absent for a little over a month from CBE. Feels weird. Lots of social support there, e-mails, phone calls. But seeing folks in person, being part of the regular ebb and flow is important. Missing it. Next week is the chicken soup cookoff. I’ve entered. Kate loves my chicken soup. The recipe is straight off a Golden Plump chicken. Golden Plump was formerly owned by the Helgeson’s, including my friend Stefan. Lost the recipe a long time ago, but I’ve got it down now. I like the frisson of entering my Minnesota chicken soup in a contest with the folks who talk about CNS as the Jewish penicillin. Gonna have Kate make the matzo balls.

Today is a travel day here. R&R. Get the groceries put away. Cook something. Read. Relax.

Breathe

Imbolc                                                                              Recovery Moon

Black Mtn. Drive, toward Evergreen
Black Mtn. Drive, toward Evergreen

Black Mountain has the early sun, golden, on last night’s wet snow. Stolid. Present. Vishnu to the winds’ Shiva.

While making the instant pot chuck roast on Monday, I took all the spices and herbs out of the cabinet, spread them out on the counter. Gonna put’em back in an order that makes sense to me. But. We’ve been so busy that they’re still there. This afternoon or tomorrow for sure. Most used are going to go in the door rack, then I’m thinking alphabetical for the first two shelves, storage on the top. An undone chore.

Back to the pulmonologist today for a full pulmonary function test for Kate. That plus the ct from her pneumothorax will determine whether she’s fit to have the j-tube placed. I liked Gupta, the pulmonologist. Clear, straight, no bullshit.

We got another shipment of styrofoam containers with supplies for Kate’s tpn. More nutrition bags, bigger this time. She’s going to 20 hours, down from 24, of feeding. Not sure why the bags are bigger for less time, but I’m sure there’s a good reason. These folks seem to know their business.

These last few days have felt hectic, like we’re moving faster than our energy level allows. That’s ok for a bit, but at some point we need what Kate and I call a travel day. On our honeymoon we decided to give ourselves a quiet day after travel to each new city. Catch up from the hassle and fatigue of travel. Stayed in our vocabulary.

I’m feeling good. Pretty much back to normal.

 

Geez.

Imbolc                                                                       Recovery Moon

Tom, Durango, Co. pre-beard
Tom, Durango, Co. pre-beard

I’m kicking the Valentine Moon off the header at 1% waning. Just want it off my page. No more Valentine Moons. Bad February. Bad. I hope, with Recovery, to initiate a month in which both Kate and I head towards healthy. I’m already well on the road and Kate looks like she’s taking the first tentative steps.

Here’s some irony. Good buddy Tom Crane wrote me a note. Guess what it said. “I have pneumonia, too.” WTF! Paul Strickland, who was on the Zoom call on Sunday as well, had the plague. As his doctor called it. I mentioned that earlier. I had the plague plus pneumonia. That’s 3 of the 5 guys, all over 70, who had or have serious respiratory illnesses. Again, I say, no more Valentine Moon. Bad February. Bad.

Kate and I are off to a pulmonologist today. Haven’t seen one of those yet. She may get a full pulmonary function workup because part of the visit is to assess her fitness for surgery to place the j-tube. It’s also to follow-up on x-ray findings of possible interstitial lung disease. Afterward we plan to go to Maria’s Empanadas and pick up a dozen of Kate’s favorite midnight snack.

The solar snow shovel has melted most of the snow from the “monster” storm we had over the weekend.

Got out the Instant Pot and made chuck roast last night. Tasty. Also, got all of the spices and herbs out of the cabinet. They’re currently all over the kitchen counter. I’m going to rearrange them in hopes of being able to find easily what I need. Where’s Maria Kondo? I might need her. Do I love the second can of cumin? Does it bring me joy?

 

 

Straight WM/WF Seeking Ostara

Imbolc                                                                      Valentine Moon

Roman goddess Flora
Roman goddess Flora

As Minnesota struggles with a long, harsh winter, we’re only 15 days from the spring equinox. Here in the Rockies we have snow, cold but not bitter temps, and no signs that spring is two weeks away. March and April are the big snow months here, so we’ll see the egg laying rabbit much later, May probably. Though we will also have very warm weather mixed in with the snows.

The Great Wheel may be lined up with our house, at least I hope so. Kate’s looking and sounding better each day. She’s doing her ot and pt, smiling and laughing. By spring (meteorological spring) it’s possible she’ll have her j-tube in, too. Weight gains in the offing. With the exception of some stamina that I won’t regain until I start working out again and a slight cough, I’m back to normal.

Over the month of February the cliche it’s always darkest before the dawn kept popping into my head. Boy, I’d think each time, dawn must be pretty damned close. Nope. Well, maybe March will see Aurora and the rejuvenating power of spring reinforce each other here on Shadow Mountain. In fact, I just noticed that Ostara, an occasionally used Wiccan name for the Spring Equinox, is the German goddess of both dawn and spring.

ostara2When we can surf the oncoming power of seasonal change, laying our bodies on the waves and riding them all the way into calm water amazing things can happen. Imagine being in the tube of the curl, the always radical, vital current of the growing season pushing toward the frozen ground, warming it, crashing into it as Phaeton whips his sunny chariot against the dark of the fallow season’s long night.

I’m usually reticent to see winter go. Just one more week of cold and snow, please. And, I do want more moisture here. Always. But this year I’m excited to see springtime in the Rockies, hoping that our life on Shadow Mountain will be a joyous part of it.

 

 

Stress is good

Imbolc                                                                              Valentine Moon

Minnesota-Winter-Weather-Forecast 2019Zoomed yesterday with old friends Paul, Tom, Bill, Mark. Paul’s in Maine, the other three are still in the homeland, getting blasted by an old-fashioned grit your teeth, squeeze the steering wheel, freeze up the nasal passages Minnesota winter. Nostalgic, eh? Given my 40 year residence there I’m ashamed to say that I’m not sorry to have missed it. Minnesota macho no longer.

30 years + I’ve known these guys. There’s an ease to being with them, even in little squares (Hollywood Squares sort of) created by the magic of pixels and bytes. We know the back story, the good times and bad, the struggles and the victories. When we speak together, the subtext is often as loud as the spoken. When Roxann’s mother faces the transition from home to assisted living, we know about Tom’s mother and the long process finding her a safe place. When Bill says, how do you solve a problem like Regina, paraphrasing the Sound of Music, his history with the Jesuits and hers as a nun is unspoken. So is the difficult time span of her death from cancer now some years ago. Old friends, like old dogs, are the best.

Ode signed in from near Muir Woods, a cottage overlooking the Pacific. Two weeks of vacation. Tom’s headed for Hawaii and Mama’s Fish House later in the month. Bill spent five days in Florida. Paul had, and I think I had something very similar, a disease that his doctor called the plague. His doctor fingered the same culprits as Kate did for me: kids. Fomites, Kate says. Paul visited grandkids; I taught 6th and 7th graders.

post furmination
post furmination

Took the Kep in for furmination yesterday. Before our now below zero temps we had a run of 50 degree weather. (The reason Minnesota macho has faded from my body.) Blew his coat. When he blows his coat, he looks like a ragamuffin, small tufts of fur his body deems not necessary hanging all over, falling off, making Kate crazy. Off to Petsmart for a thorough wash, comb out, vacuuming. He looks pretty good now.

Ode talked about living a stress free life. I know what he means, no work deadlines, no income needs, no drama at home, much less home maintenance (condo), the chance to go where you want, when you want. Like California in the midst of a brutal Minnesota winter. The chance to work on art projects either set aside while working or not pursued. The chance to visit with old friends, go to the Robert Bly evening at Plymouth Church. In general a life peaceful, not troubled by the undercurrents of the workaday world. He calls this The New Senior Reality Game-plan. And good for him.

reslienceNot my goal. I thought about it. I see the allure. In some ways I wish I could want that, too, bow out of the ongoing stream of pressures, both domestic and personal. But I don’t want it. To be clear I’m not a stress junkie, nor an adrenaline junkie. I manage my anxiety much, much better than I ever have, not letting the day’s troubles spill over into what might happen next. I’ve tried and often succeed at acting without care for results. But stress per se still keeps me engaged.

I like the challenge of learning to teach middle schoolers, of integrating enough of the Jewish tradition to walk among my friends at CBE, of caring for Kate and the dogs. I like the challenge of coming up with a new novel, even though I’ve never sold one. I like the challenge of becoming a better painter, of finding my voice with oils.  I could give up home maintenance responsibilities, like when we have ice dams to deal with or a driveway to plow or electrical matters to resolve. The priority of the living ones in our nuclear family, Kate, the dogs, and myself vitiate that for now, however. I enjoy the challenge of learning about astrology, keeping up with science, especially NASA and genetics.

still me
still me

Stress itself is neutral. In fact, it can be a good thing, motivating us to stay in life, to learn, to engage, rather than become socially isolated. It can, of course, be too much. And recently I’ve had more, much more, than I want. I would appreciate it if some of this stress would fall away. Kate gains 20 pounds, gets her stamina back. I’m back to working out, a real stress reducer. I have a novel and a painting underway again. But for all the stress in my life to go? No, not for me.

I’m in this life fully until it’s over and for me that means stretching myself intellectually, emotionally, spiritually. Stress free is not for me.

 

 

 

 

 

 

 

Better

Imbolc                                                                                Valentine Moon

Kate and Jackie
Kate and Jackie

Glad to see the Valentine Moon fade away. It presided over a difficult month.

The snow storm that wasn’t. Instead of 6-12, we got maybe 2. But it is -2 for temp. Before the storm that failed Kate and I watched the fog rolling in, covering the lodgepoles and the aspens. A bit of snow here and there, but mostly the fog coming down Black Mountain.

Kate’s feeling better. She smiles more, jokes. Her food intake was low and not nutritious before the tpn. It seems like we may be going in the right direction. At last.

Got the freezer defrosted. We have an insulated garage. As I restored the items to the freezer out of the Option Care styrofoam containers, I took inventory. Good stuff in the freezer still, even though we lost several items to freezer burn. Chili. Gravy. Challah. Sauces.

Very domestic day. Defrost freezer. Change Kate’s nutrition bag. Cook supper: hamburgers, tator tots, and kale cooked with bacon in the instapot. A load of laundry. Empty and reload the dishwasher. Home stuff. Satisfying.

Saw a meme on facebook. A deranged, autocratic psychopath showed up in Singapore. Kim Jong Un was there, too. Korea is personal. Not only is it SeoAh’s home, the two of them could return to Osan at some point.